Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Overreacting To All Illness?


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I feel like after the ordeal with celiac and taking 6 months to heal I overreact to any illness. If I get a cold I get so upset and depressed about it. I get upset and lose perspective on the severity of things. Like latey having nausea from iron supplements messing up my gut I was so down about it.

Anybody else feel this way?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

Link to comment
Share on other sites
Skylark Collaborator

Being ill with a virus changes my brain chemistry and I get upset and depressed. Are you that way too?

I'd definitely be upset about having my gut messed up again by a supplement after finally figuring out the celiac! That's just normal.

Link to comment
Share on other sites
CR5442 Contributor

Totally with you all on this. It's taken so long to just relax and realize its just a cold or a strained limb, rather than something to do with celiac. I used to over-analyse everything! Some deep breathing is really helping. And some gardening. My little daughter and I planted over 200 bulbs today!

Link to comment
Share on other sites
sandsurfgirl Collaborator

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

I've been diagnosed for nearly 2 years now. It just took me 6 months gluten free to have one symptom free day. It's been a long process.

But you are right, even 2 years is not that much considering I was diagnosed at 40 and had celiac my whole life.

I was hospitalized the beginning of October for an adrenal problem and was in there 10 days. I have been exploring the mind body spirit connectedness thing a lot since then. How much illness I have claimed through fear and thinking sick all the time. I've realized how much negativity I took on because of being sick with celiac and I'm working hard to release that.

That all ties in with this thread too, because I'm realizing how much my perspective has been skewed by my battle with celiac. All those years of being sick and not knowing why has give me this fear of sickness so that I overreact to simple things. It's the first day of my period today (sorry to men who are reading this) and I got so down about being tired when I woke up and not feeling good.

I'm starting therapy again on Tuesday and I really want to work through this and get the right perspective.

Link to comment
Share on other sites
mamaw Community Regular

Sounds like you understand the issues you face , now just to overcome them.. I know that can be difficult to say the least.. We all have different coping skills so what might be easy for some is very difficult for another....here's hoping at the end of this you will have smooth sailing....After I had my thyroid ablated I became very sad , tired& depressed..(doctors didnt give correct meds).if it doesn't stay in check with meds I have issues...

blessings

Link to comment
Share on other sites
sandsurfgirl Collaborator

Mamaw, I always like to read your posts. I didn't know you had that thyroid treatment done.

I was coping really well until I was hospitalized for the adrenal stuff. Then they told me I probably had Cushings, then they said maybe not. Now I'm retesting for Cushings, but it's looking good that I don't have it.

This new health experience pushed me over the edge and coming back hasn't been easy. My dad is battling lung and brain cancer- so much worse than what I've faced and I feel guilty for having my own emotional struggles with illness.

I realized that there were still unresolved issues over celiac that were hiding under the surface.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

It sounds very much like Post Traumatic Stress Disorder. For years, decades even, you have been battling an unknown enemy. Journaling, reading, researching, testing, probing, all while you are suffering debilitating side effects; it is enough to cause PTSD-like symptoms. You have been your own health warrior, advocating and even questioning your doctors and your self. It is no wonder that you are startled at every bump in the road. Totally understandable.

I have finally relaxed a bit but it is a challenge at times. We have developed a special relationship with doctors, all doctors no matter how good they are - they have to prove themselves to us. For so long doctors have told us what they think and many times they are wrong. We have had to rely on ourselves. So, even when we find a doctor that understands or even diagnoses us, we don't trust that they know everything. We are skeptical. When someone is diagnosed with a broken leg or even the flu, you don't question the doctor. You are given a remedy/prescription and off you go. Complete trust. But celiac disease is tricky and we are finding that doctors, even the knowledgeable ones, don't know the nuances of how it affects everyone. The fact that it is an autoimmune disease makes it even harder. There is so much gray and not much black and white. All this makes us question everything about our health and our bodies. We are waiting for the next shoe to drop. Our bodies have abused us and we are waiting for the next blow. Man, I am just Little Miss Sunshine this morning, huh? :huh: Just trying to say that 'I hear ya!'

Chin up, sandsurfgirl - you are not in this alone! We totally get where you are in your journey.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,053
    • Most Online (within 30 mins)
      7,748

    BethRhoda
    Newest Member
    BethRhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
×
×
  • Create New...