Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
NoodleUnit

Keratoconus

Rate this topic

Recommended Posts

http://en.wikipedia.org/wiki/Keratoconus

I was found to have this condition nearly 20 years ago. It's essentially a warping of the cornea which can cause light to smear and requires the use of hard contact lenses to correct.

I was lucky enough to find an expert in the field working as an optician near me. The hospital uses him as the keratoconus specialist round here. One interesting thing that he has found is that every single person he's treated for this condition has also had asthma. He talks of people having a particularly sensitive body type,so they're prone to getting these kind of conditions.

As such he was entirely unsurprised to hear of my gluten issues over the last year.

Now, as most of us know, there's a high incidence of asthma amongst the celiac disease community. What I'm wondering now is, given that my and many other's asthma got better after going gluten-free, is my keratoconus linked to my gluten problems too? Does anyone else here have this condition?

Share this post


Link to post
Share on other sites

http://en.wikipedia.org/wiki/Keratoconus

I was found to have this condition nearly 20 years ago. It's essentially a warping of the cornea which can cause light to smear and requires the use of hard contact lenses to correct.

I was lucky enough to find an expert in the field working as an optician near me. The hospital uses him as the keratoconus specialist round here. One interesting thing that he has found is that every single person he's treated for this condition has also had asthma. He talks of people having a particularly sensitive body type,so they're prone to getting these kind of conditions.

As such he was entirely unsurprised to hear of my gluten issues over the last year.

Now, as most of us know, there's a high incidence of asthma amongst the celiac disease community. What I'm wondering now is, given that my and many other's asthma got better after going gluten-free, is my keratoconus linked to my gluten problems too? Does anyone else here have this condition?

Keratoconus is an autoimmune disease, so yes it is likely to be related-- the way we celiacs say "If you've got one autoimmune disease, you often get more." This article talks about a link. http://www.osnsupersite.com/view.aspx?rid=77187 The article even says that "IBS" is autoimmune. Silly doctors. IBS is a catch-all condition that is really just a cop-out by docs. And yes, "sensitive body type" that rings a bell too, with leaky gut being a primary suspect in the cause of immune system problems.

I have Fuchs Distrophy, which is also a cornea disease but from what I've found, it is not autoimmune nor is it related to celiac. The only connection that I've found is that a lack of antioxidents may cause Fuchs and 30+ years of undiagnosed celiac in my case may have lowered my antioxident absorption a bit. I will need two cornea replacement surgeries in the next 2-3 years.

Will you need a cornea transplant or cornea surgery?

Share this post


Link to post
Share on other sites

Thanks for the reply. I've had the IBS catch-all thrown my way several times. Always gets me angry. Thankfully I won't need either transplant or surgery. We caught it early and controlled it with hard contacts. It hasn't changed at all in the last ten years.

Share this post


Link to post
Share on other sites

My husband had keratoconus, had bilateral cornea transplants. Sees well now. He hasn't been diagnosed with celiac though.

Share this post


Link to post
Share on other sites

My husband had keratoconus, had bilateral cornea transplants. Sees well now. He hasn't been diagnosed with celiac though.

Interesting. I notice from your sig, your children have the condition. I take it you yourself don't? Could this be the hereditary link for your kids? Ever since I found about the hereditary link I've seen undiagnosed or misdiagnosed evidence of it in my family for at least 3 generations.

I think I got away very lightly ( so far ) with the Keratoconus. It's a pain to wear hard contacts, but I'm so glad no-one will be operating on my eyes.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×