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Albion

Celiac, Candida And Nystatin

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Hi everyone,

I was diagnosed with Celiac through a blood test along with candida albicans; my level for candida was +3.3 about 3 months ago. My Dr. put me on liquid Nystatin 1,000,000 units (about a tablespoon) 4x a day. I have been following the yeast and gluten free diet devoutly.

I am wondering 2 things:

Has anyone on this forum has had success in treating celiac-related candida with nystatin? As restrictive as a gluten free diet is, gluten free is paradise compared to a candida diet!

When/did those who took nystatin stop the die off reaction? 3 months in and I am still feeling the die off with each dose I take. (The naturopath, who is angry I am taking a prescription, just said I was "weird" and she'd never known anyone to herx throughout the whole dose.)

This is such a positive place to get feedback. I really appreciate anyone's help with this.

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I have to wonder if you are reacting to the Nystatin rather than experiencing die-off, since it's going for this long and you feel it after every dose.

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I have to wonder if you are reacting to the Nystatin rather than experiencing die-off, since it's going for this long and you feel it after every dose.

I think you might be right. The pharmacist pointed out that the liquid Nystatin I was taking was 33% sucrose. The herxheimer reaction I got every time I took it could have been a reaction to liquid sugar.

I am going to have the format of the Nystatin changed to pill form and take the herba anti-fungals my naturopath recommends.

Does anyone else have celiac/candida success strategies they can share?

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I think you might be right. The pharmacist pointed out that the liquid Nystatin I was taking was 33% sucrose. The herxheimer reaction I got every time I took it could have been a reaction to liquid sugar.

I am going to have the format of the Nystatin changed to pill form and take the herba anti-fungals my naturopath recommends.

Does anyone else have celiac/candida success strategies they can share?

I know exactly what you are going thru as I did the Candida diet twice in my lifetime, when I thought my problem was all Candida and knew little to nothing about Celiac. Turns out I had both problems but following the Candida diet and taking Nystatin made me feel a whole lot better. You are also correct in that the Candida diet is much harder to deal with than going gluten free....the gluten-free diet is easy compared to that.

Here is what I learned in the 2 years I followed the diet....taking liquid Nystatin is a big no-no as it's mainly sugar and sugar feeds yeast. Yes, hard to believe that anyone would prescribe a sugar laden med to combat Candida but that's how deep the ignorance goes! :o You need to get the powdered form of Nystatin and either have it put into capsules OR mix it with water and drink it...which is what I did. The sugar laden Nystatin is mainly used to give to infants with thrush so they'll swallow it. Nystatin by itself is not the greatest thing taste-wise and infants would spit it out. It still feeds the yeast and that's why some babies have repeat occurrences of thrush but try telling the medical profession that! DUH! You are actually making the yeast growth worse by using this form and that's why you are having reactions. Been there, done that, no thank you.....

If you follow a strict Candida, absolutely no sugar diet :( , and take the Nystatin in it's natural form, it should clear up the problem well. I got sick from die off within a month of starting this regimen and got a Rx for Diflucan to take as an added boost and it worked well. After about 6 weeks on the diet when the die off subsided, I felt better than I have felt in years. Still had Celiac but I didn't know it at the time. The Candida diet will make a Celiac feel better because you cannot have any refined carbs at all. The only carb I ate was brown rice....nothing white at all.

I wish you luck with this because it is hard....mood swings from hell from the sugar withdrawal. Gluten was a piece of cake to give up compared to this! However, those level out after a few weeks and you get your sanity back.

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I know exactly what you are going thru as I did the Candida diet twice in my lifetime, when I thought my problem was all Candida and knew little to nothing about Celiac. Turns out I had both problems but following the Candida diet and taking Nystatin made me feel a whole lot better. You are also correct in that the Candida diet is much harder to deal with than going gluten free....the gluten-free diet is easy compared to that.

Here is what I learned in the 2 years I followed the diet....taking liquid Nystatin is a big no-no as it's mainly sugar and sugar feeds yeast. Yes, hard to believe that anyone would prescribe a sugar laden med to combat Candida but that's how deep the ignorance goes! :o You need to get the powdered form of Nystatin and either have it put into capsules OR mix it with water and drink it...which is what I did. The sugar laden Nystatin is mainly used to give to infants with thrush so they'll swallow it. Nystatin by itself is not the greatest thing taste-wise and infants would spit it out. It still feeds the yeast and that's why some babies have repeat occurrences of thrush but try telling the medical profession that! DUH! You are actually making the yeast growth worse by using this form and that's why you are having reactions. Been there, done that, no thank you.....

If you follow a strict Candida, absolutely no sugar diet :( , and take the Nystatin in it's natural form, it should clear up the problem well. I got sick from die off within a month of starting this regimen and got a Rx for Diflucan to take as an added boost and it worked well. After about 6 weeks on the diet when the die off subsided, I felt better than I have felt in years. Still had Celiac but I didn't know it at the time. The Candida diet will make a Celiac feel better because you cannot have any refined carbs at all. The only carb I ate was brown rice....nothing white at all.

I wish you luck with this because it is hard....mood swings from hell from the sugar withdrawal. Gluten was a piece of cake to give up compared to this! However, those level out after a few weeks and you get your sanity back.

Thank you so much for this information! I had no idea that the ignorance went as deep as you point out it has. I figured the manufacturer knew what they were doing. But your point about infants and thrush makes sense. They can't take pills and would spit out something bad tasting.

I have been good with the candida/no sugar or starch diet (not even diet coke and fake sugar!) and still felt badly. I was crying with frustration and fear that I would never get better. Driving my naturopath (who wanted me to only use garlic, caprylic acid etc and didn't know enough about Nystatin liquid b/c that's not her field) and my therapist insane.

I think I will stick to my naturopath's recommendations until I can get my GP to switch to the Nystatin pills.

It is wonderful to hear that you recovered and can live on the Celiac diet and feel well. I am aspiring to get there.

Thanks to you and to the other well-informed people on the forum. I don't know what I would do without all of you to help me problem solve.

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Thank you so much for this information! I had no idea that the ignorance went as deep as you point out it has. I figured the manufacturer knew what they were doing. But your point about infants and thrush makes sense. They can't take pills and would spit out something bad tasting.

I have been good with the candida/no sugar or starch diet (not even diet coke and fake sugar!) and still felt badly. I was crying with frustration and fear that I would never get better. Driving my naturopath (who wanted me to only use garlic, caprylic acid etc and didn't know enough about Nystatin liquid b/c that's not her field) and my therapist insane.

I think I will stick to my naturopath's recommendations until I can get my GP to switch to the Nystatin pills.

It is wonderful to hear that you recovered and can live on the Celiac diet and feel well. I am aspiring to get there.

Thanks to you and to the other well-informed people on the forum. I don't know what I would do without all of you to help me problem solve.

The most important thing to do is not eat any sugar or food that will break down into sugars...refined carbs.

They feed yeast. For an example, place some yeast in warm water and add some sugar...this is called "proofing" the yeast. It proves the yeast is still good or active. The yeast goes wild!

Nystatin is a Rx anti-fungal. It is the big guns as far as combating yeast systemically. Caprylic acid is supposed to be very good also but I think for a really bad yeast issue, a Rx anti-fungal works best. It does take time and you may have to follow the diet for awhile....like recovering from Celiac. Once the problem is gone, however, you don't have to be as strict with the sugar intake. You may feel crappy for a couple of months too as the yeast is purged from your system. It does work well though.

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Hi everyone,

I was diagnosed with Celiac through a blood test along with candida albicans; my level for candida was +3.3 about 3 months ago. My Dr. put me on liquid Nystatin 1,000,000 units (about a tablespoon) 4x a day. I have been following the yeast and gluten free diet devoutly.

I am wondering 2 things:

Has anyone on this forum has had success in treating celiac-related candida with nystatin? As restrictive as a gluten free diet is, gluten free is paradise compared to a candida diet!

When/did those who took nystatin stop the die off reaction? 3 months in and I am still feeling the die off with each dose I take. (The naturopath, who is angry I am taking a prescription, just said I was "weird" and she'd never known anyone to herx throughout the whole dose.)

I successfully treated my candida infection (diagnosed by stool test) with nystatin. I took that for 3 months. I had side effects from nystatin during most of that treatment period. I don't believe in 'die off', but I experienced the listed common side effects from nystatin.

I agree that the 'candida diet' is waaaay too restrictive. I also haven't read that anyone with candida (idagnosed by stool test) ever 'starved out' their candida with that diet. I often read about people, who suspect they have candida, using that diet and then thinking they recovered from candida. However, I never read that they were actually diagnosed with candida by stool test before using that diet.

I have 6 diagnosed food allergies in addition to celiac (gluten intolerance restriction). I have lots of safe foods even with my 7 food restrictions. I tried the anticandida diet for 3 weeks when my NP suspected candida. I lost 4 pounds in 3 weeks and didn't need to lose any weight. Fortunately I didn't have candida at that time. So when I had measureable candida on a later test, I opted to take Nystatin, rather than try that diet again.

This is such a positive place to get feedback. I really appreciate anyone's help with this.

I successfuly treated my candida infection (diagnosed by stool test) by taking Nystatin for 3 months. (The next 4 stool tests were free of candida.) I don't believe in 'die off', but I did experience the listed side effects of Nystatin for almost all 3 months of the treatment period. Eventually my body adjusted to that drug and I stopped experiencing the symptoms.

Before I evern was diagnosed with Candida, I tried the 'anti candida' diet for 3 weeks and lost 4 pounds when I didn't need to lose an ounce. So when I acutally had candida, I opted to use Nystatin. I have celiac disease and 6 additional diagnosed food allergies. I have lots of safe foods with those 7 allergy restrictions. By comparison I had difficulty finding anything to eat on that candida diet.

I've read about people using the anticandida diet to 'starve' their yeastie beasties to death. However, most people using that diet were not actually diagnosed by stool test with candida. They just tried the diet because they thought their symptoms meant they had candida. So when the symptoms went away, they thought the diet cured them. I haven't meat anyone who recoverd from diagnosed (by stool test) candida, by using the anticandida diet.

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I successfuly treated my candida infection (diagnosed by stool test) by taking Nystatin for 3 months. (The next 4 stool tests were free of candida.) I don't believe in 'die off', but I did experience the listed side effects of Nystatin for almost all 3 months of the treatment period. Eventually my body adjusted to that drug and I stopped experiencing the symptoms.

Before I evern was diagnosed with Candida, I tried the 'anti candida' diet for 3 weeks and lost 4 pounds when I didn't need to lose an ounce. So when I acutally had candida, I opted to use Nystatin. I have celiac disease and 6 additional diagnosed food allergies. I have lots of safe foods with those 7 allergy restrictions. By comparison I had difficulty finding anything to eat on that candida diet.

I've read about people using the anticandida diet to 'starve' their yeastie beasties to death. However, most people using that diet were not actually diagnosed by stool test with candida. They just tried the diet because they thought their symptoms meant they had candida. So when the symptoms went away, they thought the diet cured them. I haven't meat anyone who recoverd from diagnosed (by stool test) candida, by using the anticandida diet.

Well then, consider me your first person who achieved this! :D I tried taking the Nystatin alone and it did not work without following the diet. I did do both, though, as you cannot get rid of candida with just the diet alone. If you keep feeding the candida, then it's difficult to eradicate it from your body. However, there are varying levels of infection so maybe some have luck with just using Nystatin...who's to say?

I also did not find the candida diet difficult after about a month....it's like Celiac, the longer you do it and the more you learn about food choices, the easier it becomes. It all depends on how badly you want to get better.

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I think you might be right. The pharmacist pointed out that the liquid Nystatin I was taking was 33% sucrose. The herxheimer reaction I got every time I took it could have been a reaction to liquid sugar.

I am going to have the format of the Nystatin changed to pill form and take the herba anti-fungals my naturopath recommends.

I think you misunderstood me. Nystatin is a fairly toxic drug and while it's supposed to be poorly absorbed, allergies and side effects are still possible. Herxheimer symptoms are not very specific and many of the symptoms overlap Nystatin toxicity reactions. Nystatin can damage your liver if your intestines are damaged enough from celiac that you are absorbing some of it.

I don't understand why folks take Nystatin for mild candidiasis. Candida is pretty easy to kill with probiotics and safe, natural foods like coconut oil. I'm not sure people grasp how toxic antifungals are. As one of my biology teachers said, "fungi are eucaryotes and so are we". Nystatin is safe if and only if your gut is in good enough shape that none of it gets through to your bloodstream. That's too big an if for me.

Agreed that diet alone won't cut it for candida. Nature abhors a vacuum and as soon as you shift off the restrictive diet it will grow right back unless you manage to get a good population of bacteria going.

By the way, you don't need a stool test to diagnose candida if you're getting recurring thrush or vaginal yeast. If it's in one part of your body, it's everywhere.

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I think you misunderstood me. Nystatin is a fairly toxic drug and while it's supposed to be poorly absorbed, allergies and side effects are still possible. Herxheimer symptoms are not very specific and many of the symptoms overlap Nystatin toxicity reactions. Nystatin can damage your liver if your intestines are damaged enough from celiac that you are absorbing some of it.

I don't understand why folks take Nystatin for mild candidiasis. Candida is pretty easy to kill with probiotics and safe, natural foods like coconut oil. I'm not sure people grasp how toxic antifungals are. As one of my biology teachers said, "fungi are eucaryotes and so are we". Nystatin is safe if and only if your gut is in good enough shape that none of it gets through to your bloodstream. That's too big an if for me.

Agreed that diet alone won't cut it for candida. Nature abhors a vacuum and as soon as you shift off the restrictive diet it will grow right back unless you manage to get a good population of bacteria going.

By the way, you don't need a stool test to diagnose candida if you're getting recurring thrush or vaginal yeast. If it's in one part of your body, it's everywhere.

Skylark...you are being a scaremonger here. People who take Rx anti-fungals are taking it for systemic candida infections that may have plagued them for years and just taking probiotics will not get rid of the problem. It's part of the therapy but not the sole cure.

Systemic candida can kill you and that is not a scare tactic..it's true. I can assure you that when I was suffering from it, it was hardly a "mild" case. I never got rid of the thrush I had and had a sore throat for most of a one year period. I also lost my sense of taste and had a sore tongue, which made it difficult to eat. Try that and then tell me I shouldn't have taken Nystatin. Not only did it do the trick, it did not damage my liver or cause any other side effects while taking it. Combined with the diet, I got rid of the infection and never had a problem with it again.

I don't mind if people choose a more natural route for their treatment but when you have it bad, you sometimes have to nuke the problem hard. Candida as a systemic issue is far more toxic to your system than Nystatin is.

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I don't like your insulting tone, Gemini. Someone says "I have a reaction after every dose of a drug" and anyone with a shred of common sense would say "gee, maybe it's the drug."

I'm glad to hear Nystatin helped you, but it doesn't mean it's the right medicine for everyone. People die of bacterial infections, but they also die from penicillin allergy. Like antibiotics, Nystatin is somewhat overprescribed. I just think Albion needs to talk to her doctor to make sure the reactions are still Herxheimer and not a allergic sensitization or irritation/toxicity issue.

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I don't like your insulting tone, Gemini. Someone says "I have a reaction after every dose of a drug" and anyone with a shred of common sense would say "gee, maybe it's the drug."

I'm glad to hear Nystatin helped you, but it doesn't mean it's the right medicine for everyone. People die of bacterial infections, but they also die from penicillin allergy. Like antibiotics, Nystatin is somewhat overprescribed. I just think Albion needs to talk to her doctor to make sure the reactions are still Herxheimer and not a allergic sensitization or irritation/toxicity issue.

So sorry! I did not want to start an argument. I have just been very despairing about the treatment. I was taking a sugar-loaded version of Nystatin (used for infants with thrush, it turns out!) and I feel like I didn't make any progress for the 2 months I was taking it.

My die off has been worse over the last few days with Caprylic Acid, so I am thinking I am just very sensitive to the chemicals the yeast lets go of when it dies. I am going to have my doctor do a stool culture to see what we are actually dealing with now. Did I make it worse? Is it just the same? Maybe a little better?

That brings me to my next question....what type of stool test is best for detecting candida? My celiac panel was done by a blood test and that was conclusive. I am not sure the same is true for candida.

Thanks to all of you that have been helping. I live alone with this and the isolation is tremendous and painful.

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So sorry! I did not want to start an argument. I have just been very despairing about the treatment. I was taking a sugar-loaded version of Nystatin (used for infants with thrush, it turns out!) and I feel like I didn't make any progress for the 2 months I was taking it.

My die off has been worse over the last few days with Caprylic Acid, so I am thinking I am just very sensitive to the chemicals the yeast lets go of when it dies. I am going to have my doctor do a stool culture to see what we are actually dealing with now. Did I make it worse? Is it just the same? Maybe a little better?

That brings me to my next question....what type of stool test is best for detecting candida? My celiac panel was done by a blood test and that was conclusive. I am not sure the same is true for candida.

Thanks to all of you that have been helping. I live alone with this and the isolation is tremendous and painful.

You have no need to apologize for an argument that didn't happen. I was not offended by Skylark's remark...I just think it was overreaction to a statement I made that I stand by. You are correct....the Nystatin in oral suspension will help to keep you sick if it is a true candida because it's all sugar. You may have a tough time in the beginning because of die off...that's what happened to me. It wasn't the Nystatin that made me feel bad, it was the die off. After about 2 months, things got a lot better. With continued use, I felt great.

Just make sure you go to a reputable doctor to be diagnosed and treated for it. I am not sure of specific testing but most doctors who deal with this problem will know what tests to run. Mine were done almost 20 years ago so I can't remember specifics. It takes a long time to combat a systemic candida problem, much like Celiac. It can take almost a year to eradicate it from your system.

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I have had Candidiasis twice now. I was treated two years ago, followed the diet religiously, took Nystatin for three months. My doctor told me I could go back to eating normal foods. I got sick again. I have a new provider at the clinic, she is the founder of the clinic (my other provider left).  My new provider has diagnosed me as having the Candidiasis back again as well as discovering I have Celiac Disease. She has me on the diet for both Celiac Disease and for Candidiasis. Both doctors have/had the Nystatin compounded for me so that it would not have added sugar.  This time, I took Diflucan for one month and then had to wait for my gut to get healthy enough to take Nystatin. My doctor explained that the Celiac Disease and the Candidiasis are not strangers to each other.  She told me I never should have gone back to eating sugar. Is that true? Do people who have had Candidiasis and Celiac Disease have to restrict sugar forever.  Or, is she just a real perfectionist. I mean, no sugar at all. I am also not to eat any processed food or gluten. A ton of other restrictions too. No mold, fungi, cheese, vinegar, soy, and so forth and so on.
This is an old post, probably none of you will even see this reply. I just wondered if any of you had resumed eating sugar. If so, in what amounts. Does the Candidiasis keep coming back? Please let me know what your outcomes were. Thank you.

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15 hours ago, Lisa Purcell said:

I have had Candidiasis twice now. I was treated two years ago, followed the diet religiously, took Nystatin for three months. My doctor told me I could go back to eating normal foods. I got sick again. I have a new provider at the clinic, she is the founder of the clinic (my other provider left).  My new provider has diagnosed me as having the Candidiasis back again as well as discovering I have Celiac Disease. She has me on the diet for both Celiac Disease and for Candidiasis. Both doctors have/had the Nystatin compounded for me so that it would not have added sugar.  This time, I took Diflucan for one month and then had to wait for my gut to get healthy enough to take Nystatin. My doctor explained that the Celiac Disease and the Candidiasis are not strangers to each other.  She told me I never should have gone back to eating sugar. Is that true? Do people who have had Candidiasis and Celiac Disease have to restrict sugar forever.  Or, is she just a real perfectionist. I mean, no sugar at all. I am also not to eat any processed food or gluten. A ton of other restrictions too. No mold, fungi, cheese, vinegar, soy, and so forth and so on.
This is an old post, probably none of you will even see this reply. I just wondered if any of you had resumed eating sugar. If so, in what amounts. Does the Candidiasis keep coming back? Please let me know what your outcomes were. Thank you.

Hello Lisa......I am another Lisa.  I have met a lot of people with Celiac whose names are Lisa so it has been joked around here that having the name of Lisa is a symptom of Celiac Disease.  :P

On to your question.......I have had candida and was diagnosed with Celiac in 2005.  Your doctor is correct......the two problems are not strangers to each other.  I believe that systemic candida problems can result from years of undiagnosed Celiac and the resultant leaky gut and annihilation of good gut bacteria. It's the good bacteria that keep yeast in check so it's not a stretch to think that one can be the result of the other.  I would add that I saw a real MD about this issue and not a naturopath. I had chronic thrush which would not go away until I used an anti-fungal and followed the candida diet. I initially felt fantastic after following the diet for about 2 years but then the Celiac symptoms reared their ugly heads and I got sick all over again.  No return of thrush but all those other horrible gastric problems that go hand in hand with Celiac.

I did not take Nystatin for 2 years......just long enough for all my symptoms to go away and then the diet alone to bolster healing.  I also used DiFlucan for about 2 weeks when the worst of the die off was happening. Yes, these meds are not something to use without medical supervision but systemic candida can really do a number on you too.  I don't think many people understand how badly it can mess you up.

The end result has been, between the treatment I did for candida and the diagnosis of my Celiac and following a strict gluten-free diet, that I can consume sugar without any return of symptoms.  I will say that my consumption of sugar is low and I am not snacking on sugar all day, like many people do.  I tend to crave a cookie or two in the evening, with my tea. I have taken probiotics for about 30 years now so keep up with that. I will pig out on Thanksgiving, like everyone else, and not worry about it. That means pie.  ;)

The restrictions this doctor has you on is really meant for the treatment phase. I eat cheese, vinegar and soy with no problems. I do not go overboard with sugar but enjoy some every day. I could not stay on that diet forever because I struggle to keep weight on so was strict with it for treatment only. I eased back into those forbidden foods gradually with good results. I think as you have the Celiac diagnosis also, once you get your gut back into good working order, you could try and introduce those foods when you find your gut feeling a lot better with no symptoms. Good probiotics are essential to repopulate your gut. The root cause of this problem is the Celiac so once that is taken care of, everything should heal.  Just don't tell the doc, if you think it will create an argument. I was successful in adding sugar back into my diet, in reasonable amounts.....not the amounts that mainstream Americans are eating it.  You will also find you can be satisfied with smaller amounts because you are going to feel so good after doing this, you won't want to return to feeling like crap from eating too much sugar.  The first real dessert I ate in a restaurant after about 2 years of having little to no sugar (only the sugar that happens from breaking down complex carbs) I was so buzzed, I could not sleep all night. That is what too much sugar will do!  :o

One more thing.......do not think you have to give up sugar for 2 years. You might heal faster.  I healed well enough but wanted to ensure the thrush would not return so I ditched the sugar for longer than I probably had to. Give it at least 6 months and see how you do but I am guessing that the undiagnosed Celiac had a lot to do with you relapsing.

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    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com

    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center