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Tanner's Mom

Fevers, Anyone?

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My son is newly diagnosed with Celiac and went gluten-free on Thanksgiving. He seemed to respond well to the change in diet. On Christmas eve he ran a 102.5 fever and started feeling ill. I thought he had the flu. Christmas night it was a 100.0 temperature and Monday night back up to 102.4. I still thought he had a virus. However, the temperature broke by Tuesday afternoon and since then he's been acting very "Celiac." Just lying around, being lethargic, saying he's sick, etc. (He has Down syndrome and is nonverbal, so there's a lot he is unable to tell me.)

I searched through forums and found a number of people who say they run low-grade temps after being "glutoned" and only one that ran a fever. Are fevers a standard course of symptoms for some with Celiac? Also, I was always under the impression that symptoms last maybe 2-3 days, but we're on Day 6 of him feeling poorly. Does this sound like a potential Celiac response or is this a longer reaction than most experience?

Thank you for your input!

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I tend to run fevers as well and have night sweats something fierce when I have gluten. I'm currently on day 4 of feeling like poo from accidentally eating it. My son (9 w/down syndrome) was also diagnosed shortly before thanksgiving. It's so frustrating not knowing how he's feeling. I'm definitely feeling the pressure to not miss a thing with him.

Sorry I don't have any advice but hopefully this gets easier and if you need to vent I will listen.

Jess

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That is very frustrating. My daughter had constant fevers before going gluten free. Since last November, 2010, when she was diagnosed, she's had one low grade fever for one day. I don't think she was glutened. I think she just got a virus.

I always assumed the fevers were a side effect of undiagnosed celiac, because her body couldn't fight anything off. I don't know if getting glutened causes a fever. All I know is her immune system is so much stronger since going gluten free.

I hope your son feels better very soon.

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When my DH breaks out I will get fevers. Didn't in the beginning but I will now. Feels like I have a flu with a rash.

It truly sucks.

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I tend to run fevers as well and have night sweats something fierce when I have gluten. I'm currently on day 4 of feeling like poo from accidentally eating it. My son (9 w/down syndrome) was also diagnosed shortly before thanksgiving. It's so frustrating not knowing how he's feeling. I'm definitely feeling the pressure to not miss a thing with him.

Sorry I don't have any advice but hopefully this gets easier and if you need to vent I will listen.

Jess

Hi Jess! Tanner is 11, by the way, so we're not that far ahead of you. How's your son's speech? Is he able to communicate much? Tanner has severe Apraxia so we're beyond limited. How is your son doing with understanding that there's "good" food and "bad" food? I will say I've been very pleasantly surprised at how quickly Tanner has not only learn to recognize potential good food and bad (although the majority he doesn't comprehend) and how accepting he is when I say that certain foods will make us sick. We were at Olive Garden the other night and after ordering a gluten-free dinner for Tanner, the server politely asked if we still wanted the bread brought to the table. Tanner instantly spoke up and said *wagging his finger with a smile on his face* "No, no, no. Bread... sick!" It was such a relief to watch him turn down his favorite Olive Garden bread and instantly recognizing it'll make him sick! We have a long road ahead of us, and a lot of learning, teaching and vigilance, but there's hope!

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I sent you a private message....Sam also has speech apraxia but he is gaining new words like crazy! He's not a picky eater so being told no is hard especially when he will eat anything lol! We live in a rural community so going out to eat hasn't happened yet but maybe someday.

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