• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
mushroom

We Need To Start A Thread On Stupid Stuff Doctors Say!

Rate this topic

Recommended Posts

My GI Doc just apparently came out from under the rock he was living under. IH knows all about this guy haha.

"I think you're lactose intolerant. I think you should stop drinking milk." Really doc, haven't had a glass of milk in 3 years since being diagnosed by my PCP.

This one is even better. " That test that you came up positive on (DGP IgA) is the old test that they used to use. It really means nothing. It might mean however that you could develop Celiac Disease at somepoint in your life. You also could develop Crohn's from this test too." Well i didnt know that they did the gene test from my blood. I'm pretty sure they just did the celiac panel from looking at my paper work. Oh and I don't think you can tell if you are going to get Crohn's from a CELIAC PANEL. Idiot :rolleyes:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Well my gi told me that I couldn't possibly have celiac because no one in my family is diagnosed with it.

And my new allergist keeps trying to tell me that I don't have asthma and all my asthmatic symptoms come from acid reflux. I've had asthma for over a decade and my endoscopy last fall showed NO signs of acid reflux. How on earth does he think that I could have daily acid reflux for so long without any damage or symptoms of acid reflux?

Share this post


Link to post
Share on other sites

wow, i'm sorry to hear about all of the stupid doctors out there...

as time goes by and i am feeling so much better, i have been reading more about celiac and the various symptoms and so many of them click, it just makes so much sense now...

and it's really weird to eat and not feel the food moving through my system like a firey torpedo

just a repeat of my last doctor's visit for y'alls enjoyment...

decided to give the gluten free diet a shot after talking to y'all, other docs, and nutritionists

went to a follow up today to discuss the results of going gluten free, this is a synopsis of the conversation:

doc: so how are you feeling?

me: so much better, could i have celiac disease?

doc: no, because you had negative blood work

me: oh, ok, not even with a positive biopsy?

doc: no, because you had negative bloodwork

me: i heard that you can have a false negative and still have celiac if you have a positive biopsy

doc: no, because the blood tests are much more accurate these days, you are probably just gluten intolerant

me: ok, do you think i should be concerned about my kids, they've had many of the same symptoms i had

doc: oh, you have to get them tested

me: oh, really, why?

doc: because you had a positive biopsy

me: oh, so if they have positive bloodwork then they have celiac disease, even without a biopsy?

doc: well yeah, but a biopsy IS the gold standard, but because you had a positive biopsy, you can assume that if they have positive bloodwork that they have celiac disease

me: oh, ok

doc: it's very important that you get them tested, because if they do have celiac and it goes untreated they could have long term health problems like fatty liver and other problems

me: oh, so could my results showing fatty liver be because of longterm (35 yrs) untreated celiac disease?

doc: no, because you had negative bloodwork, but if the gluten free diet is working for you, you should stay with it, but it is difficult and expensive, so just having an intolerance is better because you don't have to be so strict...because if you did have celiac and weren't diligent enough it can cause long term health problems like fatty liver...

hmmm....i think i may actually be losing my mind...

  • Upvote 3

Share this post


Link to post
Share on other sites

Well my gi told me that I couldn't possibly have celiac because no one in my family is diagnosed with it.

Oh yes, I forgot that one! :lol:

My answer to that one was...?.

"Well, someone in the family has to be diagnosed first. Guess that's me."

Share this post


Link to post
Share on other sites

When trying to figure out what is wrong with my daughter, my doctor said "it can't be Celiac - you'd know it. She'd be having bloody diarrhea". *sigh*

Share this post


Link to post
Share on other sites

1st visit to the Pediatric GI for my 2.5yr old son.

Us: How is Glute Free Food?

Doc: It's horrible. I'd have to kill myself if i couldn't have regular pasta.

I'm glad my son was too little to pay any attention to him.

He's still a good doctor though....just alittle ODD! ;)

  • Upvote 1

Share this post


Link to post
Share on other sites

Yesterday at my office visit, my D.O. was reviewing my blood work ordered by a neurologist in the same medical group about four months ago.

She said she didn't know how to interpret the results, but it looked like I could be positive for Lyme Disease. She said "I never order blood tests I don't know how to interpret", then proceeded to tell me that her 12 year old daughter had lyme disease, with the rash, six years ago when they lived in the Northeast, but DD had been treated and was fine. Doc said she would call the Neurologist to discuss interpretation of the Lyme Disease panel and call me if I needed to do anything.

I bet any mother on this forum who had a child with Lyme Disease would know how to read the blood draw results.

I received a call from her office today. They said I needed to pick up a prescription they'd called into my pharmacy for antibiotics and referred me to an infectious disease specialist. I told both the Neurologist (in the visit when she announced she was ordering the test 4 months ago) and the D.O. who reviewed the results that I didn't have any signs or symptoms of Lyme Disease, hadn't lived in an area known for Deer Ticks for over 35 years.

I did a quick internet search and it turns out if you have high levels of antibodies or an autoimmune disease or are older, false positive Lyme Disease blood work isn't uncommon. I don't know if it's a charm, but I represent all three categories.

I didn't pick up the prescription.

In the same visit, she told me that something I bought in a Health Food Store couldn't hurt me. She said if it was sold in a Health Food Store, it was benign, couldn't hurt me, otherwise it wouldn't be allowed by the FDA to be sold in a Health Food Store. I don't know how, but I stifled myself. I'm fed up with doctors! In this neck of the woods, they're bull-headed and uninformed, and talking to them is like talking to a wall.

:angry:

  • Upvote 1

Share this post


Link to post
Share on other sites

Yesterday at my office visit, my D.O. was reviewing my blood work ordered by a neurologist in the same medical group about four months ago.

She said she didn't know how to interpret the results, but it looked like I could be positive for Lyme Disease. She said "I never order blood tests I don't know how to interpret", then proceeded to tell me that her 12 year old daughter had lyme disease, with the rash, six years ago when they lived in the Northeast, but DD had been treated and was fine. Doc said she would call the Neurologist to discuss interpretation of the Lyme Disease panel and call me if I needed to do anything.

I bet any mother on this forum who had a child with Lyme Disease would know how to read the blood draw results.

I received a call from her office today. They said I needed to pick up a prescription they'd called into my pharmacy for antibiotics and referred me to an infectious disease specialist. I told both the Neurologist (in the visit when she announced she was ordering the test 4 months ago) and the D.O. who reviewed the results that I didn't have any signs or symptoms of Lyme Disease, hadn't lived in an area known for Deer Ticks for over 35 years.

I did a quick internet search and it turns out if you have high levels of antibodies or an autoimmune disease or are older, false positive Lyme Disease blood work isn't uncommon. I don't know if it's a charm, but I represent all three categories.

I didn't pick up the prescription.

In the same visit, she told me that something I bought in a Health Food Store couldn't hurt me. She said if it was sold in a Health Food Store, it was benign, couldn't hurt me, otherwise it wouldn't be allowed by the FDA to be sold in a Health Food Store. I don't know how, but I stifled myself. I'm fed up with doctors! In this neck of the woods, they're bull-headed and uninformed, and talking to them is like talking to a wall.

:angry:

Shocking! :o

A Dr. that doesn't order blood tests she doesn't know how to read...AND her own Daughter had it? I wonder what else slips through the cracks with this Dr.?

It sounds like the Dr. that ordered the test considered the variables and that's why they didn't contact you and tell you about it? I hope that was the case..and not just laziness?

How do these Dr.s stay in business? So many people just blindly follow whatever the Dr. says..and if Dr.s are so clueless that way of doing things is downright scary!

Share this post


Link to post
Share on other sites

Where the heck do you find these doctors?? In Canada our wait times are atrocious (i.e. I had to wait 18 months to see an orthopedic surgeon) but I have not heard of this celiac stupidity here. I would guess it does happen but man, have I been lucky. My family doctor is very aware and knowledgable, not to mention incredibly good looking. :lol: But that means that my heart rate increases when he enters the room which is, of course, an entirely different issue. :P

Share this post


Link to post
Share on other sites

Shocking! :o

A Dr. that doesn't order blood tests she doesn't know how to read...AND her own Daughter had it? I wonder what else slips through the cracks with this Dr.?

It sounds like the Dr. that ordered the test considered the variables and that's why they didn't contact you and tell you about it? I hope that was the case..and not just laziness?

How do these Dr.s stay in business? So many people just blindly follow whatever the Dr. says..and if Dr.s are so clueless that way of doing things is downright scary!

This office is paperless, so everything's on the computer. The D.O. clicked on lab results and saw that I had a low Vitamin D level. She asked me if I was taking supplemental Vitamin D. That result was from a year ago, so I asked her if she'd ordered a Vitamin D blood draw, and she admitted she had not, and that's what tells me in a nutshell she's not a good doctor.

I told her when my Vitamin D level is low, my hair falls out and I feel crappy. I supplemented with D-3 drops for several months and then started feeling bad, I thought from too much Vitamin D, but I still take 500 IU every day. She told me I needed to take Vitamin D supplements, and I asked her how she could know that. I'll probably get discharged from her practice.

The bad thing is, when you get these calls from your doctor's office, you get anxious. I'm pretty sure I don't have Lyme Disease, but earlier in this process I would have filled the prescription and gone on to the next specialist, next test. All of a sudden I feel cooked. I'm over it. I've been poked, prodded, scoped, had so many blood tests, I think I'm done. I'll get my mammo and annual OB/GYN visit, but I think uninformed doctors cause more damage than value.

Share this post


Link to post
Share on other sites

I love the term "celiac stupidity!" Way to go Luv! Thanks for the laugh, needed it!

Share this post


Link to post
Share on other sites

My family doctor is very aware and knowledgable, not to mention incredibly good looking. :lol:

well, some eye candy might take some of the irritation out of our frustrating doctor visits down here... B)

Share this post


Link to post
Share on other sites

well, some eye candy might take some of the irritation out of our frustrating doctor visits down here... B)

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:

Maybe he has a brother in the U.S. for your sake. ;)

Share this post


Link to post
Share on other sites

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:

Maybe he has a brother in the U.S. for your sake. ;)

I'm good now. I found a young one who knows what celiac IS. Talks WITH me, not AT me and always makes me feel like I am his only patient. RETURNS MY CALLS HIMSELF! (gasp!)

But he is young enough to be my son. Which is fine, as I am not breaking in any new ones.

I saw maybe 30 doctors? in 3 years--- and I'm done doc-shopping. :lol:

Share this post


Link to post
Share on other sites

This office is paperless, so everything's on the computer. The D.O. clicked on lab results and saw that I had a low Vitamin D level. She asked me if I was taking supplemental Vitamin D. That result was from a year ago, so I asked her if she'd ordered a Vitamin D blood draw, and she admitted she had not, and that's what tells me in a nutshell she's not a good doctor.

I told her when my Vitamin D level is low, my hair falls out and I feel crappy. I supplemented with D-3 drops for several months and then started feeling bad, I thought from too much Vitamin D, but I still take 500 IU every day. She told me I needed to take Vitamin D supplements, and I asked her how she could know that. I'll probably get discharged from her practice.

The bad thing is, when you get these calls from your doctor's office, you get anxious. I'm pretty sure I don't have Lyme Disease, but earlier in this process I would have filled the prescription and gone on to the next specialist, next test. All of a sudden I feel cooked. I'm over it. I've been poked, prodded, scoped, had so many blood tests, I think I'm done. I'll get my mammo and annual OB/GYN visit, but I think uninformed doctors cause more damage than value.

I hear you on the Dr. shopping! I've been to 6 different ones since my DX in late June. Two of them were Residents who said I was "too old" to have Celiac. Two GI's locally, and one at Mayo. I went to a PCP that someone from the GI's office said was good, but when I went to him I found out he's 93, and told me Celiac was a very rare condition.

Currently I have my own medical records and looking...

The Mayo Dr. told me to take the steroid capsule apart and divide the beads into 2 doses and take it with applesauce, twice daily. Then take one whole capsule at night. A 30 day supply..she wrote as 30 capsules. :blink:

She gave me a 90 day supply Rx to get the med by mail. When it came..it says take one capsule three times a day. 90 day supply = 180 capsules. I had to call her to see what the heck I was supposed to do! :o

I don't think I'd want a gorgeous Dr.? Just one who is knowledgable, compassionate and a good listener. Too bad there isn't a site like the dating sites to find the right match? :rolleyes:

Share this post


Link to post
Share on other sites

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:

This guy popped in to visit when I was in hospital once for surgery. My roommate said, "Wow!! Who was that?" and I told her it was my doc. He was really hot too, but he knew it :rolleyes: The nurses all fell all over themselves whenever he was around :blink: I enjoyed my office visits :D

Share this post


Link to post
Share on other sites

This guy popped in to visit when I was in hospital once for surgery. My roommate said, "Wow!! Who was that?" and I told her it was my doc. He was really hot too, but he knew it :rolleyes: The nurses all fell all over themselves whenever he was around :blink: I enjoyed my office visits :D

You're a Cougar, Shroomie. roar, girlfriend. ;)

Share this post


Link to post
Share on other sites

the stupidest thing we always seem to hear is the word virus

me- my 2 yr old has been having diarrhea on and off for a while, now its green water and mucus

doc - its probably a virus

me- what to I do

doc - keep her hydrated

me- what if it doesn't clear up

doc-its a virus it will

me- she's lost a lot is weight and hasn't eaten for days

doc-a virus will do that

repeat this conversation every few weeks at the emergency department for about 6 months

get an appointment with GI department head

I tell them all her symptoms, weight loss, fatigue, rashes, bloating diarrhea and constipation, lack of appetite or eating me out of house and home!, dental enamel defects, fontanelle still not closed at 2 yrs old and 9 months, joint pain, easy bruising, reflux, muscle loss, muscle pain, thin hair

the verdict VIRUS!!!! Has probably damaged nerves in her bowel,

a friend of mine is training to be a nurse and has noticed how often the v words is used

go back to this idiot on Friday if he says virus I may have to punch him out

  • Upvote 1

Share this post


Link to post
Share on other sites

Ridiculous! :angry: I hope you don't strangle him?

I also hope thy help your little darlin'.

Share this post


Link to post
Share on other sites

Great thread idea Mushroom!!

I went in to see my GP because I wanted to get my B12 levels tested as I was having neuropathy... The doctor said "There's no point in doing that, there's tons of B12 in bananas!" and because of that wouldn't refer me.

Not to mention I went to a different GP and wanted to see my B12 levels from the last time I had a blood test, and he said there was no point! I went in again, and he happened to have my papers so I asked to see them. Still he said "There's no point, it's in range!" but handed it over to me anyways. The range is 150-900 and I was 175! After I started taking B12 my neuropathy went away... -_-

I went in with my mother to see my GP for a reason I don't remember and she asked about a celiac blood test. I told my doctor that I hadn't eaten gluten in 6 months, there was no way I was going to get a positive because it measures the antibodies against gluten, and he replied "that's not true, it will show up positive if you're a celiac no matter what you're eating!" My mom forced me to have the test, my doctor was very firm that I should have no problem with gluten, I switched doctors.

I used to have Dermatitis (a rash on my knees, back, chest, shoulders) and I went to see a dermatologist. At that time I asked him if it could possibly be some kind of allergic reaction and he said "Oh, nooo way it definitely could not be something as little as that". By the way, he didn't tell me it was dermatitis, he didn't know what it was, but now that it's gone I can see clearly that it was.

  • Upvote 1

Share this post


Link to post
Share on other sites

I don't think I'd want a gorgeous Dr.? Just one who is knowledgable, compassionate and a good listener. Too bad there isn't a site like the dating sites to find the right match? :rolleyes:

I so feel for you and your doctor shopping, not to mention your health problems. :(

In addition to my doctor being gorgeous, he is compassionate, spends a lot of time with me even though the waiting room is full and is a superb listener. He is willing to accept suggestions, too. Plus he is knowledgable. So I consider myself extremely fortunate, especially after reading all these horror stories!

Share this post


Link to post
Share on other sites

Neurapathy just reminded me of another stupid office visit. I went to my follow up visit after an EMG and ENG (run the other way if a specialist orders that test).

The Neurologist told me I had neurapathy. I already knew that, but had been corrected by other doctors who said that was a diagnosis, so I couldn't call it that until it was diagnosed. Until diagnosed, it was "tingling sensations".

The Neuro told me she wanted me to have a nerve biopsy. At this point, I was vary wary and asked her to describe the procedure. You go to a surgery center and they take a slice of a nerve out of your ankle. I told her I wanted to think about it. When I asked her why she wanted the test, she said it would help diagnose me.

On the next follow up visit after peering at her computer for several minutes, she asked if I was ready to schedule the nerve biopsy. I declined. She asked me why and I told her I'd researched it and that test is no longer recommended and some people had to be on crutches for weeks, and had had permanent nerve damage from the biopsy. I told her my neuropathy had gone from an "8" to a "2" on a scale of 1-10 gluten-free.

She gave me a look, and told me that was a problem. "What's a problem?" I asked. She said "It's a problem that people get on the internet and then don't follow their doctor's orders."

I gave her a look back. "You mean making an informed consent?" I asked.

My OB/GYN is pretty cute. Maybe I should switch to all young, handsome male doctors. At least then if the visit is worthless I can get a little eye candy for my co-payment. :D

Share this post


Link to post
Share on other sites

Too many to count - all time favorite was Cheif of Rhuematolgy at a major teaching hospital telling me he highly doubted I had anything autoimmune going on. Stopped my from talking to docs for almost two years during which time I became so sick I almost kicked it.....always, always trust your gut and utilize docs for the info they are able to understand and assist with.

Share this post


Link to post
Share on other sites

I had shoulder surgery this past September, and at my follow-up appointment 1 week after surgery, I asked the doctor what exactly a "subacromial decompression with a capsular shift" meant. Now, my orthopedic surgeon, who has the bedside manner of a corpse, looks at me and says," Well, I put a rubber band in it. Tightened it up." Obviously meant as a joke, but he delivered it with SUCH a deadpan manner and since I had never heard him make a joke before...I just stared at him.

I also saw an allergist at Dell Children's Hospital over the summer. The doctor had recently graduated med school, and was VERY adamant that I did not have celiac because my symptoms were atypical. She also was convinced that my hands swelling up every time I touch wheat was not an allergy because I didn't get hives, just a burning sensation. Or when someone who has handled wheat touches me, I get a similar reaction. She refused to test me for a wheat allergy, or really any foods, because she said that if "someone scratched her with a bunch of food samples, she would test positive too!" My mother convinced her to test me for soy, and I tested positive (and indeed, I do have symptoms--I get a stomachache and my throat gets tight, not true anaphylaxis though), but she didn't really think I needed to avoid eating it, or to carry an EpiPen. Lastly, she ordered a blood test for celiac after I'd been gluten free for a year, and when I pointed out that the negative tests were because of that, she said she had to check with the resident gastroenterologist. At the next appointment, she told me, very reluctantly, that I was right.

Share this post


Link to post
Share on other sites

My ex-doctor told me that she didn't want to test me for celiac disease because "I didn't have the right symptoms for celiac and even if I did have it, she couldn't give me any medicine for it and I shouldn't eat wheat anyway with my severe IBS with diahrea but she could give me an anti-depressant to take at night for the IBS and another one to during the day for my severe stress" (which she was causing at that appoinment). I had written down all my symptoms and she yelled at me for "throwing information" at her.

She moved to Kansas City and retired to have a baby. I sure hope she is a better mother than MD. Most horrible doctor EVER.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Who's Online   5 Members, 0 Anonymous, 1,050 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com

    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com