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Lisa

Cosmetics-shampoos, Etc

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Um, well gee. If this is the case with shampoo and the lotions and chap stick, well CRAP! My daughter certainly WAS not 100% gluten free. I never even thought to think about that. Sheesh. I need a list of every single thing she can not have!!!! Oh My!  :ph34r:

<{POST_SNAPBACK}>

Lanai,

Please, please don't panic because of something that could very well be misinformation. My teenage son and I both had celiac disease and follow a strict gluten-free diet. Our doctor (a reknown celiac disease specialist) told us that unless it's ingested, it can't harm your stomach or intestines. So worry about toothpast, chapstick, lipstick. But, please don't get upset about lotions, shampoos, make-up, soap, etc. My son and I feel great, and we've never worried about these personal products. At some point you have to be realistic and use your instinct (and common sense). There are always extremists everywhere. Good luck to you and your daughter. In a few more months, eating gluten-free will become second nature.

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Lanai,

  Please, please don't panic because of something that could very well be misinformation.  My teenage son and I both had celiac disease and follow a strict gluten-free diet.  Our doctor (a reknown celiac disease specialist) told us that unless it's ingested, it can't harm your stomach or intestines.  So worry about toothpast, chapstick, lipstick.  But, please don't get upset about lotions, shampoos, make-up, soap, etc.  My son and I feel great, and we've never worried about these personal products.  At some point you have to be realistic and use your instinct (and common sense).  There are always extremists everywhere.  Good luck to you and your daughter.  In a few more months, eating gluten-free will become second nature.

<{POST_SNAPBACK}>

Shampoos, makeup, lotions, soaps ARE things to worry about. If you wash your hands with gluten containing soap and touch your food then your food has traces and can get into your digestive tract. Shampoos easily get into your mouth while washing your hair. I could name numerous ways you can get glutened by those things.Those are real concerns. You have to think about all of that. I was not that way at first and I glutened myself in so many ways because of not thinking about those things. Even the smallest amount can cause damage even if you don't feel it..remember that some peopel get no symptoms...that means nothing. Anything that you use on your hands or face should really be checked...not a concern of being absorbed through the skin but a problem of getting into your mouth without you even knowing it.

Calling the people who check those products extremists is not called for and not even close to being accurate...they are realistically thinking of the high possibilities and eliminating those chance...I would call that common sense. Celiac is not something to mess with...so you should be eliminating those things.

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I agree with the last comment and I take offense to the comment about being an extremeist. I'd like to think of myself as just owing up to my health condition and being careful. I was using a shampoo which (I was unaware) had wheat in it. I was getting headaches all the time.....I checked the shampoo as a last resort and when I stopped using it, my headaches stopped. Either it got in my mouth in the shower or was a residue on my hands.

Please avoid name calling.....

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Guest BERNESES

After the glutenings I've been through, I KNOW it's true! It's unfortunate, but true. A micro amount can make you very sick- symptoms or not.

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Hi Kaiti,

Could you also send me the list? I'm just starting to get ready to go gluten-free regardless of what my biopsy shows. My inability to aborb nutirents is enough proof for me. This problem showed up in my bloodwork.

Thanks!

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Now I'm totally panicked! At first when reading all this info about getting gluten-free toothpaste and make-up I was bummed but I'm 42 and my natural hair color is now ungy white-ish gray which is why I've been dying it forever. I know a henna rinse won't do anything for me and I can't go without coloring my hair unless I wast to start wearing a wig and I'm not joking? Can anyone help???!!! I need a true hair color product - not a rinse.

Tiffany

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RE: Name calling - I am a Glutenfree extremist and proud of it! I'll turn over every stone to find it and not rest until I know one way or the other.

As most of you know, my husband has celiac, I do not; but I take great lengths to purchase everything gluten free.

The NIH declared that the rate of celiac is 1 in 133; but food and cosmetic manufacturers should not rely on this rate as it's more than 1 in 133 when it comes to purchasing the products. For instance, there are families that are 100% gluten-free for every family member, so let's say that there's 4 people in that family, but not all are celiac - that means that not just the celiac is consuming gluten-free, but all 4. I would suppose that in many families where there's just one or two celiacs, the food shopper in the family (want to avoid saying "the mother") is buying gluten free as much as possible. For instance, if the store has two different brands of shampoo and the "mother/shopper" knows brand B is gluten-free, the "mother/shopper" will buy the large size of the brand B. Everyone in the household will use the brand B item. So this is where we have power in numbers. I don't think the manufacturers understand this. The manufacturers are going by the 1 in 133 rate, not realizing it's higher than that in the actual buying process. 1 in 133 is the rate of who NEEDS to be gluten-free; but it could be 4 in 133 who live gluten-free.

Also, I am concerned about gluten-free cosmetics because I don't want to transfer gluten to my husband if he does things like kiss my face or grab my hand, etc. So again, more than 1 in 133 live gluten-free for many reasons.

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Guest BERNESES

Debmidge- Well said! As far as hair colors go, I had heard that L'Oreal professional hair colors (in salons) were gluten-free so I went into a salon and had them do a patch test behind my ear on my wrist and I had no problems. It costs more to have it done that way, but it looks better and if you have it done in a salon you won't have anything running into your mouth when you rinse it out. I will admit to having used L'oreal OTC hair color as well and never had aa problem, but make sure you look at the ingredients (at home or salon) and do the 24 hour patch test as well. I am proud to be extremely gluten-free! It makes me healthier and able to have fewer worries and a better quality of life, Beverly

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Let me just start by saying the sense of community in this forum is great. I've learned a lot (and I already considered myself a know-it-all) and I've felt comforted by the fact that others go through what I go through.

I have a really hard time going out to eat, or for the topic of this discusssion, going to salons and asking for specifics. Its not so much that I am embarassed to ask for a wheat/gluten free shampoo, but more that I hate making things difficult for people. I think I have learned my lesson - as far as salons go anyway. I went to an Aveda salon this past week, got a cute cut, but all the products have wheat in them!!!! I have reacted to my home shampoos, but justified that thinking that it had gotten in my mouth some how, so I thought I would be safe (someone else wahes and styles my hair - how would it get in my mouth?). Now I am not so sure......I have had headaches for days now and that was my symptom after using a wheat-containing shampoo. I know, I should have brought my own shampoo........It just I hate the attention, I hate having to explain stuff, I hate causing problems for others. Guess I will have to get used to it......

I'm just glad that, at least to some extent, this isn't all in my head and others have experienced it. Thanks for sharing and the sense of community.

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Berneses - thanks for the tip on L'Oreal products. I will give it a try.

As far as reading labels goes, I'm having a hard time finding the word gluten in most of my toiletry items, even in things I know others say have gluten in them for sure. Are there other words for 'gluten' that I should be looking for?

Tiffany

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B) Aloha,

Thought this might help someone, ><>SUZANNE<><

The following were reported to be gluten-free by the company 5/05:

PRODUCT NAME FORMULA NUMBER

Blistex Lip Ointment 066-9920

Fruit Smoothies (Orange Cream) 014-9809

Blistex Lip Balm Mint 017-9608R

Blistex Lip Balm Berry 030-9713R

Blistex Medicated Lip Balm 030-9822R

Fruit Smoothies Melon Medley 031-9885

Fruit Smoothies Triple Tropical 031-9887

Fruit Smoothies Peaches & Cream 063-9898

Blistex Lip Balm Herbal Answer 069-9871

Blistex Lip Tone Color-Phase 075-9847

Complete Moisture 079-9877

Fruit Smoothies Strawberry/Banana 082-9891

Blistex Lip Tone (U.S.) 099-9872

Silk & Shine 100-9879

Fruit Smoothies Berry Explosion 100-9881

Clear Advance 101-9888

ProCare 112-9894

ProRelief 112-9895

Blistex Lip Balm Ultra Protection SPF 30 117-9862

Blistex Spa effects Grapefruit/ Rosemary/Eucalyptus Uplifting 123-9806

Blistex Spa effects Cucumber Melon Renewing 123-9807

Blistex Spa effects Plum Vanilla Relaxing 123-9808

DCT-SPF-20 094-9535

Lip Medex 073-8407R

Lip Revitalizer 039-9946

Herbal Answer Gel 060-9949

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Berneses - thanks for the tip on L'Oreal products. I will give it a try.

As far as reading labels goes, I'm having a hard time finding the word gluten in most of my toiletry items, even in things I know others say have gluten in them for sure. Are there other words for 'gluten' that I should be looking for?

 

Tiffany

<{POST_SNAPBACK}>

here's the spiel from Estee Lauder... i have started calling every company for all my cosmetics, but initially to read labels i use this list to get me started. they only really apply to products from their family of companies, but the ingredient names should be fairly standard in terms of gluten content, i would think. hope it helps:

Thank you for contacting us regarding the ingredients in our products that might be unsuitable for you to use because of your specific condition.

We are attaching a list of grain-derived ingredients, found on our labels, which will be helpful in providing you direction. This information covers products marketed under the following trademarks: Estie Lauder, Inc.; Clinique Laboratories, Inc.; Aramis, Inc.; Origins Natural Resources, Inc.; Bobbi Brown essentials; Tommy Hilfiger Toiletries, MAC, Stila, and Prescriptives, Inc.

Consumers will find ingredient listings on our primary packaging material, in accordance with FDA regulations, using names which are standard throughout the cosmetic and fragrance industry. Because of the vast number of raw materials from different sources, it is not possible to guarantee that our products are completely free of any of the grains specified. The denatured ethyl alcohol in our products is produced synthetically, with the exception of the denatured ethyl alcohol in MAC products, which is derived from corn.

SOY-DERIVED INGREDIENTS

GLYCINE SOJA

HYDROGENATED LECITHIN

LECITHIN

MIXED SOY PHOSPHOLIPIDS

SOYBEAN EXTRACT

SOYBEAN STEROL

HYDROLIZED SOY PROTEIN

SOYBEAN OIL

PEG-5 SOYA STEROL

PEG-25 SOYA STEROL

PEG-10 SOYA STEROL

PEG-16 SOYA STEROL

SOY PHOSPHOLIPIDS

SOYBEAN STEROL ISOSTEARATE

BARLEY DERIVED INGREDIENTS

HORDEUM VULGARE

WHEAT DERIVED INGREDIENTS

TRITICUM VULGARE

WHEAT SPHINGOLIPIDS

WHEAT BRAN EXTRACT

WHEAT GERM GLYCERIDES

HYDROLYZED WHEAT PROTEIN

WHEAT PROTEIN

HYDROLYZED WHEAT STARCH

WHEAT BRAN EXTRACT

OAT DERIVED INGREDIENTS

AVENA SATIVA

PROLAMINE

OAT FLOUR

OAT EXTRACT

BETA GLUCAN

SODIUM LAUROYL OAT AMINO ACIDS

OAT BETA GLUCAN

CORN DERIVED INGREDIENTS

ZEA MAYS

CORN STARCH

CORN OIL

CORN FLOUR

CORN STARCH MODIFIED

ALUMINUM STARCH OCTENYLSUCCINATE

YEAST DERIVED INGREDIENTS

SACCHAROMYCES

RICE DERIVED INGREDIENTS

ORYZA SATIVA

ORYZANOL

RICE BRAN

RICE STARCH

MILLET DERIVED INGREDIENTS

PANICUM MILIACEUM

RYE DERIVED INGREDIENTS

NONE

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Thanks everyone for the lists! This is so overwhelming but I know I"ll get through it with great support I see on this site.

I see there is already another Tiffany so I'll now sign as Tiffany M.

p.s. L'Oreal got back to me today. In case anyone else cares (read: isn't willing to walk around with whitish gray hair at 42) here is what they said. Quoting them here 'L'Oreal Paris Superior Preference and Excellence Creme have not been manufactured using glueten containing ingredients. However, we must say that we cannot guarantee that materials in our products have not been, at some point in the manufacturing processing, come in contact with a gluten-contining ingredient'.

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B) Aloha,

Thought this might help someone, ><>SUZANNE<><

The following were reported to be gluten-free by the company 5/05:

PRODUCT  NAME FORMULA NUMBER

Blistex Lip Ointment  066-9920

Fruit Smoothies (Orange Cream) 014-9809

Blistex Lip Balm Mint 017-9608R

Blistex Lip Balm Berry 030-9713R

Blistex Medicated Lip Balm 030-9822R

Fruit Smoothies Melon Medley 031-9885

Fruit Smoothies Triple Tropical 031-9887

Fruit Smoothies Peaches & Cream 063-9898

Blistex Lip Balm Herbal Answer  069-9871

Blistex Lip Tone Color-Phase 075-9847

Complete Moisture 079-9877

Fruit Smoothies Strawberry/Banana 082-9891

Blistex Lip Tone (U.S.) 099-9872

Silk & Shine 100-9879

Fruit Smoothies Berry Explosion 100-9881

Clear Advance 101-9888

ProCare 112-9894

ProRelief 112-9895

Blistex Lip Balm Ultra Protection SPF 30 117-9862

Blistex Spa effects Grapefruit/ Rosemary/Eucalyptus Uplifting 123-9806

Blistex Spa effects Cucumber Melon  Renewing 123-9807

Blistex Spa effects Plum Vanilla Relaxing 123-9808

DCT-SPF-20 094-9535

Lip Medex 073-8407R

Lip Revitalizer 039-9946

Herbal Answer Gel 060-9949

<{POST_SNAPBACK}>

Hmmm....well then I guess it's not the blistex that makes me break out on my mouth. Thanks!

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Sorry this post has no helpful information in it but I just had to share. It seems as though most of my make-up/toiletries must be tossed and replaced with gluten-free things. So I have e-mailed and called a slew of companies to inquire about their products. So one company got back to me via e-mail. Their letter was very professional and it was signed 'The Consumer Affairs Team'. However there was no indication anywhere at all (had my husband double check for me) as to what company the note came from. Their note was not a response to mine so I have no idea who they are. I let them know I needed to know their company name but so far no response. My guess is they are just a little embarrased.

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Guest BERNESES

Tiffany- As far as the L'Oreal response goes, I usually interpret that as a company covering their butt (I got the same response from Annabelle's ice cream) so I would think of it as it's PROBABLY gluten-free but use at your own risk.

I was very disappointed when I went gluten-free that Aveda, which I really liked, had so much gluten in it. Bobcat girl- I'm so sorry that happened to you. Ugh! I guess bring ing you own shampoo is really the only way to be safe. I hope you feel better soon, Beverly

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Just in case anyone is still getting ready for the diet like me (after my biopsy, either way) I will relate Revlon's response to my inquiry about their cosmetics and if any were gluten-free.

Due to the way that ingredients are manufactured and shipped, we can not say that any of our products are gluten free. (I'm paraphrasing as I don't know how to paste here and I don't have time to figure it out).

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I have posted this reply from Paul Mitchell before but thought someone might have missed it and I love their products! Hope this helps someone.

Dear Joann,

Please find attached the list of our Paul Mitchell Professional Salon Products that DO NOT contain wheat or gluten.

Best regards,

Jackie Timberlake

Director of Consumer Relations

John Paul Mitchell Systems

(800) 793-8790

WHEAT-FREE PRODUCTS

October 20, 2005

Shampoos:

Awapuhi Shampoo

Baby Don’t Cry Shampoo

Instant Moisture Daily Shampoo

Super Skinny Daily Shampoo

Botanical Prep Shampoo

Conditioners:

Instant Moisture Daily Treatment

Awapuhi Moisture Mist

Tea Tree Special Conditioner

The Cream

Lite Detangler

Seal and Shine

Tea Tree Hair and Scalp Treatment

Botanical Body Building Treatment

Style:

Extra-Body Sculpting Foam

Extra-Body Sculpting Gel

Extra-Body Daily Boost

Straight Works

Soft Sculpting Spray Gel

Round Trip

Wax Works

Spray Wax

Foaming Pomade

Dry Wax

Tea Tree Styling Gel

Tea Tree Shaping Cream

Tea Tree Stick Wax

Tea Tree Styling Wax

Tea Tree Grooming Pomade

ESP

Quick Slip

Finish:

Super Skinny Serum

Gloss Drops

Freeze and Shine, 80% voc

Fast Drying Sculpting Spray, 80% voc

Soft Spray, 80% voc

Misc:

Awapuhi Bar

Tea Tree Bar

Tea Tree Liquid Hand Soap

Tea Tree Shave Gel

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Hmmm I looked this thread over but didn't see...... so is plain old chapstick gluten-free or not??

Also I just saw the Paul Mitchell list and I've been usuing their hair spray (super shaper and super shaper plus) but notice they are not on the gluten-free list. Does anyone have a hairspray that is gluten-free?

Thanks, Susan

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[Also I just saw the Paul Mitchell list and I've been usuing their hair spray (super shaper and super shaper plus) but notice they are not on the gluten-free list. Does anyone have a hairspray that is gluten-free?

Thanks, Susan

<{POST_SNAPBACK}>

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I use cheap Clairol Condition hairspray (Walgreen's). When I called the number on the can Clairol explained that they sold that division to some other company (sorry forgot the name) so I called them and they took a day to get back to me. They explained that the chemist confirmed there is no gluten in the ingredients of my spray but in fairness, since I'm not yet on the diet, I have no idea if it's okay or not. Just getting all my ducks in a row so I can start the diet right after the biopsy. Next weekend is my big shopping spree for gluten-free non-food items. I feel like if I start using them now, then that's one less thing to worry about in a month when I start the diet. :D

<{POST_SNAPBACK}>

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Hmmm I looked this thread over but didn't see...... so is plain old chapstick gluten-free or not??

Also I just saw the Paul Mitchell list and I've been usuing their hair spray (super shaper and super shaper plus) but notice they are not on the gluten-free list.  Does anyone have a hairspray that is gluten-free?

Thanks,  Susan

<{POST_SNAPBACK}>

Yes, regular Chapstick (their classic flavors) is gluten-free.

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