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On January 5th I had the upper GI biopsy performed and in February 7th was diagnosed. I won't lie, the Dr was rushed and didn't explain anything. The biopsy was somewhat inconclusive? I have no idea in what way. But with my symptoms and family history he was more then confident in the diagnosis ( not to mention I unintentionally started eliminating gluten high products by just eating more fresh). I have been left on my own to make sense of this. I am discouraged, frustrated and starting to feel very depressed. I went to a bakery that advertises themselves as gluten free..and the only gluten free products were frozen pre packaged items my bread selection was brown rice bread..and brown rice bread. I have been substituting some glistens that i Was eating easily. But I am still eating it. The switch is slow..and it feels like it will never fully happen. Not only do I need to stop eating it..but I have to eliminate cross contamination threats at home. My sister has been a great help..but I still feel totally consumed and overwhelmed. It doesn't help that my kids are suddenly 150 times more needy and I'm pregnant and my husband is out of commission from a surgery :( I wish my dr had been some help. I'm so hungry. But I don't know what to eat. And when I do eat anything with gluten I am in pain almost immediately. So I am confident in the diagnosis. Unfortunately annoying family members keep saying things like, " I was surprised you were diagnosed. You weren't nearly as bad as your sister". And I just want to cry. My sister was so much worse off then me yes..she was totally malnourished, and her body was shutting down. She was 80 pounds overweight, tired, sick, rashy. Since switching he is a different person. I had more IBS symptoms that I hve been making excuses for all my life. 15 plus bowel movements a day..that are emergencies everytime. Extreme stomach pain and cramping. And terribly sensitive skin. I just didn't tell anyone. So now they all seem to think (minus my sister) that I must not have it as bad. And until they have to run into a store carrying two fifty pound kid to use a dirty public washroom they just don't have the right to judge. I hope I am one of the few who can tolerate it in small amounts. But even now one piece of toast sends me into an attack.

Sorry this is so long winded.

I finally bought myself my own peanut butter and margarine. And my husband asked what I was going to put it on and I started bawling because I have no idea :( I don't know how to make bread ..or how to buy crackers. I am totally lost and drowning.

And I feel really dumb for bein this emotional about food. I am very fortunate it isn't serious

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It is emotional, it's really mourning the way things used to be! And if you're pregnant, you have double the emotions going on. So give yourself a break. There's a learning curve and you'll make mistakes early on, that's ok. But you really do have to stop eating things like regular toast for your protection and your baby's protection. Stock your pantry/fridge with easy access items so that you can find something when you're hungry. Here are some easy ideas:

Rice chex

Snyder's Gluten free pretzels

Yogurt and cheese sticks

celery/carrots/cucumbers and ranch dressing

corn chips and salsa

Breyer's ice cream (most flavors)

Hormel chili with cut up hot dogs

van's or Trader Joe's gluten free waffles

Rice

Beans

frozen vegetables

meat - use your own seasonings

gluten free pasta

pop corn

rice cakes

boar's head or homel lunch meats

fruit!!!

loads of gluten free cookies available these days - I like Trader Joe's chocolate chip the best.

Try and find some things that you like and know that you won't have a lot of variety for awhile.

Hang in there, it does get easier!!!

Dee in NC

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First thing first: Welcome here!

I understand your situation -There is nothing to eat! Everything is made with gluten!- because I lived through it. I was lost at the beginning too. I couldn't even picture myself to make gluten free pancakes.

Now? Year and half later I'm cooking and baking without gluten and milk.

From the beginning eat gluten free things that you have been always eating.

Something like: grilled, baked chicken, fish, pork, beef, vegetable, spaghetti (just substitute pasta), mashed, cooked, baked potatoes, rice, fruit, cheese, hot-dogs, etc.

For breakfast, lunch: cereals, scramble eggs, sunny side or hard boiled eggs, egg salad, fruit, tuna fish salad, fresh salad with grilled chicken etc.

I will give you one important advice: Don't buy things that you never used before going gluten free. You wouldn't like them. It will just be a waste of time and money. I didn't listen and for a wail I was stuck with pantry full of things that didn't taste good. It took me long time to get rid of them.

You can check these posts to get some ideas what to eat (some of them are easy to make):http://www.celiac.com/gluten-free/topic/81858-whats-for-breakfast-today/

http://www.celiac.com/gluten-free/topic/87765-what-did-you-have-for-lunch-today/

http://www.celiac.com/gluten-free/topic/75238-what-are-you-cooking-tonight/

I left out bread because that is the one thing that you can't replace, but you can come close to real thing. If you are in the USA, go to Whole food, Wegmans, or Trades Joe's where you can find bigger selection of gluten free breads, bagels, muffins, or buns.

If you can't, then check this:

http://www.celiac.com/gluten-free/topic/85650-gluten-free-sandwich-bread/page__p__735949__fromsearch__1#entry735949

http://www.celiac.com/gluten-free/topic/84873-simonas-braided-challah/page__p__729391__fromsearch__1#entry729391 .

http://www.celiac.com/gluten-free/topic/85686-gluten-and-casein-free-hamburger-buns/page__p__736212__fromsearch__1#entry736212

Or just write what you are looking for in search engine and many recipes will pop up.

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On January 5th I had the upper GI biopsy performed and in February 7th was diagnosed. I won't lie, the Dr was rushed and didn't explain anything. The biopsy was somewhat inconclusive? I have no idea in what way. But with my symptoms and family history he was more then confident in the diagnosis ( not to mention I unintentionally started eliminating gluten high products by just eating more fresh). I have been left on my own to make sense of this. I am discouraged, frustrated and starting to feel very depressed. I went to a bakery that advertises themselves as gluten free..and the only gluten free products were frozen pre packaged items my bread selection was brown rice bread..and brown rice bread. I have been substituting some glistens that i Was eating easily. But I am still eating it. The switch is slow..and it feels like it will never fully happen. Not only do I need to stop eating it..but I have to eliminate cross contamination threats at home. My sister has been a great help..but I still feel totally consumed and overwhelmed. It doesn't help that my kids are suddenly 150 times more needy and I'm pregnant and my husband is out of commission from a surgery :( I wish my dr had been some help. I'm so hungry. But I don't know what to eat. And when I do eat anything with gluten I am in pain almost immediately. So I am confident in the diagnosis. Unfortunately annoying family members keep saying things like, " I was surprised you were diagnosed. You weren't nearly as bad as your sister". And I just want to cry. My sister was so much worse off then me yes..she was totally malnourished, and her body was shutting down. She was 80 pounds overweight, tired, sick, rashy. Since switching he is a different person. I had more IBS symptoms that I hve been making excuses for all my life. 15 plus bowel movements a day..that are emergencies everytime. Extreme stomach pain and cramping. And terribly sensitive skin. I just didn't tell anyone. So now they all seem to think (minus my sister) that I must not have it as bad. And until they have to run into a store carrying two fifty pound kid to use a dirty public washroom they just don't have the right to judge. I hope I am one of the few who can tolerate it in small amounts. But even now one piece of toast sends me into an attack.

Sorry this is so long winded.

I finally bought myself my own peanut butter and margarine. And my husband asked what I was going to put it on and I started bawling because I have no idea :( I don't know how to make bread ..or how to buy crackers. I am totally lost and drowning.

And I feel really dumb for bein this emotional about food. I am very fortunate it isn't serious

I completely understand your frustration! When I was DXed I was told "you have Celiac disease. Don't eat gluten. Look it up on the internet." Not even a sheet of paper telling me what gluten was..or the other names it goes by. We're told we have this serious condition..but we're on our own in treating it.

Your sister being Dxed before you is a blessing AND a curse..IMO. On the one hand, she may be able to answer some of your questions and give support, and on the other..you're being compared to her and feel that others may not be taking your Dx as being as serious? It's a serious disease, which is life changing. You're going to have times where you mourn the loss of foods you enjoyed.

Please don't eat gluten! :o You must be sure to remove all traces of it in your diet so your system can heal.

Try to stick to a mostly whole foods diet with plenty of fruits and veggies. Look for gluten free waffles(Van's) to put your peanut butter or margarine on. Be sure to get yourself a toaster dedicated to gluten-free.

King Arthur's gluten free flour is usually pretty easy to find in the regular flour aisle of the market. They have a bread recipe on the package that's easy and pretty good.

It's an adjustment, to be sure. We're here for you. If you have any questions..just ask. A lot of our eating has emotions tied to it. It's not unusual to feel emotional about food! :D

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I can't even begin to thank you for the suggestions/support/resources. I was in a really bad place yesterday and reading these replies have really helped to motivate me. I am still scared..but I feel a little more confident. We went shopping today and bought some bread yogurts, noodles, and tortilla wraps. The prices are astounding. But my husband is supportive thankfully.

Now..do we all have to go gluten free? We are investing in a new toaster and sterilizing what we do have. But how easily do we cross contaminate. How do we even sterilize? I clean everything with vinegar which I've been told had gluten..and baking soda too? Should I do orange peel cleaners? Or go get chemical cleaners? I was totally gluten free today and it was so nice not having constant pain. Though I still was a little crampy it was nice to have less intensity.

How do I properly clean out my 14 and 29 month olds mouths if they do have gluten. How badly will it hurt me if I forget or miss a spot

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Some people find it easiest to have the whole household gluten-free.

Stainless steel pans can be washed well and scrubbed. So can your dishes and glassware. You want to replace anything that's porous, like cutting boards, wooden spoons, plastic storage containers, colanders that are nearly impossible to clean well, toaster and can opener.

If you have any scratched non-stick cookware..toss it, or or keep it ONLY for gluten foods if you'll still be using them. Keep your gluten-free items seperate from anything that gluten will be used with.

Most vinegar is gluten free. Read the label. Vinegar or soda won't really affect how you clean items. They are better for cutting through grease or neutralizing PH. You aren't fighting germs here..it's tiny, miniscule molecules of protein you are trying to get rid of.

If your kids are eating gluten..it's tricky. An adult can brush their teeth well and use a rinse, but kids are different. They don't cooperate as well? Just be very aware of the possibility of their kisses/saliva being a source of CC?

The best way to go IMHO is to try to eat a mainly whole foods diet rich in fruits and veggies, and limit the gluten-free replacement processed foods?

You can bake your own breads and sweets if you want/need them. There are recipes all over. If you make your own it cuts down on the cost, and you know what's in it.

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I can't even begin to thank you for the suggestions/support/resources. I was in a really bad place yesterday and reading these replies have really helped to motivate me. I am still scared..but I feel a little more confident. We went shopping today and bought some bread yogurts, noodles, and tortilla wraps. The prices are astounding. But my husband is supportive thankfully.

Now..do we all have to go gluten free? We are investing in a new toaster and sterilizing what we do have. But how easily do we cross contaminate. How do we even sterilize? I clean everything with vinegar which I've been told had gluten..and baking soda too? Should I do orange peel cleaners? Or go get chemical cleaners? I was totally gluten free today and it was so nice not having constant pain. Though I still was a little crampy it was nice to have less intensity.

How do I properly clean out my 14 and 29 month olds mouths if they do have gluten. How badly will it hurt me if I forget or miss a spot

Hi! We're newly gluten-free, too. My son was just diagnosed 2 weeks ago. We decided to switch the whole house gluten-free for now at least until we figure out how to get the hang of this. It has helped me not be paranoid about every little crumb, and now everything in the house is safe for my son to eat. I know everything is gluten-free. I'm experimenting with gluten-free bread, pancakes, pie crust, and other baked goods. Sometimes it works, sometimes it doesn't, but I think I'll get the hang of it eventually. We celebrate our successes, one by one. Overall though, we are eating not so different than we were, but there are a lot less snacky foods. We bought gluten-free pastas, crackers, pretzels, Chex cereal, and sauces. Lots of regular food is fine: Eggs, cheese, beans and rice, fruits, veggies and dips, meats, tacos, and so on.

The de-glutening process involved scrubbing out the kitchen and everything in it, top to bottom. I just used soap and water. Not so fun - my mother-in-law came and helped and we just did it all in one weekend.

Good luck!

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    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
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    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
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    Jefferson Adams
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    • Aya, I think your PPIs are triggering your dyspepsia medical term for indigestion etc. Often when our stomach acid get's too low we will have issues with CARBS. They ferment and cause bloating. Here is a couple article/links about it. You need to get off the PPIs if at all possible.  Try taking a H2 blocker for two weeks and then stepping off it two weeks between reduction in dosages all the while watching your trigger foods. Here is a link about "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 taking betaineHCL can also help your digestion if your stomach acid is already too low from taking lansoprazol. see this topic in the pharmaceutical journal about it. https://www.pharmaceutical-journal.com/learning/learning-article/question-from-practice-management-of-hypochlorhydria/11120379.article?firstPass=false as to whether you have Celiac disease or not . ..you might not yet but if you keep taking PPIs you might develop it if you keep taking them for years and years. PPI's increase your risk of developing celiac disease in the future. that is over 4 years old that studied this topic of PPIs use and subsequent Celiac disease diagnosis. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/do-proton-pump-inhibitors-increase-risk-of-celiac-disease-r2860/ they (the researchers) concluded  quoting "The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship." and why this is novel research we didn't know why this was so too recently. see this article as reported by Jefferson Adams on celiacdotcom.  It is good research. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/could-drinking-baking-soda-fight-celiac-and-other-autoimmune-diseases-r4479/ I am also including the medical news today article link on this topic because I think it summarizes these findings well. https://www.medicalnewstoday.com/articles/321624.php the articles about about what controls (switches on) inflammation (autoimmune reactions) in the body. we have microvilli (not villi) that line our organs (especially  the spleen) that alarm our body when proteins are in the body and not in the GI tract. the spleen is critical is here because it acts like a general of sorts directing our immune system and when gluten or other proteins tricks it --- it attacks our body (villi) by mistake. And this new research explains why this happens. quoting from the the summary on celiacdotcom ( again I think the MNT article) goes into more details. " A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed." to continue quoting "The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response." Which explains perfectly how PPI's could cause someone to develop Celiac disease because it lowers our stomach acid.  And this study points out how raising our pH (lowering the pH) cause the spleen to settle down and stop attacking the bodies own organs (villi) in the case of Celiacs'. And it 's not just the Villi the body attacks they note it happens in other organs too when the "general" the spleen gets confused the whole body suffers inflammation. quoting again from the article Jefferson Adams "That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists. In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood." so getting off the PPI by taking BetaineHCL or if you can believe this research baking soda to raise your stomach acid to natural healthy levels of a pH of 3.0 or less should help your indigestion and help control you GI inflammation from too low a stomach acid. you can have this tested by doing an Esophageal pH Test or just take betaineHCL and go low CARB and try the Baking Soda in the meantime to see if it helps your indigestion (if it is going to be a while before you can see the doctor again.) https://www.healthline.com/health/esophageal-ph-monitoring If it is truly low stomach acid (from taking PPI's) and too many CARBS in your diet then taken BetaineHCL will improve your digestion.  Be sure to always take BetaineHCL wtih food and plenty of water.  Water activates the stomach acid and the food dilutes the Stomach acid to ensure you don't get too much. If you get a "warm sensation" in your abdomen it is working. ******this is not medical advice but I hope this is helpful. I had a similar problem with my low stomach acid being misdiagnosed. Sorry the explanation is so long but you got a lot going on inside.. . and it takes some time to try and explain it. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
    • The news bot in on crack again. VERY messed up....celiac site telling us to use barley for weight loss.....YEP will work as we will be married to the porcelain god for a night or two.
    • Hello Everyone, I am new here just joined today! My doctor gave me a gluten test and last Wednesday I was told my blood mark is 202. He is sending me to a gastrologist to further test me for Celiac disease.  I have been getting pains in my stomach, and where my liver is as well in my back at times. Every time I eat gluten or dairy I get gas and pains in the stomach...  Does this sound like a good chance that I have celiac disease... I am totally okay with changing my diet. What is frustrating is getting told that I have to continue to eat gluten.  Thank you Donna Gain
    • Hi aya, It is possible your gi system is making more gas now.  That could force acid into your esophagus and cause pain.  Just gas by itself can cause pain for that matter. To reduce gassiness, eat little to no sugar and carbs.  Carbs (rice, white potatoes, cereals, flours etc) can feed the bacteria that cause gas.  Some artificial sweetners cause gas also.  Dairy is also something to avoid when starting the gluten-free diet.  Many of us can't digest the lactose sugar in cow milk until our guts have several months to heal.  This lactose intolerance can cause lots of gas/pain. Peppermint tea can make it easier to get gas out of the stomach. A simple diet with few processed foods is best for healing.
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