Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Confused About Gluten Free Products..

hspichke

Recommended Posts

hspichke Apprentice
hspichke
Posted

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Many of us avoid all gluten because it is just not worth the risk of getting shampoo in your mouth when showering, or gluten off your hands from lotion or gluten in watering eyes from mascara. It doesn't mean we would react but it just seems so much easier for me to get the gluten out of the house entirely and not even think about it.

Link to comment
Share on other sites
Krystal K. Rookie
Krystal K.
Posted

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

Link to comment
Share on other sites
peanuts Newbie
peanuts
Posted

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

How do we go about finding out if our daily favorite products for skin, hair, makeup etc. contain gluten? It makes sense to not use topical gluten as our skin absorbs these products. :(

Link to comment
Share on other sites
mushroom Proficient
mushroom
Posted

You need to familiarize yourself with all the different ways that gluten hides. Anything that says wheat, oats, barley, avenin (oats) is of course out, although some claim hydrolyzed wheat protein is okay but I avoid it. You can call or email the manufacturer or there are iphone apps available. Here is a link: Open Original Shared Link that has other links.

Link to comment
Share on other sites
rosetapper23 Explorer
rosetapper23
Posted

Quite frankly, I don't believe the "experts" who say that gluten must be ingested to cause DH. There simply have been no real studies done on this. All I know is that if I use a shampoo that contains wheat, my scalp and face break out all over in DH. Back when I didn't know I had celiac, I wore lipstick (only in my teens)....and my lips would swell up and turn purple. It wasn't from ingestion of gluten--it was from the gluten touching my lips. DH is quite a different animal from celiac, I believe, and it definitely needs to be studied more.

Link to comment
Share on other sites
Gemini Experienced
Gemini
Posted

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

That is very astute of you to recognize the connection between a DH break-out and it being connected to the food you are eating! That is supposedly the way it works as the reaction comes from within but I think that anyone who has skin issues with Celiac probably runs a higher risk of having an additional wheat allergy, which is different to an intolerance. Coming into contact with the offending product would cause that type of reaction.

You must not use gluten containing lip products, whether you have DH or classic Celiac. You ingest what you put on your lips and that's why you have to screen lipstick. As far as body lotion is concerned, that can be personal choice but you have had issues with skin products so you might want to find one that isn't a problem and just stick with that. I always screen hand lotion, for obvious reasons, and just use that on anything else. Otherwise, I don't worry about stuff I won't ingest.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Another ingredient to look out for that is derived from wheat is panthenol, and I agree with mushroom and rosetapper23!

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

Link to comment
Share on other sites
Bellanovia Newbie
Bellanovia
Posted

oh my god..I just solved my makeup allergies! my eyes can not tolerate anything...and I never understood..until this thread. thank you so much!

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Welcome to the board Bellanovia. It's amazing the things we learn are connected to celiac. So many things make sense now that I couldn't figure out before or that I thought were just an odd problem I had.

Link to comment
Share on other sites
hspichke Apprentice
hspichke
  • Author
Posted

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

OH MY GOSH!! I used to use certain makeups that would make my face itch and turn bright red and I just wanted it off asap! I wonder if it could have been something with the gluten...however, now I wear numerous different kinds. So is most foundation contain gluten? :(

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,030
    • Most Online (within 30 mins)
      7,748
    Tina Rice
    Newest Member
    Tina Rice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Katiec123
      Finding out I’m coeliac whilst pregnant

      By Katiec123 · Posted

      @RMJ   this is really concerning and my GP has said none of this to me! 
    • RMJ
      Finding out I’m coeliac whilst pregnant

      By RMJ · Posted

      Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten free, but it wouldn’t affect your baby. I know which one I would choose!
    • cristiana
      1540 TTG Results... Help!

      By cristiana · Posted

      @Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list!  Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something, even back then?  But I know what you mean about black forest gateaux - I've never really liked McDonalds, Burger King or KFC but now wish I could eat all that stuff when my family are tucking into theirs!   On the plus side, you may have seen, in the big supermarkets, particularly Tesco's, the gluten free aisle is ever expanding.  In one of our local branches now it pretty much occupies a whole aisle.   You might have to shop around, but it is amazing what you can find.  Ginster's make their own gluten-free pasties now, for example.  I just need a senior executive from McVities to read this thread because once Penguins are gluten-free, I shall be happy! As for prescriptions, this link should help you find out what you are entitled to - yes, NHS lottery is absolutely how it is! I have personally never bothered with prescriptions, but some do.  I think perhaps what you could do is buy gluten-free for a month, cost it, then see if it's worth your while compared with what the NHS can offer.  With some bread loaves costing £3.50 a shot, it might be worth it? By the way - do keep us posted if you can, we'd love to know if your gastroenterologist insists upon an endoscopy.    
    • Katiec123
      Finding out I’m coeliac whilst pregnant

      By Katiec123 · Posted

      Hi everyone!  I’m beginning to get a bit worried. I have had the first lot of tests done and my bloods are showing as a very strong positive for coeliac. I am also currently pregnant. I have been told to continue to eat gluten until more testing is done (biopsies). If I continue to eat gluten when the chances are very high that I am coeliac, will this harm or affect baby? I feel like I don’t know where to get answers from as I haven’t seen the specialist yet 
    • Spacepanther
      Joint swelling when ill even on gluten-free diet

      By Spacepanther · Posted

      I have had joint pain as one of my dominant symptoms. I've wondered, mostly to myself until now, whether it could be related to another autoimmune concern. Have you had any ideas of what else it might related to? 
×
×
  • Create New...