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Wendie :)

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I have been reading posts for a week or so trying to get a handle on the gluten free diet. I do not have celiac. I have everything else but not celiac.

First off: I have LUPUS & Fibromyalgia. I have many food allergies - I'm allergic to: Gluten, Almonds, Asparagus, Barley, Lamb, Malt, Milk (cows), Onion, Vinegar, Pepper, Watermelon, Wheat, Yeast(Bakers & Brewers), Yogurt, Tomato & Corn. I also have many air born allergies.

I have been researching online & I'm reading that the gluten allergy is rare. It is usually a sensitivity or intolerance. My doctor sent my blood work to Alletess & they sent me a report of my allergens.

I have know this for a while and any symptoms were always just chalked off to being caused by my LUPUS & I was given scipts. But while reading through the posts on this forum - I'm pretty sure that most of them were because of my allergies & the food that I was eating. I tried to keep a log to see what was actually bothering me but then was told that I could react anytime up to 72 hours so that made it really hard.

My nail beds are rippled & when I asked my doctor she told me that I probably had a fungus. Which I thought was ridiculous - all ten?

My Vitamin D level was at 15 for a long time & after taking 50,000 btu's for a year, it finally went back up to 30. Should be over 30.

My LUPUS doctor told me that my body doesn't absorb Calcium or Folic Acid correctly - so I take extra of those.

Endoscope with a dx of spastic colitis.

I have always had long periods of time where I would wake up in the morning high stomach ache. But as soon as I was up, it would go away. Had an Upper GI with a dx of weak flap/muscle where the esophagus empties into the stomach.Which causes GERD, which causes sore throats, ear aches, fatigue.

Then referred to have a stomach emptying test - dx of gastroparesis. after 5 hours still had 35% in my stomach.

I wake in the morning with major swelling in and around my eyes - so much that I get sacs of fluid above & under. This they said was my sinuses.

I have headaches frequently - especially when it is going to rain.

So about 3-4 weeks ago I just had enough & pulled out my allergy information and decided to give it a go. I have been very strict not to eat any gluten at all & I have to say I feel much much better. The biggest change is that I have absolutely no problems digesting food or going to the bathroom without taking any medication. In fact I haven't taken anything to go to the bathroom since I kicked gluten out & that alone is HUGE for me.

So I feel like I have a handle on the gluten part of my diet. I have been eating veggies & fruits mostly but because I have an allergy to Cow Milk, yeast, etc., I really am having a hard time coming up with stuff to eat. Everything that they offer to substitute is something that I'm allergic to.

Plus I feel like I can eat for hours and I'm still hungry. Can't seem to get full. But I'm not giving up because now I'm actually afraid to eat anything I'm allergic too because my list of foods that I can eat has Cheddar Cheese on it - so I cooked a hamburger & put 1/2 slice of cheddar on it & wrapped it in lettuce. I had a reaction a couple hours later that was 10 times worse that I used to have. I'm not even sure if it was the cheddar or maybe the grease from the hamburger?

Alletess is the company that did my blood work sent me a binder of food that I can have & can not have. Cheddar cheese is on the list - along with cottage cheese. I thought that maybe it was processed differently & that is why it says that I can have it? I love cottage cheese.

Does anyone know if there is a difference? Also, I'm allergic to vinegar, onion & pepper - I'm having a rough time finding any salad dressing for salads or sauces to dip my chicken or meat in. Any suggestions would be so appreciated.

My last question is there a chance that after being on this diet for some time that the allergy will go away. Like maybe my system just needs a break? Probably just wishful thinking on my part :)

Thank you & I'm grateful for finding this forum.


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You might be pleasantly surprised at how gluten-free improves your system. Allergies can come and go and no allergy list from a blood test will be perfect. The tests are meant to be a guide to an elimination diet. I notice you reacted to wheat, gluten, barley, and malt, which does suggest gluten intolerance. Take out gluten for good - the stuff is no good for you since you have an autoimmune disease already.

Take out everything else until you feel better. Then talk to your doctor about the safety of challenging the foods that are in your binder one at a time. B)

It looks like you can have beans and rice? Rice cakes? How about potatoes? Cashews are botanically different from tree nuts so those might work.

You can make an olive oil and lemon juice dressing. Then use herbs on your safe list like oregano, garlic, parsley, cilantro, or thyme. :) Guacamole is good too. I make it with avocado, lime, and a little garlic. Looks like you could have hummus too. If you want something tart, try either homemade or Bubbie's brand sauerkraut. It doesn't have vinegar. The tartness comes from lactic acid made by bacteria. http://www.wildfermentation.com/resources.php?page=sauerkraut

It looks like Aletess tests cheddar and cottage cheese separately. Rennet makes a difference maybe? Or the aging? I don't know. Cheddar has lots more amines and tyramine in it but that's not an allergy issue.

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[quote name=Wendie :)' timestamp='1330626233' post='777524]

I have been reading posts for a week or so trying to get a handle on the gluten free diet. I do not have celiac. I have everything else but not celiac.

Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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