Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone In Md Or East Coast?


KaitiUSA

Recommended Posts

Lauren M Explorer
I'm 22, and not recently diagnosed at all! Been diagnosed for about 20 years now.

I live in Southern Pennsylvania, but find myself often in South Jersey where I grew up (in Washington Township). I'm always looking for new friends, not to mention people to meet and talk to who understand the plight of eating gluten free :)

Samantha

Hey Samantha! I just moved from Deptford, NJ to the Maryland area, and my parents live in south-central PA. Are you more toward Philly?

- Lauren

Link to comment
Share on other sites
  • 3 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 136
  • Created
  • Last Reply
jacwheeler Newbie
Hey everyone!

"Home" for me is Gettysburg, PA, I work in Howard County, MD, I go to school in Philadelphia, and I'm moving to New Jersey soon. So yep, I've got Maryland and the East Coast covered! :)

I'm 23, enjoy reading, horseback riding, horses and animals in general. I work for a horse magazine.

Kaiti - do you go to school in Frederick? I'm pretty familiar with Frederick - I drive through there to get to work and I sometimes go there to shop, etc. (b/c there is no civilization around me!) In fact, I'm going there to see a movie tomorrow :D

- Lauren

Hi there. I live 20 minutes North of Philadelphia and about 20 minutes from Trenton. So I've got those 2 states covered. My 2 stepcousins and Aunt love to ride horses. They have 2 and do a show every weekend it seems. My Aunt also shoots all the shows and then has a website business where people can buy her photos. Here is her link if you're interested or have run across her in shows Open Original Shared Link

Philadelphia and the New Jersey area has a lot to offer for gluten-free people. If you have any questions just let me know!

Open Original Shared Link

Link to comment
Share on other sites
Lauren M Explorer
Hi there. I live 20 minutes North of Philadelphia and about 20 minutes from Trenton. So I've got those 2 states covered. My 2 stepcousins and Aunt love to ride horses. They have 2 and do a show every weekend it seems. My Aunt also shoots all the shows and then has a website business where people can buy her photos. Here is her link if you're interested or have run across her in shows Open Original Shared Link

Oh wow, how cool! Where does your Aunt live? I'm wondering if I've seen her at some shows before. I was looking at her website, but didn't see a location. You can PM me if you prefer.

(By the way, since my quote post was originally made in 9/05, I have moved to New Jersey, and recently back to Maryland, now in Frederick since Jan of this year. Time flies...)

- Lauren

Link to comment
Share on other sites
  • 4 months later...
Guest keegans_mommy

I live in Marshall, VA. It's about 45 min. west of D.C. and really not too far from those who live in Fairfax :) I am new to this site and to the Celiac life and would like to know of places to eat out! I feel so alone in this!

Link to comment
Share on other sites
jmengert Enthusiast

My parents live in Marshall, VA, and I go up there to visit fairly often. While I don't eat out anymore (too many other intolerances), the IGA in town has a fairly good gluten-free selection, as does Bloom. IGA used to have even more products, when I was first diagnosed, but they do take special requests/orders.

When I was still eating out, I went to the Outback in Warrenton, Fairfax, and Centreville, never having a problem at any of them. There's also a Bonefish in Gainesville, which has a gluten-free menu, but I got sick from that one.

Link to comment
Share on other sites
Guest keegans_mommy
My parents live in Marshall, VA, and I go up there to visit fairly often. While I don't eat out anymore (too many other intolerances), the IGA in town has a fairly good gluten-free selection, as does Bloom. IGA used to have even more products, when I was first diagnosed, but they do take special requests/orders.

When I was still eating out, I went to the Outback in Warrenton, Fairfax, and Centreville, never having a problem at any of them. There's also a Bonefish in Gainesville, which has a gluten-free menu, but I got sick from that one.

No way! I wonder if I know them ;) We've only lived here for 6 years this Dec. though :)

I have noticed that IGA does carry a good amount of specialties but they are expensive!!!! Bloom has some stuff too but I still find myself going to Whole Foods to get a bunch of stuff to suppliment. I can't find everything I want/need around here.

The Outback recommendations are great! Thank you :) I've never been to Bonefish before, all seafood huh? It's nice to "meet" you :)

Link to comment
Share on other sites
jmengert Enthusiast

Yeah, it's a small world! My parents have lived there about 7 or 8 years now, I guess. It would be funny if you knew them!

IGA *is* expensive. I buy certain things there when I'm up that way, but I still do a lot of shopping at the Whole Foods in Fairfax.

I hope the Outbacks work for you; I got glutened horribly by one down here where I live, but I was okay with the ones up in that area. I would just be very clear with your needs and try to go during an off time.

Bonefish had great food--it's mostly seafood, and it's a bit pricey, but it's good. However, since I got sick there, I haven't been back. This was shortly after they opened, so hopefully they are better with the gluten-free options now.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
razzlephrat Newbie

Another Maryland-er here.

Well, Baltimorian..sadly. haha

I don't know anyone here with Celiacs. :(

Link to comment
Share on other sites
blueeyedmanda Community Regular
Another Maryland-er here.

Well, Baltimorian..sadly. haha

I don't know anyone here with Celiacs. :(

I am in PA but Welcome to the Board :) Baltimore if about an hour and half from me :)

Link to comment
Share on other sites
razzlephrat Newbie
I am in PA but Welcome to the Board :) Baltimore if about an hour and half from me :)

Awesome, my dad lives in PA about 30 minutes from me. If you don't mind me asking where about? (He lives in the Felton/Red Lion area)

Link to comment
Share on other sites
blueeyedmanda Community Regular

I'm in Harrisburg, well the Harrisburg area.

Link to comment
Share on other sites
Guest Jemenii36

Hey everyone- I am from New Jersey and new to this site (it seems so confusing!)...I am 20 years old...soon to be 21...has everyone been diagnosed with celiac disease recently or living with it for awhile?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
×
×
  • Create New...