Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Freaked Out


varthurs

Recommended Posts

varthurs Apprentice

I have been gluten free for 3 weeks (confirmed celiac by blood work and biopsy) and I have also been lactose free for 1 week.

Today when I went to the bathroom, my stool was yellow and had oil around it.

Does this mean I have eaten something with either lactose or gluten? This is the first time I've ever seen this and it scared me. I have been super careful about what I'm eating, so don't see how I could have made a mistake.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LuLuBee Newbie

I have been gluten free for 3 weeks (confirmed celiac by blood work and biopsy) and I have also been lactose free for 1 week.

Today when I went to the bathroom, my stool was yellow and had oil around it.

Does this mean I have eaten something with either lactose or gluten? This is the first time I've ever seen this and it scared me. I have been super careful about what I'm eating, so don't see how I could have made a mistake.

Hi Varthurs,

I wish I had an answer for you. I have been working on being gluten-free for about a week. I have noticed a difference in my stools too. I make the assumption that its just a "cleaning out" of the bowels. I'll be curious what the regulars have to say. Good Luck to you on 3 weeks "clean"!

Link to comment
Share on other sites
kareng Grand Master

For me, poop was all over the place - color & texture. I figure that there might be some damaged stuff to clear out the first few weeks.

I also think it takes a while - months or years, to get the whole system back on track.

Link to comment
Share on other sites
gilly31 Newbie

I agree with the previous posters that it is probably nothing to worry about it. Your body is likely just readjusting.

However, I'm going to add the cautionary note. If the pale stools continue for the next few days and you are having other symptoms (severe abdominal pain, severe fatigue...more than just the usual stuff), you may want to contact your health professional. Unusually pale or light-colored stool can be caused by an interruption of in the process of bilirubin metabolism (which involves your gall bladder and liver).

Again, it's probably nothing, but keep on eye on the toilet bowl for the next few days.

Link to comment
Share on other sites
Cujy Apprentice

I know this won't help, but I was just diagnosed last week and been on the diet for a few days, my stool before was bloody, mucousy and oily too....The blood only came with the pain, now though I havn't had the pain as of late, but the mucous is still there. Not too worried about it, more worried about kidney issue Im having. Did you ask your doc about the mucous? I would, I like driving my doc mad with questions!! :rolleyes:

Link to comment
Share on other sites
GFinDC Veteran

You might do better with some probotics sand some digestive enzymes. Going gluten-free is a big change in diet for you, but how about all those millions of little bacteria critters in your gut? The are all suddenly having to eat different, unfamiliar foods too, and their regular standby of gluten is gone. They may get pretty upset by that change, and start dieing off in drives, or even attacking each other. Different strains of bacteria may become prominent and formerly viable ones may die off. All that change is enough to cause GI upset. Probiotics and no sugar may help. But it will take some time to get things settled down.

Link to comment
Share on other sites
Strawberry-Jam Enthusiast

The oil means you are malabsorbing fat at the moment. When your gut heals this should stop, but you can help yourself by taking digestive enzymes with ox bile when you eat. The ox bile helps break down the fat. You can also eat less fat for the time being, since you're not absorbing it properly, and focus on taking probiotics and eating gut-healing foods.

I have trouble on and off with fat absorption as well. too much fat and I get nauseated and have frothy D. When I'm taking probiotics and enzymes this gets a bit better. I find that I tolerate olive oil, peanut butter, and avocado better than animal fat, cashews, or other oils. idk why.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aeraen Apprentice

For me, poop was all over the place - color & texture. I figure that there might be some damaged stuff to clear out the first few weeks.

I also think it takes a while - months or years, to get the whole system back on track.

I'm glad you followed up w/ an explanation, Karen. You had me scared for a moment.

Link to comment
Share on other sites
Luddie Newbie

I have been gluten free for 3 weeks (confirmed celiac by blood work and biopsy) and I have also been lactose free for 1 week.

Today when I went to the bathroom, my stool was yellow and had oil around it.

Does this mean I have eaten something with either lactose or gluten? This is the first time I've ever seen this and it scared me. I have been super careful about what I'm eating, so don't see how I could have made a mistake.

Over the past 3 years I've had all varieties, and found that when I was taking too much fish oil I had a problem. I have been on many elimination diets, causing all sorts of bowel issues, and finally decided (in addition to no gluten) to again do away with eggs and dairy and solanaceous vegetables (joint pains). I've also added -- very slowly at first -- raw (unpasteurized) sauerkraut. I eat some everyday, and I do believe it has helped as the bowel frequency, color and consistency have all improved to what I would consider "better" than before I was diagnosed!! So, there is hope. You really do have to take the time to read, study the literature, communicate on this site with others, and most important, as has been said by others: listen to your own body. Write everything down. I made up a weekly chart to keep track of all my supplements, what foods I was eating, how the bowels were behaving and anything else I needed to track. It helps immensely. I feel that I'm definitely on the right track finally, and it has been a long, tedious fight!

Best of luck.

Luddie

Link to comment
Share on other sites
CR5442 Contributor

Also don't forget that gluten, though it has torn your villi to shreds, has put a coating of gloop on your intestinal lining, which has protected you to some degree from the leaky gut you would otherwise have. What may be happening is that larger food particles than normal are making their way in to the bloodstream and to the liver, where it is struggling to cope. More toxins/stuff to deal with would normally cause a thickening of the bile and paler stool. You might try a number of things to help this. L-glutamine is meant to help rebuild the gut lining... take 1 hour before eating. Slippery elm or marshmallow powder are also good, forming a protective coating on the bowel. To help the liver you can take bitters, there may be some ready made formulations from your local health store, alternatively the best one I find is rosemary made up in to a tea - three sprigs. Organic if possible. Hope this helps.

Link to comment
Share on other sites
tom Contributor

Also don't forget that gluten, though it has torn your villi to shreds, has put a coating of gloop on your intestinal lining, which has protected you to some degree from the leaky gut you would otherwise have.

....

Wait .. .what?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748

    NYKaren
    Newest Member
    NYKaren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...