Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Kidney Stones!?


Cujy

Recommended Posts

Cujy Apprentice

Okay all for fear of sounding redundant....Ciliac can cause kidney stones yes? So am I over reacting in asking my doc to do a renal ultrasound, or should I just do as she says and stay on the GFD and suck up with the pain and deal with it...see if the diet helps? How long do I wait...How long do I sit in pain to see if the diet alone will make all things great? Does anyone else on here have ciliac and kidney stones, or kidney issues? Ive never had any existing issues with my kidneys until now and am very nervous just letting the issue sit and stew...especially given the pain Im in from it. Maybe Im just a hypocondriac... :( I don't want to keep mentioning it, but maybe someone with the same experience can shed some light on this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eleanor Creasey Rookie

Okay all for fear of sounding redundant....Ciliac can cause kidney stones yes? So am I over reacting in asking my doc to do a renal ultrasound, or should I just do as she says and stay on the GFD and suck up with the pain and deal with it...see if the diet helps? How long do I wait...How long do I sit in pain to see if the diet alone will make all things great? Does anyone else on here have ciliac and kidney stones, or kidney issues? Ive never had any existing issues with my kidneys until now and am very nervous just letting the issue sit and stew...especially given the pain Im in from it. Maybe Im just a hypocondriac... :( I don't want to keep mentioning it, but maybe someone with the same experience can shed some light on this.

Interesting. I passed a kidney stone and became sick afterwards...almost a year later I was diagnosed as gluten-intolerant. Do I think Celiac causes kidney stones...I don't think so. I know dehydration causes kidney stones. My doctor suggested that the stress of passing the kidney stone may has caused the onset of the gluten-intolerance. I sure hope you feel better soon! Are you drinking lots of water?

Cujy Apprentice

Yes I always drink tons of water... and could urinate all day long, I sometimes equate myself with a perculating coffee machine! LOL Sorry too much information.

I was told that celiac can cause kidney stones...dunno...my doc couldn't give me a difinitive answer, but did cite the "significant calcium crystals" in my urine as the result of celiac.

AVR1962 Collaborator

I have had issues with kidney stones for ovr 20 years. Have 2 lodged in my kidneys as I type. The thing here besides hydration is that you could also being having irritants that are causing the kidneys issues, like chlorination in the water. This will aggrivate my kidneys, make me sick,lots of pain in the kidney area. I also stay away from caffeine as this can cause issues, pain and dehydration. Because I have lodged stones that I don't want to grow if I can hlp it I also avoid nuts and spinach along with black tea.

If you are passing a stone, drink tons of water. When I start feeling the pain in my kidneys I will go to a liquid diet for usually 3 days til symptoms pass, no alcohol. If you have never passed a stone before don't worry.....it is pinful but unless it blocks something or lodges some place else you should be fine. I have had many a ultra sound and they ahve never caught my traveling stones.

Let me know if you have any more questions.

Annette

Ninja Contributor

Celiac is associated with kidney stones. My limited knowledge tells me that in the gut calcium binds with the excess fats (not absorbed due to untreated celiac) and leaves an excess amount of oxalate molecules. Those molecules travel to the kidneys and bind with the calcium there to be filtered out and expelled through the urine. (Missing some specifics and a few steps here...) This process is not as efficient as the gut is which makes it prone to complications including stones. Of course, dehydration exacerbates this issue and celiacs tend to be dehydrated..... Here's a good article:

Open Original Shared Link

I had a bout of kidney stones for the first time a couple months ago. I so understand and empathize with you...the pain is terrible. I had periods where the majority of the pain would subside though... The worst was the residual bladder pain...it took 2-3 weeks to resolve! Drove me crazy!! I hope you get feeling better soon!

~Laura (who is writing on a tiny keyboard and apologizes for any errors...)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Babygirl877's topic in Coping with Celiac Disease
      2

      Recently diagnosed with Celic disease

    2. - trents replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?

    3. - ErinV replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?

    4. - plumbago replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Decreasing tTiga?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,569
    • Most Online (within 30 mins)
      7,748

    Lochlynn
    Newest Member
    Lochlynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Babygirl877
    • trents
      Welcome to the  forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:   
    • trents
      @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two statements are in direct contradiction to one another. Where did she get the genes for potential celiac disease then?
    • ErinV
      Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it.    these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer.  Hers were at 1:10 the past 3 times and then this time it came back on her portal as just “negative” Her platelets this time came back at 451, and the normal range is 150-400. They have been in the normal range the past three times. Tissue Transglutaminase Ab-  <15.0 Antibody not detected > or = 15.0 Antibody detected Her Value 76.1 this time. 8 months ago it was 140, 6 months before that it was 120 and the time before that it was 72. From what I’ve read and from the doctor, this is the most specific test for celiac and what we should focus on the most. 76 is still extremely high, but why did it decrease when nothing in her diet has changed?
    • plumbago
      Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is not new that there's no real health status change. Personally, I don't like that assessment, and I would question it. From the bits you have posted, it does look like she has Celiac, but I would want to see a more comprehensive panel. It's good you've continued doing the blood tests, and are in general staying on top of it. (Are there others in either your family or the child's father's family that have had Celiac?) People without Celiac do not test positive, regardless of the level. Other moderators on this board may have more up to date information than I do, but I think that's still true. Plumbago
×
×
  • Create New...