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squirmingitch

Dh & Probiotics - Sals Or Iodine

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Tart indeed! :P

I added a bit of stevia to it. Otherwise, it is just like sour cream to me. :lol: :lol: Good on taters!

Mango is one of my favorite fruits EVER. I ate so many of them in FLa last month (along with other sals )and I may have overloaded my system. When I get glutened ---or overdo the sals, etc.-- I BURN in my skin. From head to toe--a deep radiating burning sensation no one could explain to me. (until my DX) It's horrible.

You guys get itchy and scabby. I get itchy and oozey little sores on my scalp and this insanely intense burning in my skin --so bad I could not wear clothing at times. It made my life living hell. I had it for nearly 4 years until it subsided. I asked the doc about this and he said it is just like a pre-cursor to the blistering. The derma layers are affected, but I do not erupt. I hate the burning....ARRGH!!

So, I feel for you guys with DH; I really do. :(

BTW

I think you may notice....the sals websites are never the same :rolleyes: in their lists of high-low foods.

YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Glad you found some yogurt that will work! For what it's worth, Failsafe diet allows vanilla flavor. It also allows natural maple syrup. I bet that would take the edge off plain yogurt. I like plain Fage better than Chobani. Grab it if you ever see it becasue it's really mild and good.

Looks like I'll be eating a lot of vanilla yogurt then. Thanks! I've never cared for maple --- I know -- weird --- but I may just have to learn to like it. You know, I was so excited to find the Chobani that I didn't even look any farther. I will look & see if I can find Fage. Thanks Skylark.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.

The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)

What an appropriate term "Victory Vacation". Brings tears to my eyes.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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What an appropriate term "Victory Vacation". Brings tears to my eyes.

Yeah, we cried, too--for joy...as I walked on the beach. At one point, I could not walk the length of my driveway or get in/out of the shower without assistance. I had such extreme exhaustion from anemia, shortness of breath, vertigo, ataxia and horrid joint, nerve and muscle pain from loss of muscle mass. I was told to get a scooter, take medications, live with it. I refused. I knew there had to be an answer for the dozens of symptoms that had evolved.

Never say die, squirmy girl! ;)

Healing happens.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Oh, I know. Remember, I come from a line of Dutch people & who is more stubborn than Dutch? The people who were stubborn enough to build dykes capable of holding back the North Sea. The North Sea which is feared by the most experienced sea captains. The North Sea which is vicious & mighty & has a strength of untold proportions. These people hold it back & steal land from the mighty sea.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Now, that's what I'm talking about!

Warrior princesses, one and all. ;)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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wink.gif

Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Here's what I'm eating Diane ---- about half way down the page. And I might add that the milk & cheese I'm eating is from a local dairy & has less iodine than anything I can get at the store.

http://www.celiac.co...ed/page__st__75


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Here's what I'm eating

SQIRMY GIRL!!!

Wanted to tell you!! Alex told us about soy free mayonnaise on some thread? (which I can't find because I have my hands in about 3 or 4 dozen threads and I'm all over the place :lol: ) and hubs found it at the supermarket!

I have made my own mayo, but I don't wanna anymore! I want Hellmann's, dammit!!. :lol: :lol:

Well, Hellmann's (aka Best Foods) makes a canola oil mayo. NO SOYBEAN OIL! (they make an EVOO one too, I hear)

and she was not kidding---it's almost the same as regular mayo. I was skeptical, because I tried the Spectrum canola oil mayo--and I do NOT like that taste at all. Blech!!!!

But, this tasted pretty darn good!!

I am having an egg salad sammy today!!! yaaaay!!

Geesh, the littlest things make IH happy.... :)

If you cannot find it down there, tell me and I will ship you some. (Not kidding, I've done it before. No one should be deprived!)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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LOL! You're so sweeeeeeet. I have it on my grocery list for Monday & will look for it. If I can't find it around town then I may just take you up on your offer to ship me some.biggrin.gif

Ohhhhhhh, egg salad sandwich. Ohhhhhhhhh....... Soon, very soon I will do it. Hum. Maybe for my after dinner snack tonight!

And yeh, I don't want to make my own Mayo either. Biggest problem is the shelf life of it. But I did grow up with us making Mayo fairly often & it was YUMMY! But when we didn't make it ---- HELLMAN'S!!!!!!!!!!!!

What does EVOO mean?

Enjoy your egg salad sammy!biggrin.gifbiggrin.gif It's the little things that make us happiest right? Right!


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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What does EVOO mean?

extra virgin olive oil (sorry, I get lazy) :lol:


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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No, no not lazy. I like learning the shortcut talk. I had an idea it was something to do with olive oil but couldn't think it out.

Hum. My egg salad sammy tonight will have to be with the crappy mayo with soy in it so I'd have to be very stingy ---- think I'll wait for Monday. It'll be that much better then.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Oh Dani, I thought you had. I thought I remembered you posting in it. I must be confused.How are you doing?


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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No, no not lazy. I like learning the shortcut talk. I had an idea it was something to do with olive oil but couldn't think it out.

Hum. My egg salad sammy tonight will have to be with the crappy mayo with soy in it so I'd have to be very stingy ---- think I'll wait for Monday. It'll be that much better then.

Let's do a "taste test review " then :lol:


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I could do that.smile.gif


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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I could do that.smile.gif

you are a most agreeable girl.

:lol:

After so many conversations with you now, miss squirmy, I am thinking it may be best that you and I do NOT live too near each other? :lol: :lol: :lol:

I have this feeling we could get into some trouble together. B)

....just sayin


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Like when we get old & decrepit & get sent to nursing homes? We could plan "break outs". I'd love it!laugh.gif


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Oh! And wouldn't we just cause a stir about the food & cc issues & true gluten-free eating? We'd be breaking into the kitchens at night & making things right.laugh.giflaugh.giflaugh.gif


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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:lol: :lol: :lol:

oh honey, by the time we are old, celiacs and gluten-freebies everywhere will have taken over and be ruling the world! No worries.

No nursing home can hold me....do they make nursing home RVs??


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Nursing home RV's indeed! Funny girl.laugh.gif


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Nursing home RV's indeed! Funny girl.laugh.gif

:lol:

gotta laugh, hon

or roll over and die

I pick laugh


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Me too.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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