Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Success Stories Please!


Littllemel

Recommended Posts

Littllemel Apprentice

I am looking for some inspiring stories about leaky gut and food intolerances. I am currently on a rotation diet trying to fix leaky gut and I read a lot of posts on this site but sometimes they can be very sad. Which in turn can make me sad. Even my own posts are very sad and depressing.

Has anyone ever beaten this and gotten better? How long did it take you? What diet did you try? Supplements? What can you eat now?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I don't know if I would be considered a success story or not. The sad thing is when you have food intolerances, they can and often do change over time. One Dr. told us to be rested every 3 years. My last test was the hair test. Therre were 21 intolerances on that list but really it is more because it includes all fish and seafood. No matter to me since I don't like that stuff anyway. I did like tuna but I can live without it. Some of this stuff I never would have found on my own. Like the thyme, marjoram, cloves, allspice, lovage or even mint.

I just know that I immediately stopped eating all of those things. And a number of problems cleared up. Bowel problems, nasal/sinus problems, weird nose bleeds, weight gain, swelling of hands, even elevated blood sugar. I am a diabetic. I have had to reduce my insulin use and I think I need to reduce it further because I am having some lows.

I take a ton of supplements, none of which really relate to this or maybe they do. Since I can't eat some foods, I am lacking in some things. There is something that is only in fish that I am deficient in. But unless things change, I will have to remain deficient. I did try krill oil for a little while. It didn't seem to benefit me and I couldn't stomach the smell of it. I also have additional medical problems that limit what I can eat even further. And I simply don't like meat. I do have to force myself to eat some, mainly because it is difficult to dine out if you don't eat it and I get anemic if I don't have red meat twice a week. So mainly I use my restaurant meals for that.

I am not going to list all of the supplements that I take because they wouldn't necessarily apply to you. But I do think most everyone would benefit from a good probiotic. Do read the label if you have dairy problems. Some contain dairy.

Bubba's Mom Enthusiast

I am looking for some inspiring stories about leaky gut and food intolerances. I am currently on a rotation diet trying to fix leaky gut and I read a lot of posts on this site but sometimes they can be very sad. Which in turn can make me sad. Even my own posts are very sad and depressing.

Has anyone ever beaten this and gotten better? How long did it take you? What diet did you try? Supplements? What can you eat now?

Unfortunately, you may not see many success stories posted? Those who have been successful in getting things sorted out and are now healthy tend to move on..and not stick around here?

The ones that are doing great..just get on with the life they had before. They may drop in from time to time to say hello..or they just read a bit..or they come back if some issue crops up and they need help again?

I know sometimes the posts here are depressing..but this is a place where we can share our feelings, or symptoms with others that "get it". Sometimes people post when they feel at their wit's end? We need to have a place where we can "get real", instead of putting on a brave face like we have to do when we're around others that aren't gluten-free?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748

    Shrub
    Newest Member
    Shrub
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.