Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac/gluten Intolerance?


kbridges

Recommended Posts

kbridges Newbie

Hi everyone :)

I was hoping you could help me out? I think I might have some sort of intolerance to gluten. I've gone to see a doctor and he's not too sure what it is. He's testing at the moment for a virus, but I don't feel 'sick', if you know what I mean??

I've got lots of info below :) Let me know what you think?

Background

When I was a newborn hospital staff fed me incorrect formula (I was also meant to be breastfed). This resulted in my digestive system being scoured/damaged. I became very sick, had failure to thrive. Eventually I was diagnosed with an intolerance to milk protein. I've grown out of this now, and am able to eat/drink dairy products without any ill effects.

I have also been diagnosed in the past with chemical depression - which they speculate is caused by my digestive system not absorbing certain nutrients.

I have always been prone to illnesses, especially stomach bugs.

Current Symptoms

I have noticed for a period of around 4-5 months I have been starting to feel sick after eating. I have also had irregular bowel movements.

I feel especially sick when I eat Oats, Chips, deep fried foods, wheat cereals, pancakes and foods that have been cooked in a lot of oil? I'm fine eating plain foods such as meat and vegetables.

I also get exhausted easily, and I have noticed that I no longer have the stamina I once had.

Over the last 2 weeks I my symptoms have worsened. I have felt extremely nauseous, I feel like throwing up but never do (I gag). I've also lost my appetite, I've missed meals - yesterday I barely at any lunch or dinner and felt very sick (this was after eating wheat cereal) I sort of feel hungry, but just can't/don't want to eat?? Hard to explain.

My doctor felt my stomach and said I was very bloated (although I haven't eaten hardly anything)

I am also starting to get very thirsty - I have to have a bottle of water with me everywhere I go.

I had THE WORST itch I have ever had - but didn't look like Dermatitis Herpetiformis. It hung around for about a month, up until a few weeks ago.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hi everyone :)

I was hoping you could help me out? I think I might have some sort of intolerance to gluten. I've gone to see a doctor and he's not too sure what it is. He's testing at the moment for a virus, but I don't feel 'sick', if you know what I mean??

I've got lots of info below :) Let me know what you think?

Background

When I was a newborn hospital staff fed me incorrect formula (I was also meant to be breastfed). This resulted in my digestive system being scoured/damaged. I became very sick, had failure to thrive. Eventually I was diagnosed with an intolerance to milk protein. I've grown out of this now, and am able to eat/drink dairy products without any ill effects.

I have also been diagnosed in the past with chemical depression - which they speculate is caused by my digestive system not absorbing certain nutrients.

I have always been prone to illnesses, especially stomach bugs.

Current Symptoms

I have noticed for a period of around 4-5 months I have been starting to feel sick after eating. I have also had irregular bowel movements.

I feel especially sick when I eat Oats, Chips, deep fried foods, wheat cereals, pancakes and foods that have been cooked in a lot of oil? I'm fine eating plain foods such as meat and vegetables.

I also get exhausted easily, and I have noticed that I no longer have the stamina I once had.

Over the last 2 weeks I my symptoms have worsened. I have felt extremely nauseous, I feel like throwing up but never do (I gag). I've also lost my appetite, I've missed meals - yesterday I barely at any lunch or dinner and felt very sick (this was after eating wheat cereal) I sort of feel hungry, but just can't/don't want to eat?? Hard to explain.

My doctor felt my stomach and said I was very bloated (although I haven't eaten hardly anything)

I am also starting to get very thirsty - I have to have a bottle of water with me everywhere I go.

I had THE WORST itch I have ever had - but didn't look like Dermatitis Herpetiformis. It hung around for about a month, up until a few weeks ago.

Your symptoms could fit with Celiac, or gluten intolerance. Ask your Dr. to run a Celiac panel. Do your best to continue to eat gluten until the blood is drawn for the test.

If you test negative, still give gluten-free a try for 3 months? Many of us (20-30%) test negative but have Celiac or gluten intolerance. It would be a good idea to omit dairy during this time too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748

    bobadigilatis
    Newest Member
    bobadigilatis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.