Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent, Having A Hard Time

sharilee

By sharilee
in Coping with Celiac Disease

Recommended Posts

sharilee Rookie
sharilee
Posted

I was doing fine with all the gluten filled goodies people bring into work. But this week it is really bothering me. It is not that there are more goodies this week than any other week but I am bothered by it more. I want to literally scream to my co-workers stop talking about food all the time and the next time to have a pizza party. Today I wanted to throw the chocolate cake in the trash that was sitting in the kitchen. Then today they are arranging two teams for a contest on Monday, and the winner gets pizza.

I am not sure why it is bothering me so much this week. Maybe it is finally hitting me that my whole life and way of eating has changed (I was diagnosed in late February 2012). Or this week after still having problems I cut out caesin, lactose, soy, etc (will be adding those back in later to see what may be also causing problems) and I am only eating naturally gluten free foods (so I can't have gluten free brownie).

Thanks for listening. I just needed to vent to people who understand.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BabsV Enthusiast
BabsV
Posted

Awwww, I'm so sorry. We've all been there and it is really tough. It does get easier over time but this feeling has reared its ugly on me at totally unexpected times...I was reading a novel about a cooking competition and I almost couldn't finish it!

Anyway, come and vent here. You are among friends. :)

pricklypear1971 Community Regular
pricklypear1971
Posted

I'm sorry. It sucks.

I know you're trying not to, but if you could have a gluten-free brownie I'm sure it would help. Goodness, if I didn't have my crutches when going gluten-free my head would have popped!

Would a King Arthur flour mix / cocoa brownie fit your diet right now?

Sorry, I am an enabler....

Christine0125 Contributor
Christine0125
Posted

I was diagnosed about the same time and I'm having my ups and downs as well and can totally relate. I feel a little over-consumed by the diet if that makes sense... seems my life is revolving around it right now. I'm hoping it just feels like the new normal after awhile. They say eventually the gluten filled foods won't appeal at all - wonder when that will happen.

pricklypear1971 Community Regular
pricklypear1971
Posted

I was diagnosed about the same time and I'm having my ups and downs as well and can totally relate. I feel a little over-consumed by the diet if that makes sense... seems my life is revolving around it right now. I'm hoping it just feels like the new normal after awhile. They say eventually the gluten filled foods won't appeal at all - wonder when that will happen.

After a good glutening.

Sorry....but if you get into it and have a major reaction you'll start creeping around it like its the embodiment of The Plague.

I'd get DH from it - so I wore my gluten like a banner.

Physical disfigurement goes a long way. But so does a debilitating stomach ache, urgent D when there's no bathroom, or a crushing migraine that leaves you unable to function in public.

So yeah - unfortunately gluten will stop looking good once you make an association with pain. Probably :).

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I was doing fine with all the gluten filled goodies people bring into work. But this week it is really bothering me. It is not that there are more goodies this week than any other week but I am bothered by it more. I want to literally scream to my co-workers stop talking about food all the time and the next time to have a pizza party. Today I wanted to throw the chocolate cake in the trash that was sitting in the kitchen. Then today they are arranging two teams for a contest on Monday, and the winner gets pizza.

I am not sure why it is bothering me so much this week. Maybe it is finally hitting me that my whole life and way of eating has changed (I was diagnosed in late February 2012). Or this week after still having problems I cut out caesin, lactose, soy, etc (will be adding those back in later to see what may be also causing problems) and I am only eating naturally gluten free foods (so I can't have gluten free brownie).

Thanks for listening. I just needed to vent to people who understand.

I can relate!

I have trouble even reading the magazines I have subscriptions to. They're filled with recipes I can't eat, and photos of the most yummy looking foods! Even watching tv in the evening, with all of the food commercials gets to me sometimes.

I can just imagine how hard it would be to have the offending item right there, where you can smell it! :o

Metoo Enthusiast
Metoo
Posted

After a good glutening.

.....

So yeah - unfortunately gluten will stop looking good once you make an association with pain. Probably :).

Ditto THIS! After my 1st glutening....I never craved another thing in the cafeteria.. (I have DH and its so painful and terribly annoying while healing).

You will get to a point you stop craving things....in the meantime though, buy yourself some Chebe Pizza Crust Mix. This was a craving lifesaver for me...I can now make pizza anytime I want it at home, and its less than $5 a pizza! If I start feeling bad about not being able to have things (like today everyone in my department went out to eat, and I didn't even though I wanted to because the place was a really unsafe place for me to eat, or even drink (brewery))...so tonight I am making pizza!!!

And buy a bag of brownie mix too...I have 2 at home...and although I don't eat them, it makes me feel better I have that choice if I wanted to.

About feeling bad...make sure you stop eating oats, even if they are gluten free. That was a major problem for me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jetamio Apprentice
Jetamio
Posted

I have been having a lot of cravings lately too! I haven't been gluten free very long but lately everything I shouldn't have, looks fantastic. I mistakenly was glutened a couple weeks ago and immediately my DH spot that wasn't healed all the way broke out again. UGH! Can you have some good quality dark chocolate? I'm avoiding soy but do well with small amounts of good chocolate (thank goodness!!) I found a decent gluten free pizza crust mix and I get my fix with that and this "fake" cheese called Daiya. I'm still perfecting that one but it helps.

mamaw Community Regular
mamaw
Posted

Venting is good! Way better than taking off someone's head!

Sometimes out of the blue we all get food deprived or feel food deprived & we react by sadness or anger.. The gluten-free diet is not just a diet but a life style change forever..Not convienent either..

Food deprivation is REAL .. We all need to keep a gluten-free goodie bag in our cars, office, pocket, purse at all times..

When you know events happen at work with sweets, pizza ect.. make something or buy gluten-free & take it to work .so you too have a treat.....Honestly there is very little that can't be made gluten-free these days...

There are allergy free baking sites that have great recipes & bakers/vendors who carry allergy free goodies, no dairy, soy, corn & so on..

Being new to the gluten-free lifestyle can be over-whelming, that is why I tell my gluten-free friends to start out with the natural things they know is gluten-free..ie: naked meats, fish, veggies, & fruits.. After your sure of those then move on to more items.. ANd always learn to be a label reader as some companies change their ingredient list often..to save money..

Get the list of companies that clearly label gluten-free...its a big help for newbies...when in doubt do without until you find out for sure it is gluten-free...when your in a hurry just ask , we can help...

So vent away, anytime we all have been there....

blessings mamaw

sharilee Rookie
sharilee
Posted
  • Author

Thank you everyone for the support and words of encouragement. I made it through the day. It is nice to know I have a place where people understand.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748
    Shrub
    Newest Member
    Shrub
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.