Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

It Was Frightening Last Night...


lorka150

Recommended Posts

lorka150 Collaborator

<_<

So last night for dinner, I made something new for the first time since being gluten free (for about one month). I bought one of those cedar planks and grilled salmon on the bbq. Everything I had on the salmon and side dishes were similar to what I always eat. The only thing new was the plank.

Well, maybe the plank was somehow contaminated.

Three minutes into my meal, I got that familiar brain fog. I couldn't see, got really dizzy, and stomach cramps. Ten minutes later, on the toilet. Stomach pain and dizzyness lasted for the rest of the night.

Then the insomnia hit. At about 3am, there was a party in my stomach - it was so loud it was ALMOST funny. But irritating. You see, I wasn't invited to this party, I was an irritated, tired outsider who wanted to get to bed!

5am, I lay in bed. My chest started to hurt. I started to drift off to sleep and my breathing got really shallow. I had to concentrate to breathe. I tried to take my pulse, but I couldn't concentrate to get through a minute. When I finally did, my heart rate was 38.

About an hour later, I was in intense pain. I could hardly breathe or move. I wanted to get someone, but it just hurt too much. The pain ran from my chest and my whole stomach.

I don't remember how long this lasted. Somewhere at around 6am I drifted off to sleep til around 7.

I'm awake now (was here and there from about 7-8), but man... I'm glad THAT is over. Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?

Anyone else think it was the plank? (I don't know what else it could have been?)

Also, at around 8:30 I ran back to the bathroom with a huge poop, and right now, I feel like if I open my mouth (even to say good morning), I would throw up. The only thing I can fathom consuming is a milkshake, which I think I am just craving for some reason becasue I don't eat dairy and haven't had one for about 5 years :lol:

Any ideas?

I'm glad it's over.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Sorry you had to go through that :(

Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?
I have had gluten reactions similar to what you explained. I also get dizzy, brain fog, insomnia (sometimes), nausea, diarrhea, mild-severe stomach pain (sometimes to the point where I cannot move because it hurts so bad), and I feel like I have the flu. I have never had any real problems with breathing but I can get intense heart palpitations. You may actually have a wheat allergy in addition to celiac, which may cause the breathing problems.

I think gluten reations do get worse after being gluten free, at least for me they do. I actually got a few reactions that I didn't have before going gluten-free. Like chicken pox-like bumps on the skin, heart palpitations, and intense stomach pain.

Anyone else think it was the plank? (I don't know what else it could have been?)
If the plank was just cedar, than it is unlikely. But really anything you ate or anything that touched your food could have been contaminated. I have been getting mysterious gluten contaminations off and on for about two months now. I have narrowed down two possibles sources; contaminated gluten-free maple leaf hot dogs, and possible cross contamination at a place that cooks gluten-free.
Link to comment
Share on other sites
tarnalberry Community Regular

Yep, that reaction sounds like mine, though more severe. Brain fog, noisy stomach, pain in the abdomen are all glutening signs for me. I hope it passes quickly for you.

Link to comment
Share on other sites
Rachel--24 Collaborator

I feel bad after I eat salmon that has color added. Its like poison to me.

Link to comment
Share on other sites
Guest nini

oh yes that sounds exactly like my worst gluten reactions... terribly frightening.

Was the salmon fresh or frozen? Some brands of frozen salmon or fish in general, will dust them with flour before wrapping them...

doubt seriously it was the plank... had the grill been used for gluten stuff before and maybe not cleaned thoroughly enough?

I'm so sorry you feel bad...hope you feel better soon.

Link to comment
Share on other sites
JoeB Apprentice

This is pretty timely from my perspective. Prior to being diagnosed in April, I used to get sick every time we cooked on the grill. Since being diagnosed, we've been cooking my food on a separate teflon tray on the grill. That stopped me from getting sick, but it was getting complicated trying to cook food containing gluten at the same time as gluten-free.

Yesterday, I put a wire brush on my electric drill and cleaned every bit of gunk off the grates. After that, I used brillo. I declared the grill "gluten-free" and so far after two meals, I haven't had a problem.

Don't relay on just scraping the grill and burning off the residue. It doesn't work.

Link to comment
Share on other sites
mandigirl1 Enthusiast
I feel bad after I eat salmon that has color added. Its like poison to me.

<{POST_SNAPBACK}>

How so??????

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There is something toxic about farm-raised salmon with color added. I haven't done any research on it but I work in a grocery store and I know by law they have to put those little "color added" stickers on the package now. I kept buying salmon and everytime I ate it I felt worse...I always felt bad anyway so it took awhile to figure out the salmon wasnt helping. Somebody recently mentioned to me about the "dangers" of eating farm-raised salmon. That was enough for me....I haven't eaten it since. Maybe someone else is more up to date on the subject.

Link to comment
Share on other sites
ianm Apprentice

Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

Link to comment
Share on other sites
Guest BERNESES

Yikes! That sounds like my night last night. Ugh! I don't know about the salmon or the plank, although thyose are certainly possibilities, but when I grill, I grill ALL my stuff on tinfoil. It's not the same but it has kept me safe so far.

Link to comment
Share on other sites
Carriefaith Enthusiast
but when I grill, I grill ALL my stuff on tinfoil.
same here, until I get my very own BBQ ;)
Link to comment
Share on other sites
pixiegirl Enthusiast

In my opinion there is something toxic about all farm raised salmon, just just the coloring. I only eat wild salmon, yes its hugely expensive, but I eat way smaller amounts.

Susan

Link to comment
Share on other sites
nettiebeads Apprentice
Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

<{POST_SNAPBACK}>

When I was a kid my mom used to buy IGA hot dogs which I loved, but I would get severe migraines after eating them. I figured out it was the red dye that was used.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...