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bartfull

Afraid To Say It Out Loud

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Gemini and I have an understanding that she is to pick me up on the way to anywhere she goes... :) .... so, now, 2 of us are coming.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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Yay! So glad to hear that your hard work and struggle is finally paying off!


"They're my villi, and I need them NOW!"

Positive Biopsy- 08/11

Slightly positive tTG only- 06/11

Negative blood panel- 11/05

Diagnosed with IBS- 1981

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I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

This born and bred Bostonian and die hard NOO ENGLANDAH would love to meet you someday, too! I will remember your offer.

;)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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Hey, small world, I am a ways north of you up in Spearfish!

I still never got the MRI. Some friends were talking about a benefit party for me but when our local no-kill animal shelter burned to the ground (they lost 11 dogs and one cat), I put on a benefit party for them instead. Then smene else did too. And after that there was ANOTHER benefit party for them (Can you tell we lve animals here?) People are benefitted out, at least for a while.

But the way I'm feeling right now, I really think that whatever it is, it's going to go away and never come back.

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

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And I am HAPPY. I don't mean the kind of happy you feel when something good happens. I mean the kind of happy that has me waking up in the morning looking forward to the day, knowing it's going to be a good day no matter what happens.

Now, I think I'll go run a marathon or something. Maybe build a bridge, fight a forest fire, or invent something that will insure world peace. I've got to do SOMETHING with all this energy! :lol:

I love you all!!!

So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!


Sharon

gluten-free March 2011

Failed gluten challenge May 2011

Diagnosed celiac 5/25/11

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Hey, small world, I am a ways north of you up in Spearfish!

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!

I'm too old to try skydiving now, but if I were younger...

But happy? Oh yeah. Between feeling lousy and the emotions involved with taking care of and then losing my friend, I haven't played much music in the past seven months. But last Thursday I wrote a new song and suddenly I feel REALLY alive again!

It feels so good to feel good!!

My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.

Amen to that :-)


Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.

Also G6PD

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What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.

OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Bartfull....I am in the midst of a move into my new home and it's supposed to happen by end of July so travel right now is not an option BUT there is always next year and I really want to come and see your home. What a great description and I can picture it very well. I like trees...... ;)

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OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)

Well, if I knew that you and I would be cooking all the food, I'd be happy as anything to come to Croatia! My biggest fear when traveling to out of the way places is getting sick or lack of good food to eat. Not a problem in your kitchen! Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

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Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!

WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

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WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't hold your breath....at the rate this economy is going, it's going to be a while before I retire. However, when it happens, you'll be the first to know. Soemone will have to cover the breakfast because I am NOT a morning person. I can cover the wine hour in the afternoon...... ;)

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I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!


Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.

Also G6PD

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I can cover the wine hour in the afternoon...... ;)

Now see, this is the problem....ALL of you will want the afternoon wine hour shift and I'll be stuck with the breakfast shift. :angry:

I want WINE TOO!!!!!! :lol:


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!

This is where we need LOVE2TRAVEL---she has the place in Croatia!!!!


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)

That works, honey!!

I KNEW I'd get the breakfast shift anyway. :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif

AHA!! Now,I'm all set. Here's my breakfast shift partner!

I'll take the pastries and breads, sweetie!

and Lawd knows, I've got the chit-chat. :lol:

I'll be sunning myself in the afternoon and joining you all for wine later, too.

Okay, we have the plan...who has the $$$$$$$$$ and the place?


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.

Bummed that I missed that!

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