Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rebound Effect?

qwertygirl

Recommended Posts

qwertygirl Rookie
qwertygirl
Posted

Hi all,

So I am new here -- just recently started eating gluten-free after years of undiagnosed stomach issues. I've been tested for celiac (while eating wheat) and it came up negative, but I recently got some family history news that leads me to believe gluten might be the issue causing my problems.

So I cut out gluten a few weeks ago, and I've noticed now that even when I have the slightest amount of gluten, I have terrible stomach issues. It is quite dramatic and happens quickly -- and is much worse than the stomach issues I had a month ago.

Any thoughts on why gluten is so much worse now when I get even a little bit, as compared to a month ago when I was eating bread and pasta on a regular basis and only having stomach issues sporadically?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

It happens. It's common to have a stronger reaction after going gluten-free than you had before going gluten-free. That's why so many refuse & simply can not tolerate glutening themselves for testing after they had already gone gluten-free.

qwertygirl Rookie
qwertygirl
Posted
  • Author

It happens. It's common to have a stronger reaction after going gluten-free than you had before going gluten-free. That's why so many refuse & simply can not tolerate glutening themselves for testing after they had already gone gluten-free.

Thanks for the reply. I had been holding out hope that I wasn't gluten intolerant, but my reaction lately has me thinking I need to start coming to terms with it.

squirmingitch Veteran
squirmingitch
Posted

Your tests may not have consisted of the complete celiac panel & that's why you came up negative. Most docs don't know what the full panel consists of. Then there are also false negatives --- close to or 30%.

At any rate you have discovered your problem as well as the answer to the problem. Good for you!

What I said before about stronger reactions also applies to those of us with dh (dermatitis herpetiformis) the celiac rash. And there's NO WAY I'm going back on gluten to prove to some doc something that I already have proof of. It's going to take long enough for the antibodies to get out of my skin so I don't get this anymore --- I will not do anything to knowingly prolong that process.

And welcome to the board!

IrishHeart Veteran
IrishHeart
Posted

Welcome :)

Your observation is a good one. And a big clue.

And I always say to people who ask about it: if you did NOT have a gluten problem, you could take it out for months or years, eat it and be perfectly fine.

If you do not feel fine, that's your answer.

You say it only happened sporadically, but your system was so flooded with gluten back then (eating it on a regular basis) and so it is very difficult to tell when exactly you were sick from it. We get used to feeling crappy. We adapt.

Taken out entirely, you felt better and one small amount will give you a reaction and get your attention more quickly.

You should see what happens to me from trace gluten cross contamination....It's not pretty. :blink:

To echo SQUIRMY's thought here, I agree that just because the celiac panel was NEG, it does not necessarily mean you are not gluten sensitive (or a celiac- to- be or an actual celiac ) My blood tests were negative.

If gluten makes you feel bad, don't eat it.

roxieb73 Contributor
roxieb73
Posted

I was only gluten free by accident before testing. I was doing an Adkins type diet with my mom. I got SOOOO much better in 2 weeks but my doc wanted to test for Celiac. So he said I needed to be eating Gluten and I had a big bowl of pasta the night before. OMG I had the worst night and last 3 weeks. I have continued to eat gluten in prep for a biopsy but then the blood work came back negative. He told me he believed since I had even by accident been gluten free that is was a false negative and to continue to eat gluten to retest. I have to tell you I am the sickest I have ever been in my life with a week to go. I am calling him in the morning and telling him I am done! I can't do it. I can barely stand up, GI problems are awful! I am so swollen I can't bend my legs. I didn't have a reaction this strong till after being Gluten free and that was only for 2 weeks! Obviously my body is telling me something.

I guess I am just saying yes you can get that much worse after restarting gluten even after a short period of time off it. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.