Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Food Allergies?


kim2222

Recommended Posts

kim2222 Newbie

I have Celiac Disease and started having symptoms three years ago. Body pain, fatigue, constant headache, ringing in my ears, head pressure, sinus issues, stomach pain, cramping, nausea,bloating, constipation/diarrhea,lost 32 pounds, lost most of my eyebrows, my hair thinned out and my nails and hair stopped growing.

Now that I am gluten free most of these issues have resolved. I still have body aches and pains and I was told it was probably Fibromyalgia.

I have developed over the last year and a half food intolerance to so many things. I can,t eat gluten free oatmeal or rice, tomatoes, onions, peppers,potatoes, sweet potatoes, kale, spinach, gluten free spices, dairy, coffee, tea, chocolate, gluten free candy, strawberries, blackberries, blueberries, cantaloupe, most nuts, fish, most anything that's processed I also can only tolerate a small amount of carbs and sugar as I end up getting sleepy, increased heart rate, the shakes and sweaty.

I have given up trying anything new because I am so tired of getting sick.

Now I only eat eggs, chicken, occasionally red meat, bananas, apples, almond milk, raw almonds, Lara Bars and romaine lettuce with olive oil.

I am so frustrated!!!!! I don,t understand why I have all these issues.

I had an ANA test a year ago and tested positive but then tested negative 6 months later. Doctors haven't been much help.

Desperate for any advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

ARe you trying to get a further diagnoses?

As a Celiac some (supposedly common) digestive issues are Pernicious anemia and lacking the gut enzyme that helps digest papaya (if I remember right, papsein)

Kinda sounds like you want to add more foods to your diet. So this is the advice I will tell you. Keep a food journal. (REmember some reactions are 12 days long ~Eosinophils) Journal along any symptom, location you ate at or visited ~ as some reactions can be airborn.

Look up the cross reaction possiblities of the foods you know are a problem tomatoes ~ cross react with airborn ragweed.

Look for foods that have less chance of causing a reaction (avacado)

Most reactions are to PROTEIN in foods. If your diet is really lacking, there are amino acid formulas to help supplement your diet. If worse comes to worst, there are food pump procedures.

Happyw5 Explorer

I know how frustrating allergies can be. I am allergic to peanuts, raisins, soy, wheat, dairy, spinach, hazelnuts, cauliflower and broccoli, tomatoes (but I can eat canned and sauce) and I am sure I am forgetting some. Alot of the foods you are allerigic to are probably related to each other. For example night shade vegetables. I also have oral allergy syndrome, so I react to many fruits and veges in the raw state, but I can eat them cooked or frozen. My body reacts to them like a pollen. I have to eat foods on a rotation diet, if I eat the same food more than a few days in a row my body starts to react to them. If I have chicken one day I will eat fish or beef the next. If I have corn one day the next will be rice or quinoa. I am ok with sugar and chocolate--thank god!!! It's all about balance...I know the fear of trying a new food, I would suggest reading the book diet wise...It has amazed me how accurate it is for my situation... Have you ever had your thyroid tested? Good Luck!

Bubba's Mom Enthusiast

I have Celiac Disease and started having symptoms three years ago. Body pain, fatigue, constant headache, ringing in my ears, head pressure, sinus issues, stomach pain, cramping, nausea,bloating, constipation/diarrhea,lost 32 pounds, lost most of my eyebrows, my hair thinned out and my nails and hair stopped growing.

Now that I am gluten free most of these issues have resolved. I still have body aches and pains and I was told it was probably Fibromyalgia.

I have developed over the last year and a half food intolerance to so many things. I can,t eat gluten free oatmeal or rice, tomatoes, onions, peppers,potatoes, sweet potatoes, kale, spinach, gluten free spices, dairy, coffee, tea, chocolate, gluten free candy, strawberries, blackberries, blueberries, cantaloupe, most nuts, fish, most anything that's processed I also can only tolerate a small amount of carbs and sugar as I end up getting sleepy, increased heart rate, the shakes and sweaty.

I have given up trying anything new because I am so tired of getting sick.

Now I only eat eggs, chicken, occasionally red meat, bananas, apples, almond milk, raw almonds, Lara Bars and romaine lettuce with olive oil.

I am so frustrated!!!!! I don,t understand why I have all these issues.

I had an ANA test a year ago and tested positive but then tested negative 6 months later. Doctors haven't been much help.

Desperate for any advice.

You may have a small intestine bacterial overgrowth(SIBO)? If you have bad bacteria in your small intestine, they feed on what you eat and emit toxins that can go into your bloodstream and give you a reaction. It would be a good idea to get tested for it.

If you don't want to get tested, taking a digestive enzyme supplement when you eat, along with taking probiotics will help fight the dysbiosis that's so common with digestive problems. It takes quite a long time (months) to regulate your system with this method though. It won't normalize in just a week or so.

I take 3 different kinds of probiotics. There are a lot of different strains contained in various brands. Culturelle dairy free gets good reviews. One that I take (power-dophilus) has a high number of lactobacillus acidopholus which fights yeast and helps get rid of it.

That was recommended to me by the Dr. I saw at the Mayo Clinic.

benXX Rookie

...taking a digestive enzyme supplement when you eat,

Any tips on which enzymes to take?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,158
    • Most Online (within 30 mins)
      7,748

    MollyK
    Newest Member
    MollyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.