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MistyRG

Negative

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While waiting for my endoscopy, I had 2 biopsies of my rash. Both came back negative. Actually, one came back with 4 other possible issues, and they ran some more labs.

But I don't believe it!!! The rash was the reason I started this "could I have celiac" journey. I do have a positive intestinal biopsy. So celiac is confirmed . . . I just can't see how this rash could be anything OTHER than DH!!!

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I answered your other post with the ANA. Why don't you go low-iodine as well as gluten-free and see if it the rash goes away? :)

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Misty - that is strange. It will be interesting to hear what your doctor has to say about this. There is a good chance you had a false negative reading. From what I understand this is fairly common. What kind of doctor took the biopsy and do you know if it was taken next to a lesion rather than from a lesion? The only celiac test I've had was a skin biopsy two months ago and it tested negative for dh, but since I've been eating gluten-free for 2+ years that is not surprising. I believe I had some cross contamination and that is what caused the rash. But I can't get any doctor to listen to me. I've never been confirmed celiac or tested for it before this. It's all conjecture on my part.

My biopsy showed "thickened skin" with the possiblilty of an auto immune skin disorder such as lupus or morphea. Later blood tests were negative for that. My feeling is that my skin was so damaged from all the scratching that of course it was thickened. Perhaps that is also why your showed possible lupus. I saw the picture you posted and it looks a lot like the little bumps I had and like the pictures I've seen. Yes, it really will be intersting to hear what your doctor has to say about this.

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