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Eating Out


cmoore

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cmoore Apprentice

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?

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love2travel Mentor

That would be very wise. I was diagnosed four days before going to Italy. I should have waited to start eating gluten free after the trip! Looking back I had so much gluten there it is not even funny. Get this - my husband ordered this fabulous pasta soup. He picked out the pasta and I finished the soup!! Anyway, you learn from these mistakes so it is recommended that you do not eat out until you can ask the right questions and be okay with others around you eating gluten. That can be tough mentally. At least it was for me. Thankfully a few months is not long in the grand scheme of things!

I see you joined here May 2010. Have you been eating gluten all this time? Just curious. :)

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Darn210 Enthusiast

We didn't eat out for a while (couple of months?). . . probably because I was knee deep in trying to figure it all out and quite honestly a little freaked out and self-conscious about the whole thing.

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Gemini Experienced

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?

I was deathly ill when first diagnosed but started feeling better as each day went on that I ate gluten free. At least the gastric problems calmed down fairly quickly, which was good because I had booked a trip to London months before and if I did not get on that plane, I would have lost a whole lot of money. So, I decided to go. We had rented an apartment and we ate breakfast in so that wasn't a problem. For dinner I found a French restaurant that understood gluten free well and they cooked plain but delicious food for me and I did not get sick. I stuck with fish or chicken, potatoes and veggies and that seemed to work well. I am a cook so knew what I could and could not have to eat and knew about how not to CC food so it worked out better than expected. It wasn't the most adventurous eating I ever did on vacation but I did not get sick. It can be done if necessary but you have to eat plain at first so going out to eat won't be the fun it usually is. It did not impede my recovery at all and I am glad I went.

I actually got sicker on the vacation before that when I didn't know I had Celiac and ate a fancy French pastry one night. I was sick as a dog that night and thought it was the meat that made me sick! Who knew it was the wheat! ;)

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Adalaide Mentor

I personally did not refrain from eating out. I did refrain from eating anywhere I wasn't 100% comfortable with. Since my local Wendy's has an adult staff I was comfortable there and they have a great variety to choose from. (Even adding more restrictions over the weekend I'll still be able to stop in occasionally, yay!) Other than that in the first 2-3 months I mostly stuck with a local gluten free bakery and a pizza shop that makes great effort to prevent cc. The key to eating out safely is knowledge and asking questions. Never be afraid to walk out of a place that makes you uncomfortable and find somewhere else to eat.

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Juliebove Rising Star

We did dine out but less than before. And stuck to the same boring foods that we knew were safe. Like a hamburger patty, baked potato and fruit cup.

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Stu Newbie

I have a few rules I follow for eating out:

1. Stay with places that you know, and know you. I am a regular at our local Carl's Jr., and the manager knows I can't tolerate gluten. I usually order the Low Carb burger combo meals or grilled chicken salad, and have never had a reaction to anything I've eaten there, (however I avoid the milkshakes because they use one blender to mix all flavors).

2. Inform the people waiting on you of your food sensitivities when you order, in my case wheat gluten, annatto, and FD&C yellow5 (tartrazine). That means no wheat or anything with yellow coloring added. Most places will check, or let you read the list of ingredients if you ask them nicely. Many places now actually have a gluten-free menu if you ask them, and many servers and cooks have gone the extra mile to make sure my food is prepared without gluten - remember to leave them a nice tip!

3. There are still times you find yourself in a strange town eating at a strange place, (toss out rule 1), and the servers listen to your explanation with a blank stare, or rolling eyes, (toss out rule 2). Play it safe, order a salad with grilled meat, ranch dressing or cottage cheese, or a baked potato with sour cream. If the salad arrives with croutons on it, (for example), dump the dressing on it before sending it back to the kitchen, that way you'll know if they made you a fresh one instead of just picking out the gluten bits. Yes, this has happened to me.

4. Don't feel guilty or intimidated about asking for special treatment. If you ordered a burger without onions or a pickle, they wouldn't bat an eye. Ordering one without a bun should be no different! You're going to pay them good money for good food, it's their job to serve you what you want. I just had a wonderful meal with friends at a great restaurant I've never been to before despite the fact they had nothing on the menu that was particularly gluten free. The waiter was very professional about my requests, and made sure everything was right before he served me.

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    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Zackery Brian
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    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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