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Question About Dh

NJceliac

By NJceliac
in Dermatitis Herpetiformis

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NJceliac Apprentice
NJceliac
Posted

I was chatting with a coworker the other day who mentioned that she has had this horrible rash for years, missed diagnosed as psoriasis but went to new Dermatologist who said classic DH and recommended eliminating gluten from her diet. She has eliminated 95% of gluten from her diet and rash much improved. My question is: Is all DH Celiac or can it be gluten sensitivity or true gluten allergy vs celiac that is autoimmune? I have celiac but never had rash so I am not knowledgable about DH as much.

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bartfull Rising Star
bartfull
Posted

I don't have DH either , but from what I understand, DH IS a celiac diagnosis. If she has DH, she has celiac, and 95% gluten-free isn't going to help her. Her DH MAY grow less severe, but she is doing terrible damage to her body.

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squirmingitch Veteran
squirmingitch
Posted

I do have dh & dh IS a diagnosis of celiac. And like bartful says; if she's 95% gluten-free that won't get it. She needs to be 100% gluten-free forever! And even though the rash has improved for now that doesn't mean it will stay improved. DH can come & go --- eating gluten or not eating gluten but the longer she waits to go gluten-free 100% the more likely she will have extended & severe problems with the rash. The antibodies that cause the rash stay in the skin for up to 2 years after going gluten-free & there are even some studies that say it may take blink.gif10 years blink.gif for the antibodies to get out of the skin so she needs to get completely gluten-free NOW! And every bit of gluten she eats is damaging her gut as well.

Please invite her to join us. We are happy to help her understand. And tell her that however horrible the rash has been up till now --- she doesn't even want to experience just how horrible it can get. I wouldn't wish it on my worst enemy.

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rosetapper23 Explorer
rosetapper23
Posted

Yes, she definitely needs to go 100% gluten free, and she should also remove iodine from her diet for a few months so that the rash will clear up. For many of us, gluten lights the fire and iodine lets it continuously burn. She should avoid iodized salt, salty snacks (chips, popcorn, crackers, fries, etc.), seafood, asparagus, and milk products other than organic. She should see an improvement in her rash very soon if she follows these instructions.

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squirmingitch Veteran
squirmingitch
Posted

Yes, she definitely needs to go 100% gluten free, and she should also remove iodine from her diet for a few months so that the rash will clear up. For many of us, gluten lights the fire and iodine lets it continuously burn. She should avoid iodized salt, salty snacks (chips, popcorn, crackers, fries, etc.), seafood, asparagus, and milk products other than organic. She should see an improvement in her rash very soon if she follows these instructions.

I like the way you termed that rosetapper --- gluten lights the fire & iodine lets it continuously burn. How true.

For low iodine diet:

Open Original Shared Link

and sometimes we also have to remove salicylates but we'll cross that bridge if & when we come to it.

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NJceliac Apprentice
NJceliac
  • Author
Posted

Thank you all for your help. I was under the impression DH=celiac but didn't want to give out misinformation.

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