Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Dr. Called After Hours

Lisa

Recommended Posts

Lisa Mentor
Lisa
Posted

Hey Fellow celiac disease's (or rather guys with celiac disease, better?)

Just got a call from my new internist Dr. at 6:30 this evening. He saw his patients all day and he sits down and calls who he feels he needs too. Boy was I impressed. I certainly made a point of telling him that. As long as he stays here, he will be my Dr. for life.

Results: Anti-body test for Celiac was Neg. BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results. Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good. Yeah for me.

B-12 level was the ONLY thing that needed addressing. So he suggested B-12 shots once a week for a month, then once a month. Fatigue is a very real issue for me now.

gluten-free diet is working. Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

Just wanted to say that you all have taught me alot and would encourage any new members to read as much on the site that they can. It is VERY time consumming, but well worth it toward improving your health.

Yeah for me...now I just need to keep the pine trees off my house tomorrow night. Now that's the pits.

Thanks you all for your help Lisa B

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Results:  Anti-body test for Celiac was Neg.  BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results.  Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good.  Yeah for me.

B-12 level was the ONLY thing that needed addressing.  So he suggested B-12 shots once a week for a month, then once a month.  Fatigue is a very real issue for me now.

gluten-free diet is working.  Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

<{POST_SNAPBACK}>

Congrats on the responsive doctor and the good (at least, readily dealt with) lab results! :-)

Link to comment
Share on other sites
Lisa Mentor
Lisa
  • Author
Posted

Thanks I feel mentally stronger.

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Wow Lisa,

Sounds like you have a really dedicated doctor there. He's definitely a keeper!

Well, it sounds like everything is under control except for the B12. The shots should take care of that though.....

I really happy you got such great news......

Now make sure you take cover before Hurricane Ophelia hits!!!!

Hugs.

Karen

Link to comment
Share on other sites
frenchiemama Collaborator
frenchiemama
Posted

My doctor is like that too. She called me at like 7:30 pm to tell me that my results came back positive. She has been fantastic. She didn't really know much about celiac disease, but since my diagnosis she has been going way out of her way to learn about it, she even went to a seminar to learn more.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,213
    • Most Online (within 30 mins)
      7,748
    marimom
    Newest Member
    marimom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...