Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Before You Knew It Was Gluten...?


heathenly

Recommended Posts

txgal748 Apprentice

1) Yes. Eczema as a child and neuro symptoms.

2) No. I love baked goods. Never had stomach problems.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Huggenkiss27 Rookie

1: Yes

2: Yes. After college (and being the sickest I have ever been) I moved to a small mountain town. I started dieting and lost 80 pounds and was only eating meat, veggies, and fruits. I realized that I felt amazing and continuted to eat that way. When I moved to Houston everyone always wanted to go out and I slowly got sicker and sicker until diagnosis about a year and a half after I moved. For the most part I've always preferred meats to carbs.

Link to comment
Share on other sites
jeanzdyn Apprentice

I guess this is a two-part question:

1. Once you figured out gluten was the problem and you'd had some time to look back, did you find yourself remembering symptoms and reactions from long, long ago, and suspect you'd had a gluten issue for far longer than you'd originally thought?

And,

2. Did you notice that perhaps you unconsciously preferred a lower-gluten diet (just weren't that "into" wheat-based carbs), as if your body was trying to protect you with a natural disinterest or aversion?

Just curious. I'm looking back and realizing there were subtle clues...

1. OMG YES!! Actually, I have had gluten intolerance and/or celiac disease for over 30 years BEFORE being diagnosed at all. (by endoscopy and colonoscopy). My symptoms seemed widely varied and unrelated to each other. If I complained of fatigue I was told "everyone is tired", my gastro-intestinal symptoms were "irritable bowel syndrome" --I was to take Mylanta daily, and worst of all the itching that did not include a rash, breakout, or any visible signs was 'all in my head'. (and many many other symptoms, which apparently are attributed to celiac disease according to the helpful folks here at the celiac.com forum).

Going gluten free relieved the itching! That was the first and biggest, most noticable relief of any symptom and my main motivation for staying gluten free --no more horrible, burning itchy skin!

2. Yes again. I had lost interest in pasta almost entirely. I was no longer interested in pizza at all. It should be noted that I had not purchased bread in about 18 years, which does track back to a time of bad intestinal symptoms that led to some dietary changes. The real problem I had, pre-diagnosis, was that when I did have bread served to me at a restaurant or at someone else's house, I could not get enough bread and ate far too much, then felt ill later. But I did not make that connection at that time.

I would say that being diagnosed with celiac AND coming to this forum were huge revelations to me.

At the same time, when I was told of my diagnosis with celiac disease I was not really that surprised.

About 2 years before diagnosis I had experimented with cutting 'wheat' from my diet to relieve that itching skin.

As for subtle clues, I am really annoyed that no doctor in over 30 years even tried to figure out if any of my symptoms were connected in any way, or what they might mean. I was left to wander the Internet, reading medical websites, searching, always searching for some kind of answer. (I was not too far off, shortly before my diagnosis I had started researching Sjogrens Syndrome, which is not that different, just has some different symptoms.)

Also, I would tell you that I decided, on my own, to have a colonoscopy, as it is recommended for folks near my age. Also, I have had too many folks I know and love in treatment for various types of cancer --and at least colon cancer can be detected and cured if you are tested early enough. So, really my diagnosis was more or less accidental and would not have come about if I had not made this decision myself.

I would only add that I was never gravely ill, never hospitalized for any of my celiac symptoms. For that I am very thankful and I feel extremely sympathetic to those who have suffered severe illness and/or been hospitalized due to the celiac disease.

Link to comment
Share on other sites
T.H. Community Regular

1. Yes.

2. Yes. Very soon after what I think of as 'symptoms' start, I ended up unconsciously changing my diet's focus. I started avoiding the sandwiches and pasta that made up most of my diet when I was young and tended to eat a lot of Asian rice based or coconut based dishes. I never noticed feeling better or worse; these just tasted better to me.

And then my hubby would complain that we didn't eat 'normal' American foods anymore, I'd start adding in more pasta and sandwiches, start catching flus and colds again, and start gravitating toward rice dishes as I recovered.

It wasn't 100%, just a general trend. For example, brownies were not avoided at all, LOL.

Link to comment
Share on other sites
bigbird16 Apprentice

1) Yes. Even as a kid I remember my stomach hurting after eating donuts and other baked goods.

2) No. My diet before was tons of bread and pasta. Comfort was a big bowl of garlicky, buttery pasta or a piece of toast with butter. Snacks at work were crackers and pretzels.

Link to comment
Share on other sites
love2travel Mentor

1. Yes. I was always very healthy throughout childhood and into adulthood until just a few years ago. My miscarriages were a mystery to my doctor as well as my husband and I but I would never have linked that to gluten. My stomach was always fine - no GI issues, either.

2. No. After eating gluten I never ever got sick that I can think of. Even on my gluten challenge for three months. I've loved baking my own breads, buns, etc. and making fresh pasta. Though bread was not a necessary accompaniment to meals, I enjoyed it as meals such as lots of kinds of grilled breads with toppings. It did not dawn on me that I had any gluten problems at all. The only reason I know it now is that my sister is gluten intolerant and I got tested. I was SHOCKED.

I meant a resounding NO for #1 question. Not yes!

Link to comment
Share on other sites
kittty Contributor

Yes on number one. I've had a wide range of health problems for about 10 years, and all the specialists I went to weren't able to offer a solution, and I didn't get any relief until I stopped eating gluten. But looking back now I can see symptoms stretching all the way back to childhood.

Definitely no on number two. I had stomach issues for years, so what did the doctor suggest? That I eat bread and crackers to help settle my stomach. Sigh...

Like others have said, I absolutely craved bread and pasta. It's the only stuff that satisfied me.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heathenly Apprentice

Loved reading all these responses!

Link to comment
Share on other sites
Songbirdy Newbie

1. Definitely yes. This (still not diagnosed but strongly feel that this is it) will explain so much. Like getting pregnant while on birth control pills. Like the fibromyalgia symptoms, the arthritis symptoms,and so much more. I had menstrual problems, a miscarriage, migraines, anemia, blah, blah, blah.

2. Also yes. I would bring home the bread from my school lunch sandwiches. I grew up in Bangladesh and ate rice most week nights. As an adult I've experimented with many alternative diets and always felt better and lost weight while on them. Related to the ability to process dairy, I gravitate to choices low in lactose. My preferred breakfast was cold rice cereals or oatmeal.

Like many, I was also addicted to wheat products and coffee. It would be pizza and coffee or caffinated drink. Bagel and coffee. I would cycle between a gluten rich diet and greatly gluten reduced. I tried dozens of times to kick my coffee but would always return and I can see a link to the amounts of gluten. I have been a rice 3x's a week girl. Pasta only once or not at all, but pizza (homemade) every Friday, thin crust.

I've often made myself take vitamins because I have always felt so much better with them even though I frequently had a nutritionist tell me that my diet provided adequate vitamins and nutrients and that in her opinion I was harming myself.

My only thought, based on my natural diet choices is that I have avoided potatoes but not tomatoes, so I wonder about nightshade.

Link to comment
Share on other sites
Sara S. Newbie

1. Yes. I remember the most depressed time of my life was on a student exchange trip to Italy, where I ate nothing but pasta and dairy. I was so miserable. I was also miserable traveling to Ireland where we ate lots of soda bread. I thought that I just didn't do well without a lot of veggies in my diet (so I went vegetarian for a time, but was unhappy without meat). I knew I wanted to eat mostly meat and veggies, but I could never figure out how to make that happen; my family ate out at restaurants a lot when I was a kid. I also remember as a teen I had what I called "the mystery disease" where I would sometimes have bouts of diarrhea, which would then clear up when I had my period. I could never figure out what triggered it. Looking back, it's embarrassing that I didn't ever think to get tested for celiac disease, and so didn't get diagnosed until age 29.

2. Yes. I was definitely never into breads and such. I liked cookies, but never cakes, breads, muffins, etc. Even as a kid I preferred veggies and meat, not crackers, pastries, breads, etc. I read a magazine article about the paleo diet when I was 16 and thought it looked great (but back then it was too extreme, eat elk, kind of stuff).

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,476
    • Most Online (within 30 mins)
      7,748

    Tina McClendon
    Newest Member
    Tina McClendon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...