Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Rash :(

GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

So yesterday, I broke out in hundreds of tiny little red bumps that itched on my chest. There were a few on my arms as well. Throughout the rest of yesterday and today, the rash expanded to cover my arms, hands, shoulders, face, feet, and legs. They are little tiny welts, with no head, and Benadryl provided no relief. I saw the doctor this morning, and the man was a total jerk. He wouldn't listen to my concerns about celiac/DH, saying "celiac isn't something that pops up over night. it's something your body's been dealing with for forever." When I explained my circumstances, he didn't even acknowledge it. He diagnosed me with an allergic reaction to either the topical clindamycin my dermatologist put me on for folliculitis or the doxycycline, but he doesn't know for sure. He also gave me prednisone, a steroid to help clear it up. I've only had one dose, but the rash looks worse if anything. This has not been a fun weekend...I can't wait to get off gluten this week!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

CRAP! The prednisone will screw up your tests!!!!!! Yes, even the endoscopy!!!!!! Stop it!!!!!

You've got a gluten rash & I'm saying it's dh.

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

Yeah, I'm not taking it anymore.....I only had one dose, that should be okay, right?

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Yes. I think you'll be okay if you only took one dose. Your test is Thursday or is it Friday?

Exactly, celiac isn't something that just pops up overnight. It IS something your body's been dealing with for forever. Stupid jerk off doc! And doc, then one day everything comes to a big head b/c you docs don't know & keep resisting the idea that anyone has celiac disease & so people go through life doing untold damage to their bodies & minds for years & years & years. Oh, that's right! It's all in our heads right?

Sorry --- my rant.

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

My test is actually Tuesday......but my mom and I don't think that the dose I took today has had or will have an effect. The rash is still as bad as it was and I've been having normal gluten symptoms all day. I'm hoping that it doesn't cause problems but I'll call my GI's nurse tomorrow, as well as my general practitioner.

And yeah, I totally agree with your rant!!! The doctor didn't even look at my rash. He made some notes. My arms/hands, legs/feet are the worst, but I have them on my chest and face a bit. I'm just hoping they go away ASAP after I go gluten free. I leave for college in six weeks, and I'd like not to look like I have a contagious disease. :P

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

I hope it clears up fast! If not, you can always use it for a conversation starter to teach people about celiac disease. I bet you'll find more than a few who either are or have relatives who are celiac or even gluten intolerant.smile.gif

Tally Ho for Tuesday!

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

Thanks....my general practitioner wanted me on the prednisone and the GI doctor said it was fine, so I took another dose and it's clearing up, thank heavens. I won't be able to take it until after the biopsy, but it's doing better. Thank you so much for your support and encouragement!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Sure thing!smile.gif

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

I asked my GI doc about the strange rash, and he said that while it would be an atypical appearance for DH, he said it was possible, especially as the prednisone wasn't really working consistently. But I don't know.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Well I get in my underarms and Pricklypear got it BAD in her pits & I mean BAD!!!!!! And there have been quite a few others on here who get them in their pits. DH can occur anywhere!

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

Yeah, the stuff under my arms appears to be responding to the Clindamycin, but I stopped all of my antibiotics because I broke out in this head-to-toe rash. My legs/feet/arms/elbows are covered in bright red dots. They get better after a dose of the prednisone but resurge the next day. Very odd.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Well, I gotta tell ya..... dh will respond temporarily to steroids but & there's a big BUT..... it comes back with a VENGEANCE! I was misdiagnosed & put on Dexamethasone which is a super duper steroid & I've been down that road ---- not going there again.sad.gif

Link to comment
Share on other sites
GlutenFreeAustinite Contributor
GlutenFreeAustinite
  • Author
Posted

That's exactly what's happening to me--it gets better at night and returns during the day. I'm going gluten-free tomorrow and am also going to try low-iodine.

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

Okay!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,219
    • Most Online (within 30 mins)
      7,748
    Screamingbeamon
    Newest Member
    Screamingbeamon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Lockgirl
      Does anyone know any good gluten free lip balm?

      By Lockgirl · Posted

      I have been using their toothpaste and some of their other products that are labeled gluten free. Sorry about that. It is so frustratingly hard to get clear answers from companies on gluten content.   
    • Beverage
      Does anyone know any good gluten free lip balm?

      By Beverage · Posted

      I've been using eos lip balms. I usually get it at costco. Eos has little round balms, but also stick ones like chap stick. Costco has both. They are labeled gluten free when you buy individual balms, but the combo package from costco isn't always labeled gluten-free. The company web site says they are gluten-free. I'm pretty sensitive, I use the balms all day every day, and haven't had any reactions. 
    • Beverage
      Does anyone know any good gluten free lip balm?

      By Beverage · Posted

      Last time i checked, Burts Bees does not label anything gluten free. They had 1 lip balm that contained gluten, and their site said their products can be made on shared equipment. 
    • cristiana
      13 y/o new celiac dx and joint pain

      By cristiana · Posted

      I had rib pain, but also hip and leg pain - google sacroiliac pain, it's common in coeliacs. SI joint pain affects the hip, buttock and thigh area.  When I had it at its worst it was incredibly painful, a sort of burning sensation. If this is what your child is experiencing, she may find it helpful not to wear tight jeans or waistbands.  Any pressure around the area exacerbated the pain greatly.  Also, I am sure the lower quadrant bloating I was experiencing at the time made things a whole lot worse, that internal pressure seemed to add to the pain.   One other thing is that it is important that your daughter wears the right shoes, avoiding very flat unsupportive soles or heels, and doesn't overdo exercise that jarrs the joints.  The good news is that for me it did get much better as my gastric symptoms improved, particularly the bloating - but it did take a few months.  You may find these links helpful: https://www.spine-health.com/blog/common-triggers-si-joint-pain-and-how-prevent-flare-up#:~:text=The SI joint can become,the joint to flare-up. https://pubmed.ncbi.nlm.nih.gov/19504097/ If your daughter is experiencing rib pain, that could be costochondritis.  I had that too, and a similar sort of burning.  Again, when my GI symptoms improved so did the pain.  Bloating will still kick it off from time to time. But I am glad you are having D levels checked, as low levels can contribute to joint pain.
    • Russ H
      Newly Diagnosed

      By Russ H · Posted

      Approximately 1 in 3 adults have neurological symptoms on diagnosis. The mechanism and pathogenesis is unknown. These normally go into remission on a strict gluten-free diet. Common symptoms are anxiety, slow thinking, 'brain fog', memory problems and headaches. Although I think I have had coeliac disease in a mild form since childhood, my symptoms suddenly became much worse in later life. Along with the gastrointestinal symptoms and fatigue, I developed a tremendous sense of doom, anxiety and paranoia. The diet can be awkward at first but becomes easier with time.
×
×
  • Create New...