0
Victoria6102

When Was Your Celiac Triggered?

Rate this topic

Recommended Posts

My question is, what triggered your celiac? Did you one day randomly feel sick and it just never stopped til you were diagnosed, or was it a gradual onset of symptoms?

I'm still trying to figure out what triggered mine. I was 11, and was about to get in the shower one night when I suddenly felt severely nauseous. I thought it was a 24-hour stomach bug. But it went on....a 3 day stomach bug? Week long stomach bug? Nope it just kept on going and hasn't stopped for the past 6 years. It was such a random thing, before that day I felt nauseous, I was super healthy. But I don't know what triggered it cause I was only 11 so didn't have any real stress, and hasn't had any infections. What else can trigger it? Thanks :) some things about Celiac will always be a mystery :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Although I had symptoms since birth, I believe the worst of my celiac was triggered at age 11 when my father left. I immediately became iron anemic, I became night blind, I could no longer clot, my joints became painful, my muscles didn't work right, and my teeth began to break. My celiac waxed and waned throughout my lifetime and once again became very bad when I was 45. I don't know what triggered it then....but it was the last time--I finally sought answers and found out I'd had celiac all along.

Share this post


Link to post
Share on other sites

My question is, what triggered your celiac? Did you one day randomly feel sick and it just never stopped til you were diagnosed, or was it a gradual onset of symptoms?

I'm still trying to figure out what triggered mine. I was 11, and was about to get in the shower one night when I suddenly felt severely nauseous. I thought it was a 24-hour stomach bug. But it went on....a 3 day stomach bug? Week long stomach bug? Nope it just kept on going and hasn't stopped for the past 6 years. It was such a random thing, before that day I felt nauseous, I was super healthy. But I don't know what triggered it cause I was only 11 so didn't have any real stress, and hasn't had any infections. What else can trigger it? Thanks :) some things about Celiac will always be a mystery :)

I can't really say for sure. I do know that my autoimmune thyroid issues (Hashimoto's) started in after a major stress in my life, my dad's cancer and unexpected death. I also was found hypothyroid after my first child, but not autoimmune.

Then, a few years later, I was very sick with an intestinal bug (a norovirus I thought) and it was after that I really started having intestinal pain that I could not seem to get away from for long. I wonder now if it was really just a bug!

So, kind of a "chicken and egg" thing. And if I look back even before the big stress, I was having problems with abdominal tenderness from the time my second child was born. I blamed my Caesarian scar. Now I'm not so sure it was the scar!

I'm wondering now, since my symptoms have never been severe, whether it all started long ago and I just never put the pieces together until now.

I've heard pregnancy can be a trigger, also stress and viruses. So, it's not likely most of us will be able to nail down the thing that activated celiac. Sure would be nice to know how to turn off autoimmune responses, eh? ^_^

Share this post


Link to post
Share on other sites

I believe this is an on going growing issue that builds up but we never realize it( docs either) until it manifests into the bigger picture...I don't believe it happens in a minute & boom celiac..Celiac for me is like a 1000 piece puzzle , random pieces strewed about until someone starts to put all the pieces into there proper place.Sadly enough this can take years..

I was in my late fifties when I got Dx'd but as a child I was sickly, poor eater, anemic, low concentration skills,sinus issues, skin problems. Then I seemed to get a bit better( I graduated from high school with a 4.0) but by age 24 I had two major surgeries , no doctor ever mentioned celiac to me ...... it took a dx's of ALS & a death sentence from that disease to come to celiac.

Yes I think there are triggers throughout our lives but mainly are never put in the big picture puzzle for many years after...

Share this post


Link to post
Share on other sites

I self diagnosed myself when I was 16 as I realised having stomach pains, nausea, bloating, constipation and chronic acid reflux was not normal.... It all only started happening that year aswell.. I have no idea what would of triggered it,

I'm 19 now and in my opinion I think it isn't just "triggered" I think the villi gets to the point where it can't take it (gluten) anymore... And bam symptoms galore... Im not sure if I am right so please correct me if I am wrong!!

I only think this because I went back to gluten for a while and at the start I was okay but I got sicker and sicker as time went on... So I'm not sure... Maybe that's something to do with how sensitive you are... Haha okay getting off track... I'd love to know more aswell about it all :)

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


I had zero symptoms until I was pregnant with my second child. Suddenly I had "bathroom issues" (as my husband call them), gassy, headaches, etc. I thought it was just a pregnancy thing and that it would all go away once I had the baby. All during his preschool years I was at the doctor with some odd complaint - usually convinced I was dying of something terrible. (Heart palpitations, dizzy spells, etc.) I was put on medication for GERD - but the symptoms still came and went.

At age 5 we noticed a sudden change in behavior in my son. He was tested for Celiac and when I started reading about it, I realized I had all the classic symptoms. (Son had none - weird). He tested positive, I had a blood test and tested positive as well. I went gluten free with him and things quickly improved.

This is why I mention Celiac to ANYONE who has random symptoms . . I really wish someone had brought it to my attention years earlier. So easy to fix! I could have saved myself years and years of worry and saved my health insurance tens of thousands of dollars on MRIs, EKGs, etc. etc. etc.

Cara

Share this post


Link to post
Share on other sites

I was 34 and had a wicked bad virus for a week. You know you get the flu and your stomach cramps and you can't keep anything in ? I had that for a full week - I wanted to die. Sounds dramatic but when you expect something to last a couple of days & it just won't quit, it's horrible. At the end of the week I was in the ER getting fluids by IV and a shot in the butt to stop the intestinal spasms. After that it took some time - probably close to a year - to figure out to eat without getting sick. Part of it was denial (how could it be gluten, I've eaten it all my life) and part of it was a doctor who didn't think I could have it...& I believed her.

Honestly though - I have had 'stomach issues' all my life - first scope at 20. Sadly, none of the tests I had looked for celiac disease - got the old IBS diagnosis. I guess I don't look like the celiac stereotype.

Share this post


Link to post
Share on other sites

My question is, what triggered your celiac? Did you one day randomly feel sick and it just never stopped til you were diagnosed, or was it a gradual onset of symptoms?

I'm still trying to figure out what triggered mine. I was 11, and was about to get in the shower one night when I suddenly felt severely nauseous. I thought it was a 24-hour stomach bug. But it went on....a 3 day stomach bug? Week long stomach bug? Nope it just kept on going and hasn't stopped for the past 6 years. It was such a random thing, before that day I felt nauseous, I was super healthy. But I don't know what triggered it cause I was only 11 so didn't have any real stress, and hasn't had any infections. What else can trigger it? Thanks :) some things about Celiac will always be a mystery :)

?puberty

Share this post


Link to post
Share on other sites

I have wondered if puberty triggers it too. My dd was 11.

Share this post


Link to post
Share on other sites

When I was 30, out of the blue two separate things happened... I started gaining weight uncontrollably, and started having occasional bouts of Gout.

Weight, low energy, and constipation simply became the reality of my life. Then, when I was about 45 the symptoms increased to include joint pain, back/kidney area pain, brain fog, and reduced vision acuity.

I'm 46 now, and it came to a head in June when I was only able to get out of bed for short amounts of time.

Share this post


Link to post
Share on other sites


Ads by Google:


I think I've had it my entire life. My mother told me that as a baby I was C and often needed help to get things moving; this is back in the day when cereal was introduced at 2 weeks old.

As I young child, I remember crying because C hurt so much and having wicked stomach aches. I got my mom to take me to a doctor and he told us that "she is one of those people who gets stomach aches after they eat." And that was that. I learned to suck it up for the next 30 years.

I have had other autoimmune problems/diseases that I can trace back to a trigger of stress, trauma, or medication, but not celiac. I'm pretty sure I've had it since I was an infant.

Share this post


Link to post
Share on other sites

I'm another one that has probably had it my whole life. My parents tell stories of me being 5 or 6 years old and in the bathroom all night long. I remember my dad giving me pepto to settle my stomach all the time too. He's always told me (and still thinks) that it's all in my head because I stress and worry about everything and that's why I have the bathroom issues. He's always told me, "you're just making yourself sick." Geez- thanks for the support!

I think it really triggered for me right before high school because that's when I remember being sick, run down, tired, and in the bathroom all the time. When I was 20 I went to a GI doc and did get a positive blood test for Celiac. He told me to go gluten free for 2 weeks and come back. I wasn't feeling better (and had no clue how to avoid gluten, all i ate was french fries most likely contaminated) so after two weeks he said the blood test must have been a false positive and that I just had the worst IBS he'd ever seen and to deal with it. Now at 28 I started feeling worse than ever and had all the tests run again and got nothing from bloodwork or endo/colonoscopy. But my new and improved GI says she's comfortable with saying I have Celiac and to go gluten free. After 5/6 weeks I feel beyond better!

Share this post


Link to post
Share on other sites

I've been sick literally my entire life. I remember that even in our first house which we moved out of when I was 6 that I was constantly on antibiotics. I lost my voice all the time and eventually had my tonsils out in 5th grade. I had UTIs all the time as well as kidney infections as well as lifelong GI issues. When I was 16 I started randomly passing out for no reason at all. (Of course there was a reason but it took years to figure out and I'm the one who eventually pinpointed it.) When I was about 11 or 12 I had my first migraine... on a camping trip. I thought I'd die of a headache, that was a fun weekend. As an adult I've had doctors playing pin the tail on the diagnosis and even with a healthy diet was diagnosed with scurvy but no one thought to themselves gee, I wonder if there is any underlying reason for the problems with this woman. Morons, the lot of them. The only reason I even know I have celiac is because I needed emergency surgery to have my gallbladder out and had to have an endoscopy to have a stone removed from a duct. Apparently the damage was so bad the GI doc was like zomg, I should biopsy that. In hindsight, it is the best thing that ever happened to me. At the time I thought my life was over.

So I guess the short answer is, I've been all sorts of messed up from the day I was born. Which doesn't surprise anyone who knows me. :lol:

Share this post


Link to post
Share on other sites

As a kid, I constantly had eye and ear infections. I distinctly remember the Christmas I was three years old, and I refused to take my eye drops to treat a nasty case of pinkeye. My dad "called" Santa Claus to tell him I was not being a good girl by refusing to take my meds...needless to say, I complied instantly. I was the one kid in ten to go tubing in a river and come out with ear and eye infections (both ears and both eyes one year...yikes). I got bronchitis in the middle of the summer. I have very sensitive skin, and often had unexplainable small rashes that came and went. When I was in middle school, I started having sporadic, sharp, stomach pains roughly twice a month, and they landed me in the hospital where I was diagnosed with gastritis. I was also prone to headaches, but we assumed that they were from dehydration, as I was a year round swimmer who was constantly training outside in the Texas heat.

As a sophomore in high school, I began having migraines every day. Nothing worked. My best friend,a self-diagnosed NCGI, suggested I go gluten-free, which cured me of my migraines. Even gluten-free, I've been susceptible to staph, which makes me think I wasn't as gluten free as I thought, or have another underlying condition at play (I was the one person in a group of 8 campers who got staph after a week-long backpacking trip). Although, if I'm gonna be honest, CC during that trip was extremely high.

So I don't know when it was triggered....I've had a lifelong problem with infections, but I don't know for sure. We suspect my grandmother had it; she had a negative blood test in the early 1990s, but they never biopsied her. She was instead diagnosed with Crohns (and they removed much of her intestines and put in a colostomy for that), ankylosing spondylitis,and a host of other "phantom" issues.

Share this post


Link to post
Share on other sites

With me I believe I always had slight auto-immune issues because I had asthma and used to have to get shots every week because I was allergic to trees, ragweed, mold, and pollen. I was also so skinny that I used to drink those 2,000 calorie weight gain shakes in high school and was 5'10 and 130 pounds despite lifting weights and eating everything in sight. I triggered it severally at age 30. I truly believe and anti-biotic did it. I had my yearly sinus infection and after my antibiotics ran out I was miserabe for months on end. My stomach sounded like boiling water all the time, I couldn't sleep, I had uncontrolable anxiety, and anemic. After 2 weeks gluten free I already started to feel better. Anyone else have issues with antibiotics?

Share this post


Link to post
Share on other sites

I was a very healthy baby and kid growing up and a healthy adult until about two years ago when I had severe pneumonia. It is possible it was my trigger but it is not easy to say. My diagnosis was 16 months ago and came as a shock to me as I have never been ill other than the odd cold and that pneumonia. However, I do suffer from severe chronic pain from an accident (which could have also been my trigger??). The only change I notice since going gluten free is that my tooth enamel is now very strong. Just don't know... :huh:

Share this post


Link to post
Share on other sites

When I think back I can remember having tonsillitis atleast twice a year, always too anemic to give blood, but it was when I was in college that started to notice the GI issues. Between stress of classes and living the college life of no sleep, parties, and studying I was always down for the count. I mentioned it to my doc at the time, a few times, who said and I quote" if you think bread bothers you then just don't eat it"...good enough, life went on and I was in a roll over and all hell broke loose after that. Miserable wouldn't even come close to describing how I felt. After tons of testing from ultrasounds to cat scans and scopes my gastro said the celiac was there all along and then the added stress was just too much for my system,and it gave in! Oh well, it is what it is, life is good now-- gluten free! :)

Share this post


Link to post
Share on other sites

I have been asking myself this question since the day I was diagnosed. I never had GI problems as a kid and led a fairly normal childhood/adolescence. I did get frequent sore throats, sinus infections, and ear infections, but nothing so outrageous that it would cause anyone to wonder. After college (and writing a 2 year long thesis which was incredibly stressful) I was told by my doctor that I was anemic. My anemia was so bad that I developed pica and was eating only shaved ice every day for 3 months. After my mom became incredibly disturbed (and sick and tired of making ice all day), she took me back to the doctor and they gave me an iron infusion since the pills weren't being absorbed. Since that day of the infusion, I quickly gained about 20-25 pounds within a year and continued to gain weight. I am a silent Celiac so I still never experienced GI symptoms, but I'm thinking that this was the time that my Celiac was triggered. I could be completely wrong, but its the only thing that stands out to me.

Share this post


Link to post
Share on other sites

i had no idea that infections are linked to celiac. :unsure: If that's true, I also was sick a bunch with a few UTIs a year and chronic strep throat; they once had me on antibiotics for a full year trying to get rid of it... didn't work. I had mono and pneumonia at the same time as a teen, and now a days I get sick a few times a year (but I attributed that to having no spleen)... I wonder if it is all related? :huh:

Share this post


Link to post
Share on other sites

After I stopped breastfeeding my second child, I started having chronic diarrhea, I was going crazy trying to figure out what was causing it, I thought maybe hormones or certain foods. I was so miserable. My hubby finally insisted I see a doctor about it (I was scared they were going to do all kinds of invasive tests so I kept putting it off) but I finally went and long story short... I have celiac.

Looking back though, I think I did have issues that were celiac-related before that. Sensitive stomach, anxiety, depression, etc. It just didn't get really bad until after having kids. Weird.

Share this post


Link to post
Share on other sites


Ads by Google:


It looks like I'm the exception, but other than recurrent ear infections as a kid, and later recurrent sinus infections (stopped after allergy shots) and recurrent UTIs (stopped when I started drinking more water and less other stuff) I've almost always felt pretty good. (I know that's not exactly normal, but there are a lot of things about our modern life that aren't "normal" for our bodies - like all of the hormones in our meat and dairy supply, but I digress...)

Last year I moved, commuted 4 hours one way every weekend back to work on our house to sell it on the weekends, was working hard at the new job, and thought I was just worn out from that. I continued to get more and more tired, and as a person who couldn't normally take a nap or sleep with any noise I felt then that I could have laid my head down on my desk and slept soundly. My GP diagnosed me as deficient in iron and subsequently also in D, B, and several other vitamins. She was smart enough to do a preliminary Celiac blood test, and found that was positive.

I will say, though, that in college and grad school I saw a few doctors about stomach trouble. I was told by one to take bulking laxatives - when I complained of diarrhea!! (I did not go back to her, and was furious that I had to pay for a service by someone who was so clearly inept.) Once I cut out dairy and fake sugar and cut back on coffee, my stomach did improve, but was never "normal" - which to me is how I felt back in high school and earlier (when I did not eat well!).

So, for me, it's hard to say. Despite the infections and stomach trouble, I felt pretty normal until last year, and I have always eaten a lot of gluten-containing foods, so I think Celiac was "triggered" for me last year (or not too long before) somehow.

Share this post


Link to post
Share on other sites

I believe I have had celiac disease since I was a child. When I was 9 I developed eczema. Of course it took 6 years to diagnose. During my teenage years I would go for a week at a time without sleeping and it did not even bother me. I have always been clumsy, running into door frames, car doors, and running into furniture. In the past few years I have had some aches and pains which I attributed to being 40. Last year I had a migraine. This year I started out having a dull headache everyday. I have had times throughout my life when I would get dizzy. In March I started getting dizzy everyday. After 3 weeks I went to my PCP. She ran some blood test and referred me to a neurologist because she could not figure out my dizziness. I found out from my PCP I had low vitamin D. The neurologist ran a bunch of blood work which came back with low B12 and celiac disease. I have never had any gastrointestinal issues.

Share this post


Link to post
Share on other sites

I can combine the long term symptoms and the trigger! My trigger was some virus that attacked the abdominal lymph nodes. A twisting, pulling pain at various spots on my stomach. After a week, not only did I not get better, but the pain changed and got much worse. Now it was a stabbing pain, and I started on vicodin. The dosage kept increasing in order to keep the pain at bay, and then one night after 2 pills (and 2 slices of pizza and a peice of 3 layer cake!!!) I ended up in the ER. Diagnosis followed shortly thereafter. Of course, once I started learning about Celiac, the picture became so much clearer. My headaches and constant constipation as a kid, migraines and excema in my 20s, and extreme fatigue in my late 20s. Even better, after going gluten-free, no more depression!

Share this post


Link to post
Share on other sites

I felt amazing until I got a viral infection (my best guess given the symptoms) at the end of my third year of university. After I failed to recover, and after what felt like a million doctors/tests, I was labeled with chronic fatigue syndrome and told to cope somehow. Noticed problems with wheat, dairy back then and cut them both out (for the most part). Survived undergrad, got a degree, moved on to grad school still sick but was able to manage it. Flash forward to last summer, got hit with a terrible stomach bug. I've had horrible GI problems since and have only in the last few months connected my gluten/various food intolerances with my overall health and vitamin deficiencies. Looking back on the past six years, I can now appreciate all the subtle (and not so subtle) clues.

Share this post


Link to post
Share on other sites

I was always sick as a child too, but I think my celiac was triggered when my father died. He was my hero and my best friend, and I didn't handle it well when I lost him. To be completely honest, I started drinking. A LOT. I mean every day all day, starting with breakfast and continuing until I passed out at night. I thought the digestive symptoms were from downing sometimes up to a half gallon of tequila a day, often on an empty stomach.

I think I was trying to commit suicide without actually committing suicide. I mean, I didn't want to live in a world that didn't have my father in it, but I knew suicide was so wrong. I figured if I drank myself to death it didn't count as suicide the same way it would if I had put a gun to my head.

Stupid, I know. But by the time I realized that I COULD live with just his memory to hold on to, I had already destroyed my gut.

You know something? I must trust you folks a lot to be able to tell you all of that. You've all been so good to me, and even though it's an ugly story, my trust in you folks is my gift to you. Thanks so much for everything!

(And no, I don't drink at all anymore.)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   7 Members, 0 Anonymous, 932 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    Ingredients:
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
    So how, you may ask, is all this related to gluten? As a starting point, one report from the medical literature identifies a patient who developed aphasia after admission for severe diarrhea. By the time celiac disease was diagnosed, he had completely lost his faculty of speech. However, his speech and normal bowel function gradually returned after beginning a gluten free diet (8). This finding was so controversial at the time of publication (1988) that the authors chose to remain anonymous. Nonetheless, it is a valuable clue that suggests gluten as a factor in compromised speech production. At about the same time (late 1980’s) reports of connections between untreated celiac disease and seizures/epilepsy were emerging in the medical literature (9).
    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
    Celiac.com 06/13/2018 - There have been numerous reports that olmesartan, aka Benicar, seems to trigger sprue‐like enteropathy in many patients, but so far, studies have produced mixed results, and there really hasn’t been a rigorous study of the issue. A team of researchers recently set out to assess whether olmesartan is associated with a higher rate of enteropathy compared with other angiotensin II receptor blockers (ARBs).
    The research team included Y.‐H. Dong; Y. Jin; TN Tsacogianis; M He; PH Hsieh; and JJ Gagne. They are variously affiliated with the Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School in Boston, MA, USA; the Faculty of Pharmacy, School of Pharmaceutical Science at National Yang‐Ming University in Taipei, Taiwan; and the Department of Hepato‐Gastroenterology, Chi Mei Medical Center in Tainan, Taiwan.
    To get solid data on the issue, the team conducted a cohort study among ARB initiators in 5 US claims databases covering numerous health insurers. They used Cox regression models to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for enteropathy‐related outcomes, including celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy. In all, they found nearly two million eligible patients. 
    They then assessed those patients and compared the results for olmesartan initiators to initiators of other ARBs after propensity score (PS) matching. They found unadjusted incidence rates of 0.82, 1.41, 1.66 and 29.20 per 1,000 person‐years for celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy respectively. 
    After PS matching comparing olmesartan to other ARBs, hazard ratios were 1.21 (95% CI, 1.05‐1.40), 1.00 (95% CI, 0.88‐1.13), 1.22 (95% CI, 1.10‐1.36) and 1.04 (95% CI, 1.01‐1.07) for each outcome. Patients aged 65 years and older showed greater hazard ratios for celiac disease, as did patients receiving treatment for more than 1 year, and patients receiving higher cumulative olmesartan doses.
    This is the first comprehensive multi‐database study to document a higher rate of enteropathy in olmesartan initiators as compared to initiators of other ARBs, though absolute rates were low for both groups.
    Source:
    Alimentary Pharmacology & Therapeutics

    Jefferson Adams
    Celiac.com 06/12/2018 - A life-long gluten-free diet is the only proven treatment for celiac disease. However, current methods for assessing gluten-free diet compliance are lack the sensitivity to detect occasional dietary transgressions that may cause gut mucosal damage. So, basically, there’s currently no good way to tell if celiac patients are suffering gut damage from low-level gluten contamination.
    A team of researchers recently set out to develop a method to determine gluten intake and monitor gluten-free dietary compliance in patients with celiac disease, and to determine its correlation with mucosal damage. The research team included ML Moreno, Á Cebolla, A Muñoz-Suano, C Carrillo-Carrion, I Comino, Á Pizarro, F León, A Rodríguez-Herrera, and C Sousa. They are variously affiliated with Facultad de Farmacia, Departamento de Microbiología y Parasitología, Universidad de Sevilla, Sevilla, Spain; Biomedal S.L., Sevilla, Spain; Unidad Clínica de Aparato Digestivo, Hospital Universitario Virgen del Rocío, Sevilla, Spain; Celimmune, Bethesda, Maryland, USA; and the Unidad de Gastroenterología y Nutrición, Instituto Hispalense de Pediatría, Sevilla, Spain.
    For their study, the team collected urine samples from 76 healthy subjects and 58 patients with celiac disease subjected to different gluten dietary conditions. To quantify gluten immunogenic peptides in solid-phase extracted urines, the team used a lateral flow test (LFT) with the highly sensitive and specific G12 monoclonal antibody for the most dominant GIPs and an LFT reader. 
    They detected GIPs in concentrated urines from healthy individuals previously subjected to gluten-free diet as early as 4-6 h after single gluten intake, and for 1-2 days afterward. The urine test showed gluten ingestion in about 50% of patients. Biopsy analysis showed that nearly 9 out of 10 celiac patients with no villous atrophy had no detectable GIP in urine, while all patients with quantifiable GIP in urine showed signs of gut damage.
    The ability to use GIP in urine to reveal gluten consumption will likely help lead to new and non-invasive methods for monitoring gluten-free diet compliance. The test is sensitive, specific and simple enough for clinical monitoring of celiac patients, as well as for basic and clinical research applications including drug development.
    Source:
    Gut. 2017 Feb;66(2):250-257.  doi: 10.1136/gutjnl-2015-310148.

  • Forum Statistics

    • Total Topics
      110,231
    • Total Posts
      949,622
  • Member Statistics

    • Total Members
      77,229
    • Most Online
      3,093

    Newest Member
    nowlandfam
    Joined
  • Topics

  • Posts

    • Grief is natural and something we have to get through and it was a few years for me. First i just stopped seeing fast food joints. To me they were empty lots. I stopped watching tv with commercials. Thank you Roku, Netflix, Amazon and HBO. Those helped. Dietitian didnt give me anything i didnt know. Read some Celiac and Nutrition books.  Things got easier when the hubby agreed the house should be gluten free. No cross contamination and no temptation. Love my crock pot and rice cooker ( going to buy an instant pot next). Hate to cook. Love fresh fruit. Steam veggies in glass bowls in microwave. Boil up dozen eggs always on hand. Found gluten free crackers and popcorn on Amazon. Just search gluten free. Key is to make a bunch of food then freeze it in meal sizes. Always having food cooked or fresh on hand helps cravings. And find favorite snacks to look forward to. All said and done the gluten-free non processed food diet has reversed my heat disease and lowered my diabeties risk. All bad numbers are normal and being 50 that is great.
    • You really do need to get tested. The earlier you catch it the less likely serious and permanent damage to your body will occur. One of the Celiac associated medical problems is osteopenia/osteoporosis because of poor mineral absorption. 
    • Yeah here you can read into getting diagnosed, if celiac then you can rest assured you know hte cure and it will just take time with the gluten free diet. The newbie 101 thread will have many of your answers. Might be worth keeping a food diary just for references for now, and if you intend to get tested you need to be eating gluten sadly.
      https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/
      https://www.celiac.com/forums/topic/91878-newbie-info-101/

      I used to get sick more often when eating gluten...but if you immune system is fighting one enemy on the front line it gives way for something else to sneak past it and hit you hard. So yes I would say so.....I hardly ever get sick now days with a virus.....food intolerance, reaching my personal tolerances for ceratin types of foods in a meal, or some other random quirk normally makes me sick...but these are normally just purge and go on sick....not painful for hours.  
    • I have zero energy. And headaches  
    • Well I respond really bad to sugar, starches, and carbs a few years after my celiac diagnosis with UC ....not diagnosed diabetic, but when I tried cheating and eating some hashbrowns...I started feeling like I was on drugs, and my glucose monitor showed 419........

      SO I now eat low carb with a high fat/protein diet (keto/atkins) and have developled sugar free treats...bit high in subsitutes but I do have recipes for several and have posted some here, like my Almond Butter Pecan Pie, Lemon Ricotta Scones...been playing with almond butter/sunbutter cookies and have 3 versions...still not quite satisfied to sell them yet. I have also came up with low carb flat bread recipe and a vegan grain free cheezy bread recipe I can share.
      PS both my parents are diabetic......adopted not celiac...they were well....carby bread lovers and sort of brought it on. But I cook for them now often with paleo meals low on carbs.
      IF YOUR son get a craving for low carb pizza, English Muffins, Tortillas, Pasta, Rice, etc. Look at the following companies.
      Miracle Noodles, Makes pasta, noodles, read to eat meals, rice...all low carb diabetic safe
      Mikeys Muffines makes tortills, english muffins, etc low carb
      Califlour Foods makes pizza crust....bit like a flat bread pizza but better then nothing I use the plant base crust....you can even make them in to chips.
      Protes Makes low carb Nacho chips, BBQ Chips, Chili and Lime chips that are great....avoid the salted caramel ones they burn them.
      Zevia Makes a type of knock of soda that works best with a tiny bit of splenda zero in it.
      Lakanto makes sugar free maple syrup, and some of the best sugar free chocolate bars.
      Anything else I can help point you through. I know the frustrations and spend most my life trying to invent and find foods that are safe. I also have recipes I post that are often low carb and gluten free on the reicpe blog here. Good luck and glad you and your family are working this out together.



       
  • Blog Entries

  • Upcoming Events