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bartfull

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bartfull Rising Star

OK, so most of you know that I have an absessed tooth and had to start on a corn-filled antibiotic because the compounding pharmacy couldn't make the corn free stuff right away. I have been super sensitive to corn almost from the start.

Well, I finally got the good stuff last night. Before I got it though, I took five doses (ten capsules) of the ones that have corn starch as a filler. I know it has corn starch because the pharmacist told me.

I have had no reaction whatsoever!!!!!!

I have heard so many times that once we heal we can start adding back some of the foods that bother us, but because I was SO senstive to corn, I figured corn would be off limits forever.

Now, I'm not going to push it by going out and eating a bunch of corn, but once the absess is all better (and it IS getting better - the swelling is starting to go down), I might just go get some UDI'S, which would be the best treat I could ask for. And who knows, maybe I'll get nightshades back one day too.

Hope - the most beautiful word in the English language.

(I hate to think that I might start gaining back some of the weight, and I know that between the gluten-free bread and maybe eventually the Kettle Brand chips, I WILL gain some of it back, but if I have enough will power to have lived on such a limited diet for over a year, I can pace myself and not overdo it. I HOPE!)

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GottaSki Mentor

That is wonderful news!

I am hopeful for your continued improvement -- which in turn will bring more hope to all of us :)

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GFreeMO Proficient

Wonderful Bartful!!!!!!

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kareng Grand Master

That's great! Even if you can't eat much corn it would make life easier

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beachbirdie Contributor

WOOT!!

I am so glad you are feeling better, and that is REALLY good news about the corn. It is hard enough avoiding gluten, corn starch is in so many foods!

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squirmingitch Veteran

What a marvelously empowering feeling bartful!!!!!!!!

I'm jumping up & down with joy for you. Doing a happy jig.laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

It DOES give the rest of us hope & inspiration.smile.gif

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bartfull Rising Star

I heard on the radio this morning that 75% of the foods in grocery stores have some form of corn in them. If you consider that most fresh produce does not, that means almost 100% of processed foods do.

I will NOT start eating all that processed junk again, but it'll be nice to be able to buy those baby carrots that are washed in the corn-filled citrus wash again. And it will be WONDERFUL to start using the $6 a bottle Tylenol instead of paying $36 for the same sized bottle of the compounded stuff.

And if I go easy on the Udi's, just think - I'll be able to eat a CHEESEBURGER again!!!! Of course the meat will continue to be grass fed or bison, but to actually have one on bread will be a dream come true.

And PANCAKES! I will be able to get some Pamela's and make PANCAKES!!!

I need to stop dreaming in case it was just a fluke!

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GFreeMO Proficient

Trust me, take it very slowly! Are you sure that your pills do in fact have corn?

I'm not trying to "rain on your parade" I just don't want you to get sick! I know it's made you so sick in the past!

:)

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bartfull Rising Star

Trust me, take it very slowly! Are you sure that your pills do in fact have corn?

I'm not trying to "rain on your parade" I just don't want you to get sick! I know it's made you so sick in the past!

:)

That's why it blows my mind. The pharmacist here in town knows I am intolerant to corn and that's why he warned me that the filler used in this med is corn starch. He questioned that the doc would prescribe it for me. When I explained, he understood, but he felt bad knowing that I was going to be sick from it.

I am definitely going to take it slowly. I'm going to wait to try the Udi's until the tooth is removed. That means at least another week or two. I will buy ONE loaf, and eat ONE slice. If I have no reaction I will eat another slice a couple or three days later. And even if I don't have a reaction after the second slice, I will continue to space it out that way - one slice every two or three days. (I can have an open faced cheeseburger.)

And yes, corn has made me sicker than gluten does. But if this continues, and it turns out I CAN eat corn again, that gives me hope for YOU. Like I said in the other thread, if you can just avoid getting accidently glutened or corned for several months, my hope is that you too will heal completely and be able to get corn back.

I am praying for us both!

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IrishHeart Veteran

First, you could tolerate the vitamins & now this!!!

well, YEEHAW girl!! :D

HEALING HAPPENS and you are rightfully celebrating!

I am dancing for you on my front porch right now...look!...see me?? That's me doing the "yeah baby" dance...

You mentioned HOPE...girlfriend, I LIVE on HOPE .... It is what sustains me.

HOPE looks FORWARD ;)

Keep looking forward.

hugs and xx, IH

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bartfull Rising Star

Thanks IH! I wish YOUR pain could magically go away too! I know how much you have and still are suffering. Yet you are here and cheerful every day. You have helped me and so many others, so much. Big (((((HUGS))))) to you!!

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IrishHeart Veteran

Thanks IH! I wish YOUR pain could magically go away too! I know how much you have and still are suffering. Yet you are here and cheerful every day. You have helped me and so many others, so much. Big (((((HUGS))))) to you!!

:wub: aw, thank you, sweets! My day will come, too! never say die.

I am just glad you are okay!!

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squirmingitch Veteran

Awwww, now you guys got me all weepy --- the good kind of weepy.

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Razzle Dazzle Brazell Enthusiast

OK, so most of you know that I have an absessed tooth and had to start on a corn-filled antibiotic because the compounding pharmacy couldn't make the corn free stuff right away. I have been super sensitive to corn almost from the start.

Well, I finally got the good stuff last night. Before I got it though, I took five doses (ten capsules) of the ones that have corn starch as a filler. I know it has corn starch because the pharmacist told me.

I have had no reaction whatsoever!!!!!!

I have heard so many times that once we heal we can start adding back some of the foods that bother us, but because I was SO senstive to corn, I figured corn would be off limits forever.

Now, I'm not going to push it by going out and eating a bunch of corn, but once the absess is all better (and it IS getting better - the swelling is starting to go down), I might just go get some UDI'S, which would be the best treat I could ask for. And who knows, maybe I'll get nightshades back one day too.

Hope - the most beautiful word in the English language.

(I hate to think that I might start gaining back some of the weight, and I know that between the gluten-free bread and maybe eventually the Kettle Brand chips, I WILL gain some of it back, but if I have enough will power to have lived on such a limited diet for over a year, I can pace myself and not overdo it. I HOPE!)

Omg thanks for sharing Bartfull! That is so encouraging to someone who is just at the beginning of gluten-free and CF with other intolerances as well. Luckily i havent lost too much weight yet. I am amazed i still keep losing with the amount of food overall and specifically carbs but i guess i cant complain since i was overweight while i had a diet that was not gluten restricted :-) youre a tough one! I am so happy for you that you are seeing more options open up for you. Good luck!

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love2travel Mentor

Thanks for sharing your awesome news. I know how concerning and downright painful an abscessed tooth can be (I had one and had to have an emergency root canal over Christmas). But I do not have an issue with corn as you do. Stories like this are good for the soul!

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ciamarie Rookie

I loved the subject, so I had to look at the thread. :) That's great news! It is nice to be able to add something back, hopefully it works that way for you!

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YoloGx Rookie

Hi Barful,

I am so glad to hear you did not react to the corn in the original antibiotics. I know for myself I have often been able to tolerate something once every 3 to 7 days. Some things its all the way up to once a month. But sometimes even then its worth it, eh?

Its nice to realize your leaky gut is a little less leaky more than likely. Good job!

Meanwhile I hope you get your tooth extracted by the good dentist. I found using yarrow tea afterwards helped keep the blood clot in place.

Cooled down Yarrow tea helped my good friend I mentioned who has gone through the same thing with an abscessed tooth recently. You can use the yarrow tea both before and after the operation. It helps take down pain and inflammation plus as said helps the blood to clot very effectively and stanches the bleeding. Be certain to not take it for over a week at a time. After two weeks its hard on the liver. It is bitter but will likely give you a little energy boost.

Be sure not to spit or use a straw or smoke. Take it easy physically too.

By the way, an extraction usually costs way less than a root canal etc. I am betting your dentist will allow you to make payments.

Good luck to you!

Bea

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bartfull Rising Star

Thanks, Bea.

It never rains (especially lately!), but it sure does pour sometimes. Now my darned CAR has broken down! Money is so tight right now and I know I have to get this tooth out, but I need a car too. My friend looked at it and determined that it is the starter. On my car, you have to take the engine out to even GET to the starter so it's going to be pretty costly. I could walk to work (it's only a mile), but the walk home is up a very steep, very long hill, and in this heat and with the way I've been feeling, I don't think I could do it.

I'm just going to have to bum rides from people until I can save enough to get it fixed. I was HOPING to get my furnace fixed some time this summer. That stopped working this spring too. I have a couple of those oil filled electric radiators and those got me through the rest of spring. I think I'm going to buy one more (at a yard sale) so I can put one in the basement to keep the pipes from freezing this winter.

Everything seems to be falling apart! :angry:

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Bubba's Mom Enthusiast

I'm so happy that you aren't getting the bad reactions that you were! That gives me hope that I might get some things back too, one day.

I hope you can get that tooth taken care of. Dental problems are just miserable. I had 2 teeth break..two months apart. Needed crowns on both. That was expensive.

Fresh corn on the cob looks so good when my family is eating it. Maybe next summer I can join them? :D

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    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
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      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. 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There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. 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Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. 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I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
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    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
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