Rate this topic

Recommended Posts

I am starting the referral process for both my 2nd and 8th graders who have Celiac Disease. I'm not asking for meals to be prepared at school but rather things like, having access to their own water bottle at all times, extra sets of textbooks for home, extra time to make up work after an extended absence, communication from teachers about birthday snacks, holiday treats or incentives. What am I missing? I would love some suggestions! Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have they gotten sick frequently and miss a lot if school. Accommodations need to be reasonable to the student and illness. I think anything relating to food, cross contamination is important and perhaps a health class should be done to teach kids about Celiac, so they can both understand it and that they cannot catch it. It is best for teachers and cafeteria workers to know about this too. It is also important that the teacher leave instructions for a sub, where there to be a party or holiday celebration. I'm not sure about the need for an extra set of books, unless they miss a lot of school. I think every parent would like that for their kids. Just have the 504 focused on each child, the illness and try to anticipate issues. The 504 can always be amended. You don't want it to become a stigma so your kids will potentially be sources of bullying. Good luck.

Share this post


Link to post
Share on other sites

One other thing. As far as I know, there is no formal referral process for a 504. It is a federal accommodation plan for general education students. It is completely unrelated to special education, which requires many formal issues such as a psych eval to see if there is a learning disability. Be sure you don't get the issues confused as the departments and the processes are completely different.

Share this post


Link to post
Share on other sites

One other thing. As far as I know, there is no formal referral process for a 504. It is a federal accommodation plan for general education students. It is completely unrelated to special education, which requires many formal issues such as a psych eval to see if there is a learning disability. Be sure you don't get the issues confused as the departments and the processes are completely different.

There actually is a formal process. First is the meeting to determin eligibility and if it is eligible they move onto the accommodations. It is different from an IEP, very true but there is still a process which usually includes the school psychologist along with a team of others.

I will look for our plan tonight at some point. One thing you may want to consider is wipes for compute, gym and art class as well as vetting products for art. We included not letting them use recycled food containers for art/craft things. I think you said but I am not sure about access with the bathrooms at any time. Again, I'll look for ours later and post anything that you may want to consider.

Share this post


Link to post
Share on other sites

There actually is a formal process. First is the meeting to determin eligibility and if it is eligible they move onto the accommodations. It is different from an IEP, very true but there is still a process which usually includes the school psychologist along with a team of others.

I will look for our plan tonight at some point. One thing you may want to consider is wipes for compute, gym and art class as well as vetting products for art. We included not letting them use recycled food containers for art/craft things. I think you said but I am not sure about access with the bathrooms at any time. Again, I'll look for ours later and post anything that you may want to consider.

Thank you so much! I would love to see a finished and complete plan.

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you so much! I would love to see a finished and complete plan.

I looked and I think that pretty much covers it for the gluten-free stuff. We also have food allergies to deal with and some things are more specific to that. If you would like, I can message it to you.

Share this post


Link to post
Share on other sites

I guess I have been lucky. I have not had a need for a 504 plan yet. My youngest son's kindergarden teacher was great. Had a few issues with his first grade teacher but we got that worked out. He starts school on Thursday so I'll be informing his second grade teacher about his celiac. My oldest son had the same teacher last year in 5th grade so he has a little knowledge. Our School nurse has been wonderful also and is a great advocate for my youngest.

Share this post


Link to post
Share on other sites

We haven't done a formal plan yet as our school was very, very willing to just do whatever we asked.

We added things like:

He uses a placemat or clean lunch tray (that has gone thru the commercial dishwasher) at his lunch table even though he brings his lunch from home. (The tables are just wiped off with a damp rag between classes - yuck)

No projects or crafts in the classroom that use wheat flour (because it becomes airborne and can settle of all surfaces) so, no cooking projects, no papier mache, no making salt/flour dough, etc.

He is reminded and allowed to wash his hands with soap and running water before lunch and snack (sometimes they have classes skip this and just use antibacterial wipes to save time)

He can excuse himself to go to the bathroom at any time without having to follow the classroom procedure. (in case of emergency - otherwise he follows the plan)

The teachers inform me (in advance) whenever there is a food-related event (field trip, reward party, birthday, etc.) so he can come prepared with his own food.

Cara

Share this post


Link to post
Share on other sites

I guess I have been lucky. I have not had a need for a 504 plan yet. My youngest son's kindergarden teacher was great. Had a few issues with his first grade teacher but we got that worked out. He starts school on Thursday so I'll be informing his second grade teacher about his celiac. My oldest son had the same teacher last year in 5th grade so he has a little knowledge. Our School nurse has been wonderful also and is a great advocate for my youngest.

Our school has been amazing so we aren't placing the plan because we think there will be any problems. We visited the Celiac Center at Columbia University this summer and the experts there encouraged us to have a plan for both of our daughters simply because you never know what the disease will throw at you and having a plan in place that can be modified is so much better than starting from scratch. It also serves to protect my girls on the excessive absences front. 504's follow your children all the way through college which is also an advantage.

Share this post


Link to post
Share on other sites

We haven't done a formal plan yet as our school was very, very willing to just do whatever we asked.

We added things like:

He uses a placemat or clean lunch tray (that has gone thru the commercial dishwasher) at his lunch table even though he brings his lunch from home. (The tables are just wiped off with a damp rag between classes - yuck)

No projects or crafts in the classroom that use wheat flour (because it becomes airborne and can settle of all surfaces) so, no cooking projects, no papier mache, no making salt/flour dough, etc.

He is reminded and allowed to wash his hands with soap and running water before lunch and snack (sometimes they have classes skip this and just use antibacterial wipes to save time)

He can excuse himself to go to the bathroom at any time without having to follow the classroom procedure. (in case of emergency - otherwise he follows the plan)

The teachers inform me (in advance) whenever there is a food-related event (field trip, reward party, birthday, etc.) so he can come prepared with his own food.

Cara

Thank you Cara! This is helpful.

Share this post


Link to post
Share on other sites


Ads by Google:


I looked and I think that pretty much covers it for the gluten-free stuff. We also have food allergies to deal with and some things are more specific to that. If you would like, I can message it to you.

Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael

Share this post


Link to post
Share on other sites

Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael

How to message or PM (personal message):

Click on the envelope pic below thier avatar (picture) or click thier picture or name and go to the profile. This works even if they haven't added a pic, just use the "No Avatar" pic. Under the picture is a "send Message". To see your new messages. Look in the top, green corner with your name . You will see a number appear to show you have messages. Aso,, you get a message on the forum home page at the top of the new posts list.

Sorry doing this from memory so the exact wording may be different. If you want to, you can experiment on me and I will let you know right away that it worked. I'll be off and on today. :)

These are private messages. If you leave a message on the profile page, anyone looking at the person's profile can read it.

Share this post


Link to post
Share on other sites

I have a daughter going into 8th grade. There are two things that happen that are an issue. One is adults in positions of authority with the best intentions ask her if something is safe and if she's not really sure they're frustrated with her or they think something is safe and don't accept a "No thank you" easily. The other is that they make a big deal in front of her peers about food. In her case she'd much rather sip on some soda or juice quietly than have the teacher running around trying to give her something different. In the 504 I ask that they respect her right to privacy and not single her out. I also ask that the teachers contact me at least 24 hours before they use food. Childrens hospital boston has some good templates and ideas. It's good to think about your own kids personality and what would make this the least stressful for them. Even with a 504 plan it's a problem at times. For example, it's someone's birthday and their mother shows up that morning with pizza and cupcakes. There are also adults who just really don't believe in celiac and they can be a pain.

http://www.childrenshospital.org/clinicalservices/Site2166/mainpageS2166P43.html

She hasn't had issues with missing school so we don't have anything on that.

Share this post


Link to post
Share on other sites

I started this topic a full year ago, but here I am gearing up for the school year and wanted to know if any of you know the typical process of "renewing"  a 504 plan that was in place last year.  I would love to know if any forms are required.  I have scheduled meetings with both of my daughters schools but want to make sure that I have everything in order.  THANK YOU!

Share this post


Link to post
Share on other sites

I believe you meet with the guidance counselor or whoever put it in place for you in the beginning and go over the plan. Then if there are any additions or subtractions from it....those get entered in and a revised plan is given to everyone, including you...you actually have to sign it and return it to the school to change it.

Now....I've never had a 504 Plan for a food issue....maybe it's a little different given the fact that food has a tendency to be SEEN if things aren't followed (as in it makes the child ill) but we have had issues with teachers either knowing about them AT ALL or following them but only barely...like they were suggestions and not specific plans written out. So...I would just double check that your child's teacher is fully aware and has read your child's 504 Plan.

 

Hmmm...looks like I will have to be doing this for the little guy now. Never really thought of having to do one...but it makes sense.

Share this post


Link to post
Share on other sites

I just emailed our principal and then they called to schedule the review.  Ours involves the teacher, principal, school psychologist and myself. 

 

We talked about possible bussing this year but didn't add it yet. Not sure I'm ready for that! lol

Share this post


Link to post
Share on other sites

Hmm, I thought 504 plans were for educational modifications. In my school system all health modifications are strictly met with notes from the Dr., and the nurse will train the teachers that have that student. Classes with students having food allergies and intolerances are educated the importance of hand washing and not sharing food. It should fall under the Equal Opportunities Act.

Share this post


Link to post
Share on other sites

Hmm, I thought 504 plans were for educational modifications. In my school system all health modifications are strictly met with notes from the Dr., and the nurse will train the teachers that have that student. Classes with students having food allergies and intolerances are educated the importance of hand washing and not sharing food. It should fall under the Equal Opportunities Act.

Anything that is considered a disability, I believe. Celiac falls under this.

Share this post


Link to post
Share on other sites

Yes it does. Unless their are learning deficits a 504 plan is not needed. A statement from the Dr. Is all that should be required. It's the law that the school follow the guidelines.

Share this post


Link to post
Share on other sites

Theredoesn't need to be any learning deficits for there to be a 504.  Also, the guidelines do not need to be suggested by the Dr. at all. The only thing the Dr. really needs to do is state how the disability effects the childs ability to carry out basic life functions. The accommodations most often are suggested by the parents as they know what needs to be done to keep a child safe.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   19 Members, 2 Anonymous, 494 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
    2 cans gluten-free green chili enchilada sauce (I use Hatch brand) 1 small head cauliflower, roasted and chopped 6 ounces chicken meat, browned ½ cup cotija cheese, crumbled ½ cup queso fresco, diced 1 medium onion, diced ⅓ cup green onions, minced ¼ cup radishes, sliced 1 tablespoon cooking oil 1 cup chopped cabbage, for serving ½ cup sliced cherry or grape tomatoes, for serving ¼ cup cilantro, chopped 1 dozen fresh corn tortillas  ⅔ cup oil, for softening tortillas 1 large avocado, cut into small chunks Note: For a tasty vegetarian version, just omit the chicken, double the roasted cauliflower, and prepare according to directions.
    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
    Add chicken and brown lightly on both sides. 
    Remove chicken to paper towels to cool.
     
    Cut cauliflower into small pieces and place in the oiled pan.
    Roast in oven at 350F until browned on both sides.
    Remove from the oven when tender. 
    Allow roasted cauliflower to cool.
    Chop cauliflower, or break into small pieces and set aside.
    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au