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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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ncdave

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self dianosed, been trying to be gluten free for 8 months now with many mistakes. I went to the doc to get antibotics for broncitus, he wants me to see a gi for weight lose an possible celiac. Like a lot of people on here i do not trust docs anymore!! I try an be gluten free, take my vitamins, take flaxseed an grapeseed oil daily. My question is should i go an what can a doc do to to help me? I feel like i"m in this all alone, i mean only i have control over being gluten free.

We buy wild bird food by the 50 lbs bag. I put it in a six pack cooler to fill the feeders. Watch out for wild bird seed dust some of it contains wheat!!!!!!!!!!

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You would need to go back on gluten to be tested for celiac. Being gluten free or gluten light will cause a false negative. Did you have any celiac testing done before you went gluten free 8 months ago? You also say you are trying to be gluten free with a lot of mistakes. What are you typically eating? Are you taking precautions about cross contamination?

If you have other things besides celiac going on the GI doctor would be able to help with those but testing for celiac will likely require a challenge.

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I eat baked chicken, baked potatoes, garden peas, bananas,baked fish,butter,cooked apples in small amounts, enjoy life brand choclate with no problems. Only thing i can drink is water. I also can"t have dairy cause it bloats my stomach. I was digonased with irritable bowel syndrom after my colonscopy. on my follow up visit i took a paper with my symptoms writen down, the doc didn"t even read past the first line an told my this was in my head an i need to take up yoga. I got so sick i spent 6 months in bed only got up to eat an go to the restroom. I cant eat anything in a package that says gluten free except enjoy life baking chocklate chips. I have trouble eating any meat except chciken. It"s a pretty limited diet so usually after 5-6 days i will try to add something else but it doesen"t work so i stay sick for 4-6 days after. I would say i"m extremly gluten senstive an reactions after being glutened are pretty severe. I don"t need any test to tell me i can"t eat bread or gluten!!! I have no problems with cc anymore house is gluten free. I fed them birds for 7 months an never relized i was inhaling wheat dust every 3-4 days.

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Hi Dave,

I'll watch out for the bird food. I usually get the sunflower seeds and millet type. Still have some of it left from last year as I mostly put it out when there is snow on the ground, and we didn't get much snow this past winter.

I wonder if you can do sweet potatoes? Regular potatoes are nightshades and some of us have reactions to them. Nightshades are tomato, potato, pepper and eggplant.

It could be you have a chronic issue going on in your gut also. H.Pylori bacteria or parasites could cause ongoing symptoms. H.Pylori is very common though, something like 50% of people have it.

How about avocados? Can you eat them? Is corn ok?

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Hello again GFINDC, i"m sure glad you found this thread. Your the one that told to get rid of dairy 8 months ago an it sure worked, no more bloating. I still cant have dairy :( I did leave out a few food items i can eat, so add sweet potatoes, turkey, small amounts of mayo (on my bananas) and guess what else, fried pork skins don"t seem to bother me. That"s all thats on my list..... Never had a avocado in my life, i"ll have to give one a try. I did good with watermelon :) I been wanting to try corn but haven"t in a while now. I love frito"s but found more than 6 chips an i didn"t do good. Looks like a trip to the doc to check for h.Pylori

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Okay, for avocados, if they are hard to the touch in the store, let them sit out on the counter several days to finish ripening. Once they are soft, they are ready to eat.

You can make chocolate "pudding" out of mashed avocado and melted chocolate chips. :)

Can you do coconut ? Coconut milk (canned) is good, you could make a sort of "horchata" type drink out of that, water, and some form of sweetener, if there are any you could tolerate, such as honey or stevia. Mix up a small amount in warm water and then dilute with regular water and ice. Coconut milk can also be mixed with canned pumpkin for "pudding," or mixed with canned pumpkin, sweetener, and egg, and baked as a pumpkin pie type custard.

If you are going to try corn, try fresh corn, first, that you peel the husks off of and then cook, or slice the kernels off of and then cook, (you can also put this through a blender to make a sort of corn slurry and grind it up) so you can see if it is the corn itself that is bothering you, or how it was processed.

I react poorly to flax, I think I'm the only person I know that does that, but flax oil and seeds, even ground up, really do a number on me, if you want to skip the flax oil a day or two and see what happens.

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I react poorly to flax, I think I'm the only person I know that does that, but flax oil and seeds, even ground up, really do a number on me, if you want to skip the flax oil a day or two and see what happens.

Your not the only one. Flax doesn't like me either. Good suggestion.

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I can't tolerate flax either. I third that suggestion.

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Hello again GFINDC, i"m sure glad you found this thread. Your the one that told to get rid of dairy 8 months ago an it sure worked, no more bloating. I still cant have dairy :( I did leave out a few food items i can eat, so add sweet potatoes, turkey, small amounts of mayo (on my bananas) and guess what else, fried pork skins don"t seem to bother me. That"s all thats on my list..... Never had a avocado in my life, i"ll have to give one a try. I did good with watermelon :) I been wanting to try corn but haven"t in a while now. I love frito"s but found more than 6 chips an i didn"t do good. Looks like a trip to the doc to check for h.Pylori

Well, I'm glad to help Dave, we all have similar problems so it is nice in a way because we can share and learn from each other. Dairy has both lactose and casein, and they can both be a problem or just one of them. Hard cheeses are mostly casein so that is one way to test if you want to explore. Milk has lots of lactose and casein, unless you get the lactaid kind that has the lactose pre-digested. But you can try lactaid pills also. I can do a little dairy once in a while now but don't do it more than once every few months at best.

Avocadoes are great for making guacamole. They have a lot of good protein inthem. Take a large knife and push it into the center lengthwise on the avocado. Turn the avocado and hold the knife still. This cuts the avocado all the way to the center seed. Then just twist the avocado halves to separate. Whack the seed with the knife so it sticks in and twist sideways to remove. Then you can get the avocado out with a large spoon. Guacamole is just avacado, lemon juice, salt pepper, and anything else you want to mix in,like mayo. Salmon is a nice addition to raise the protein and tastes good too.

I don't don't well with Fritos myself, not sure why but they don't sit well, so I quit eating them years ago. Food Should Taste Good brand sweet potato chips or olive chips seem fine though.

I don't know about corn on the cob. I can't digest the skins on the corn and many people can't. They are very tough to digest. But I can do corn torillas ok, like Mission brand or others.

I don't do much sweet stuff, once in a while but generally avoid it. I eat chicken, beef, fish etc. peas, brussell sprouts, ,bananas, corn (taco shells or tortillas), peanuts and peanut butter, other nuts but not Brazil nuts, almond or hemp milk, Chex cereals but only the corn or rice versions. Sweet potatoes, kale, black beans, onions, cantalope, carob, (not chocolate), pumpkin, eggs. Probably some more things I am not thinking of. One of my local health food stores has a grinder to grind your own peanut butter which is cheaper than the regular brands. Pretty neat.

I found out a few months ago that grapes were causing me problems and stopped all forms of them. Made a big difference for me. I also stopped all alcohol as it is hard on the digestive tract from what I've read.

I did try some Against the Grain muffins recently and the were ok for me. They are made with tapioca flour instead of potato flour Kind of pricey though. I'll use the corn taco shells or tortillas instead.

I hope you feel better soon Dave and find some more foods that work for you. Choolate avcaoe soudns wierd to me but I haven't tried it so maybe I should. Carob avoacado might be ok. :)

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I can't tolerate flax either. I third that suggestion.

I think I may be allergic to flax as well...I thought I was the only one. I've had very bad experiences with KIND bars which are supposed to be gluten-free but contain flax, so I'm thinking that is the problem besides gluten. Last time I had a bite of the granola bar I had to throw up and felt like I would faint and a very bad and strong pain in my lower back. It is truly scary since I haven't been diagnosed with celiac yet but I know I cannot tolerate it. What other symptoms do you feel when you eat flax? It would truly help to know them in order to see if I am intolerant to flax.

THANKS

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A lot of great food ideas an some info i did not know. I do thank you all. I think right now i need to stick to whats on my list an get well, i been sick to long lately (couple weeks) I know it"s my own fault for trying new stuff. I tried gluten-free soda an did ok for 7-8 days but all of a sudden it hit me an super bloated. It went away after a few days but it has my hiatal hernia really messed up right now. Soon as i get over the citric acid an (dairy free gluten free ice cream) i will try the coconut milk, maby mix in a banana. I been drinking nothing but water for a long time now. Something to drink would be so wonderful to look forward to, even if it"s only 12 oz a day!!! After the coconut milk test i"ll try the avacoada. I"m going to pass on the corn for a while longer. I feel like if i don"t get well an stay well i"m never going to get healed up. I also gave the oils a break. The oil mixture really did help my leg muscles from hurting.

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Well i tried the avocado, i want my dollar back! I didn"t trust all the ingredints in the can coconut milk, i found this stuff called organic cream coconut. Only ingredient is organic coconut. It just looks like very fine ground cocconut, you mix 1 tablespoon coconut with 2 tbl. hot water. looks just like milk. Even if you fill the glass half full of water is still white like milk. I used 1/4 glass c milk, 1 banana, 1 tbl honey. fill the blender with ice till it got to 2 cups. OH it is so delicious. I"ve been doin really good, except when i ate to much enjoy life chocklate mega chips, they didn"t make me feel bad, but i sure had a terrable migrain the next day. Almost can"t wait till tommorow so i can have another coconut banana drink! TAKALA thanks for the drink receip, GFINDC feel free to pm me for where to send my dollar!!!!

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Well i tried the avocado, i want my dollar back! I didn"t trust all the ingredints in the can coconut milk, i found this stuff called organic cream coconut. Only ingredient is organic coconut. It just looks like very fine ground cocconut, you mix 1 tablespoon coconut with 2 tbl. hot water. looks just like milk. Even if you fill the glass half full of water is still white like milk. I used 1/4 glass c milk, 1 banana, 1 tbl honey. fill the blender with ice till it got to 2 cups. OH it is so delicious. I"ve been doin really good, except when i ate to much enjoy life chocklate mega chips, they didn"t make me feel bad, but i sure had a terrable migrain the next day. Almost can"t wait till tommorow so i can have another coconut banana drink! TAKALA thanks for the drink receip, GFINDC feel free to pm me for where to send my dollar!!!!

Wow Dave, I am sorry you didn't like the avocado. Did you get a bad one? They should be brown skin and green inner layer and yellow inside. Sometimes the stores leave them too long and they turn brown inside. They have enzymes in them that break them down pretty quickly . That's why they put lemon juice in the guacamole to retard the browning. I sometimes make gaucamole and add canned salmon to it for extra protein. It's great with the Food Should Taste Good chips.

I am glad you are feeling better! The smoothie you made sounds real good. An avocado would probably make it even better. :)

Well, snail mail is too slow for this situation, so here is your dollar back. Plus I saved a stamp and wear and tear on the mail people.

640px-United_States_one_dollar_bill%2C_obverse.jpg

I feel really bad about the avocado so here are a couple more dollars to make up for it. Don't all you other cilly heads go getting ideas though, I am not made of money! :(

640px-United_States_one_dollar_bill%2C_obverse.jpg

640px-United_States_one_dollar_bill%2C_obverse.jpg

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Well since you sent a couple extra bucks, i"ll try again. Maby i let mine get a little to ripe, it was pretty soft an didn"t look to good inside. ( didn"t taste to good either). You should try the drink it"s really great, Did you know the greener bananas taste much sweeter than the ripe ones!

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Hi Dave,

Nope, I always avoided the green bananas and let them sit until they get properly ripe. But I'll try one now that you suggested it. I'll have to pass on the coconut drink since coconut and I don't get along well anymore. Maybe I'll try it sometime just to see what happens.

My sister got some bad avocados at a store once and we took them back. They were all brown inside, already gone.

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Oh i see i"m not the only one that wanted there dollar back!!!

I"m not talking reel green just a little green. Seems like when i eat chocolate i wake up very dizzy the next morning, is there a connection between the sugar an dizzyness or vertigo?

One more thing what can i do to gain some weight back, i"ve lost 35lbs in the last 9 months, i didn"t need to lose any! I try an eat small portions every couple hours, I have not lost any weight in the last month but I have not gained any either. I need a natural food thats very fatning, the coconut is 190 calories per tablespoon. I"m hoping that helps. I also need something so i don"t have to take miralax daily!

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I guess you didn't notice the rubber band attached to those dollars I refunded eh? :)

Yeah, coconut is something I'd like to be able to eat but it doesn't agree with that idea. I don't know if I'd take the Miralax, it seems to me psyillium husks would be a more natural remedy than PEG. Not much easier to spell but at least it's shorter.

Polyethylene Glycol 3350

I used psyillium husks for a while, I put a little in everything I ate. Works ok.

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Well since you sent a couple extra bucks, i"ll try again. Maby i let mine get a little to ripe, it was pretty soft an didn"t look to good inside. ( didn"t taste to good either). You should try the drink it"s really great, Did you know the greener bananas taste much sweeter than the ripe ones!

Hey Dave! I hate avocado's too! But I make myself eat one every day because they are so darn good for you. the trick is to find exactly the ripeness you like them. I like mine just barely ripe...soft enough for the pit to pop out but not to the mush stage...yuck. And if there is any brown...I cut it off...it can't be good for you I figure...but I know others who eat it even if it is brown. Anyway, the firmly ripe not mush ripe is the way to go. I like slightly green banana's too and I never eat them ripe! We must have the same taste bud genes... :D

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I"ll try an get off the miralax, sounds like i need to eat more peas, an stop peeling the potatoes. I was hoping for someone to recommend trying prunes or something.

Last couple of days have been tough to say the least ! I know i have not ate anything wrong. After reading 3 pages from back in 06 about paper plates an paper towels i pretty much ruled those out.

Sometimes i sleep in while my girl friend is getting ready for work. I read the lable on the back of a paul mitchell hair spray can. In bold black letters it says Hydrolyzed wheat protein breathing hair spray may not be in my best interest.

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    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com