Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

NewNicole

Crazy Amounts Of Energy

Rate this topic

Recommended Posts

When someone asks me what it's like to have celiac disease I tell them it's like being on the wildest roller coaster you could ever imagine. It's been a little over a year now that I have been gluten free. I started out in severe pain, incredibly hungry, massive headaches, every muscle aching, and sleeping 14 hours a day and still feeling like I got ran over by a truck. Now I can say that after the withdrawal symptoms subsided I no longer even want bread. Ok maybe somedays I pine for a small little taste of a nice soft piece of fresh italian bread. But for the most part I don't think twice about it. During this last year I have experienced so many new symptoms while getting rid of the old ones. I traded severe abdominal pain for wierd arm pains that doctors were baffled by. It was here on this forum that I figured out that it was probably a vitamin issue that was causing my problems. Now the crazy new experience I seem to have is this thing called energy. I've never experienced it before. I literally feel like I drank 12 cups of coffee in a row. I haven't figured out how to use this energy yet. I must look like a bug on drugs to people at this point. I just seem to ramble and run around like a chicken with it's head cut off. It used to be that I only had one day a month that I felt good enough to do much of anything. So I still run around doing all the housework and all my chores in one day anticipating that tomorrow I will be dead to the world. I can't tell you how many nights I went to bed before dinner making my husband fend for himself and taking care of all the kids. Now I can actually cook, (which due to the amount of work it takes to make gluten free food I need all this energy), and I can even clean up after. My iron has always been very low and my thyroid levels were high. I learned to function that way. I can't believe this is how normal people live. I don't know if this is actually my thyroid going the opposite way or if this is my new norm, but I figure I better do as much as possible now before my body realizes it needs to turn into that slug again. So although I wouldn't say that I'm 100% and I still have some issues, I am really happy with how much better my life is without gluten. So for all those newly diagnosed people out there I want them to know not to give up. It is a roller coaster, but in the end you too will be able to do laundry, cook, and do the dishes all in one day. lol.

Share this post


Link to post
Share on other sites

I had a similar energy burst about 6 weeks ago, and then got glutened and haven't got it back again yet. It felt good to be so energized, but it was also unnerving because I felt too energetic - almost like a mania. Maybe because normal feels so abnormal after all these years!

Share this post


Link to post
Share on other sites

Thanks for giving me hope!! I've gotten past the massive headaches but a short 2 weeks in and I'm beyond exhausted, all the time! I love hearing that there is something to look forward to :)

Share this post


Link to post
Share on other sites

Always great to hear positive results! Good stories are wonderful.smile.gif

Share this post


Link to post
Share on other sites

You said:

"I can't believe this is how normal people live"

NewNicole, this is YOUR new "normal"!! :)

This is what healing feels like. This is how a body works as it is designed. (I get this part BIG time --because I am starting to feel it myself after a life time of wondering what "normal" felt like, too)

Congrats, honey!!

So happy for you.

Cheers, IH

Share this post


Link to post
Share on other sites

Its great reading someone's results after a year with the gluten-free life. Im only a month in and Ive had more energy this month than Ive had in YEARS! If it gets any better with time, I might have to take up marathon running! I do still have days where Im exhausted and just need to rest. But I believe that is because Ive been without energy for so long that I wear myself out. Im actually sleeping at night with NO medication. DH wonders why Im so tired at night. I said isn't that how normal people are? Im still bloated so much of the time, but the pains are disappearing as are the quick dashes for the bathroom.

Share this post


Link to post
Share on other sites

I didn't realize that it was normal to feel good and have energy. It was mind blowing. I went from feeling about 70 years old to feeling 20 (I was 42 when I went gluten free). Keep taking care of yourself and take your vitamins and you should continue to feel great. And to those just starting out, there IS a beautiful light at the end of the tunnel. Stick with it!

Share this post


Link to post
Share on other sites

Kitty, mania is a great way to describe it. It takes me forever to heal after being glutened too. I hope you bounce back soon. Lvrdeo, I'm so glad that I can give you hope. I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting. Tctwhite, I told a friend of mine that next year I want to do a warrior dash marathon with her. I'm thinking I may be overguessing my physical abilities in this one. But the mere fact that I can consider it is huge. Who knows maybe in a couple years I can climb mount Everest....or maybe not. lol. Irishheart, it's great to feel a little human, isn't it? Who knew someone could feel like this? Srall, I have to tell you that up until about a month ago my 74 year old mother out ran me and she needs a walker. lol.

Share this post


Link to post
Share on other sites

I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting.

This is GREAT news!!! I know what you mean. When I was very ill, I could not walk the length of my driveway (160 ft.) without being short of breath, just gasping for air and my whole body was shaking from the strain of this small activity. I was a burning mess of weak muscles and bone pain. I could not lift my arms over my head or dress myself at one point. Everything was painful and tiring.

A few weeks ago, I went kayaking. :)

This summer, for the first time since 2008, I could get in and out my pool (by myself) and swim around a little. I could not do that for 4 summers....a miracle? Nope, just the body "doing what it is made to do".

Continued healing to you and enjoy your "crazy energy"! ;)

Cheers, IH

Share this post


Link to post
Share on other sites

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

Share this post


Link to post
Share on other sites

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

You too!..go get 'em kiddo. It's all good now. ;)

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
All of Schars products are gluten-free.  They don’t make any that are not.
  • Blog Entries

  • ×
    ×
    • Create New...