0
klin03

"cheating"

Rate this topic

Recommended Posts

Has anyone ever done this in the early months of being gluten free? I've been gluten free for several months and I have no desire to eat gluten just for the sake of eating gluten, but sometimes I think it would be good to know what to be on the lookout for in the case of an accidental glutening. I've had various symptoms of varying degrees of severity for most of my life but I always thought tummy aches and such were normal for everyone on Earth. They were/are certainly normal for me. It's only been in the past few years that I've realized it's not normal for the need to have a BM to be signaled by tummy aches. I'm still having a lot of those symptoms these days, but my TTG has improved greatly, so by the numbers, I'm on the right track. It wasn't until a couple of months before my diagnosis that things started getting abnormal by my standards, so I wonder if I should be expecting those symptoms (which I don't have a lot of experience with) when glutened? Or am I being glutened still, because I'm still experiencing my normal stuff? Or should I be eliminating other things? Or is it something else altogether? Morbid curiosity?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Has anyone ever done this in the early months of being gluten free? I've been gluten free for several months and I have no desire to eat gluten just for the sake of eating gluten, but sometimes I think it would be good to know what to be on the lookout for in the case of an accidental glutening. I've had various symptoms of varying degrees of severity for most of my life but I always thought tummy aches and such were normal for everyone on Earth. They were/are certainly normal for me. It's only been in the past few years that I've realized it's not normal for the need to have a BM to be signaled by tummy aches. I'm still having a lot of those symptoms these days, but my TTG has improved greatly, so by the numbers, I'm on the right track. It wasn't until a couple of months before my diagnosis that things started getting abnormal by my standards, so I wonder if I should be expecting those symptoms (which I don't have a lot of experience with) when glutened? Or am I being glutened still, because I'm still experiencing my normal stuff? Or should I be eliminating other things? Or is it something else altogether? Morbid curiosity?

If you've only been diagnosed a few months ago, most likely your gut is still healing. Thats the case for me. I've been gluten free since May and I still get stomach problems from time to time. You could be getting glutened from somewhere - I'd start with your kitchen surfaces and cookware, but it could be anything from toothpaste to shampoo to skin products.

There have been times where I have been so frustrated not knowing if I've been glutened or am just healing that I've blurted out "why dont I just eat a piece of bread?" I'll never do it. First off, I wouldn't knowingly poison myself and risk derailing my progress. Also, if you do that, who knows if you'll be out of it for a day, a week, or a month? Its just not worth it for me - I have to work and function on a day to day basis and cant risk feeling like crap for weeks....I understand your frustration because I'm still sort of new at this too but I would encourage you to let your body heal more and see how you feel. Hope this helps!

Share this post


Link to post
Share on other sites

I wasn't sure what to say, but I guess I can tell you what it is like for me after consuming gluten accidentally. First, there is the GI symptoms that last for a few hours. Not so bad to be perfectly honest, but it is exhausting. Then, I'll really and truly be exhausted. I will sleep for more than half a day, usually more like 20 hours a day for about half a week maybe. When I can finally find the strength to keep myself upright in a chair for more than an hour at a time I'll still be so weak and tired (physically) that I can barely do anything for weeks afterward. I'll find myself going hungry because I can't find the energy to walk to the kitchen and actually make something and actually get a fork to my face afterward. There is nearly unbearable all over pain. Think like having the flu, only worse. I'll become so tender to touch that my husband loving resting his hand on my arm will be so painful I'll just start to cry. This symptom by itself is the reason I have a separate bed that I have to use for about 3-4 weeks if I've been glutened.

I promise, this is not the sort of thing you want to do to yourself on purpose. Not to know what it's like. Not to know if you are on the right track. I used to wonder that myself but as time wore on and I steadily improved a bit at a time I realized the small things I had been doing wrong but also all the things I had been doing right slowly added up. We've all done so much damage to ourselves for so long with gluten. We just need to have patience. I know it's hard. I assure you I am the queen of not having patience, but there is nothing to do in this case but simply wait. Put one foot in front of the other, get out of bed every morning with renewed purpose. Or with running feet and a full bladder... you know, whichever suits you. :P

Share this post


Link to post
Share on other sites

I know the uncertainty is frustrating, but you will eventually figure out glutening symptoms...the hard way. You will get "got".

People have a range of symptoms-from mild to extreme. And your symptoms can change, especially in the first year. Mine did. It may sound like a good idea, but if you end up with an ai attack that lasts a month you're going to think you are the stupidest person on the planet for doing that to yourself on purpose.

Glutening is like a box of chocolates. You never know what you're gonna get.

Share this post


Link to post
Share on other sites

Everyone's symptoms are so all over the place and with so many of us having other intolerances it can be hard to tell. Regular grains give me fast GI symptoms. Gluten creeps up on me slow but them whammies me. Sometimes vomiting, sometimes not. I do not think it is worth it at all. One thing that is consistent is that I can feel my body being set back a good bit, i.e. undoing some healing.

Share this post


Link to post
Share on other sites
Ads by Google:


I have multiple intolerances and they all cause my psoriasis to flare. My digestive symptoms were very mild. But after over 14 months of being gluten-free, I did get glutened by some cross contaminated rice. Now I know what the rest of you who have severe digestive symptoms have gone through. I NEVER want to go through that again!

I live alone and don't eat at friend's houses or restaurants, so the chances of accidental glutening are all on my shoulders. I swear, if I ever decide to try a different food or a different brand, unless it is certified gluten-free, I will do without. I WILL read every label, EVERY time I buy a familiar brand. I'm never going to take a chance again!

Share this post


Link to post
Share on other sites

Like you, I thought it was normal to get a stomachache after most meals. I even had a doctor tell me "she's one of those people who gets stoamach aches after she eats" when I was about 8. :blink: I dismissed it and got tough so I wouldn't grimace or double over when in front of people; I always carried a sweater so I could hold it over my bloated belly to disguise it and push back.

The things we did, eh?

Anyways, I've been gluten-free for 3 months and glutened myself twice by mistake. For me, it felt the same as those stomachaches you used to get after eating; the ones before you went gluten-free. The belly ache hit about 20 minutes after eating and then turns into painful bloating which lasts a day, along with a migraine that lasted almost a week. It was super obvious! If you had GI issues after eating, I'm guessing that it would be pretty obvious for you too... whatever symptoms that have been relieved by going gluten-free, that's what you would get, and possibly slightly more severe.

I still get a few of the symptoms, but they are milder and much less frequent. As we heal, it will improve. :)

Best wishes.

Share this post


Link to post
Share on other sites

When I get glutened now, it is generally overwhelming nausea - the kind where you want to retch and have too much saliia and just can't think of anything else. :(

Share this post


Link to post
Share on other sites

Yes, as the others have said, eating gluten "just to see" is definitely not worth it. You're still healing, still figuring out what you should be eating. As you manage to cut all possible gluten out and heal up, then trust me, you'll know when you've accidentally gotten glutened.

For me, I know it was gluten when I few hours later my stomach starts doing flips, then the next day I'm all anxious and want to either cry or kill someone. Usually it takes a few days before my stomach can handle other food too.

Best advice, cut out the gluten, read labels, ask lots of questions when you eat out (I still have trouble doing this), and enjoy feeling better.

Peg

Share this post


Link to post
Share on other sites

I'd be very careful. I've read stories on this board about people trying to do the gluten challenge and ending up in the emergency room. Back when I started living gluten free (almost 3 years ago now) I didn't realize that I most likely had celiac. I just knew that stopping gluten and dairy was life changing. So about 2 months in we went on vacation and I thought I'd just "do my best" for the trip...and wasn't diligent at all. My experience was similar to Adalaide...did she say she also had such excruciating joint pain she couldn't get out of bed? I can't remember but it happened to me. For 3 weeks I slept 16 hours a day. I had a rash everywhere. It was so awful. Finally I ended up at the doctor's office and finally someone started talking to me about celiac and gluten intolerance. I wasn't willing to do the gluten challenge so I only have a "gluten sensitivity" although I believe in my heart I have celiac.

I think at this point you should just worry about healing and getting used to what it means to be gluten-free.

I wonder now that since I'm a few years in if I did get glutened that maybe my body would not go haywire, but I'm not willing to chance it.

Share this post


Link to post
Share on other sites


Ads by Google:


I did mention the pain but not how awful it is. I spend weeks on narcotic painkillers and while I've discussed with my doctor the fears we both have of the possibility of me becoming dependent we have both agreed that it is worth the risk. I also end up with the brain fog for a good 4-6 weeks which I'm still climbing my way out of now. Honestly, for the first 2-3 weeks I wouldn't be able to think my way out of a wet paper bag. I only wish I was dead for about a week or two, after that I start the uphill battle of feeling better until it's over. There are people who have true horror stories. How one accidental brush with gluten has left them on death's doorstep. I consider myself lucky that I only wish I was dead rather than actually being on the brink of death. I am fortunate though that due to life's circumstances I am able to consider high dose steroids as a treatment option to help alleviate symptoms, this is not an option for everyone.

Share this post


Link to post
Share on other sites

Thank you all for your nice responses. I was preparing to put up my dukes after using the word "cheat". I've seen some very unpleasant reactions at the mention of that word!

I'm glad I posted about this. I'm finding a lot of comfort in knowing that in these early stages, it's common to be frustrated in wondering, "did I get glutened or what?"

I've been having a stabbing, localized pain in my left side for the past several days. This is actually the abnormal pain that took me to the Dr. which ultimately let to my diagnosis. I thought I must have had an ulcer or diverticulitis or something. Nope. Celiac, straight out of left field. My endoscopy and colonoscopy didn't find any other cause for this stabbing pain so at this point, I'm thinking it must be my "you've been glutened" signal. Everything else that I've been feeling my whole life (and still experiencing) must be what's taking time to dissipate as I heal.

So thank you all again, very much!

Share this post


Link to post
Share on other sites

Klin, are you still drinking/eating dairy? Sometimes it's a good idea to cut it out while you heal. That might help with the stabbiness, or at least let you know that it's indeed gluten getting to you and not something else.

Just a suggestion (that I didn't follow when I started. I clung to dairy as long as possible. Now I'm casein intolerant)

Peg

Share this post


Link to post
Share on other sites

Klin, are you still drinking/eating dairy? Sometimes it's a good idea to cut it out while you heal. That might help with the stabbiness, or at least let you know that it's indeed gluten getting to you and not something else.

Just a suggestion (that I didn't follow when I started. I clung to dairy as long as possible. Now I'm casein intolerant)

Peg

Yes, I still eat dairy. I'm totally clinging to dairy!!! The stabbiness is gone. There were/are several other symptoms with the stabbiness. I'm calling it my 1st glutening so I can feel like I know how it feels and get over this feeling of needing to "cheat". Last weekend at a birthday party, I picked up my 3 y/o daughter's juice box and took a swig thinking it was my juice box. She had just finished enjoying pizza and birthday cake with that juice box. The stabbiness and discomforts started the next day.

Share this post


Link to post
Share on other sites

I wasn't sure what to say, but I guess I can tell you what it is like for me after consuming gluten accidentally. First, there is the GI symptoms that last for a few hours. Not so bad to be perfectly honest, but it is exhausting. Then, I'll really and truly be exhausted. I will sleep for more than half a day, usually more like 20 hours a day for about half a week maybe. When I can finally find the strength to keep myself upright in a chair for more than an hour at a time I'll still be so weak and tired (physically) that I can barely do anything for weeks afterward. I'll find myself going hungry because I can't find the energy to walk to the kitchen and actually make something and actually get a fork to my face afterward. There is nearly unbearable all over pain. Think like having the flu, only worse. I'll become so tender to touch that my husband loving resting his hand on my arm will be so painful I'll just start to cry. This symptom by itself is the reason I have a separate bed that I have to use for about 3-4 weeks if I've been glutened.

I promise, this is not the sort of thing you want to do to yourself on purpose. Not to know what it's like. Not to know if you are on the right track. I used to wonder that myself but as time wore on and I steadily improved a bit at a time I realized the small things I had been doing wrong but also all the things I had been doing right slowly added up. We've all done so much damage to ourselves for so long with gluten. We just need to have patience. I know it's hard. I assure you I am the queen of not having patience, but there is nothing to do in this case but simply wait. Put one foot in front of the other, get out of bed every morning with renewed purpose. Or with running feet and a full bladder... you know, whichever suits you. :P

[/quote

Feel so sorry for you .

God Bless you

pray for speedy recovery

Share this post


Link to post
Share on other sites

I dont have Celiac, but I am Gluten Intolerant. Through the last 6 months of being tested and poked, prodded and sedated, I went through various stages of being gluten free. I went totally gluten-free for a while and felt amazing. My dr told me I was fine and gluten was NOT my problem, so I went back to eating and feeling lousy. I had another dr tell me the same thing, so I kept eating it.

I finally saw a new dr who actually believed in intolerance and told me to stop, but I didnt.

I think it took another 2 more months to convince myself to stop. I go back and forth with trying to eat a little "just to see what happens" and it is the same thing...every time. I get dizzy and exhausted within 15 mins, and then a few hours later, I get a screaming headache. I get so mad when I think of the drs who told me since I didn't have Celiac Disease then it was "safe" to eat gluten. Sure, I may not have intestinal damage, but this is NOT "ok"!!1 It is NOT ok to feel lousy after eating food. I have learned the hard way...that if you react negatively AT ALL then you are having a reaction to what you ate and you should cease to eat it. Plain and simple.

It is really hard. I KNOW it is good for me to avoid it. I HAVE alternative products to eat when I feel like having a muffin, or bread. I KNOW how to cook gluten free and thankfully for me, I am not affected by cross contamination but still..when I see a warm, gooey chocolate chip cookie..its hard not to cave. But Then I think of how I will feel, even the next day and at some point I have to tell myself...no.

Share this post


Link to post
Share on other sites

Yes, our own experience can trump what a doctor tells us. They do not know everything; only we know how our body feels. Researchers and doctors are only just becoming aware of non-celiac gluten intolerance.

You really must, if you do not wish further harm down the road, resist the temptation of that gluteny gooey chocolate; goodness only knows there is enough gluten free gluteny gooey chocolate fairly readily available, even if you have to wait an hour until you bake some :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   4 Members, 0 Anonymous, 220 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

  • Forum Statistics

    • Total Topics
      110,273
    • Total Posts
      949,835
  • Member Statistics

    • Total Members
      77,798
    • Most Online
      3,093

    Newest Member
    KCNOTHIGER
    Joined
  • Popular Now

  • Topics

  • Posts

    • If celiac disease is the cause of your reflux, it can take weeks, to months or a year for healing on a gluten free diet.    I have celiac disease but only was anemic when diagnosed.  Last year, I developed reflux for the first time.  Another endoscopy determined that I  had healed from celiac disease, but stomach biopsies revealed chronic autoimmune gastritis which slowly went into remission on its own after a many months.   I assume my Gastritis will flare up again in the future.   Unlike celiac disease where gluten is the trigger, the trigger for AI Gastritis is unknown.   To cope, I would sleep elevated and avoided eating late meals giving my stomach time to empty long before bedtime.  I also reduced coffee and ate a bland diet.  Reflux is awful.  I am so sorry that you are ill.  
    • Hi, how fast after starting with gluten free diet did you notice any improvement with heartburn or reflux? I am 4th day of diet and reflux seams to be worse than earlier. So I am a bit concerned. Please, help!!! Aya
    • OK good to know. Thanks for the tip
    • This is an old thread but I just need to get this out of my system! I am just so fed up with how every caregiver has been dealing with me case. My enzymes have been abnormal and my doc continuously asks me if I'm binge drinking - I literally haven't had a sip of alcohol in 2 years. Never been a heavy drinker.  She also tells me that all of my troubling neurological symptoms - sensory hypersensitivity, tinnitus, jaw/pain, headaches, fatigue, teeth grinding, nightmares, and EPILEPSY are "all in my head." ??? When my GI symptoms first started, she tried pushing acid reflux medications on me, even though Ive never dealt with heartburn. She was confused and aggressively asked, "Then what do you want!???"... um, to figure out the root of my issues? Some diagnostics? Gosh... When I told her my symptoms had decreased on a low gluten diet and I was interested in being tested for celiac, she asked me "why bother? if you're feeling better, just eat less gluten" - not understanding the value of a formal diagnosis.   I just wish I had some other disease that was more medically recognized and understood. Its so demeaning, and I try to see my doctors as little as possible now. I do my own research on PubMED and google scholar. And I don't even think I've had it the worst- I'm totally appalled by all of the crap I've read on this thread. Anyways, I'm done ranting.
    • Has your Dr mention Microscopic Colitis at all.  You mentioned taking PPI's.  I took them for over a year - 2 morning and 2 night.  I think that's how I ended up with Microscopic Colitis.  I don't think I have Celiac disease but do think I am very sensitive to gluten.  My GI dr. told me to eat whatever I want , but have learned from research, partly from microscopiccolitis.org that almost everyone with MC is sensitive to gluten and most to dairy and some to soy.  I know some on this site don't agree with some of what is said on that site, but they are really good people who want to help.  Just said all that to say, maybe you should ask your GI if you could have MC.  Hope you get it all figured out.  I know the frustration.  It can take over your life.
  • Blog Entries

  • Upcoming Events