Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Excruciating Pain - I Need Serious Help


Invictus

Recommended Posts

Invictus Newbie

I have been gluten free for about 10 months now. I am still experiencing pain; a deep - hot knife twisting-like pain - in my lower upper left quadrant - a few inches above and to the left of my navel. This is usually subsequent to a primary pain - that comes and goes - in the upper right quadrant localized to where the gallbladder would be. It feels as though it's inflamed and I am sure it's borderline non-functioning - as this has been going on for years...

This condition has literally cost me everything I own; I have been living out of my car for nearly 3 months. I am educated and strict when it comes to my diet- unless CC sneaks in. Can someone please tell me if this is similar to what they experienced? Any experienced celiacs that can help, I would greatly appreciate it!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No. That doesn't sound normal. What do the doctors say? Have they checked your gallbladder? Liver, etc?

Link to comment
Share on other sites
frieze Community Regular

I have been gluten free for about 10 months now. I am still experiencing pain; a deep - hot knife twisting-like pain - in my lower upper left quadrant - a few inches above and to the left of my navel. This is usually subsequent to a primary pain - that comes and goes - in the upper right quadrant localized to where the gallbladder would be. It feels as though it's inflamed and I am sure it's borderline non-functioning - as this has been going on for years...

This condition has literally cost me everything I own; I have been living out of my car for nearly 3 months. I am educated and strict when it comes to my diet- unless CC sneaks in. Can someone please tell me if this is similar to what they experienced? Any experienced celiacs that can help, I would greatly appreciate it!

perhaps the splenic flexure of the large intestine? You need some imaging i think....good luck

Link to comment
Share on other sites
MitziG Enthusiast

Nope, not normal. You need to get to a GI and have them find what else besides celiacs is going on.

Link to comment
Share on other sites
shadowicewolf Proficient

I say its gallbalddder going that needs to be taken out. Mine would hit hard in the right area where it sits, so bad that i couldn't hardly breath when it did it. Turns out it was functioning at 5%.

Link to comment
Share on other sites
Invictus Newbie

Shadowicewolf -

I'm I incorrect, assuming you had your gallbladder removed? If you have had it removed, are you still getting intestinal - or abdomen pain any where in abdomen - post surgery?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Braver101 posted a topic in Coping with Celiac Disease
      0

      Constant sweating with celiac disease

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    3. - trents replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    4. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,484
    • Most Online (within 30 mins)
      7,748

    kim86
    Newest Member
    kim86
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Braver101
      Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 
    • Tlbaked13
      Sometimes I end up spitting out a drink of water! But for the most part I do ok with the liquids that I've been sticking to which Is hardly anything carbonated (meaning diet soda mainly)  I drink alot of tea which I make myself lipton cold brew sweetened with half sugar and half Splenda, smoothies when I could in the beginning but made with milk so I'm now using orange juice instead of the milk but it doesn't workout real often I drink black coffee in the mornings with no trouble usually and I've been experimenting with some juices but the sugar content is a set back I'm not a huge water fan but will drink it unfortunately where I live I can't do the tap water I'm the only one who has a problem with it apparently but for some reason I just can't...unless I'm using it in coffee or tea and the tea even took me some time to stand yes I have thought about boost/ ensure but they are very costly for someone who is scrapping the bottom at this time 
    • trents
      Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products?  They are fortified with vitamins and minerals as well. Do you have any trouble with aspiration of liquids? For celiac testing purposes, the guidelines are calling for daily consumption of about 10gm of gluten - the amount in about 4-6 slices of bread - in order to ensure valid testing. That sounds like it would be a challenger for you.
    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
×
×
  • Create New...