• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
deals88

Girlfriend Making Me Sick And Dont Know Why

Rate this topic

Recommended Posts

I missed reading the brand and scent of underarm deodorant/antipersperant.

I was glutening myself from Ban Sweet Surrender, which had barley in it. That would be rubbing all over shirts and possibly long hair. I honestly didn't believe it could make me sick, but when I switched to a safe product I wasn't getting sick.

Interesting how you say it would be in the hair? Like i said in OP i just have strange feeling its her hair. The product she uses is dove pomegranate and lemon verbena, like i really should be avoiding any extravagant names i think. Even the shower gel has chamomile and jojoba oil just seems like having plain non fancy stuff would be an easier life. Thx

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Interesting how you say it would be in the hair? Like i said in OP i just have strange feeling its her hair. The product she uses is dove pomegranate and lemon verbena, like i really should be avoiding any extravagant names i think. Even the shower gel has chamomile and jojoba oil just seems like having plain non fancy stuff would be an easier life. Thx

I haven't checked lately, but I believe all Dove products are gluten free (maybe there are exceptions?)

Share this post


Link to post
Share on other sites

When I was younger my hair was down to my waist. So longer hair would come into contact with underarm deodorant.

If some one doesn't wear deodorant, it seems to me that the odor is all over their clothes. YUCK!

Share this post


Link to post
Share on other sites

I haven't checked lately, but I believe all Dove products are gluten free (maybe there are exceptions?)

I thought i read that before a swell, i suppose if they are that aware they will have no problem giving me a solid answer hopefully.

Share this post


Link to post
Share on other sites

When I was younger my hair was down to my waist. So longer hair would come into contact with underarm deodorant.

If some one doesn't wear deodorant, it seems to me that the odor is all over their clothes. YUCK!

Well im thinking if its in her hair and her hair will be in my mouth at some point that cant be good.

Share this post


Link to post
Share on other sites

Since you suspect hair, I wanted to share a bit of our experience. We have found hair products to be suspect on many occasions, but we have also had our share of problems with people who are in high risk environments, like pancake house, pizza parlour, drywall work, so potential airborne exposure that settle in hair. So you may also want to consider if she is working in a flour environment (even baking at home). I assume you would have mentioned it, but that type of exposure has certainly caught us before. Good luck figuring it out, and try to be patient with the sleuthing. We have asked people to simply minimise product use when interacting with us (we have had to ask caregivers that work closely with our gluten hypersensitive kids). Another one that caught us was a carer that was playing with her dogs before visiting us, as many (dare I say most) pet foods contain gluten.

Share this post


Link to post
Share on other sites

I haven't checked lately, but I believe all Dove products are gluten free (maybe there are exceptions?)

All Dove products are not gluten free. What they are is a Unilever product, and they state that they will give the origin of ingredients. For instance some Dove shampoo's will state hydrolysed wheat protein as an ingredient.

http://celiacdisease.about.com/od/GlutenFreePersonalCareProducts/a/Gluten-In-Shampoo.htm

Hydrolyzed wheat protein is an ingredient in at least one: http://www.dove.us/Products/Hair/Treatments/Deep-Repairing-Mask.aspx

Share this post


Link to post
Share on other sites

Thanks for the correction, Steph.

Share this post


Link to post
Share on other sites

If your girlfriend has to change makeup, clinique is a good option. I call them and ask about each individual product that i use. They always tell me what allergens are present in each product. They do not claim to be Gluten-Free, but none of the things i use have turned out to contain gluten. Some do have soy, but that does not bother me. The hotline numbers are 1-800-419-4041 and 1-866-707-2100. The are very helpful.

Share this post


Link to post
Share on other sites

Since you suspect hair, I wanted to share a bit of our experience. We have found hair products to be suspect on many occasions, but we have also had our share of problems with people who are in high risk environments, like pancake house, pizza parlour, drywall work, so potential airborne exposure that settle in hair. So you may also want to consider if she is working in a flour environment (even baking at home). I assume you would have mentioned it, but that type of exposure has certainly caught us before. Good luck figuring it out, and try to be patient with the sleuthing. We have asked people to simply minimise product use when interacting with us (we have had to ask caregivers that work closely with our gluten hypersensitive kids). Another one that caught us was a carer that was playing with her dogs before visiting us, as many (dare I say most) pet foods contain gluten.

Hey thx for taking time to say this. Shes a student and works in bar part time but she always has a shower before i see her so i guess i can rule out any enviromental factor for the moment. Interesting about your carer i now will make her wash her hands before approaching my skin lol. I just need a day of seeing her without a reaction for some hope its all going to be sorted.

Share this post


Link to post
Share on other sites

If your girlfriend has to change makeup, clinique is a good option. I call them and ask about each individual product that i use. They always tell me what allergens are present in each product. They do not claim to be Gluten-Free, but none of the things i use have turned out to contain gluten. Some do have soy, but that does not bother me. The hotline numbers are 1-800-419-4041 and 1-866-707-2100. The are very helpful.

Hey this is strange i was just thinking today as i was using my clinique products that they would be a trustworthy brand. There is also a clinique section in a boots near me where i think they may have all the ingredients. I will def be checking this out. Thx

Share this post


Link to post
Share on other sites

So got reply today about Rimmel product and the NYE make up:

Thank you for your enquiry regarding Rimmel & NYC Eye Pencils.

We can confirm that neither of these products have gluten added to them but we can not guarantee that the individual ingredients have not come in contact with gluten at any point.

Kind regards

Philippa Vant

Consumer Affairs Officer

Coty UK

What should i take from this? Should i just remove it for now and be cautious are is this a good sign they don't contain gluten?

Share this post


Link to post
Share on other sites

Got this link from P&G if anyone ever wants specif info on their products http://www.scienceinthebox.com/en_UK/main/index_en.html If you look hard enough you can a very detailed chemical list of certain products.

I found the following in an Aerial product though not the specific one i was looking for:

Glycerides, wheat germ-oil mono-, di- and tri- Wheat, ext.

I emailed asking were these harmful to us, they say wheat so doesn't look appealing.

Share this post


Link to post
Share on other sites

I also contacted Biolage about their hair products. Some contain soy. Some clearly state on the website that they contain wheat. I have asked about other specific products that i use via email. They are prompt in their responses and give concise answers. The ones i use do not contain gluten. Hope that gives you another hair care option.

Share this post


Link to post
Share on other sites

Does she floss her teeth as well as brush them? Could bits of gluten be stuck in her teeth?

Share this post


Link to post
Share on other sites

Does she floss her teeth as well as brush them? Could bits of gluten be stuck in her teeth?

Heyy, she doesnt floss but she doesnt have any gaps in her teeth? Would this matter. I literally floss after every meal maybe it should be a team activity lol. If flossing was the answer after all this lol i may scream

Share this post


Link to post
Share on other sites

Heyy, she doesnt floss but she doesnt have any gaps in her teeth? Would this matter. I literally floss after every meal maybe it should be a team activity lol. If flossing was the answer after all this lol i may scream

I actually read about this 3 years ago in the book "The Gluten Free Bible" and remembered it. I dug the book out today and reread it. It's chapter 13 "Sex and the Celiac". It's a story about a man who gets sick from his non celiac wheat eating girlfriend. However, the book spells it out all romantic like. Here's the last paragraph of the story:

"Does Theresa floss and brush her teeth" Byrons mother asked her embarrassed son.

"Ma!"

"Well, does she?

"What about her beauty products. they could be making you sick"

Byron was emabarrassed, but promised his mother he would talk to his girlfriend.

Byron explained to Theresa that he was getting sick everytime they got together.

Out went her old cosmetics. In came new gluten free hypo-allergenic lotions, creams,make-up, and pretty new lipsticks that did not change Byron's desire to kiss her. With a lifetime supply of dental floss, and his and hers electric toothbrushes, the young couple found an unlikely and surprising sexy source of togetherness. Teresa washes washes carefully after touching unsafe foods and they have been known to shower together to avoid wasting water and time.

As far as I know, there were no more gluteny incidents and in the spring, Byron proposed, presenting Teresa with a modest diamond solitair she wears with pride. As soon as they finish their degrees, they will have a big fat gluten free wedding and honeymoon in Tesesa's Italian ancestrial village where much brushing, flossing and kissing will go on. The moral is this: not everything you put in your mouth is food. When you are a celiac, the concept of being lovesick takes on a whole new meaning. "Not that there is anything wrong with that" as Jerry Seinfeldt is so fond of saying.

As long as you play it safe, thee is no reason you can't play"

The chapter goes on and on with specifics on cosmetics and hygene before intimacy. It's a pretty long chapter.

The story in the beginning about Teresa and Byron kind of sound like a romance novel.....HAHAHA. but then it gets down to the business of making sure you don't get sick and how to achieve that.

I think it's time to read this book again, I was skimming through it and I think I can learn from it even now, after 3 years..

Share this post


Link to post
Share on other sites

Hey! I know this topic is old but I thought I'd put in my two cents :-)

I am super, super sensitive and one of the worst glutenings I have ever had was from my hair conditioner. When I read the ingredients, there was actually wheat protein on there! After that I threw out all my personal care products and just bought gluten free ones.

So if your girlfriend is having a shower BEFORE she sees you she might be glutening her hair!

I love desert essence organics. They smell yummy and are 100% gluten free.

Did you ever find out what was making you sick?

Share this post


Link to post
Share on other sites

Hey thx for taking time to answer. No we dont go out for dinner anymore till ive sorted all this. I eat the same food every day and the same portions everything's weighted etc this is for my gym training. Its 100 percent not me since i keep getting a string of good days till i see her and yes its every time i see her.

I make her brush her teeth here and wash her hands once she gets in and i dont think its paranoid at all i wash my hands at least 18 times a day and never put them in my mouth. All the same care products my day basically doesn't change in routine. No new food or products.

I get this weird sense its something in her hair buts its really just a feeling. I thing i have a list were wud be the best place to post it? thx again

I have had to switch all shampoo/conditioner and shower gel. I am now looking into make-up too.

Share this post


Link to post
Share on other sites

I have used MAC in the past and that's probably a good portion of it. I suspect their vit e is not gluten free because I have used products that they say are gluten-free and reacted. I also suspect cross contamination. I feel your pain....luckily my husband uses what I buy so I'm fairly safe.

Share this post


Link to post
Share on other sites

I don't understand why your gluten-free hasn't stopped wearing make-up, spray tans, and body spray when she's going to see you.

Share this post


Link to post
Share on other sites

Hey! I know this topic is old but I thought I'd put in my two cents :-)

I am super, super sensitive and one of the worst glutenings I have ever had was from my hair conditioner. When I read the ingredients, there was actually wheat protein on there! After that I threw out all my personal care products and just bought gluten free ones.

So if your girlfriend is having a shower BEFORE she sees you she might be glutening her hair!

I love desert essence organics. They smell yummy and are 100% gluten free.

Did you ever find out what was making you sick?

 

Hey this is a bit late lol to say the least. Yes we found a few things omg that was a furstrating time we would fight alot, anyway she was using radox bodywash which had Camolile in it. I must of spelt that wrong but that was a really bad encounter when i ingested that, and also her M.A.C blusher but most her make up Clinique now and the sentivity has went down i think. Sorry to hear your super sensitive i think im pretty bad aswell but i did eat out recently and not get sick that was a nice suprise.

 

I have had to switch all shampoo/conditioner and shower gel. I am now looking into make-up too.

 

How did u get on with your make up? I still remember a few that were ok if ur still looking.

 

Share this post


Link to post
Share on other sites

I just made a thread to thank all members who have given me advice and i especially appriecate all the feedback for this thread helped narrow down

that long process. Thx

Share this post


Link to post
Share on other sites

I can't remember the university, but there was a study done about how long allergens transfer via saliva after eating.  It was determined that someone kissing a person who ate something the other person is allergic to can remain in saliva for over 4 hours after eating, flossing and brushing teeth.  So gluten may be transferring to you when you kiss your girlfriend.  Is it practical to ask somone not to eat for 5 hours before seeing you?  Don't know.

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Who's Online   9 Members, 1 Anonymous, 267 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/26/2018 - Emily Dickson is one of Canada’s top athletes. As a world-class competitor in the biathlon, the event that combines cross-country skiing with shooting marksmanship, Emily Dickson was familiar with a demanding routine of training and competition. After discovering she had celiac disease, Dickson is using her diagnosis and gluten-free diet a fuel to help her get her mojo back.
    Just a few years ago, Dickson dominated her peers nationally and won a gold medal at Canada Games for both pursuit and team relay. She also won silver in the sprint and bronze in the individual race. But just as she was set to reach her peak, Dickson found herself in an agonizing battle. She was suffering a mysterious loss of strength and endurance, which itself caused huge anxiety for Dickson. As a result of these physical and mental pressures, Dickson slipped from her perch as one of Canada's most promising young biathletes.
    Eventually, in September 2016, she was diagnosed with celiac disease. Before the diagnosis, Dickson said, she had “a lot of fatigue, I just felt tired in training all the time and I wasn't responding to my training and I wasn't recovering well and I had a few things going on, but nothing that pointed to celiac.”
    It took a little over a year for Dickson to eliminate gluten, and begin to heal her body. She still hasn’t fully recovered, which makes competing more of a challenge, but, she says improving steadily, and expects to be fully recovered in the next few months. Dickson’s diagnosis was prompted when her older sister Kate tested positive for celiac, which carries a hereditary component. "Once we figured out it was celiac and we looked at all the symptoms it all made sense,” said Dickson.
    Dickson’s own positive test proved to be both a revelation and a catalyst for her own goals as an athlete. Armed with there new diagnosis, a gluten-free diet, and a body that is steadily healing, Dickson is looking to reap the benefits of improved strength, recovery and endurance to ramp up her training and competition results.
    Keep your eyes open for the 20-year-old native of Burns Lake, British Columbia. Next season, she will be competing internationally, making a big jump to the senior ranks, and hopefully a regular next on the IBU Cup tour.
    Read more at princegeorgecitizen.com

    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

  • Forum Statistics

    • Total Topics
      109,750
    • Total Posts
      947,465
  • Member Statistics

    • Total Members
      72,315
    • Most Online
      3,093

    Newest Member
    Gerald Walters
    Joined
  • Popular Now

  • Topics

  • Posts

    • You could very well have celiac disease, but there are 200 symptoms attributed to celiac disease and those often overlap with other illnesses.  You could get tested, but all celiac testing requires you to be on a full gluten diet for 8 to 12 weeks prior to a blood draw (it can take time for antibodies to ramp up and spill into the bloodstream).    You have been off for a month and it is possible that you could have healed.   Consider getting back on gluten and get tested.  Since you have Gastritis, maybe you can get a GI referral and an endoscopy to biopsy the stomach and the small intestine.  Only two weeks on a gluten diet is required for that procedure.      Learn more about testing: http://www.cureceliacdisease.org/screening/  
    • I'm a 30 year old female. All of my life I've had extreme bloating after eating. About 4 years ago I started having upper stomach pain. It's dead center below my rib cage where the diaphragm is located. As the years have passed the pain became more intense and more frequent until it was daily and affecting my ability to function. I had 2 drs say it was gastritis but prilosec did nothing to help. My head got to where it always hurt and I was exhausted constantly. If the pain and head fog wasn't already enough my joints started to hurt and swell making it hard to get out of bed. I'm 4ft 11 inches and was 130 pounds and my blood pressure was staying 160/105. I've always suffered with spells of constipation then episodes of D. I was getting mouth sores and had random rashes and itching mostly on my legs. I've also suffered anemia. When my stomach pain is at its worst I have foul smelling stools. All my liver and pancreas testing have come back normal. I tested negative for h pylori but am currently on carafate for ulcers. I'm going for another gallbladder ultrasound in 3 days as 9 years ago the ultrasound showed sludge so the dr is wanting to recheck. I've done research for a while now on gluten and have cut it out for over a month. I have noticed a significant improvement since stopping it and only have flare ups if I accidently consume gluten. So my question is does this sound like anything you've experienced and been positive for celiac? I also have numbness and tingling in my feet and hands 
    • Welcome!   With a sister who has celiac disease, you are at a much higher risk of developing it.  I would go for the complete 12 weeks.  Why?  Because doctors recommend anywhere from six to 12 weeks for the blood tests, but there has not been many long term studies to back up the claims.  Best to play it safe.  It sounds like you are not suffering too much (I had no GI symptoms and just anemia when I was diagnosed).  Ask your PCP to run the full panel, including  the DGP and EMA tests.  Why?  Not all celiacs test positive to the TTG, like me!  If your Kaiser doc refuses, please ask if you can be referred to a GI and select one who handles celiac patients.  Some celiacs are even seronegative!  In that case, going to an endoscopy is necessary.  Keep in mind that you might just be developing it or know that if everything negative now, you can still develop it in the future.  First-degree relatives should get tested every few years even if there are no symptoms.   What if your PCP refuses even after you show him the printed data supporting your claims (and the ones I made...so hit Dr. Google)? Get to another PCP or put your request in writing  via the patient portal or a registered letter.  Be nice.  Support your claims.  Ask for the full panel or to be referred to a GI.  In writing, they have to respond.   I do know that the TTG catches most celiacs, but not all.  If celiac disease is still suspected, you should move to the next series of celiac tests.  Unfortunately, to keep costs down, Kaiser just orders the TTG for initial screening.  You have to get around that.  I found that out when family  went in for testing and they had Kaiser.   Advocate for your health!  Document!  Save and print all test results and maintain file.   Take care!  
    • hi All, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994).  In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood.  I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic.  I very rarely drink. I went for tests and the doctor was baffled.  He said I should lose weight.  He said it was likely fatty liver disease. That was 2008.  For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight.  How could toast give me a stomach ache?  Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb.  One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs.  Later that afternoon, I felt like someone had literally poisoned me. This was now 2011.  I decided to not eat or drink anything but almonds and organic cold pressed  apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor.  I refused to eat gluten to get the test.  I decided not to eat gluten and I got better. I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway.  It wasn't too late!  One week later. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange.  So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.   this is just the short version  but I've tried to include important info.  Anyone else have a similar story in any way?
  • Blog Entries

  • Upcoming Events