Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Handle This Okay?

DavinaRN

By DavinaRN
in Coping with Celiac Disease

Recommended Posts

DavinaRN Explorer
DavinaRN
Posted

Discussion with DH--

DH-you act like eating gluten is going to kill you

Me-your right I don't have celiacs, but why would I want to eat something that will make me feel bad

DH-you don't follow the diabetic diet

Me-yes, I struggle with that, but the effect of that is years away (kidney diease, eye sight, amputation) but if I eat gluten my bones hurt and I feel like I have a stomach virus in an hour

I've been out to eat a few times, always order a salad or just side of bacon if its breakfast. Only ordered the wonderful thick ranch once, lesson learned, now Italian only. Next week we are going out of town, staying at the inn on biltmore estate and I'm worried. They have a gluten free menu, but we also eat off the estate frequently for most meals due to the expense. Ideas for snacks needed (not the type of place that comes with frig or microwave)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

peanut butter and rice cakes always go good for me.

You did well. Just stick to your guns.

1desperateladysaved Proficient
1desperateladysaved
Posted

Hard boiled eggs travel fairly well in an egg carton, but be sure to mark them hard boiled!

ravenwoodglass Mentor
ravenwoodglass
Posted

Have you got a hot plate? If you do bring it and a small pan and some silverware with you to heat up gluten-free soups, Dinty Moore beef stew or other gluten-free prepared foods.

Cheese and Hormel pepperoni make a good snack. Fruit, nuts, chex cereals, peanut butter and some Udi bread.

The most important thing is to have a good time. Enjoy your trip.

kareng Grand Master
kareng
Posted

I like to take these. I get them at Target or one of the local groceries. Read the box, there are a few that are not gluten-free.

Open Original Shared Link

You could take a cooler and re-fill with ice to keep some basic things like hard boiled eggs or cheese cool. Have you asked the hotel for a frdige? Many will provide one if you tell them its a medical need. They aren't supposed to ask what the medical need is but "food allergies" is a good reason.

I have had to do a few of these trips. One thing I do is grill some chicken, cut it up and freeze it. Then I bring some salad fxings and keep it all in a cooler for a chicken salad. We like to have cheese and crackers and fruit in our room for a meal.

mamaupupup Contributor
mamaupupup
Posted

I'm thinking of you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,014
    • Most Online (within 30 mins)
      7,748
    Scott Ryan
    Newest Member
    Scott Ryan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.