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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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a84c72

Not Sure I Can Do Much More Of This...:(

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As if I don't struggle enough with adjusting to this lifestyle and trying to figure this out (2 weeks out), today was a disaster for me. I, honestly, am ready to give this up because it causes too much grief for others, as well.

We always go to mom's on Thanksgiving and she is very "Type A" about life, in general, and doesn't really pay attention to details and doesn't always remember things I say, etc because her mind is always running a mile a minute.

With trying to be tactful, a few days ago, I asked about the ham and turkey she was planning on having. They are gluten-free. She said potatoes and vegtables, as well...and those gluten-free. I would bring my own gluten-free bread and desert (and choke it down since I don't care for it, as it is...)so i thought we were great.

The only thing gluten free was the ham. The potatoes were some special potatoes that were full of gluten. So as I am trying to hold back tears and find alternatives, my step-father procedes to swear at me as if I am just being "picky" and on some "fad" diet.

I was in awe. I was very upset. Needless to say, even when he "apologized" it was in a loud, insincere way, and I'm probably more hurt than I've ever been in my life. It upset my kids and made my husband frustrated......

And I just can't do much more of this. I still haven't found any gluten-free foods that I actually like but also am not sure how I can live solely on basic meat and vegtables ((I'm insulin resistance so I really have to watch the fruits and, honestly, the carbs, anyway)).

I am unsure how to balance both conditions without starving...

So while I am sitting here, foodless, I am watching everyone else eat pies and ice cream cakes, I'm wondering if this is really worth it. To just avoid a potential "higher risk" of lymphoma and the like? I still sleep numerous hours and a chef I spoke with yesterday told me it took him 6 years to heal.

I'm 40 years old. I want to LIVE my life....not live it frustrated and upset and constantly being ridiculed.

I just don't know how to do it otherwise.

Anyone successfully find happiness with this? I'm failing miserably at it.

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Having celiac disease is not easy but it is probably the easiest autoimmune disease to have. You should visit Mark's Daily Apple.

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Oh Honey, I am so sorry! Families are the sources of some of the greatest joy in life, but they can also be the sources of the greatest misery.

What you need to do next time, is put your foot down and insist that you are bringing your own food. Even people with the best of intentions can gluten us by accident, but when you are dealing with people who don't pay attention, it is not worth the risk.

It doesn't help that you are so new to this. You are most likely still suffering from gluten withdrawal. That can cause headaches, extreme hunger, and ragged emotions. Can you make yourself a sandwich with your gluten-free bread? If you can have cheese, put some on each side, put some ham in the middle, then pop the whole thing in the micro so the cheese melts.

Now, I'm not sure which gluten-free bread you have, but if you don't like it, try different brands. Canyon Bakehouse San Juan Seven Grain is HEAVENLY, and if you get Udi's, make sure you get the MULTI-GRAIN instead of the white. It has the taste and texture of french bread. Even my non-gluten-free friends love it. As time goes on you will find other gluten-free substitutes that you like. Some are lousy and some are VERY good. You'll just have to experiment.

Now, I'm going to preach at you a bit. NO ONE, I don't care if it is family, friends, spouses, or enemies, has a right to make you feel bad for trying to take care of your health. And YOU can't LET them! As hard as this is right now, it WILL get easier. And ruining your health in an attempt to please others is just plain foolish.

If it was just an elevated risk of lymphoma, well, it would be up to you. But there are so many other horrible conditions that eating gluten can lead to! Gluten ataxia, which mimics MS, rheumatoid arthritis which is SO painful, DH, which they call the suicide rash because the itching and pain are so bad. Continuing to eat gluten can lead to dementia. It can lead to other cancers. And so many other things!

Life is worth living when you feel good. Food is just one small part of enjoying life. You can still enjoy the people you love, sunsets, friendships, hobbies, and all the other things you like about being alive.

And you WILL learn to enjoy gluten-free foods. Meats, veggies, rice, gluten-free breads, gluten-free desserts, nuts, - there are TONS of good things to eat.

Now, go wrap your arms around yourself and give yourself a hug from me. As bad as today has been, I PROMISE, it will get better. And a year from now you will be typing a similar post of encouragment to a newbie here who is hurting and ready to give up.

You are going to be OK. :)

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I'm so sorry you had this experience so soon into your diagnosis and gluten-free diet.

Bartfull has given you some great advice.

I am about your age, with family, and 3 months in. It does get easier. I decided a month ago that I could decide how to react to the situation. I will now happily take my own food (which I know I will like) and enjoy the company. I try not to draw attention to the fact what I am doing is different, answer questions politely and move the conversation on.

I am not saying it is easy, but at least I see my family and friends. I just don't make it optional, and say 'while I get used to this new way of eating and keeping myself healthy it is easier to do it like this'.

I sat with friends in a cafe today while they and all our kids had lunch. It was fine. Really. Just make sure you don't do it hungry.

You will find food you like. Some people do find they feel really hungry while they make the transition, even if they love the food.

It will be worth it. Many of us here are happy, honestly :)

The forum is a fantastic place to come to when you need to rant and scream, talk stuff through, get advice and, yes, one day, give advice to others. Probably sooner than you think.

Come back as often as you need to.

Good luck

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Oh, honey, we've ALL been there! I remember my first Thanksgiving after finding out I had celiac. My mom had made sure that the turkey was gluten free, and she'd prepared gluten-free dishes to go along with it. However, after the meal, I became extremely ill....and discovered that she had stuffed the turkey with regular stuffing. She forgot that the gravy would be made from a turkey stuffed with gluten--it just hadn't occurred to her. She felt really bad....but I felt worse. However, as it turned out, my mom was then diagnosed with celiac several months later, and our Thanksgivings are now always gluten-free affairs. Actually, ALL of our family gatherings--regardless of who hosts them--are gluten-free events. You see, my son also has celiac, and my sister's daughter ended up having it, too.

That said, I think your mom's personality sounds a little ADHD to me. That means she could very well have celiac, too. Has she ever considered this possibility? You got it either from your dad or your mom.....so??? If your mother ends up being diagnosed with celiac, I think your stepdad will eventually change his tune. He needs to be educated on this disease. Sometimes all it takes is a bit of education, and then they themselves wonder if they have it--LOL!

I know this diet seems hard now, and I do admit that it took me about two years before I stopped feeling bitter about not being able to eat my favorite things. However, this was in the "Dark Ages" when gluten-free pizzas and sourdough bread didn't exist. Nowadays there are so many more options! Have you tried the gluten-free chocolate chip cookies at Trader Joe's? They're wonderful and contain "real" ingredients. Against the Grain Gourmet baguettes are great, too, and can be found at Whole Foods and other stores. Because you have insulin resistance, you should definitely look into Mark's Daily Apple, as suggested above. The paleo/primal diet would be perfect for you. However, if you feel it's too restrictive, heck, there really are many options for eating like a normal person. I don't feel as though I'm missing out on anything....except for a few occasional rotten experiences at restaurants (who were run by people like your stepdad). Otherwise, I'm perfectly happy with my life and my diet. Believe me--you'll feel this way, too, one day. I agree that today was a disaster, but there will be fewer and fewer such disastrous days--just stand your ground and ensure your OWN happiness.

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Oh yeah. I got this too. My dad is in some sort of rehab and it is not the right place for him but that's another matter. We are waiting to get him into seniior assisted living...a family home but until then he is there because we can't do anything for him at home. He falls and he can't get up. Anyway... Because of this, the rest of my family decided to dine out for Thanksgiving. When I told my mom that we couldn't eat the meal (and I know this because I saw what they were serving), she snapped at me that she was just sick of our diet! So my daughter and I are having a simple and safe meal at home. But we are leaving soon to see the others at the rehab before we eat. and to complicate things, one of my van's healights went out on the way home last night. So just gah!

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As if I don't struggle enough with adjusting to this lifestyle and trying to figure this out (2 weeks out), today was a disaster for me. I, honestly, am ready to give this up because it causes too much grief for others, as well.

Honestly, YOUR DIET isn't giving grief to others. Their inability to accept, respect, and move on is what is giving them grief. That's their own choice, their own problem. Your health is yours.

But you at at the very beginning of a very big learning curve, if you've not already been fairly used to cooking from scratch. Anything this big takes time to learn. And I don't mean a day or a week or even a month, but a year or more. You are UNLEARNING 40 years of a culture of food and relearning a new one all at the same time. That is a challenge, even if you don't already have a busy life on top of it. It's a really hard challenge if you have people who are trying to serve as roadblocks, or knock you back the other direction.

We always go to mom's on Thanksgiving and she is very "Type A" about life, in general, and doesn't really pay attention to details and doesn't always remember things I say, etc because her mind is always running a mile a minute.

With trying to be tactful, a few days ago, I asked about the ham and turkey she was planning on having. They are gluten-free. She said potatoes and vegtables, as well...and those gluten-free. I would bring my own gluten-free bread and desert (and choke it down since I don't care for it, as it is...)so i thought we were great.

The only thing gluten free was the ham. The potatoes were some special potatoes that were full of gluten.

I'm sorry that you had to learn so very early in this process that "she said those are gluten free" doesn't mean anything. Especially for someone who doesn't know every little ingredient in their food and CARE about every little ingredient in their food. But it's true, you really have to read every label, and read it for yourself. Not to mention be CONFIDENT that the person doing the cooking can avoid cross-contamination issues.

And sometimes, that means your mom can't cook for you any more.

This is where things get tricky in close relationships, of course. Because someone thinks, "you don't love me if you won't let me cook for you", which is, of course, stupid. But it's ingrained in the culture for many, many of us. And so you have to tackle it head on, not try to be passive, or passive-agressive, about it. Saying "I know you love cooking for us. And your food is really great. But I'm not feeling ready to take any sort of risks of contamination. Whether that's paranoid or not, that's my choice right now."

So as I am trying to hold back tears and find alternatives, my step-father procedes to swear at me as if I am just being "picky" and on some "fad" diet.

I was in awe. I was very upset. Needless to say, even when he "apologized" it was in a loud, insincere way, and I'm probably more hurt than I've ever been in my life. It upset my kids and made my husband frustrated......

Mean people are mean. It sucks when it's family members, but mean people are everywhere, so they're bound to show up in our families too, right?

Remember that right now, as tired and fed up with this diet and its restrictions and its changes and complications, you're going to be more sensitive to criticism in that area. That's fair! But, like any sort of criticism, you have to figure out if you're going to let it slide, face it head on, or leave the situation. Those ARE all options, though some are less desirable that others depending on the situation. At the end of it, though, try to remember that you are not "just being picky", and sometimes people are wrong about things.

And I just can't do much more of this. I still haven't found any gluten-free foods that I actually like but also am not sure how I can live solely on basic meat and vegtables ((I'm insulin resistance so I really have to watch the fruits and, honestly, the carbs, anyway)).

I am unsure how to balance both conditions without starving...

Here's where you lost me. You are insulin resistant, so it's hard to live without bread and cookies? Ok, I'm being slightly glib, but if you already have to watch the carbs, then that just makes the prospects of eliminating a major source of them (wheat) all the more important. These are two highly compatible diets! And you can make SOOO much with "basic meat and vegetables", especially if you add in eggs and nuts and seeds and legumes and low-glycemic fruits. I mean, really, you can make A LOT of foods. I would say the bulk of non-bread foods that people eat are made with these items. ;)

For instance, I'm making dinner for 20 for a day-after-thanksgiving dinner tomorrow night. We're having pumpkin soup, green salad with oranges and pomegranate seeds, turkey and gravy, mushroom risotto, apple-cranberry sauce, sauteed garlic green beans, roasted beets and greens, mashed potatoes, baked pears, and apple pie. All of it is easily made gluten free (except the pie crust, which is the only thing that really needs subs). Last weekend we had a dinner party for my birthday and made sushi for 15. I often cook for friends and we've had chicken salads, lentil soup, marinated kebabs, grilled salmon with grilled veggies and sweet potato fries, stir-fry, beef stew, and a bunch of other things I don't remember. But it's all gluten free, and dairy free. With few exceptions ('cause no cook is going to be perfect), everybody loves my food.

I've got a thread in the recipes section with 85 recipes in it - most of them pretty easy to make, most of them taking half an hour or less from start to finish, and all of them gluten free and most dairy free. I tend towards reactive hypoglycemia, so most of them try to be moderate about fat/protein/carb ratios. http://www.celiac.com/gluten-free/topic/6981-as-promised-a-few-recipes/ Most of these are actually "I'm hungry; what can I cobble together with stuff out of the fridge".

So while I am sitting here, foodless, I am watching everyone else eat pies and ice cream cakes, I'm wondering if this is really worth it. To just avoid a potential "higher risk" of lymphoma and the like? I still sleep numerous hours and a chef I spoke with yesterday told me it took him 6 years to heal.

I'm 40 years old. I want to LIVE my life....not live it frustrated and upset and constantly being ridiculed.

I just don't know how to do it otherwise.

Anyone successfully find happiness with this? I'm failing miserably at it.

This diet does not have to be hard. But it requires giving yourself the time, patience, and perseverence to learn something new. And unlearn a lot of old stuff. Some of what you have to learn and unlearn is food related (don't eat the bread, read the labels on everything, etc.) but some of it is emotional (learning how to handle frustration, learning how to approach ridicule, leanring how to stand up for yourself, etc.). And I think that throws a lot of folks for a loop when starting the diet. We're told "oh, just eliminate gluten", which is *true*, but so very much not a complete picture.

You find happiness by working through this stuff, and by finding happiness in all those other facets of your life that aren't food - your friends, your hobbies, maybe your work, your relatives, your activities, maybe your pets, and so on. There is a lot to the world that isn't strictly food, though I know it really feels like that at the beginning!

Hang in there, keep reading this forum, and be patient with yourself. You've got a difficult transition, and the most difficult time of year to do it. But you can get there if you keep moving forward.

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I will start this by saying I'm autistic, so don't have much advice about how to handle your family. What you have described sounds highly disrespectful on their parts, but to be honest stuff like that doesn't bother me. Guess you could say I'm lucky that way.

I did want to tell you that a few months in you will probably find that your tastebuds have changed, and that things that used to sound so good (processed snacks and fast food, for example) just don't smell at all appealing anymore. I used to love kraft dinner, but now the stench of it (yes, it's a definite stench) turns my stomach.

There's a positive side to this in that you will taste "ordinary" foods in a new way. Apples taste fresh and delicious; roasted beets are so sweet and hearty; salads taste delicious without any salad dressing.

Since going gluten-free 3 years ago, my diet is much more varied and I enjoy food much more than I did before. And I'm getting really good at pulling together husband and kid approved meals with whatever I happen to have on hand.

I have dealt with people being obnoxious about my dietary restrictions, but I have noticed now that more often I hear people saying "I wish I ate as well as you" or "your lunch smells terrific" all while they wolf down their stinky whoppers or big macs.

You will get there in time. And this is definitely the place to come for great advice and support.

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Thanksgiving was 5 weeks for me. During this time, I have found sometimes it is easier to bring your own food. I have brought ham/cheese roll-up into Wendy's to go with chili (informed the person checking me out that I couldn't eat the crackers and what I had brought in, she said that was fine). Have taken my own soy sauce into a Japanese restaurant and asked them not to season my food. At home, I have my own snacks and family better ask before they eat it. As to the insulin resistance, I am type two diabetic and my Endocrinologist told me this diet would help it. I could have fresh fruit and canned/frozen without added sugar.

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Quoting Bartfull

"If it was just an elevated risk of lymphoma, well, it would be up to you. But there are so many other horrible conditions that eating gluten can lead to! Gluten ataxia, which mimics MS, rheumatoid arthritis which is SO painful, DH, which they call the suicide rash because the itching and pain are so bad. Continuing to eat gluten can lead to dementia. It can lead to other cancers. And so many other things!"

You should really keep all that in mind when you think about giving in. I'm 38 and have Gluten Ataxia. I have already had a couple mini strokes as a result and I know I'm lucky no permanent damage was done. Celiac could kill me, but I will not let it. I look at food I know has gluten as poison, deadly poison. If it may have gluten I think "well that may be poison". It's not worth the risk. I have no children but as you do when your thinking about caving to peer pressure think about how much your children need you. Personally I just think about the pain and how much I don't want to die anytime soon.

It does get easier, and as you start feeling better you will realize it's worth it.

(((HUGS)))

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Having celiac disease is not easy but it is probably the easiest autoimmune disease to have. You should visit Mark's Daily Apple.

I would not agree with that it depends how much celiac disease affects your health , some people go gluten-free and are fine while others go gluten-free and still have lots of problems either way it's not an easy disease to have from my experience.

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Sorry to hear that a84c72 . It's horrible and frustrating when people think we are picky or on a fad diet . I hope things will improve soon :)

After being gluten-free for almost 10 years I usually think is it worth it sticking to the diet I think no but really we have too :( It does suck and sometimes it can really make you upset but things will improve and hopefully you will be happy soon :)

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"Anyone successfully find happiness with this? I'm failing miserably at it."

Like others, have mentioned it will take time to adjust (I'm still adjusting). It's a pain, yes. Not meaning to impose my beliefs on you and I don't know where you stand with regards to faith. But honestly for me, because of my relationship with Jesus Christ, I can still choose joy, even with this dumb disease. I've come to the conclusion that without Him, this life is just not worth living. He's the only reason I can live to face tomorrow, along with all of the challenges living with celiac presents (and that's a lot!). Message me if you'd like to hear more - I would love to share.

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to a84c72,

just wanted to say that you are not alone. I actually got glutened this thanksgiving regardless of serious efforts to prevent it. I have no idea how it happened and the next day I felt sick and was absolutely frustrated and miserable. Hang in there. It will take time, but everyone will understand and accept us eventually, just like they do with pretty much all other diseases. I know we will get there.

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alucard,

Could it be that you ate something with cinnamon in it? Some cinnamon (especially when bought in bulk) has an anti-clumping ingredient in it that can contain gluten. It's gotten me before!

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"Anyone successfully find happiness with this? I'm failing miserably at it."

Like others, have mentioned it will take time to adjust (I'm still adjusting). It's a pain, yes. Not meaning to impose my beliefs on you and I don't know where you stand with regards to faith. But honestly for me, because of my relationship with Jesus Christ, I can still choose joy, even with this dumb disease. I've come to the conclusion that without Him, this life is just not worth living. He's the only reason I can live to face tomorrow, along with all of the challenges living with celiac presents (and that's a lot!). Message me if you'd like to hear more - I would love to share.

WOW! Not only am I thankful to hear from you and welcoming me here, but to hear you share your faith without shame. How refreshing...I couldn't agree more about the hope we have through Christ even when it doesn't seem worth fighting anymore. HE makes it possible. One of my favorite verses is, Psalm 18:32 It is God that girdeth me with strength and maketh my way perfect. Very appropriate based on what you posted. Thanks. There also a song, "Because He Lives I can face tomorrow" your post reminded me of that song. Thankful!!!!

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As if I don't struggle enough with adjusting to this lifestyle and trying to figure this out (2 weeks out), today was a disaster for me. I, honestly, am ready to give this up because it causes too much grief for others, as well.

We always go to mom's on Thanksgiving and she is very "Type A" about life, in general, and doesn't really pay attention to details and doesn't always remember things I say, etc because her mind is always running a mile a minute.

With trying to be tactful, a few days ago, I asked about the ham and turkey she was planning on having. They are gluten-free. She said potatoes and vegtables, as well...and those gluten-free. I would bring my own gluten-free bread and desert (and choke it down since I don't care for it, as it is...)so i thought we were great.

The only thing gluten free was the ham. The potatoes were some special potatoes that were full of gluten. So as I am trying to hold back tears and find alternatives, my step-father procedes to swear at me as if I am just being "picky" and on some "fad" diet.

I was in awe. I was very upset. Needless to say, even when he "apologized" it was in a loud, insincere way, and I'm probably more hurt than I've ever been in my life. It upset my kids and made my husband frustrated......

And I just can't do much more of this. I still haven't found any gluten-free foods that I actually like but also am not sure how I can live solely on basic meat and vegtables ((I'm insulin resistance so I really have to watch the fruits and, honestly, the carbs, anyway)).

I am unsure how to balance both conditions without starving...

So while I am sitting here, foodless, I am watching everyone else eat pies and ice cream cakes, I'm wondering if this is really worth it. To just avoid a potential "higher risk" of lymphoma and the like? I still sleep numerous hours and a chef I spoke with yesterday told me it took him 6 years to heal.

I'm 40 years old. I want to LIVE my life....not live it frustrated and upset and constantly being ridiculed.

I just don't know how to do it otherwise.

Anyone successfully find happiness with this? I'm failing miserably at it.

I completely understand and that is one of the main reasons I didn't go home for Thanksgiving because although family really tries to understand they can't and aren't educated about Celiac so it makes it really hard. Each day is a new chance to fight again and try to make positive changes and headway. There are ok days and there are really bad days so I'm always thankful for the night to get up and push through and fight another new day through. Thanks for sharing what we are all feeling and face each and every day with friends and family and co-workers who really are trying but it's hard.

Remember that gluten-free items aren't going to take the place of our favorites but when you realize that doing without is not a better option it does grow on you and you can manage. I have been trying different gluten free pastas and haven't really found one that I love however the rice noodles are the best I have found yet. Rice Chex have been a life saver for the crunch and the breakfast option with rice milk, which again isn't great, but better than doing without. I'm thinking of finding a nutritionist that can help put me on a better food journey than I've been on for almost a year now. I'm thankful to find your post and this great support group.

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alucard,

Could it be that you ate something with cinnamon in it? Some cinnamon (especially when bought in bulk) has an anti-clumping ingredient in it that can contain gluten. It's gotten me before!

Holy crap really? I've never heard of that before, that's pretty scary. That being said though, I didn't eat anything with cinnamon on thanksgiving. It's possible that it may have been a kitchen contamination issue, since my kitchen is not a gluten free one. My mother was the one preparing all of the food. Of coarse she knows I'm a celiac and was trying her best to make me separate food, using separate utencils and taking all the usual precautions you would take to prevent contamination. But a mistake might have been made somewhere along. I'll know better next time and just prepare my own food myself to keep in bins, while staying away from what everyone else eats. I'm sure she'll understand.

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newly joined the group.this is great! wish i joined earlier. i was diagnosed 3 months ago and ive resistent to joining any type of group because of i guess my ego telling me i could do on my own not that big of a deal, but i cant relate to almost everything on this page! your advice is great really helpful

a84c72 i'm sorry your family is giving you hard time, i do think they will come around.

i am sort of having the opposite problem with my mom. she means well and i appreciate that so much, but its like answering a million and 1 questions everytime i sit down to eat i cant take it. i also made the mistake of telling her i was not feeling 100% better yet and she freaked out, and now has found someone who swears she can, and i quote....."cure me" with herbs. i have not gone in to meet with her yet but everytime i talk to my mom she brings it up. anyway i told her i wouldnt be so close minded about it but has anyone tried anything similar? i dont know if im ready to try them because im a little nervous honestly but if it will help and get me to the that 100% mark faster i guess im willing to try.

just out of curiosity how long does it take to feel normal again?

thanks for letting me vent/rant a little bit, it helped to write some of this out, thanks in advance for any advice. wishing everyone happy easy gluten-free holidays!

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Ok. My brother was diagnosed with bloodwork and had absolutely no symptoms but bloat which he attributed to normal occurances. I however have many problems all that lead up to celiac and have not been diagnosed by a biopsy (although I have had many) I did not have health insurance at my worst feeling point ( pregnant belly, muscle cramps, left side gnaw pain, horribly achey ankles,off balance, fatigued, couldn't focus or concentrate among other things ...) and from "googling" it sounded like I had possible celiac. (Didnt know bro tested positive at this point) So without health insurance I had to take matters on my own hands . Went gluten-free and within a week I had a great nights sleep and I could bend over and tie my shoes without gasping for air . felt so much better over time . belly slowly went down aches And pains went away.

That being said let's move to thanksgiving shall we.....

Sis in law rolls eyes and bitc*es she doesn't have time to deal with cross contamination on previous occasions(not TG) because bro isn't sensitive. He is probably CC'd all the time , I go to thanksgiving and figure That preparations have been made so bro has his gluten-free turkey dinner and i'll just have what he is having. I didn't ask any questions because when I start asking everyone rolls their eyes. ... And my bro says he doesn't want to hear it and my mother has said she was sick of hearing about gluten. Great huh? Supportive family. Been gluten free for 2 years and I think mom is coming around ... She bought a bag of gluten free pretzels the other day. Because she complained I never visit. I complained she didn't have anything for me to eat. . Unfortunately I would rather be by myself that way I don't have to be an annoyance. I didn't even bother telling them I got sick on thanksgiving because I figured they wouldn't want to hear it and they would think I was exaggerating because my brother didnt suffer as I did. It's not always easy to deal with . And I think my anger and depression is prob left over glutinizing symptoms from thanksgiving . Sorry to vent on your post. But I just want you to know you are not alone. I feel your dismay. At least we have each other;)

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  • Who's Online   7 Members, 1 Anonymous, 1,170 Guests (See full list)

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    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

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