Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

lizcon

New Here With Test Results

Rate this topic

Recommended Posts

Hello,

I went for a consult for my fist colonoscopy. The GI doctor noticed I had marked Hashimotos Thryroiditis on my health questionnaire. He suggested I test for Celiac since often Hashimotos and Celiac go "hand in hand."

Test results are back:

TT Ab IgA normal 1.2 (<4)

TT Ab IgG positive 18 (>9 positive)

Gliadin IgA normal 3.1 ( < 20)

Gliadin IgG normal 3.1 (< 20)

IgA 132 normal (71-397)

The only positive is the TT Ab IgG. He is recommending a biopsy to confirm the results. I'm thinking I should go ahead and do it, if nothing else then to spare my close relatives and kids the need to be tested for Celiac. Could the Hashimotos throw off the results? Do these results look typical of Celiac? Any help or advice would be appreciated.

(I do not have obvious GI problems so this has been a surprise....)

Thanks!

Share this post


Link to post
Share on other sites

I have Hashimoto's and will be tested for celiac soon... Hope you get some answers!

Share this post


Link to post
Share on other sites

No, the Hashimoto's would not affect the results which are measuring antibodies to gluten in the bloodwork, and damage to the small intestine when they do the biopsy.

There is no "typical" set of celiac results. It is only necessary to be positive on one of the tests. Yours is a little unusual in that you tested positive on the IgG tissue transglutaminase and negative on the IgA, but yet you make normal quantities of IgA. Normally they run the IgG only if you make insufficient quantities of IgA, but your IgA was normal. I note that they did not run the newer, and more specific for celiac, DGP (deamidated gliadin peptide) which is often run in both IgA and IgG versions.

At any rate, the biopsy is often useful to make sure that everything else is normal in the upper intestinal tract and to check the level of damage. Sometimes the bloods are positive and the EGD negative. If this happens with you, don't let the doctor tell you that you don't have celiac, because it is often missed. Make sure he takes at least 6-8 samples because the damage can be patchy and easily missed. You can start the gluten free diet immediately after the biopsy, so now is a good time to start going through your pantry for foods to donate to a food pantry, and to start thinking about preparing your food gluten free. There is a lot of good reading on this site, beginning with Newbie 101, and plenty of threads on how to deglutenize, lots of recipes, etc. Happy reading, and best wishes for your EGD if you decide to go ahead with it. :)

Welcome to the board, and ask as many questions as you want.

Share this post


Link to post
Share on other sites

Thank you mushroom. I am definitely reading a lot about going gluten free and getting set-up to give it a try.

Edited by lizcon

Share this post


Link to post
Share on other sites

I think it is different for each person. My son had normal IgA tests and was only positive on the IgG tests. He had ZERO GI symptoms. Our only clue something was wrong was a drastic change in behavior. He didn't even complain of feeling bad, he just turned in to the devil. (age 5). His biopsy was very positive.

My blood tests were the opposite. Only my IgA tests were positive. I had all the classic GI symptoms for about 5 years (maybe triggered by my pregnancy?). When I had the endoscopy, it came back negative.

We both went gluten free and it has made a world of difference. The other two in the family seem to tolerate gluten just fine, but I do have my older son checked every couple of years to make sure.

After you complete the tests, try the diet REGARDLESS of the results.

Good luck -

Cara

Share this post


Link to post
Share on other sites

Yes the TTG can be falsely positive in Hashimoto's. Before some member asks "What does a false positive really mean?" or "There are no false positives"

A false positive means that in clinical evaluation members of a certain population sample with an elevated TTG did not actually have celiac upon further testing and never went on to develop it during clinical follow up years and even decades later. YES there are absolutely false positive in antibody tests, the endomysial is interpreting a staining pattern on monkey oesophagus, the whole point is that celiac blood tests are highly unreliable unless all very strongly positive (10 times the normal range). Your test is a very low number and is typical in the false positive range, do the biopsy and report back to us what happens.

http://www.uchospita.../uch_007935.pdf

What’s the problem with diagnosing celiac disease simply by measuring the decrease in antibodies once someone switches to a gluten-free diet?

The con is that you’ll never know if a patient truly has celiac disease versus other causes for elevated antibodies. tTG are thought to be 97-98% specific, but by definition this means that 3 in 100 persons who don’t have celiac disease will have elevated tTG (biological variations, nothing more). If you consider that celiacs are 1% of the general population, it follows that out of 100 persons tested for tTG: 1 has celiac disease and 3 do not. This could mean that only 1 out of 4 of those with positive antibodies will have celiac disease as the cause. This is why you need a biopsy to confirm it.

http://www.cureceliacdisease.org/archives/faq/whats-the-problem-with-diagnosing-celiac-disease-simply-by-measuring-the-decrease-in-antibodies-once-someone-switches-to-a-gluten-free-diet

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,777
    • Most Online
      4,125

    Newest Member
    Sdceliac
    Joined
  • Forum Statistics

    • Total Topics
      112,053
    • Total Posts
      956,602
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated
    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
  • Blog Entries

  • ×
    ×
    • Create New...