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domineske

Non-glutenfree Medicine

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The Gax-X Chewable Tablets contain gluten. The Gax-X Gelcaps do not contain any gluten.

I learned this out the hard way!!!! <_<

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Just a note on the above published list:

Tom's of Maine has a new line of products

that does contain gluten.....


alicia

been gluten-free 4 yrs.

too many food allergies to list!

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This is interesting - I was looking around on the web to find out about the ingredients in zofran odt and found this, that describes all forms of the drug. Wonder why they say the tablet form is gluten free in both strengths but don't make a distinction with the orally discintegrating version?

http://rxcanadapharmacy.com/htmfiles/Zofran.asp?id=1905

I'm guessing here, but the ones that specifically say gluten free have starch in them. The ones that do not say gluten free do not have starch or any other ingredient that would make you think it wouldn't be gluten-free.

richard

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In terms of over the counter histamine blockers, does any one have any suggestions. In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made. So, I am opting not to try it at this point. It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months. This covers Benadryl, Sudafed, and the behind the counter Atarax. I tried Perrigo Corp., which makes the market generic, but got the same answer. So, does anyone have any options or suggestions?

Thanks!

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Does Robitussin have a blocker or is that just cough medicine?

Please note that I am not telling you to try this medicine on your child. I am not a doctor and not a medical person. I cannot personally "guarantee" anything about these medications.

I will tell you, however, as I've said before, that very few pharmaceutical companies will GUARANTEE their products will never have gluten. Most of these companies are so paranoid of lawsuits that they simply will not use the word "guarantee" and they want you to understand there is no guarantee. In every single processed product made in the world, there's always a chance gluten can slip in. It's just a fact of life.

When you take their medication you don't demand that they guarantee that it will cure you or even make you feel better (at least I don't). And if you did demand it they wouldn't do it. But most of us would still take the medicine. You also don't demand that your child won't have an allergic reaction -- our daughter did once.

Despite their lack of a guarantee, I know a number of people with celiac who use Benadryl and Sudafed.

richard

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Guest BERNESES

I've used Sudafed, Robitussin and Benadryl previously with no problems. But with a 2 1/2 year old, I would talk to your pediatrician first.

I also had a conversation today with my OB/GYN and she informed me that it IS the pharmacist's job to know whether or not products have gluten in them. Go figure....I've been using CVS for years and they NEVER know. I'm personally going to look into custom compounding at a Medicine Shoppe near me.

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I'd agree with you on the pharmacies -- in four years I've never been to a pharmacy that knew about whether a product was gluten-free. Most have been very helpful with showing me ingredients, calling the manufacturer or giving me the manufacturer's number, but I've never seen it as their job to know if it has gluten.

richard

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i haven't had a knowledge pharmacist either. i did ask one about it and she asked me where she could get the info to have for others on gluten-free drugs. at least she was interested!


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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I understand the issue of cross-contamination. It's very frustrating trying to get compaines to assert that there is no gluten in their product. They always want to put that little disclaimer in about their suppliers, cross contamination, etc.

But I'd still like to know whether there are any medications that we know are made with gluten. I still can't find one example!

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In terms of over the counter histamine blockers, does any one have any suggestions.  In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made.  So, I am opting not to try it at this point.  It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months.  This covers Benadryl, Sudafed, and the behind the counter Atarax.  I tried Perrigo Corp., which makes the market generic, but got the same answer.  So, does anyone have any options or suggestions?

Thanks!

<{POST_SNAPBACK}>

Circeannc- I know Children's Loratadine Syrup (fruit flavored) is gluten free. I called the company Taro pharm in Israel. They were very knowledgable about celiac and gluten! If your pharmacy does not carry it I'm sure they will order it for you.


Jessica

Daughter

9/05 Diagnosed Hypothyroidism

2/16/05 Biopsy diagnosed Celiac

8/14/06 Diagnosed Addison's Disease also known as Adrenal Insufficiency

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I need an rx for folic acid and I can't take OTC right now as the GI said I'm not going to get enough that way due to damaged villi. So I have now been waiting a whole week for my pcp to call in an rx for me. My ex-GI was extremely unhelpful and told me ask my pcp for the rx. Two companies (at least) make a rx folic acid but BC/BS always makes me take a generic when available. I'm sure there is a generic form available should I assume even if the brand name the doc calls in is gluten free, it's generic counterpart is not?

CSA states that the info on www.glutenfreedrugs.com is correct. There are a ton of gluten free rx and OTC drugs on the list. I realize we still need to check as ingredients change but at least this list is a guide.


Dx'd with anemia - March 2005

Positive blood tests - Sept. 2005

Positive biopsy - Jan. 2006

Gluten free since 1-23-06

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In terms of over the counter histamine blockers, does any one have any suggestions. In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made. So, I am opting not to try it at this point. It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months. This covers Benadryl, Sudafed, and the behind the counter Atarax. I tried Perrigo Corp., which makes the market generic, but got the same answer. So, does anyone have any options or suggestions?

Thanks!

I have given my 2 1/2 yr old son benedryl with no indication of a reaction.


- Vincent -

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I haven't had a whole lot of trouble with meds, but a little bit: my generic synthroid contained gluten according to its manufacturer (can't remember which), so my endocrinologist changed it to Name Brand Only because it's gluten-free. The generic Klonopin I was taking for the spasticity I have contained gluten, so I had to change to Name Brand Only on that, as well. Kind of funny that the medicine that I was taking to help the symptoms of what gluten has done to me CONTAINED gluten. :blink: I had been given Nexium in the past and according to its manufacturer, it contains gluten. I think those are the only ones . . . my memory is kind of foggy today, so I could have forgotten some . . . .


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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