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What Age Did Everyone Begin To Have Symptoms?

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Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Edited by GottaSki

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Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Any symptoms for Celiac.

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12 months.

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Mostly all my childhood. More severe at 18. Sustained since 26. I am now 29.

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Alot of my depression and anxiety developed early when I still lived with my family. Around 20 the mental health issues ramped up. Did some heavy drinking during those years. First miscarriage in 1990, first child born in 1993 (also when hypo hit). Second child in 1995. I always had a problem with constipation since teens. After pregnancies all the digestion issues came on strong. Then year after year more stuff. Monster migraines, Arthritis, periformis syndrome, sacroilitis, degenerative disk, hemorrhoids out of control, Sicca symptoms, fibromyalgia (mine is skin surface pain), stiffness in all joints, carpel tunnel (I believe from all over inflammation) and now cancer. I was only diagnosed celiac 5 months before the cancer.

Resolved issues. Had hemorrhoids operated on, all digestive issues resolved, migraine only when cc'd, whole body inflammation is less. Fibro surface pain is less often. Have an appetite now. Carpel tunnel resolved, I believe, as a decrease in inflammation.

I still have a lot of fatigue and weakness issues but I believe that is related to a different condition.

Best of luck,

Colleen

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I had mononucleousis when I was 19 and in college. After that I noticed, unending fatigue, bloating on occassion, and sensitivities to perfume and cigarette smoke. My appetite had unusual swings from famished constantly, to a severe lack of appetite. The symptoms gradually got more and more noticeble, but I think I was numbed either by extreme fatigue or lack of vitamin B. Gradually, the bloating and fatigue overcame me and did not go away.

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From the time I was born I was pale, skinny and had dark circles under my eyes. I guess around age four or five I had to have all my teeth capped because of "milk rot". At six I was ill for about a year: mono, tonsillitis, chicken pox. Just seemed to catch everything. After that, migraines, stomach isssues here and there, in early twenties abdominal pain. I didn't get diagnosed until 35 years old, two months ago.

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No problems at all until I got pregnant with my second child (age 38). I went from going to the doctor once a year (just for annual physical) to going in every few months with really random symptoms. (cardiac, neuro, GI, etc.) It got to the point where my doctor just thought I was making stuff up because nothing ever showed up on the many, many expensive tests they ran. When my son was diagnosed (2nd child - coincidence?) at age 5 I got tested and was positive. I had a negative biopsy, but once I started the diet, my health returned. It was amazing. I wish someone had thought to suggest it much, much sooner. I realize 5 years is not bad compared to others, so I really can't complain.

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I was 49... no other celiacs in my immediate or extended family. I had symptoms for about 2 months and was diagnosed by blood tests. Middle daughter was diagnosed at about age 26. Then youngest daughter was diagnosed a few years later at about age 27. And finally, oldest daughter was diagnosed at age 32. Still none of my siblings or extended family has it.

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According to my baby records I was born on Sept 21. I was given oats and barely in formula on Oct 25th and Oct 26th I developed a severe allergic rash. That was 39 years ago so the connection was sketchy. That is the first reported reaction I had to Gluten. So it's safe to say I was drawn this way.

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Looking back I've had symptoms for 20 years but I could always attribute them to something else. In January 2012 my colon had enough and shut down. I lost muscle control of my colon and needed laxatives to get any movement at all. It took about a month to diagnose it properly as celiac. I had 2 bloodiest, both negative. My doctor wasn't getting it. I decided to go gluten free, did it for a week and got back control of my colon and I felt so much better. Then I ate a hamburger and onion rings and all my symptoms came back. I consumed gluten for almost 42 years till my body said enough.

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I had "C" as soon as pablum was introduced and was into the doctor in my early childhood because of my chronic stomach aches. I can't remember as many stomach pains when i was a teen (migraines started instead) but they came back as an adult. I developed other autoimmune diseases, and other symptoms until I figured it out and got myself diagnosed this past year at age 38.

... 38 years I guess.

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No clue as I have never felt ill from eating gluten. But I started suspecting something (not celiac at the time) when I had miscarriages. Then three years ago I got bronchitis then pneumonia. After that my celiac fog started - I believe my illness may have triggered it, as did an accident that left me in constant chronic pain. I have been diagnosed with fibromyalgia but believe that it is related to/caused from celiac. Not getting a bit better, even 1.5 years off gluten but there is always hope! :)

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I wish I knew! I keep trying to remember when things first started... Bread has bothered me for a long time... I always felt tired after eating it but that was it? Is that a celiac symptom?

Apart from that I would say my symptoms have come on really slowly. So slowly that I struggle to pinpoint it exactly. Apart from bread 'bothering' me, I guess I first started not feeling right about 5 or 6 years ago. So that would've made me 33/34 years of age.

I'm still struggling with the fact that I may have had this for a very long time... Or if not, something triggering it. It's a horrible idea to think that something I did (stress) might have started this horrible disease.

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I remember the very day it seemed to all begin. Around age 10 or 11, I was eating out with my family and, while we were all waiting for food, I was struck with these horrendous stomach pains that I had never experienced in my life. I was really scared ; it was like my insides were going to explode...I just wanted to poke a hole in my side and deflate/remove whatever little mythical horse was kicking the inside of my torso from multiple directions :P I later found out that this was what gas cramps felt like, and little did I know that these were going to become a regular part of my life (as in, 2-3 nights per week, without fail) for the next few years. They disappeared, as if magically, when I stopped eating gluten.

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    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
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    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

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