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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

16 Month Old Just Got Diagnosed With Celiac. Now What?!

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Hello all,

My name is Raegan and my son Harrison was just diagnosed with celiac. He was born fussy. He had colic, vomiting, gas, foul stools, and most recently weight loss and failure to thrive. He has a mild IGa deficiency and due to continued weight loss the drs at Children's performed a scope Monday morning (not my favorite morning) and we got the results back today as indicative for celiac. I am actually fairly familiar with celiac and understand the basics. However I am unsure of how throuough I need to be. Do I get rid of my toaster? I am planning to just be gluten free in this house at least at first to minimize the accidental exposure. I am nursing so i know I need to be strictly gluten-free until i am done. If someone could give me a few pointers on what to do specfifically around the kitchen to prepare for this new lifestyle. We are already egg and dairy free due to allergies so the actual food part will be easy enough. Thanks!

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Yep, you'll need a new toaster. And you also should replace anything thats been scratched (such as pans and pots), colenders that have been used for wheat pasta, wooden spoons, plastic utenciles, and such.

Look at the bright side, it got caught relatively early :)

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As a nursing mother to a Celiac you need to check your health care items too. (skin lotions, deodorant, shampoo and conditioner) My son loved to grab my hair and my daughter would pet my face when they were nursing. :rolleyes:

You need to be as careful as you can be. There just is no way to tell you how much exposure is safe. It is the amount your son's immune system recognizes as gluten that triggers the response. Some people are very sensitive with violent gut reactions and some people have really no sysptoms and get diagnosed later in life for anemia.

It is going to be a bit harder with the egg free- dairy free restrictions for gluten free, but it is doable. :)

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Just wanted to say that if you suspect you may have a problem with gluten as well (or even if you don't!) You should request a full celiac blood panel for yourself asap. Celiac is hereditary. If you go gluten-free for nursing, then realize some of your "symptoms" go away, it would be awful if you couldn't consume gluten for a challenge at a later time. Just some food for thought.

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Lotions? How do I check those out? I never thought about those. I went shopping this evening to try to replace MY ENTIRE kitchen's worth of foods and I was incredibly overwhelmed. If it didn't have gluten, it had egg. The magnitude it starting to set in. I am terrified to accidentally poison him with gluten. H e puts EVERYTHING in his mouth still. Does it mean that it is really bad if it showed up this early?

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We are dairy, egg, gluten and all nut free. My DS was dx at 3. The age at which they are dx doesn't mean it's any worse BUT it is great because the sooner it's found and the sooner your little one goes gluten-free, the better for him!!

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You can check out lotions, etc, by doing a search engine query of:

gluten free name of item you are wanting to purchase

such as "gluten free baby lotion"

I have very sensitive skin :rolleyes: and have been known to react to unknown ingredients in some baby stuff :angry: such as the (probably) cross contaminated cornstarch in non-talc baby powders, some "natural" deodorants <_< , shampoos with wheat (triticum) or cross contaminated oats (sativa), etc. I got so frustrated with some of these expensive, supposedly "allergy-free" baby product companies which kept changing their ingredients lists from one status to another, (yes, I am pointing to you, "Burt's Bee's, and that soy crap you now use, because I have a dog with allergies and I don't want to cross contaminate HIM if he licks me) I have an emergency fallback system of using just a few ingredients and actually getting BETTER results, anyway.

Deodorant in a pinch: dry baking soda. It seems this would not work, but it works really, really well.

Hair rinse: pure apple cider vinegar, mixed 1 part to 7 parts water, (and in a spray bottle for a detangler) this corrects the pH and makes hair shiny and ease to comb out, and it's CHEAP, besides that

hair conditioner: pure shea butter or pure coconut oil, a tiny pea sized dab rubbed into your hands and then thru your hair, after the cider rinse

moisturizer: pure shea butter or pure coconut oil or pure almond oil

Soap: been using some Alaffia African liquid soaps (some of these are labeled gluten free) or the Dr. Bronner's liquid soaps, or plain Ivory bar soap. There are other shampoos and soaps that are also gluten free, but these are available at the places I am purchasing the gluten free ingredients I use in baking, and they will lather in our well water, which is another characteristic that most people here are not having to deal with.

My husband uses Dove brand shampoos because they are supposed to call out the gluten on their labels, but, they really a bit too perfumey for me. He has super short hair so he isn't having to deal with my hair, which is longer, thicker, more ornery, drier, colored, and seemingly water and soap repellant, trying to get something shampoo- like to actually make suds in it. :rolleyes: Good Gosh, I would have to use a quarter cup of shampoo and half the water heater tank to then get it out ! Some people with this type of hair will just rinse their hair with plain water daily, or a little bit of baking soda in water, then condition it, which works well in the summer for me. (You can also visit the Long Hair Community blog, category "natural hair care," or "co conditioning" for more ideas, which also work for shorter hair. Uh oh, I just checked their site and they are having an ongoing upgrade right now which has made some of their old threads disappear. Anyway, some people don't use shampoo very often, as I have explained, just conditioned and then rinsed well with water and then used vinegar and a small amount of oil. )


As for the kitchen, if you are having to work thru your kitchen items, at the minimum get a new toaster and the toaster oven is handy as the racks can be washed or scrubbed. New colander for gluten free pasta. New cutting board. New spatula. New dish sponge/scrubbie type of thing. If your old sharp knife holder is full of crumbs, out it goes. New plastic storage type containers for leftovers. (if you like Cool Whip, you're in luck, as these make handy ones). I also got new potholders and new bakeware, but not all at once, just what I had to have. If you have old teflon, it goes bye- bye. If you have old cast iron, burn off the old finish in the oven, and re- season it. (I clean dedicated cast iron with water, baking soda, and cider vinegar and a paper towel). As you purchase these, get a pack of sharpie pens and make each new item gluten-free or GLUTEN FREE so there is no question by other people on its status. If you need to roll out a pie crust, use wax paper and a regular drinking glass, this will save you having to replace the rolling pin right away.

If you want to test out recipes for breads and cakes, I suggest using the bun-in-a-cup type recipes (with the substitute for egg, of course) that are baked in the microwave in about a minute and a half, using small, single serving ceramic dishes which are easy to clean. This will keep you from making a large batch of something that you end up not liking, and then spending a big gob of money on it. This way, also, if you keep the ingredients on hand, you can then quickly make up a fresh sandwich bun or two if you are far away from the store and need it in a hurry.

Gluten free rice cakes and corn tortillas are very versatile and can be used for most bread situations in a pinch, as can rice pasta, so don't worry. This is do- able.

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    • yep, the lovely autoimmune gene.   my son got dx of type 1 diabetes at age 19, daughter got dx of r.a. at age 12.  pregnancy/childbirth was my trigger, as well.  i had no idea what celiac disease even *was* until the doc suggested i go gluten free.  of course, that made the blood tests negative, but g.i. doc told me to continue.  they are still reluctant to call it 'true' celiac, even though they could see the damage when they did the endoscopy!  since i started gaining weight almost immediately, she didn't want me to do a gluten challenge because i was horribly underweight.  that golden diagnosis is hard to obtain.  i guess they want to keep you sick and treating all the symptoms and side effects daughter, now 27, is gluten free, even though she tested neg.  son is 32 and does the paleo thang.  if you feel better, i figure, what's the difference?  just keep an eye on your kiddos... 
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