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Is This Celiac?!

adambryant

By adambryant
in Coping with Celiac Disease

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adambryant Explorer
adambryant
Posted

Hi, I haven't had a diagnosis of celiac, but have currently been gluten-free for about 5 weeks. I used to get disgusting flatulence very often, but after a week of going gluten-free, it went totally and haven't had it since.. Although the feeling of fullness is always there(bloating), as is the feeling that I never feel hungry, and 'C' is still there but has improved slightly. I have removed all dairy to. I just want to come to the bottom of this problem its been going on for too long now..and don't want this to be pointless trying gluten free. Does this seem like celiac is the cause? When should my other symptoms clear up if it is the cause? Any advice needed PLEASEEE!!!

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Skysmom03 Newbie
Skysmom03
Posted

It may take months depending on how badly your intestines are damaged. The flatulence definitely sounds like it. My husband's smelled like something rotten. Really bad. After his diagnosis and the diet it went away almost immediately!!! Give it some time. I will say that not all prople with celiac have the same signs and symptoms. There are 30 + s and s that coukd be related to celiac. May I ask... Why not go to dr for official diagnosis?

adambryant Explorer
adambryant
Posted
  • Author

Ill stick at it, only time will tell really.. And I had blood tests which were negative, and the doctor thought that if the blood test was negative, I was negative.. I went to a specialist doctor for the symptoms, and he just said I had chronic 'C' and sent me on my way.. So if they're not going to help, ill try help myself. Also my mum has celiac too.

Skysmom03 Newbie
Skysmom03
Posted

I would find a different doctor and I would request a full celiac panel and possibly genetic testing. You have the symptoms and the family history. This Is too important not to find out. Do you have to have a referral to see a GI? Because if not I would go straight to one of them.

Blood test can be wrong.... When my son was tested his 'main' test -- the one my dr focuses on the most was only 25.... But when he did his the numbers were very different. He said some dr use different companies and sometimes they don't use the right test and many come back with false negatives and positives. My son's own GI doctor didn't trust the test because my son doesn't 'look' celiac( nice healthily look little to know noticeable symptoms). His risk factor was his dad which is the only reason he was tested in the first place. When he actually got in there to do thd biopsy, he indeed found damage ( according to him .... Three years worth of damage....). Keep going forward if you can.... You deserve that.

adambryant Explorer
adambryant
Posted
  • Author

Ahhh I see.. And I've been eating gluten-free for 5 weeks now so it'll make the biopsies unreliable etc as you need to be eating gluten for a while before don't you? I guess I'm just gonna stick to this and see how it goes

adambryant Explorer
adambryant
Posted
  • Author

Its just the bloating and irregular bowel movements which is causing me problems:( and lack of appetite!

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  • Posts

    • Tarp
      Celiac related issues

      By Tarp · Posted

      I thought I had osteoprosis but did not find it on my record.  I know I have stenosisof the spine.  I also have Sarcoidosis and diabetes.
    • Tarp
      Celiac related issues

      By Tarp · Posted

      I am 64.   I have struggled with a combination of diarrhea and constipation most of my life. Yes I have osteoporosis.  I have been taken magnesium citrate with calcium and d 3 and zinc.  I take b12 and my latest blood work showed it to be high 2000. My other blood work showed low rbc, hemacrit, hemoglobin and Ferrin.  My gastroentologist didn’t say anything just told me to go gluten free and check blood in 3 months. I have had 2 lumbar disc surgeries and 2 cervical spine surgeries    
    • trents
      Celiac related issues

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      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. Make sure all are gluten free. Costco's Nature Made and Kirkland Signature products are a good choice and reasonably priced.
    • trents
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