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OleMissLass

Very Nervous About Trying To Get Pregnant

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I have been on a gluten-free diet for 3 years though I have not been very faithful to the program in the past few months. I am not immediately sensitive to gluten (delayed reaction - usually 2 days) so it's easy to dismiss the consequences at times. I also have hypothyroidism and migraines and am on medication to treat both. Neither of my doctors is a specialist on celiac (I live in a small town) so they don't give me very specific advice. I learn everything from books & the internet.

My husband and I want to start trying to get pregnant, but I am very nervous about this since the celiac and hypothyroidism both pose dangers to the fetus and can cause miscarriage. I'm 36 so I don't feel we can wait much longer. I've been back on the gluten-free diet for the past few weeks and have worked to be careful about what I eat. How long should I wait before going off the birth control? Does anyone have suggestions for making pregnancy successful while on a gluten-free diet? I would really appreciate any advice!

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The first part you obviously know, that you must adhere to the diet. The little cheats and laxness here and there do add up and you are sabotaging yourself.

Next I would go to my gp and ask to have all my nutrient levels checked. I don't know if you did this when you first went gluten free, but as celiacs we tend to be malabsorptive and can have major deficiencies. Many of these, if not supplemented, can remain even after we have recovered. You should have vitamin levels checked, especially A, B's, folate, D and minerals like potassium, iron, zinc, copper. Supplement as necessary for any deficiencies.

Apart from these, you should be good to go. :) Plenty of exercise, nutritious whole foods and all the usual stuff.

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I have been on a gluten-free diet for 3 years though I have not been very faithful to the program in the past few months. I am not immediately sensitive to gluten (delayed reaction - usually 2 days) so it's easy to dismiss the consequences at times. I also have hypothyroidism and migraines and am on medication to treat both. Neither of my doctors is a specialist on celiac (I live in a small town) so they don't give me very specific advice. I learn everything from books & the internet.

My husband and I want to start trying to get pregnant, but I am very nervous about this since the celiac and hypothyroidism both pose dangers to the fetus and can cause miscarriage. I'm 36 so I don't feel we can wait much longer. I've been back on the gluten-free diet for the past few weeks and have worked to be careful about what I eat. How long should I wait before going off the birth control? Does anyone have suggestions for making pregnancy successful while on a gluten-free diet? I would really appreciate any advice!

Wow, this is exactly what I've been thinking. I've had a miscarriage and an ectopic, and lots of "chemical" pregnancies since trying for a baby the past six years. Then I got diagnosed two months ago with celiac, which by then was a GREAT thing to hear, since up until that point all the testing had just shown "unexplained infertility." It's nice to have a reason for it.

But I'm frankly terrified to start trying again -- and I just turned 35, so it's all ticking clocks with me. I'm impressed you've been gluten-free for 3 years and allowed yourself to heal up before getting into the fertility stuff -- that takes a lot of patience. I'm giving myself just one year of healing time, so I'll be starting again at your point next year.

I'm seeing the OB-GYN next week to talk about this and hoping to get into the Mayo Clinic to get a better workup done at some point (I'm somewhat in the sticks). Mushroom is right -- getting a checkup on all your vitals and making sure you're on the right prenatals, etc. is a good first step.

After that, I think it's just about courage, honestly. It sounds like a lot of women here were able to start conceiving after about two years gluten-free. You should be OK, since you've left in some buffer time to allow for glutenings.

I think getting your tTg levels checked might be good, since I think I saw a study recently that said tTg may be involved in miscarriages.

Please come back and post with your experiences as you go forward -- I for one would appreciate hearing how it goes. Good luck!

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I was wheat free, didn't know about gluten-free problems then. I did have a number of early miscarriages, but wanted to say I had my 2 lovelies at 37 and 39.

I agree with the others,, get tested to check no major issues, have some suppliements, make healthy food choices. I found it comforting to keep my tummy warm and not have very cold drinks early on, but not sure what evidence there is on that.

For me, I had to get my stress levels down, it seemed to throw out my hormones, along with the gluten stuff.

Take it easy on yourselves, be kind to each other keep a bit of romance. Lots of us have kids, it is often possible. From what I recall,, the research shows. minimal difference in outcomes once you are diagnosed and eating gluten-free

Good luck both of you ( and other halves of course).

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I was wheat free, didn't know about gluten-free problems then. I did have a number of early miscarriages, but wanted to say I had my 2 lovelies at 37 and 39.

Thanks -- very comforting to know that there's some hope for us starting fresh while on the wrong side of 35. :D

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Thanks to everyone who replied - these positive messages are definitely what I needed! I've been back on a strict gluten-free diet for a few weeks now and it's been easier to stay faithful since I have a worthwhile end goal (besides my longterm health, of course!). I just made an appointment with my endocrinologist to have my thyroid levels rechecked and a nutrient test to make sure my body is fully ready to support a pregnancy. Fortunately, my thyroxin levels have been pretty solid for the past few years and I have taken B-12 shots for about 2 years along with multivitamins so I'm hopeful I won't have issues there.

Pregnancy is already such a stressful event and having these health issues certainly makes the stakes higher. But I agree with you that I need to do my best to lower the stress and to relax and enjoy my free time. Since I'm in the middle of my dissertation and plan to start looking for a job this fall I don't know if that will be possible, but I will certainly try and will ask my husband to help find ways for us both to de-stress.

I've bought an ovulation kit and have been reading extensively on fertility, so I feel prepared to start and will keep my fingers crossed that it doesn't take us a long time to conceive. Thanks for your supportive words!

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I had my children at age 35 and 37, before my diagnosis. I had already started having uncontrolled diarrhea before I got pregnant with the first one so I was pretty ill already. I think that the pregnancies and nursing may have caused some of the symptoms to improve. My message is that even untreated, I managed to have two healthy pregnancies and produced two wonderful children. You are way ahead of the game with a diagnosis and gluten-free diet. Good luck and best wishes to you and your husband.

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I have to say reading your posts have certainly eased my mind a good deal! I am gluten intolerant but have a great deal of inflammation in my gut so am going both gluten free and dairy free and have been so for about a month. On top of this, I have Type 1 Diabetes and PCOS so definitely have an uphill battle ahead of me! My husband and I have just started trying and while I have a reproductive endocrinologist who is helping me along the way, the gut issues have caused me a little worry in terms of both getting pregnant and carrying to term. I am thankful for posts like these because they certainly help when I am feeling discouraged!!

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I have had symptoms of celiac for 30 years during which I had 5 whole, healthy, children, albeit I had an early misscarriage before the five. I am happy the Lord gave me all five of them. I didn't know I had celiac disease until recently. Watch your nutrient level and get some good supplements to optimize for the little ones. I hope you will do well and enjoy the blessings which children bring.

Diana

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Well, Monday morning I went in for a routine blood work and monitoring for what I thought was my AF...and they called me a couple hours later and told me I was pregnant! I couldn't believe it! Now, they are going to check my HCG levels tomorrow to see if they are doubling appropriately.

After everything I have read on here and because of my pre existing diabetes, I am extremely nervous about miscarriages! I have always read that a symptom for many people during pregnancy is C - but since I am more prone to D due to my gut, I was wondering if people here had more C or D due to these issues?

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Hey, congratulations. That was short work :D I hope you have smooth pregnancy.

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Fantastic news, congratulations.

Pregnancy does all sorts of weird things to the body, most of which you don't know about before :). For me, I tend to get D more usually. I got some of that while pregnant, but also had C while pregnant, just 2 to 3 times each pregnancy.

If you have fasting blood sugar tested, check that the drink they plan to give you is gluten-free, some people here have had problems with them. Find out in advance, so you can agree an alternative.

The first few weeks can be very tiring, try and rest as much as you can.

Fabulous news.

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Thanks so much! It just feels good to say it right now! Although I know I'm not out of the woods yet. I have my second HCG blood draw tomorrow and when I have the results of that, I will feel better. Until then, I consider it up in the air (despite the positive blood test).

I am already tired all the time but yet when I go to bed I have a hard time sleeping. Very frustrating!

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Wow, this is exactly what I've been thinking. I've had a miscarriage and an ectopic, and lots of "chemical" pregnancies since trying for a baby the past six years. Then I got diagnosed two months ago with celiac, which by then was a GREAT thing to hear, since up until that point all the testing had just shown "unexplained infertility." It's nice to have a reason for it.

But I'm frankly terrified to start trying again -- and I just turned 35, so it's all ticking clocks with me. I'm impressed you've been gluten-free for 3 years and allowed yourself to heal up before getting into the fertility stuff -- that takes a lot of patience. I'm giving myself just one year of healing time, so I'll be starting again at your point next year.

I'm seeing the OB-GYN next week to talk about this and hoping to get into the Mayo Clinic to get a better workup done at some point (I'm somewhat in the sticks). Mushroom is right -- getting a checkup on all your vitals and making sure you're on the right prenatals, etc. is a good first step.

After that, I think it's just about courage, honestly. It sounds like a lot of women here were able to start conceiving after about two years gluten-free. You should be OK, since you've left in some buffer time to allow for glutenings.

I think getting your tTg levels checked might be good, since I think I saw a study recently that said tTg may be involved in miscarriages.

Please come back and post with your experiences as you go forward -- I for one would appreciate hearing how it goes. Good luck!

New member here and I don't want to hijack the thead, but the mention of an ectopic pregancy caught my eye.

 

I was diagnosed with a gluten sensitivity in July 2012 and fully adopted a gluten free diet in September. I did not get an endoscopy so I'm not sure about any damage caused.

 

I had an ectopic pregnancy in December and am still shocked that I have no answers as to why it happened. I can't help but feel like my gluten intolerance could have something to do with it (among other possibilities), but haven't discussed with my doctor. After reading this thread though I think my next step will be to get my vitamin levels checked.

 

Were you given any information that celiac/gluten intolerance could be a possible cause?

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I found out today that I am pregnant, though only very early, about 2 weeks.  I'll definitely be sticking to a fully gluten-free diet and will be alerting my doctor to some of the complications that can arise from a pregnancy in someone with celiac. But at the very least, I know I can get pregnant and that's a good sign for someone who's had this condition as long as I have.

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CONGRATULATIONS Take it easy on yourself, wishing you a happy and successful pregnancy :)

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    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
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    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
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    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.

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    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
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    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
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    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023