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OleMissLass

Very Nervous About Trying To Get Pregnant

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I have been on a gluten-free diet for 3 years though I have not been very faithful to the program in the past few months. I am not immediately sensitive to gluten (delayed reaction - usually 2 days) so it's easy to dismiss the consequences at times. I also have hypothyroidism and migraines and am on medication to treat both. Neither of my doctors is a specialist on celiac (I live in a small town) so they don't give me very specific advice. I learn everything from books & the internet.

My husband and I want to start trying to get pregnant, but I am very nervous about this since the celiac and hypothyroidism both pose dangers to the fetus and can cause miscarriage. I'm 36 so I don't feel we can wait much longer. I've been back on the gluten-free diet for the past few weeks and have worked to be careful about what I eat. How long should I wait before going off the birth control? Does anyone have suggestions for making pregnancy successful while on a gluten-free diet? I would really appreciate any advice!

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The first part you obviously know, that you must adhere to the diet. The little cheats and laxness here and there do add up and you are sabotaging yourself.

Next I would go to my gp and ask to have all my nutrient levels checked. I don't know if you did this when you first went gluten free, but as celiacs we tend to be malabsorptive and can have major deficiencies. Many of these, if not supplemented, can remain even after we have recovered. You should have vitamin levels checked, especially A, B's, folate, D and minerals like potassium, iron, zinc, copper. Supplement as necessary for any deficiencies.

Apart from these, you should be good to go. :) Plenty of exercise, nutritious whole foods and all the usual stuff.

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I have been on a gluten-free diet for 3 years though I have not been very faithful to the program in the past few months. I am not immediately sensitive to gluten (delayed reaction - usually 2 days) so it's easy to dismiss the consequences at times. I also have hypothyroidism and migraines and am on medication to treat both. Neither of my doctors is a specialist on celiac (I live in a small town) so they don't give me very specific advice. I learn everything from books & the internet.

My husband and I want to start trying to get pregnant, but I am very nervous about this since the celiac and hypothyroidism both pose dangers to the fetus and can cause miscarriage. I'm 36 so I don't feel we can wait much longer. I've been back on the gluten-free diet for the past few weeks and have worked to be careful about what I eat. How long should I wait before going off the birth control? Does anyone have suggestions for making pregnancy successful while on a gluten-free diet? I would really appreciate any advice!

Wow, this is exactly what I've been thinking. I've had a miscarriage and an ectopic, and lots of "chemical" pregnancies since trying for a baby the past six years. Then I got diagnosed two months ago with celiac, which by then was a GREAT thing to hear, since up until that point all the testing had just shown "unexplained infertility." It's nice to have a reason for it.

But I'm frankly terrified to start trying again -- and I just turned 35, so it's all ticking clocks with me. I'm impressed you've been gluten-free for 3 years and allowed yourself to heal up before getting into the fertility stuff -- that takes a lot of patience. I'm giving myself just one year of healing time, so I'll be starting again at your point next year.

I'm seeing the OB-GYN next week to talk about this and hoping to get into the Mayo Clinic to get a better workup done at some point (I'm somewhat in the sticks). Mushroom is right -- getting a checkup on all your vitals and making sure you're on the right prenatals, etc. is a good first step.

After that, I think it's just about courage, honestly. It sounds like a lot of women here were able to start conceiving after about two years gluten-free. You should be OK, since you've left in some buffer time to allow for glutenings.

I think getting your tTg levels checked might be good, since I think I saw a study recently that said tTg may be involved in miscarriages.

Please come back and post with your experiences as you go forward -- I for one would appreciate hearing how it goes. Good luck!

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I was wheat free, didn't know about gluten-free problems then. I did have a number of early miscarriages, but wanted to say I had my 2 lovelies at 37 and 39.

I agree with the others,, get tested to check no major issues, have some suppliements, make healthy food choices. I found it comforting to keep my tummy warm and not have very cold drinks early on, but not sure what evidence there is on that.

For me, I had to get my stress levels down, it seemed to throw out my hormones, along with the gluten stuff.

Take it easy on yourselves, be kind to each other keep a bit of romance. Lots of us have kids, it is often possible. From what I recall,, the research shows. minimal difference in outcomes once you are diagnosed and eating gluten-free

Good luck both of you ( and other halves of course).

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I was wheat free, didn't know about gluten-free problems then. I did have a number of early miscarriages, but wanted to say I had my 2 lovelies at 37 and 39.

Thanks -- very comforting to know that there's some hope for us starting fresh while on the wrong side of 35. :D

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Thanks to everyone who replied - these positive messages are definitely what I needed! I've been back on a strict gluten-free diet for a few weeks now and it's been easier to stay faithful since I have a worthwhile end goal (besides my longterm health, of course!). I just made an appointment with my endocrinologist to have my thyroid levels rechecked and a nutrient test to make sure my body is fully ready to support a pregnancy. Fortunately, my thyroxin levels have been pretty solid for the past few years and I have taken B-12 shots for about 2 years along with multivitamins so I'm hopeful I won't have issues there.

Pregnancy is already such a stressful event and having these health issues certainly makes the stakes higher. But I agree with you that I need to do my best to lower the stress and to relax and enjoy my free time. Since I'm in the middle of my dissertation and plan to start looking for a job this fall I don't know if that will be possible, but I will certainly try and will ask my husband to help find ways for us both to de-stress.

I've bought an ovulation kit and have been reading extensively on fertility, so I feel prepared to start and will keep my fingers crossed that it doesn't take us a long time to conceive. Thanks for your supportive words!

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I had my children at age 35 and 37, before my diagnosis. I had already started having uncontrolled diarrhea before I got pregnant with the first one so I was pretty ill already. I think that the pregnancies and nursing may have caused some of the symptoms to improve. My message is that even untreated, I managed to have two healthy pregnancies and produced two wonderful children. You are way ahead of the game with a diagnosis and gluten-free diet. Good luck and best wishes to you and your husband.

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I have to say reading your posts have certainly eased my mind a good deal! I am gluten intolerant but have a great deal of inflammation in my gut so am going both gluten free and dairy free and have been so for about a month. On top of this, I have Type 1 Diabetes and PCOS so definitely have an uphill battle ahead of me! My husband and I have just started trying and while I have a reproductive endocrinologist who is helping me along the way, the gut issues have caused me a little worry in terms of both getting pregnant and carrying to term. I am thankful for posts like these because they certainly help when I am feeling discouraged!!

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I have had symptoms of celiac for 30 years during which I had 5 whole, healthy, children, albeit I had an early misscarriage before the five. I am happy the Lord gave me all five of them. I didn't know I had celiac disease until recently. Watch your nutrient level and get some good supplements to optimize for the little ones. I hope you will do well and enjoy the blessings which children bring.

Diana

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Well, Monday morning I went in for a routine blood work and monitoring for what I thought was my AF...and they called me a couple hours later and told me I was pregnant! I couldn't believe it! Now, they are going to check my HCG levels tomorrow to see if they are doubling appropriately.

After everything I have read on here and because of my pre existing diabetes, I am extremely nervous about miscarriages! I have always read that a symptom for many people during pregnancy is C - but since I am more prone to D due to my gut, I was wondering if people here had more C or D due to these issues?

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Hey, congratulations. That was short work :D I hope you have smooth pregnancy.

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Fantastic news, congratulations.

Pregnancy does all sorts of weird things to the body, most of which you don't know about before :). For me, I tend to get D more usually. I got some of that while pregnant, but also had C while pregnant, just 2 to 3 times each pregnancy.

If you have fasting blood sugar tested, check that the drink they plan to give you is gluten-free, some people here have had problems with them. Find out in advance, so you can agree an alternative.

The first few weeks can be very tiring, try and rest as much as you can.

Fabulous news.

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Thanks so much! It just feels good to say it right now! Although I know I'm not out of the woods yet. I have my second HCG blood draw tomorrow and when I have the results of that, I will feel better. Until then, I consider it up in the air (despite the positive blood test).

I am already tired all the time but yet when I go to bed I have a hard time sleeping. Very frustrating!

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Wow, this is exactly what I've been thinking. I've had a miscarriage and an ectopic, and lots of "chemical" pregnancies since trying for a baby the past six years. Then I got diagnosed two months ago with celiac, which by then was a GREAT thing to hear, since up until that point all the testing had just shown "unexplained infertility." It's nice to have a reason for it.

But I'm frankly terrified to start trying again -- and I just turned 35, so it's all ticking clocks with me. I'm impressed you've been gluten-free for 3 years and allowed yourself to heal up before getting into the fertility stuff -- that takes a lot of patience. I'm giving myself just one year of healing time, so I'll be starting again at your point next year.

I'm seeing the OB-GYN next week to talk about this and hoping to get into the Mayo Clinic to get a better workup done at some point (I'm somewhat in the sticks). Mushroom is right -- getting a checkup on all your vitals and making sure you're on the right prenatals, etc. is a good first step.

After that, I think it's just about courage, honestly. It sounds like a lot of women here were able to start conceiving after about two years gluten-free. You should be OK, since you've left in some buffer time to allow for glutenings.

I think getting your tTg levels checked might be good, since I think I saw a study recently that said tTg may be involved in miscarriages.

Please come back and post with your experiences as you go forward -- I for one would appreciate hearing how it goes. Good luck!

New member here and I don't want to hijack the thead, but the mention of an ectopic pregancy caught my eye.

 

I was diagnosed with a gluten sensitivity in July 2012 and fully adopted a gluten free diet in September. I did not get an endoscopy so I'm not sure about any damage caused.

 

I had an ectopic pregnancy in December and am still shocked that I have no answers as to why it happened. I can't help but feel like my gluten intolerance could have something to do with it (among other possibilities), but haven't discussed with my doctor. After reading this thread though I think my next step will be to get my vitamin levels checked.

 

Were you given any information that celiac/gluten intolerance could be a possible cause?

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I found out today that I am pregnant, though only very early, about 2 weeks.  I'll definitely be sticking to a fully gluten-free diet and will be alerting my doctor to some of the complications that can arise from a pregnancy in someone with celiac. But at the very least, I know I can get pregnant and that's a good sign for someone who's had this condition as long as I have.

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CONGRATULATIONS Take it easy on yourself, wishing you a happy and successful pregnancy :)

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    • Thank you - I had my endoscopy today and the doctor said he didn't see the telltale signs of celiac but he did biopsy. There were a number of other things he noted, like a polyp found in the fundus, and my stomach was very inflamed.       He said to start a gluten free diet right away anyway.  It is hard not to get ahead of myself and wonder about the results and if they come back negative.   
    • Congratulations!!🎆🎇🎊🥂  
    • Becca4130, Being gluten free for a while would cause your blood serology to test negative but many people choose not to finish a gluten challenge because of how bad they feel on gluten. NCGS is a real thing even though most doctors don't recognize it today. See this care2 article that explains what might be  happening in your case. https://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html The rate of positive blood serology is 2x higher than biopsy confirmed Celiac disease. see this new research about the rate of NCGS (serology postive Celiac)  in the general public without positive biopsy.  . . though for this research they considered both serology (blood tests) and biopsy confirmed celiac diagnosis as the real rate of Celiac disease in the general public. quoting Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals." Which they say  quoting again "means that numerous people with celiac disease potentially remain undiagnosed" or I think in many causes NCGS is not being declared because they consider a blood positive test inconclusive in the absence of a confirmed biopsy. and it sounds like what is happening in your Case especially since you have been gluten free long enough to not test positive on your blood work. See the Care2 article which is typically 6 months and your antibodies goes down naturally when you are gluten free that long. quoting "Though the cause of the two conditions seems to be very different, the study confirmed that the best treatment is the same for both conditions. After six months of only consuming gluten-free grains, the NCGS group reported a significant improvement in their digestive and non-digestive symptoms, and the immune system markers identified earlier in the study had normalized." ****this is not medical advice but what makes sense to me after having been serology (blood) positive for antibodies that went down on a gluten free diet. You might also see this thread that talks about some of these same issues. I hope this is helpful and good luck on your continued journey. I also meant to add this link http://www.mdmag.com/medical-news/not-everyone-predisposed-to-celiac-disease-develops-it Or It could be you have not developed celiac yet because your gut biome has protected you so far from developing it. quoting "The study authors determined that while about 40 percent of the population have a genetic disposition to celiac disease, just about 1 percent develop the condition upon exposure to gluten. Mice who housed Pseudomonas aeruginosa bacteria (Psa) in their guts – transplanted from celiac patients – metabolized gluten different than mice treated with the probiotic Lactobacillus.

      The researchers further observed that Psa produced gluten sequences that initiated inflammation in celiac patients. Lactobacillus was used to detoxify the gluten.

      "So the type of bacteria that we have in our gut contributes to the digestion of gluten, and the way this digestion is performed could increase or decrease the chances of developing celiac disease in a person with genetic risk,” senior study author Dr. Elena Verdu explain(s)" Again I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
    • Fun fact, google your doctors name, 2-4 review sites will have them and their info. You can submit a public review of your doctor.......inform people of this story on the review sites and this doctors "incompetence" in relation to your disease.
    • After I posted this, he called me because I replied to the note questioning if I was reading the test results correctly because they didn't look negative to me. He told me that A. diarrhea is not really a symptom of celiac (huh, wonder why all the poop jokes about it then...) B. if I had both genes plus a positive antibody test, that would mean that there was about a 95% chance that I do have celiac right now, not a potential to develop it and C. if I stay on a gluten free diet (which I don't have to because he says I don't have celiac) then he won't retest the antibodies because of course they will go down and there is no need to test. I'm pretty much speechless. It is abundantly clear why he was the first available when others had a wait.
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