Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Vitamin D Suppliments-How Much?


1974girl

Recommended Posts

1974girl Enthusiast

I have been ready a TON about how type 1 diabetes may be linked to a Vitamin D def. My husband has type 1 and my daughter has celiac. She has both the DQ2 and DQ8 like he does and so, we can't rule out future diabetes. He was 19 at diagnosis and she is 12. Anyway, I know low vit D can accompany celiac. How much vitamin D are you giving your kids? The artical said the 400mg recomendation for kids is wayyyy too low. But it didn't really ever give a number. I am giving her 1,000 mg and I wonder if that's even enough. Do any of you do more than that?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

We do 1000-2000 UI per day in supplements on top of whatever is in the food and multivitamin. We're in Canada so I KNOW thery're not making any D now. LOL

Sublingual D3 tablets, or D3 drops, are usually the best way to go because the D is better absorbed from your mouth than your gut. This is generally true for vitamin B12 and zinc as well.

Best wishes.

Link to comment
Share on other sites
StephanieL Enthusiast

I take 4000 IU and my kids take 2000 IU and the baby takes 1000 IU. I am thinking the baby can move up to 2000 IU now that he's over 1.

Link to comment
Share on other sites
anonymous-123 Rookie

I take about 1500 IU's of D3 per day.

Link to comment
Share on other sites
GretaJane Newbie

I've been giving my 5 yr old 1000 IU of D3, and he is still slightly deficient.

Link to comment
Share on other sites
Mom-of-Two Contributor

My 5 yo gets 1000-2000, and 500 in multi. 8 yo (celiac) gets 2000 in drops and 500 extra in multi- she was low at 27 time of diagnosis.

Hubby and I take 6000 daily, both low.

Best thing is to know your levels- no one should follow the minuscule 400 unit suggestion, horribly outdated!!! As a general rule, at least 1000 per 25 lbs.

Link to comment
Share on other sites
Ninja Contributor

I agree with Mom-of-Two: if you can, try to get her levels tested. Sometimes mega-dosing is the only way to get levels up (if they are real low), but in that case it is super important to know where she "started."

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

I just spoke to our celiac doctor today. Joe's test found him to be low in D (not unusual in Boston in January) and she recommended 2000 units a day for the rest of the winter. If he tests normal in a few months we can reduce it. May have to bump it up again in the fall when the weather changes again.

cara

Link to comment
Share on other sites
  • 4 weeks later...
Mom-of-Two Contributor

My 8 yo was low on vitamin D (27) with her celiac labs- today was her 6 month follow up and I'm happy to say she's now at 53 :) the GI doc fully believes she wasn't absorbing the vitamin D before and with the gluten-free diet past 6 months she's absorbing so much better- she gets 2500 units per day.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...