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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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chexpaints

Gluten Intolerance Post Partum, Now Concerned With Getting Pregnant

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I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

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I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

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Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

Awe, thanks! That does make me feel better. I want to believe that my post partum reactions were due to gluten intolerance onset. But this nagging feeling of what if it was a hormone imbalance keeps me hesitant. I sure don't want to be sick like that again! I was practically helpless with 3 kids and an infant.

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Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

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Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

Yes, I was thoroughly tested by two different doctors. Both said my thyroid is just fine.

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Celiac runs in my family and I didn't have symptoms like yours till the second tri with my first baby. What I have found out is that along with the new wheat issue that even though my thyroid is fine that I had high levels of thyroid peroxidase antibodies. From what I can tell this is related to food intolerances and could be what compounded your symptoms. I think if you continue to avoid the trigger foods you should minimize most all of those problems.. in theory :). I would recommend doing a Google search for 'food allergies and autoimmune thyroid disease' for some further insight. May even recommend doing a blood test. I am researching places but read that metamatrix laboratories will do tests on IgGE (true allergies) and IgG4 (delayed allergies). We are planning on trying for our second child and since I am only 2 months into cutting out gluten I will be waiting. I think if you have a good grasp on your health that you are ahead of the game. I would recommend checking out raspberry leaf for warding off a miscarriage. And make sure your vitamins are gluten free.

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Just to note, some sources say to avoid raspberry leaf tea for the first or first and second trimester if you have a history of miscarriage.

There seem to be some contradictions on the quick internet scan I did, so you would want to be sure of sound medical advice which you are happy using if you want to try it.

There are some contraindications for the third trimester, so you need to know if it suits your particular circumstances.

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I am gluten intolerant myself, and I went undiagnosed for a long time.  (Not for lack of trying either.)  Shortly after I got married, I got pregnant, but miscarried, and it gave me hell, and my gluten intolerance also got worse.  Until I was diagnosed a year and a half later, I didn't even have regular cycles.  Hell, I didn't even HAVE a cycle.  We thought I had actually gone infertile.   But then when I was diagnosed, I got my cycle back, and a year and a half later I was pregnant again.  (Though I didn't realize it because I thought I had just eaten gluten too close to when I should have gotten my period.  I missed TWO periods before I found out.)

So, it may be different for everyone, but I do think you shouldn't worry about the gluten.  It really is the age that is more the concern for you I would think.

Gluten on my pregnancy actually in the last few months didn't affect me so much, in fact I HAD to eat it despite knowing I really shouldn't because my baby seemed to be unsatisfied unless I did.  Though I did absolutely refuse to eat it most of my pregnancy because of my miscarry.  But I think the gluten didn't bother me as much because of the fact I didn't keep anything down anyway, and your stomach gets so squished by the end and you pee everything out so fast anyway that I don't think it had time to affect me.

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Any others with this experience?  I'm very interested.  I'm just scared of being super sick should I get pregnant again...  So I'd love to hear other's experiences of those that had gluten intolerance onset postpartum and how it went with being gluten free on any subsequent pregnancies.

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I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway.  It wasn't too late!  One week later. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange.  So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.   this is just the short version  but I've tried to include important info.  Anyone else have a similar story in any way?
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