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Juliebove

Help! Soooo Frustrated!

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Daughter is now 14 and has had stomach and other issues her entire life. I tried to breast feed her because allergies run in the family but... I couldn't produce enough milk. I did give her what I had because she preferred it but every kind gave her problems. Anything that was milk based caused projectile vomiting and sometimes the big D. The soy stuff constipated her and gave her an anal fissure. At the time I think the most allergenic kind on the market was Nutrium and that just didn't work for her. She also wouldn't gain much weight.

I put her on milk right at her first birthday. And oddly enough she did better. Seemed to have no stomach problems for a while and began gaining weight rapidly. She also had all of her teeth by a year and there was pretty much nothing she wouldn't eat at that age. Was very good to try things.

She did have a few problems up to age 4. Odd skin rashes and allergic reactions to mosquito bites. Dr. said I was bathing her too often and causing her skin to dry out. So I cut back to one bath a week unless she looked really dirty and just made do with baby wipes otherwise. She did have some cold/flu type things then. Also allergies. Sent to allergist who did not test for foods. Only inhalents and grass was a big one. We were living in CA then.

Moved to NY when she was 4. Major troubles began. Chronic UTIs. Frequent big D and stomach pains. Ear infections. She was sent to the allergist and they did not test for food allergies but inhalents and she did have those. She has tried every allergy product on the market. They either do nothing, or cause side effects like nose bleeds. No cause found for the UTIs at that point. Dr. said she had frequent bouts of strep and in a kid of that age it affected the stomach. So I was giving her drinkable yogurt. It was the only thing she would eat/drink aside from tiny sips of water given to her while she was sleeping.

Moved here to WA when she was 6. UTI's continued. Cause of those was found. Caffeine and constipation. The constipation caused her not to be able to fully empty her bladder and the caffeine was irritating her uretha. She did eliminate caffeine for a long time but now at age 14 is drinking coffee. I know, I know but we live in the Seattle area and we start young here! Mostly she drinks decaf but she does have the real thing on occasion. So far so good there.

But... She gets every stinking thing that goes around and then some. She is sick ore than not. In past years teachers would be furious with me and act like I was just keeping her home because I wanted to. One Dr. (someone just filling in) said maybe she was depressed and thought she was faking an illness. But two days later when she was no better, I had to take her back. Bad ear infection! So she gets those, throat stuff, sinus infections and worst of all chronic big D. When she gets the big D, it can last for almost a week or even a week to 10 days. She did at one point get gastritis from an antibiotic she was on. She has full on allergic reactions to many meds. And she had whooping cough last year.

My main frustration now is the big D. I do not think she has celiac. She has never had an endoscopy but the gastroenterologist did do some sort of blood test that I think was for that. She is currently eating wheat and gluten. He did a whole slew of tests and they turned up nothing. He is convinced that it is a food allergy or intolerance.

She has been to an allergist here. Apparently most of her inhalent allergies are much lessened to gone. Nothing turned up with food but she only tested for those specific things that we knew she was intolerant to at the time which were almonds, peanuts, wheat, gluten, eggs, dairy and soy. She has been tested several times since then and things do change. Still can't have the almonds or peanuts but can have the other but... She does have a thyroid problem so we try not to do soy. Yes, there is soy lecithin or soybean oil in stuff and we tend not to pay that much mind but... I do not cook with soybean oil at home. I just realize that it is used in restaurants and some prepared foods. Gastro Dr. did check for a wheat allergy and she doesn't have one.

And she also has pre-diabetes. Long story short there she was gaining about 10 pounds a week and had darkened skin...acanthosis nigricans which I know is a sign of insulin resistance. So I took her to my Endo. who discovered that she was on the wrong dose of her thyroid med and also discovered that she produces waaaay too much insulin. So he put her on a diabetes med and the main side effect of that is big D. We had to keep taking her off of the med because of this. AFAIK there is no other med that can be used in her case. Another Dr. said there were other options but I don't know what those are. She has never had high blood sugar AFAIK. Just insulin resistance and produces too much insulin. Which is why we wound up going to the Gastro. He lowered her dose of Metformin from 5 pills a day to three and put her on Welchol which didn't thrill me. That's a cholesterol med but the main side effect of that is constipation. So it does seem to help some. Some of the time.

But today? The big D is back again. Literally all day. Poor kid is on the toilet more than off. And we really just do not know why. We can't seem to link it to any particular food or drink. We have kept a food log and the only thing we found from that is that she can not have the banana containing drinks from Jamba Juice. For some reason they make her throat itch. But any other bananas are fine.

But I feel very bad for her and wish this would stop! Drs. have said that the BRAT diet is no longer used but I always seem to resort to that thinking it will give her stomach a break. Just doesn't seem to help though I am sooo frustrated! She thought maybe it was a menstrual thing (sorry guys). She is just now starting to get a regular cycle and for her, she seems to get the big D at the end of it. Odd because I was just the opposite! Had it at the beginning. If I eat white rice and applesauce for a day my big D will often clear up. Although I myself had it for literally like 3 months running and I do mean running! Bad joke. No cause was found there and no med helped. But... I did not know of my own food intolerances back then and I was eating a lot of eggs and cottage cheese, both of which I know now that I can not have.

So... Currently she is on the South Beach diet. Eats brown rice, whole grain pastas and breads that are not gluten-free but... When she was gluten-free (and we were very careful to avoid cc and such) she still had the same problem so I know it's not that. She eats chicken, once in a while ground beef, steak or tuna. She likes salad mostly with honey mustard dressing or no dressing at all. Baby carrots. Canned green beans. Sometimes corn or peas. Popcorn. Yes, we do take a few liberties with these diets. Some dried beans. Cheese. Apples. Unsweetened applesauce. Corn tortillas. Sweet potatoes. That is basically her diet. I do have to be super careful with seasonings because she can't have basil and I can't have a variety of herbs and spices so much of what we eat is cooked from scratch. She mostly prefers a simple diet of plain food, perhaps with some salt and a little pepper but she's not so big into sauces. She will eat tomato sauce and I do put onions and peppers in that. She will eat raw red bell peppers but she's not a big veggie lover except for the carrots and green beans.

I do intend to start another food log but those are a PITA and because we both have the kind of intolerances that have a delayed reaction, so far when I have tried this they haven't done us much good.

Oh and yes, I am on her like a fiend to wash her hands frequently and the Drs. have mentioned this too. So... Does anyone have any other suggestions? I would just like her to be well!

I take a huge variety of supplements myself and I don't know if it is those or just my age, but I rarely seem to get sick now. At least not with contagious stuff. I tried giving her those things but they don't really seem to help. Oh and she does take a probiotic. She had her appendix out just before her 3rd birthday but then afterwards they determined that it wasn't that at all but peritonitis.

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Poor kid :(

Just some thoughts:

On the UTI thing, if you live in a humid climite, i've heard that you can get them more than in a dry one. Not sure if this holds any truth, however.

Is she by chance sensative to latex? People with major allergic reactions to it have to avoid soy and bannanas (along with a few other things i cannot list off of the top of my head) because they contain a form of it.

Another thought, try to remove all canned items for a while and cook your own green beans. There could be something with that that may be causing an issue.

Has she had her gallbladder checked? It can be a cause of "D" running wild (if ya get what i mean), especially if it isn't working right.

Cycles do weird things to your body. Perhaps it triggered something?

Just some ideas to try. I know the feeling with the "D" though. I had it and vomiting for around 2 or so months. Not fun not fun.

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Poor kid :(

Just some thoughts:

On the UTI thing, if you live in a humid climite, i've heard that you can get them more than in a dry one. Not sure if this holds any truth, however.

Is she by chance sensative to latex? People with major allergic reactions to it have to avoid soy and bannanas (along with a few other things i cannot list off of the top of my head) because they contain a form of it.

Another thought, try to remove all canned items for a while and cook your own green beans. There could be something with that that may be causing an issue.

Has she had her gallbladder checked? It can be a cause of "D" running wild (if ya get what i mean), especially if it isn't working right.

Cycles do weird things to your body. Perhaps it triggered something?

Just some ideas to try. I know the feeling with the "D" though. I had it and vomiting for around 2 or so months. Not fun not fun.

Not normally humid.

No problems with latex, AFAIK.

Won't eat any green beans other than canned.

Has not had gallbladder checked but this doesn't seem like how it was for my dad when his was acting up. Still will mention it next time she goes in.

Thanks!

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Daughter is now 14 and has had stomach and other issues her entire life. I tried to breast feed her because allergies run in the family but... I couldn't produce enough milk. I did give her what I had because she preferred it but every kind gave her problems. Anything that was milk based caused projectile vomiting and sometimes the big D. The soy stuff constipated her and gave her an anal fissure. At the time I think the most allergenic kind on the market was Nutrium and that just didn't work for her. She also wouldn't gain much weight.

I put her on milk right at her first birthday. And oddly enough she did better. Seemed to have no stomach problems for a while and began gaining weight rapidly. She also had all of her teeth by a year and there was pretty much nothing she wouldn't eat at that age. Was very good to try things.

She did have a few problems up to age 4. Odd skin rashes and allergic reactions to mosquito bites. Dr. said I was bathing her too often and causing her skin to dry out. So I cut back to one bath a week unless she looked really dirty and just made do with baby wipes otherwise. She did have some cold/flu type things then. Also allergies. Sent to allergist who did not test for foods. Only inhalents and grass was a big one. We were living in CA then.

Moved to NY when she was 4. Major troubles began. Chronic UTIs. Frequent big D and stomach pains. Ear infections. She was sent to the allergist and they did not test for food allergies but inhalents and she did have those. She has tried every allergy product on the market. They either do nothing, or cause side effects like nose bleeds. No cause found for the UTIs at that point. Dr. said she had frequent bouts of strep and in a kid of that age it affected the stomach. So I was giving her drinkable yogurt. It was the only thing she would eat/drink aside from tiny sips of water given to her while she was sleeping.

Moved here to WA when she was 6. UTI's continued. Cause of those was found. Caffeine and constipation. The constipation caused her not to be able to fully empty her bladder and the caffeine was irritating her uretha. She did eliminate caffeine for a long time but now at age 14 is drinking coffee. I know, I know but we live in the Seattle area and we start young here! Mostly she drinks decaf but she does have the real thing on occasion. So far so good there.

But... She gets every stinking thing that goes around and then some. She is sick ore than not. In past years teachers would be furious with me and act like I was just keeping her home because I wanted to. One Dr. (someone just filling in) said maybe she was depressed and thought she was faking an illness. But two days later when she was no better, I had to take her back. Bad ear infection! So she gets those, throat stuff, sinus infections and worst of all chronic big D. When she gets the big D, it can last for almost a week or even a week to 10 days. She did at one point get gastritis from an antibiotic she was on. She has full on allergic reactions to many meds. And she had whooping cough last year.

My main frustration now is the big D. I do not think she has celiac. She has never had an endoscopy but the gastroenterologist did do some sort of blood test that I think was for that. She is currently eating wheat and gluten. He did a whole slew of tests and they turned up nothing. He is convinced that it is a food allergy or intolerance.

She has been to an allergist here. Apparently most of her inhalent allergies are much lessened to gone. Nothing turned up with food but she only tested for those specific things that we knew she was intolerant to at the time which were almonds, peanuts, wheat, gluten, eggs, dairy and soy. She has been tested several times since then and things do change. Still can't have the almonds or peanuts but can have the other but... She does have a thyroid problem so we try not to do soy. Yes, there is soy lecithin or soybean oil in stuff and we tend not to pay that much mind but... I do not cook with soybean oil at home. I just realize that it is used in restaurants and some prepared foods. Gastro Dr. did check for a wheat allergy and she doesn't have one.

And she also has pre-diabetes. Long story short there she was gaining about 10 pounds a week and had darkened skin...acanthosis nigricans which I know is a sign of insulin resistance. So I took her to my Endo. who discovered that she was on the wrong dose of her thyroid med and also discovered that she produces waaaay too much insulin. So he put her on a diabetes med and the main side effect of that is big D. We had to keep taking her off of the med because of this. AFAIK there is no other med that can be used in her case. Another Dr. said there were other options but I don't know what those are. She has never had high blood sugar AFAIK. Just insulin resistance and produces too much insulin. Which is why we wound up going to the Gastro. He lowered her dose of Metformin from 5 pills a day to three and put her on Welchol which didn't thrill me. That's a cholesterol med but the main side effect of that is constipation. So it does seem to help some. Some of the time.

But today? The big D is back again. Literally all day. Poor kid is on the toilet more than off. And we really just do not know why. We can't seem to link it to any particular food or drink. We have kept a food log and the only thing we found from that is that she can not have the banana containing drinks from Jamba Juice. For some reason they make her throat itch. But any other bananas are fine.

But I feel very bad for her and wish this would stop! Drs. have said that the BRAT diet is no longer used but I always seem to resort to that thinking it will give her stomach a break. Just doesn't seem to help though I am sooo frustrated! She thought maybe it was a menstrual thing (sorry guys). She is just now starting to get a regular cycle and for her, she seems to get the big D at the end of it. Odd because I was just the opposite! Had it at the beginning. If I eat white rice and applesauce for a day my big D will often clear up. Although I myself had it for literally like 3 months running and I do mean running! Bad joke. No cause was found there and no med helped. But... I did not know of my own food intolerances back then and I was eating a lot of eggs and cottage cheese, both of which I know now that I can not have.

So... Currently she is on the South Beach diet. Eats brown rice, whole grain pastas and breads that are not gluten-free but... When she was gluten-free (and we were very careful to avoid cc and such) she still had the same problem so I know it's not that. She eats chicken, once in a while ground beef, steak or tuna. She likes salad mostly with honey mustard dressing or no dressing at all. Baby carrots. Canned green beans. Sometimes corn or peas. Popcorn. Yes, we do take a few liberties with these diets. Some dried beans. Cheese. Apples. Unsweetened applesauce. Corn tortillas. Sweet potatoes. That is basically her diet. I do have to be super careful with seasonings because she can't have basil and I can't have a variety of herbs and spices so much of what we eat is cooked from scratch. She mostly prefers a simple diet of plain food, perhaps with some salt and a little pepper but she's not so big into sauces. She will eat tomato sauce and I do put onions and peppers in that. She will eat raw red bell peppers but she's not a big veggie lover except for the carrots and green beans.

I do intend to start another food log but those are a PITA and because we both have the kind of intolerances that have a delayed reaction, so far when I have tried this they haven't done us much good.

Oh and yes, I am on her like a fiend to wash her hands frequently and the Drs. have mentioned this too. So... Does anyone have any other suggestions? I would just like her to be well!

I take a huge variety of supplements myself and I don't know if it is those or just my age, but I rarely seem to get sick now. At least not with contagious stuff. I tried giving her those things but they don't really seem to help. Oh and she does take a probiotic. She had her appendix out just before her 3rd birthday but then afterwards they determined that it wasn't that at all but peritonitis.

Hi.

So I have spent MANY years trying to track down the source of my GI problems was. I was at wits end because I tested negative on all testing, scans, probing, and anything else the medical community threw at me. I then found a doctor who asked if I was ever tested for SIBO (small intestinal bacterial overgrowth). I said I had never been. She hooked me up with testing and... WAAALAHHHH...I tested positive and now on antibiotics, with a plan to me with someone to go over a SIBO friendly diet with me.

Has SIBO been discussed with you? If not, you may want to look into it.

Good luck to you!

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Hi.

So I have spent MANY years trying to track down the source of my GI problems was. I was at wits end because I tested negative on all testing, scans, probing, and anything else the medical community threw at me. I then found a doctor who asked if I was ever tested for SIBO (small intestinal bacterial overgrowth). I said I had never been. She hooked me up with testing and... WAAALAHHHH...I tested positive and now on antibiotics, with a plan to me with someone to go over a SIBO friendly diet with me.

Has SIBO been discussed with you? If not, you may want to look into it.

Good luck to you!

I only looked into it because I saw it talked about here but the stuff that both of us go through just doesn't seem to apply to either of us. Although I often have skin rashes and tend towards anemia if I don't eat meat (and I don't like meat much), she has no skin problems now aside from some pimples on occasion and oily skin but she is a teen. We do both have food sensitivities but the rest of what I see on the list of symptoms just doesn't usually seem to apply. When she had this last day long bout of D., there was no stomach pain at all. I suppose it could have been something going around because I had it myself two days prior. I had no stomach pain either. Just realized all of a sudden that I had to go! It's just that when she gets something that is going around in others... They'll have it for a day or two and she'll have it for a week to 10 days. Whatever this was, thankfully is gone now.

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I only looked into it because I saw it talked about here but the stuff that both of us go through just doesn't seem to apply to either of us. Although I often have skin rashes and tend towards anemia if I don't eat meat (and I don't like meat much), she has no skin problems now aside from some pimples on occasion and oily skin but she is a teen. We do both have food sensitivities but the rest of what I see on the list of symptoms just doesn't usually seem to apply. When she had this last day long bout of D., there was no stomach pain at all. I suppose it could have been something going around because I had it myself two days prior. I had no stomach pain either. Just realized all of a sudden that I had to go! It's just that when she gets something that is going around in others... They'll have it for a day or two and she'll have it for a week to 10 days. Whatever this was, thankfully is gone now.

I also did not have the usual symptoms.

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I wonder if her thyroid is controlled? I read she's on meds, but is it working?

I had hideous C before I started thyroid supplamentation. And it would fluctuate with D. Of course, I was on gluten...

I also was sick all the time prior to thyroid meds.

I would ask to see the celiac tests they ran , to ensure it was a full panel. She definitely is AI..and sometimes gluten is a problem, even if it just aggrivates everything else. What I'm trying to say is that even though she trialed gluten-free and it apparently didn't affect the D, perhaps it's still aggravating her body.

Come to think of it, I'd want copies of all her tests...

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I wonder if her thyroid is controlled? I read she's on meds, but is it working?

I had hideous C before I started thyroid supplamentation. And it would fluctuate with D. Of course, I was on gluten...

I also was sick all the time prior to thyroid meds.

I would ask to see the celiac tests they ran , to ensure it was a full panel. She definitely is AI..and sometimes gluten is a problem, even if it just aggrivates everything else. What I'm trying to say is that even though she trialed gluten-free and it apparently didn't affect the D, perhaps it's still aggravating her body.

Come to think of it, I'd want copies of all her tests...

I always get all copies of our labs. Her thyroid appears fine. She hasn't had any C. in years. I can't remember how old she was when she did have that. But the big problem there was that she was not drinking much of anything during the day and when at home she was drinking pretty much only Diet Coke. She would not have so much as a sip of anything before school and then nothing at all at school. She was bringing her water bottle home, full. She has a fear of water fountains and will not use them. She thinks they are germy. That particular year, some kid had spilled water in the class via a water bottle the the teacher banned them except for at lunch. And since they only got 20 minutes for lunch, she was only eating and not drinking.

We have had no problems since then because the Dr. showed her the X Ray with the little balls of poop in her. She has made sure to drink lots of water since. Luckily when she had the C. problem it was towards the end of school. She had a different teacher the next year and she was allowed to have water.

She has been fine now since that problem last Tue. She even ate the same exact foods that she ate the night before the problem. No problems! So I suspect that it might have been something that was going around but she does seem to get everything that goes around.

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When they test her thyroid is it just tsh or do they do free t3/t4 and reverse t3? Because my tsh would look great but I still had issues (that I used to attribute to celiac). Only after being gluten-free and working on adrenals/thyroid with different supplaments and exercise can I see which is which. I couldn't believe how many digestive issues I had from my thyroid and hormones (and still do, from time to time).

And that's a lot for a young lady to sort out:). I hope this gets easier for all of you as she grows up and is able to talk about what is happening with her body. It's so difficult to be 14, much less 14 and dealing with AI issues.

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When they test her thyroid is it just tsh or do they do free t3/t4 and reverse t3? Because my tsh would look great but I still had issues (that I used to attribute to celiac). Only after being gluten-free and working on adrenals/thyroid with different supplaments and exercise can I see which is which. I couldn't believe how many digestive issues I had from my thyroid and hormones (and still do, from time to time).

And that's a lot for a young lady to sort out:). I hope this gets easier for all of you as she grows up and is able to talk about what is happening with her body. It's so difficult to be 14, much less 14 and dealing with AI issues.

He tests everything.

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    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

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    • Posterboy, thank you sooooo much. I can’t tell you how greatful I am for your long and detailed answer. I have many additional questions (I asked you few more additional questions in my other post about celiac and reflux) I am just trying to find my underlying condition. I am afraid I’ll have to stay with ppi for two additional months, since I have esophagitis grade b, confirmed with biopsy a week ago. It was first time that I have inflamed esophagus. Last endoscopies showed only nonfunctional LES. I think this inflamarion is because od a panic attack after drinking coffee with a lot of sugar and nausea after that. Some coffees make me sick and some don’t. I would just like to find out what relaxes my LES and what is my underlying condition.  Ppis obviously don’t help, since my problema with bloating and gases and reflux are continuing. Please if you have any additional idea what could it be, tell me!!! Best, aya
    • Oh, wow, thanks, I was told by my doctor that I had the "full" panel but I guess not. Unfortunately I have the type of insurance that means I have to see her again before I can do anything else and she is out on vacation until July 10 so there is almost no point in trying to make another appointment before the specialist one. I doubt urgent care would do it?
    • Thank you all for your help!!! It’s a bit clearer now.  I had problems with gases and bloating and reflux a year ago and doc prescribed Lansoprazol. He said my lower esophageal sphiincter doesn’ t work properly.  I was taking lansoprazol 30mg for half a year with huge problems with nausea and even more bloating. Than I lowered the dose to 15 for next half a year and felt better and than stopped taking them. I’ve been off for a months when I started noticing numb tongue and reflux again. So I started taking ppi again. And it’s worse again. I know I have to stop using ppi, but I think I have underlying condition that is making my bloating and reflux and I have to solve it first so that reflux, which is my biggest concern, will go away. I have been anemic long years before taking ppi, now I have low vitamin d, and quite high result IGA 16 (celiac is >20). Can be reason for low vitamin d in ppi too or is more likely because of celiac? Doctors don’t want to make any additional test because they say celiac disease can’t be the reason since this test is negative. And so I am still searching what could be my primary problem. They just want to operate my LES and that’s it for them. But I know this won’t solve my problem since the reason has to be somewhere else. The problem is that the highest dose of lansoprazole is helping me for 12 hours and not 24 like it should. It’s just making my nausea worse and doesn’t help like it should I get bloated with reflux gases, burping 1 hour after eating. My last meal of the day is at 8 p.m. And the worst reflux attac is usually around midnight and 1 a.m. Aya
    • The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
    • Hi everyone, I'm currently in the process of getting tested for celiac and have been so stressed about it, it would be amazing to hear from other people who have gone through a similar process to mine. Does this sound like Celiac? Sorry in advance for the following novel! Basic backstory: I went from ages 10-22 without seeing a medical doctor except in emergencies due to being poor. I'm 23 now, and just recently (in February) got health insurance for the first time in my life ever. I always thought I had IBS (frequent diarrhea) which made sense because I was pretty severely abused as a child and would often have to have diarrhea after experiencing those "episodes." My girlfriend's parents paid for me to see a therapist and psychiatrist beginning at age 20 when I was severely depressed and anxious, and they thought it was IBS too. I'm no longer seeing the therapist but wish I was now that this is a problem. The diarrhea details (lmao sorry): I almost never get diarrhea anymore because I was convinced it was IBS and started eating more slowly, taking care to not eat heavy meals when anxious, moving around less after eating, and cutting out dairy and red meat. I will occasionally get diarrhea for no known reason but who knows? It goes like this when I do have it: somewhat sudden pain in my lower abdomen, same area as period cramps. In fact I often mistake the two. I have diarrhea (a lot...), then the pain vanishes. No other stomach or abdominal pains. I never get abdominal pain without diarrhea, and I never continue to feel ill after having diarrhea. I also had a scary incident last August (2017) where I noticed a um...clear stringy substance in my stool. I thought it was a tapeworm, went running panicking to urgent care and gave them a stool sample. They ran a full culture on it (took two weeks) and it was negative. I insisted on doing a second test and it was negative again. So the urgent care doctor said it was probably mucus in my stool. I got the full celiac blood work panel a few weeks ago and all my vitamins, minerals, nutrients etc. were perfect. So I am absorbing my nutrients well enough. BUT the metabolic Celiac test was iffy. I got one "weak positive." I will copy in my test results, excluding the vitamins/nutrients bits. It definitely seems to me that it indicates Celiac but my primary care doctor said she would "interpret it as negative." However she gave me a referral to a gastro specialist who I have an appointment with on July 13. It will be an initial consultation; I can't get an endoscopy unless that specialist agrees to it. So the actual endoscopy may not happen until late July or even August, September... Full list of symptoms: Diarrhea, persistent rash on my chest (little red bumps, always flares up when taking a hot shower or getting extremely anxious--went to a dermatologist for this when I was 9 and he just said it would go away but it never did), occasional small mouth ulcer (haven't had one in about a year and a half), and often feeling fatigued and irritable. I also feel very cold easily, much more easily than the average person. I've also ruled out the following with previous tests: anemia, diabetes, and thyroid issues. Basically every blood test I've ever done has come out perfect until this one weak positive! I should also note here that I have a second cousin with Celiac (my mother's first cousin). I can accept it if it's Celiac. In fact I hope it is because I would love to do away with diarrhea and the rash!!! My BIG fear is that it's Chrohns instead. But I have never had any bleeding in that region. Overall Celiac Disease Panel results (all results just said "normal"): WBC, RBC, Hemoglobin, Hematocrit, MCV, MCH, MCHC, Neutrophils, Immature Granulocytes, Lymphs, Monocytes, Eos, Basos, Platelets, Neutrophils (Absolute), Immature Grans (Abs), Lymphs (Absolute), Monocytes (Absolute), Eos (Absolute), Baso (Absolute), RDW. Metabolic Celiac Test results attached as an image... Thanks all. x Edit: Forgot to mention that I am currently still eating plenty of gluten, and even have been known to eat an entire baguette by myself in one sitting haha. I do not get diarrhea after this. If my diarrhea is connected to gluten, it's certainly very delayed.  
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