Rate this topic

Recommended Posts

I feel so depressed right now and I am resolved to give in and accept things for how they are meant to be. I get sick now anytime I have carbohydrates and sugars. It just progresses to more and more complicated diet. Well call me an addict or a bafoon but I cannot live my life with no carbohydrates and no sugars and you know what...I was not made to live without carbohydrates and sugar. In my current mindset, I am going to just do what I want while I can and enjoy my life as much as I can because I have found it impossible to stay away from sugar. I regret doing that stupid gluten challenge. I feel as though that three week period completely messed up my immune system and sent me on the path to hell. I just don't care anymore

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hey razzle

Just wanted to let you know I was wrecked like you after my gluten challenge. It took me a few weeks to start feeling better, once gluten-free. My sugar levels were a mess. I found I needed to eat good nutritious foods and lay off the junk. I have been better than for years now.

The challenge was hell for me, but my silver lining was that it convinced me never to eat gluten again, and that my problems are real. It convinced my GI to give me a non celiac gluten Intolerance diagnosis after my genes were negative.

Hang in there, be kind to yourself

Mw x

  • Upvote 1

Share this post


Link to post
Share on other sites

Thanx for the encouragement. My problem is that all I crave now is carbs and sugar and im still losing weight. I went low carb for a while and felt immensely better until I started a more physically demanding job. Since I started it I cannot stay away from carbs and sugar. I still think I have candida and I dont have hope it is conquerable. It seems it is a lifelong thing and I know that is not something I cant do for a year let alone a lifetime. I have alot of money on a credit card that I am trying to pay off from purchasing my own kitchen equipment to try and expand my diet without making myself sick. After that I guess I may try at getting more tests done. Then thanks to Obama I have a delimma of having to pay for health insurance premium and deductible I cannot afford by the beginning of next year. I have had every food allergy test done you can imagine. I feel like I am playing slots with my life and I am running low on tokens

Share this post


Link to post
Share on other sites

Thanx for the encouragement. My problem is that all I crave now is carbs and sugar and im still losing weight. I went low carb for a while and felt immensely better until I started a more physically demanding job. Since I started it I cannot stay away from carbs and sugar. I still think I have candida and I dont have hope it is conquerable. It seems it is a lifelong thing and I know that is not something I cant do for a year let alone a lifetime. I have alot of money on a credit card that I am trying to pay off from purchasing my own kitchen equipment to try and expand my diet without making myself sick. After that I guess I may try at getting more tests done. Then thanks to Obama I have a delimma of having to pay for health insurance premium and deductible I cannot afford by the beginning of next year. I have had every food allergy test done you can imagine. I feel like I am playing slots with my life and I am running low on tokens

Razzle.....have you been tested for diabetes? You say that you are eating carbs and sugar yet still losing weight. That can be a symptom of diabetes. I am sorry to have to bring that up but you sound so miserable....I feel bad about that. We have all been there and it is really hard to remain positive. It doesn't help to have to be forced to pay for health care by the government......I totally get that. I do have insurance through my job but it isn't that cheap for group policies either. This whole health care thing is gonna blow up and it's crazy to force people to buy into it or be punished. Like that doesn't add a lot of stress...... <_<

Hang in there because if you are feeling bad because of a gluten challenge, it may take a while for everything to calm down. But you already know that. Take care of yourself and I hope you feel better really soon.

  • Upvote 1

Share this post


Link to post
Share on other sites

No diabetes screened for that regularly all my life because my grandmother has it and I used to be overweight and had a sedentary lifestyle. Blood Sugar is always good fasting or otherwise. I never even became borderline.

My symptoms include: abdominal swelling and extreme fatigue, brain fog, itchy and burning, sore scalp, pain in the back of my head (like someone hit me with a baseball bat) and anxiety, achey joints, inability to fully exhale due to sharp pain in upper left quadrant of abdomen. Citric acid causes severe symptoms of all these as well as making me stutter. I will have problems putting the words together on my lips though i can in my mind. Gluten only causes abdominal swelling part, anxiety, and fatigue as well as bladder incontinence.

Share this post


Link to post
Share on other sites
Ads by Google:


Remember can't never could do anything :)

Can you satisfy your need for sugar by eating naturally sugery things? Like an apple with a little honey drizzled on it?

Carbs and sugar end up being the same thing in the long run (if i remembered my Bio lectures correctly).

What are you currently eating? Are you getting enough nutrients in your diet? Sometimes we crave and want something more when we're not getting enough of.

Share this post


Link to post
Share on other sites

Hi Razzle,

Have you looked into/been tested for SIBO? I've heard that many people who continue to develop food intolerances, to the point of losing many whole, good, and nutritious foods, have had SIBO. Abdominal bloating, cramps, pain, "fullness" and weight loss are just some of the symptoms.

HUGS,

Laura

  • Upvote 1

Share this post


Link to post
Share on other sites

I think I will just cough up the cash and get a bloodwork for different intestinal infection agents. I guess I gotta do what I gotta do. I am just afraid that it will be an endless and futile chase that only results in mounting debt.

Share this post


Link to post
Share on other sites

i eat eggs, rice grits, or buckwheatmeal in the mornings. Lunch is usually baked chicken or sauteed turkey, baked turkey loin. vegetables are broccoli, cauliflower, summer squash, green beans, potatoes from time to time. I eat mostly lean protein except the past couple of weeks i have been having quite a bit of baked goods like rice bread, breaded chicken, scalloped potatos, mashed potatoes, meatloaf with millet...it really is random except meat. I try to eat different things

Share this post


Link to post
Share on other sites

I know the feeling well - and I share your pain. I too have trouble with Candida - and I notice my carb/sugar cravings are SO much worse after I've "cheated" and had something in that category. Most recently I was eating gluten-free snickerdoodles with cream cheese frosting...so good, but SO bad! In this instance, your body is craving things that are bad for it. I try to fight the cravings by telling the bad yeasties that they will NOT get the best of me! I'm in control, not them! Doesn't always work, but after a couple days of eating right, I don't have those cravings anymore. My go to "sweet" fix now is cashews mixed with a spoonful of Enjoy Life choc chips. Lunch I try to eat turkey/salami rollups (no bread) with an apple or some broccoli slaw. Dinner is always a meat and a vegetable - faves are pork chops, fish or chicken with a side of roasted broccoli or sauteed spinanch w/ snow peas (and tons of garlic cause that's how I roll) :-) Let me know if you need some recipes - I doesn't have to be so terrible. Hang in there!!!!!

Share this post


Link to post
Share on other sites


Ads by Google:


Ditch the millet ! Ditch the millet ! Cross contamination city, and it can be as bad as oats for some of us. :ph34r:

You need more good fats- LOTS of fats - from coconut milk or oil, lard, bacon, vegetable or olive oils, nuts, avocado, etc, and some natural carbohydrates in the form of starchy vegetables and fruits, if you are going to eat like this ("sugarless") and have half a chance of succeeding. Can you do legumes in the form of peanut butter or very well drained and rinsed canned beans ? Sweet potatoes ? Squash ? One of the most filling things to eat is canned pure pumpkin puree mixed with canned coconut milk, it can be savory for a soup base, or sweet for a breakfast, and sometimes this mixture baked with eggs to form a custard. Can you tolerate some form of stevia for a sweet taste ? What about agave or honey ?

You need to get something else in there at breakfast. A pure rice first meal = not good. Add some fat to that, somehow. Can you puree part of a banana with some green leafy vegetables and/or parsley and some berries for a smoothie ? What about a baked sweet potato with some almond butter ? What about leftovers for breakfast ? Cannot bear the thought of fish that early? What about shrimp or chicken? You can take some cooked brown rice pasta, and mix it up with a fast homemade thai- style peanut sauce and coconut aminos and top it with some shredded vegetables.

You are hungry for micronutrients, and that is why you are having such cravings. The body interprets needs "nutrients" as basic ferocious hunger for sugar. Most regular people feel this and try to satiate it with highly processed "white" carbs such as white rice, white bread, white potatoes ( I am a big fan of eating some fat if you eat a white potato, such as frying it, so it slows the whole processing thing down) and bad things like white flour pastries, cakes, cookies, etc made with lots of white sugar. These things are processed quickly and spike a blood sugar high (wheeeeeee :o !) and then comes a blood sugar crash (and boom goes the dynamite :ph34r::wacko::o ). This sets up a bad cycle of eating "white things" - (as my neighbor calls them :lol: ) and wanting more and more of them.

If you do go to using gluten free flours and baking ingredients, try using the highest protein ones you can find, and combining two or more of them for the maximum nutrition. For example, you can use brown rice flour instead of white, and add a seed or nut meal flour. A sorghum flour mixed with amaranth or buckwheat can make a good all purpose "breading" coating, for example.

Be careful with your buckwheat sources, you do know that the Bob's red mill brand is all oat cross contaminated, don't you ? :( I am grinding the Burkett Mills (Pocono) cereal in a coffee grinder to get my own buckwheat flours. Buckwheat is technically a seed, as is amaranth. You can also try quinoa if you can stand the taste.

You can make a fantastic pancake/flatbread with just buckwheat flour and soaked chia seeds (and the other ingredients) - another way to add oil fat to your diet.

You can also tamp down the cravings by making sure you take a gluten free B vitamin complex, and a calcium supplement (not tums, try a calcium citrate) and some form of vitamin D and magnesium.

Share this post


Link to post
Share on other sites

Ditch the millet ! Ditch the millet ! Cross contamination city, and it can be as bad as oats for some of us. :ph34r:

You need more good fats- LOTS of fats - from coconut milk or oil, lard, bacon, vegetable or olive oils, nuts, avocado, etc, and some natural carbohydrates in the form of starchy vegetables and fruits, if you are going to eat like this ("sugarless") and have half a chance of succeeding. Can you do legumes in the form of peanut butter or very well drained and rinsed canned beans ? Sweet potatoes ? Squash ? One of the most filling things to eat is canned pure pumpkin puree mixed with canned coconut milk, it can be savory for a soup base, or sweet for a breakfast, and sometimes this mixture baked with eggs to form a custard. Can you tolerate some form of stevia for a sweet taste ? What about agave or honey ?

You need to get something else in there at breakfast. A pure rice first meal = not good. Add some fat to that, somehow. Can you puree part of a banana with some green leafy vegetables and/or parsley and some berries for a smoothie ? What about a baked sweet potato with some almond butter ? What about leftovers for breakfast ? Cannot bear the thought of fish that early? What about shrimp or chicken? You can take some cooked brown rice pasta, and mix it up with a fast homemade thai- style peanut sauce and coconut aminos and top it with some shredded vegetables.

You are hungry for micronutrients, and that is why you are having such cravings. The body interprets needs "nutrients" as basic ferocious hunger for sugar. Most regular people feel this and try to satiate it with highly processed "white" carbs such as white rice, white bread, white potatoes ( I am a big fan of eating some fat if you eat a white potato, such as frying it, so it slows the whole processing thing down) and bad things like white flour pastries, cakes, cookies, etc made with lots of white sugar. These things are processed quickly and spike a blood sugar high (wheeeeeee :o !) and then comes a blood sugar crash (and boom goes the dynamite :ph34r::wacko::o ). This sets up a bad cycle of eating "white things" - (as my neighbor calls them :lol: ) and wanting more and more of them.

If you do go to using gluten free flours and baking ingredients, try using the highest protein ones you can find, and combining two or more of them for the maximum nutrition. For example, you can use brown rice flour instead of white, and add a seed or nut meal flour. A sorghum flour mixed with amaranth or buckwheat can make a good all purpose "breading" coating, for example.

Be careful with your buckwheat sources, you do know that the Bob's red mill brand is all oat cross contaminated, don't you ? :( I am grinding the Burkett Mills (Pocono) cereal in a coffee grinder to get my own buckwheat flours. Buckwheat is technically a seed, as is amaranth. You can also try quinoa if you can stand the taste.

You can make a fantastic pancake/flatbread with just buckwheat flour and soaked chia seeds (and the other ingredients) - another way to add oil fat to your diet.

You can also tamp down the cravings by making sure you take a gluten free B vitamin complex, and a calcium supplement (not tums, try a calcium citrate) and some form of vitamin D and magnesium.

Very interesting. I rarely get cravings and when I do, I am always lacking in some nutrient. Like magnesium. I do use the Cron-O-Meter online often and run all of my food through it. I can then see what I am lacking and take more supps if needed.

  • Upvote 1

Share this post


Link to post
Share on other sites

Sorry about the gluten challenge things. I think if you hang on a while longer you will begin to feel better again. I hope you get some definative answers from any and all tests.

I just realized that my craving for junky sweets is gone. I loath them. I still am attracted to some fruits and starchy foods. I always combine any fruit with meals or protein. I hope you are able to absorb sugar from your food.

Diana

Share this post


Link to post
Share on other sites

gasp I think the millet probably got me. That stinks because I found millet to be the best in frying breaded items. I dont bread all the time but still. I went kinda low sat fat when I found eating too much red meats or cashews made for foul smelling and floating pale eliminations. My color has returned to normal now. I used to fry a lot in coconut oil though. I think I will pick that back up. I think I am going to go ahead and switch to sweetened coconut milk just because it will help fight the temptation to drink juices with citric acid and corn syrup because of the blandness.

Speaking of blandness, I have a real problem with tasting things except sweet and herbs. Why? beats me but I salt everything to death and pepper everything to death and that is why i get hypertensive and will literally burn my tongue and throat with all the spice. I think this is what had caused my salicylate sensitivity. Dont want to back down that path. I wonder if it is because of the thrush I had and how long it will take for the lack in taste to go away since my thrush has been gone a while. or maybe it is poor oral hygeine. I react to acidic liquids in plastic bottles pretty strongly. I have been brushing out my whole mouth with just baking soda for a while now.

I just cant help but think about nine months ago I was a normal person and now my immune system is playing tether ball with my health. oh i also do not tolerate luncheon meats. I have a slicer and still need to learn how to make my own deli slices at home, that will open a whole new world to me. Bacon and turkey slices and i have a sausage maker now.. It may not taste the same but it is something...

Share this post


Link to post
Share on other sites

I think I will just cough up the cash and get a bloodwork for different intestinal infection agents. I guess I gotta do what I gotta do. I am just afraid that it will be an endless and futile chase that only results in mounting debt.

I hear you on this!!! Even with insurance I still owe $1000 for all my tests last year. At least I did finally get diagnosed with SIBO recently and hope the treatment works. Sometimes you just gotta keep trying, but I feel your pain...

Share this post


Link to post
Share on other sites

Well that makes me feel better. I am at over two thousand because I had to buy all this kitchen equipment in an attempt to expand my diet by making my own of everything, condiments and deli meats hopefully, sauces and then just getting my own of things to prevent from getting sick using my mom's stuff. I guess it is expensive to set up a kitchen anyway let along getting weird things like food mills and sausage stuffer. I will be alright. I will find out what it is and get it fixed and I will have endured much difficulty and seemingly impossibility that I will be empowered to accomplish what I desire to accomplish in life.

Share this post


Link to post
Share on other sites

Yeah, I get discouraged sometimes too. Especially when just as I think I have it figured out and then I feel sick again. Blah. Since removing gluten 8 months ago I have also had to remove corn, soy, tomatoes, and chocolate. Dairy was already gone. It sounds like we are eating similarly, with meat and vegetables and a bit if starch thrown in. Quinoa sometimes, potatoes sometimes, and rice a few times a week. Cauliflower, parsnips, and other veggies are often starches for me.

And all we want is to feel good again. It's hard. I keep hoping that after a year or so I might be able to add something back to my diet. But I still get sick from the very occasional attempt to eat at a restaurant. And that is so discouraging! It is a daily effort to keep myself fed, healthy, and without cross contamination from my family. But, it is worth it!

Another consoling thought is the hope that medical advances will some day lead to easier dx and treatment for people like us.

Share this post


Link to post
Share on other sites

Hey razzle, sounds like you turned the corner. Glad things are looking up :)

I got a lovely new purple toaster and bread bin about 2 weeks before I gave up gluten-free bread... It can be an expensive old time..

Share this post


Link to post
Share on other sites

I feel so depressed right now and I am resolved to give in and accept things for how they are meant to be. I get sick now anytime I have carbohydrates and sugars. It just progresses to more and more complicated diet. Well call me an addict or a bafoon but I cannot live my life with no carbohydrates and no sugars and you know what...I was not made to live without carbohydrates and sugar. In my current mindset, I am going to just do what I want while I can and enjoy my life as much as I can because I have found it impossible to stay away from sugar. I regret doing that stupid gluten challenge. I feel as though that three week period completely messed up my immune system and sent me on the path to hell. I just don't care anymore

Can you have Agave in place of sugar, that's what I use?

Share this post


Link to post
Share on other sites

Razzle, I SO FEEL YOUR PAIN. It has taken me six years and dozens of changes to

reach a healthy state. I couldnt have tomatoes for over a year. I don't do well with beans,

red or green peppers, spinach, or citrus. I am now on the lysine diet for 'herpes' thanks to

being infected with cold sores shortly before breaking up with my cheating ex-boyfriend, which

means little to no nuts, which I was using nut butters to bake with a lot before.

The stress of the (horrendous) breakup has left me entirely grain-free as I was experiencing

severe urethritis that was NOT a UTI but just inflammation, so I had to de-inflammatize (is

that a word?) my diet completely. I'm just now getting black and green tea back. Sigh....

I have been on probiotics for years, and upping it a few months ago helped a lot. When my

system feels overwhelmed I do a detox tea for a few days and take charcoal (not together,

of course) and that evens me out. I seem to suffer from a general inability to remove toxins.

All that to say I understand. It sucks. It's hard. And also- everything Takala said! :lol: :lol:

Share this post


Link to post
Share on other sites


Ads by Google:


thx gatita that makes me hopeful i got a whole slew of tests done and we will see what happens with them. I am supposed to get the results for CBC, Tryptase (whatever that is), ANA, celiac panel (half the cost at 300), and some others... I really hope it reveals something. If not,, I will next get checked for an biointestinal imbalance or infection. I also feeli need to see why i am not properly digesting fats.

Share this post


Link to post
Share on other sites

http://labtestsonline.org/understanding/analytes/tryptase/tab/test

ANA as you probably know is looking for any inflammatory issues, too many to mention.

One thing I have learned,.......when ANYONE obsesses on a health issue, and spends a lot of time doing research on their own, you are bound to drive yourself to distraction at one point or the other.

This article leads to another article, on and on.

Before you know it, you have yourself dying from your own self diagnosis.

Quit dwelling on it so much, and you just might feel better.

Share this post


Link to post
Share on other sites

Wow Marc49. I find your post totally useless and disrespectful. Perhaps the fact that five days a week I spend a third of my day at work means I am a workaholic. The word obsession implies that I give unrelenting and undeserved attention to what is going on in my body. I only have one body, one life and when what is going on with my body impairs my ability to suffer this life, then it is 100% deserved attention. When what is going on in my body makes it impossible to provide myself safely with mmy most basic neccessity to survive (nutrients), it is gonna get my attention.

And not that it is truly a point worth discussing but I will humor you: there were plenty of times I decided that I would just pretend like nothing was wrong and it just resulted in a lot of pain and suffering and a cascade of torturous symptoms that sapped my ability to function or even breathe or remmemmber what day it was or spend time with my family. Maybe you're right, if I quit dwelling on it and instead decide to starve myself rather thhan think about how to feed myself I will feel better for a day or two.

  • Upvote 1

Share this post


Link to post
Share on other sites

Razzle,

Have you had any luck with digestive enzymes? (I really liked Enzymedica Digest Spectrum or Digest Gold.) The reason I ask is because fat malabsorption can be caused by pancreatic insufficiency. You might wanna give them a try if you haven't.

Hugs!

Laura

Share this post


Link to post
Share on other sites

http://labtestsonlin...yptase/tab/test

ANA as you probably know is looking for any inflammatory issues, too many to mention.

One thing I have learned,.......when ANYONE obsesses on a health issue, and spends a lot of time doing research on their own, you are bound to drive yourself to distraction at one point or the other.

This article leads to another article, on and on.

Before you know it, you have yourself dying from your own self diagnosis.

Quit dwelling on it so much, and you just might feel better.

I must seriously disagree with you! As a person with mulitple medical problems, I was instructed by different Drs. to do research not only for myself but for my daughter. The bad thing about Drs. is that each one has his or her own specialty. They will concentrate on that and tend to ignore all of the other problems. At least in my experience. I have yet to find one that would put it all together for me. That fell to me. Had I not done research on my own, I would not have known that the statin I was on was causing some of my problems. Or that the diabetes med I was on was in fact raising my blood sugar. Or that some of my problems were caused by menopause. Actually a PA pointed me in that direction! I also wouldn't have learned about many of the deficencies I've had in my diet. Yes, I've been tested for some and some where found. But they didn't find some others.

Yes, I take a ton of vitaming and supplements now. But I have had to go to the Dr. far less than ever before. I can't remember the last time I had a cold or the flu. I did have recent problems that I now know were related to menopause. I had some skin problems, cause unknown. And an eye problem. Again, cause unknown.

I have also found that Drs. are usually of little help when it comes to diet. Unless perhaps it is celiac or a true food allergy. They do seem to understand these things. But they do not seem to understand food intolerances. Because there is no one standard test for these things.

I have never ever thought I was going to die. Although at some points in my life I was sick enough and sometimes made sick by medications that a Dr. prescribed and I couldn't tolerate that I sure wished I *would* die!

Perhaps if you don't suffer from things that you have yet to have ferreted out, then you wouldn't understand the lengths that some of us will go to in order to feel better.

And at times I do have to question whether my life such as it is, is really worth it. Not only do I have to stick myself numerous times each day to check my blood sugar but I have to shoot myself full of insulin most of the time when I eat. Or eat to try to get my blood sugar back up where it should be. I have to watch every bite that I eat, not only for the diabetes but my gastroparesis and my food intolerances. Let's see... I want a big salad. But will I actually digest it today? I have to think about it before I can eat. Or I am not digesting well. Let me run my food through the Cron-O-Meter and see where I am lacking. Oooh! Time to up the vitamin E again. Or... Can I go there? Let me check it out and see where I might be able to park. How far I might have to walk. Will I have to stand in line? Can I bring food in if I need to? Will it be too far away for me to drive to? Because if I spend too much time with my foot on the brake or gas pedal, my leg will cramp up on me. Will I be out in the sun? If I am, my Psoriasis might flare. And then I'll spend a few months (or more) trying to get those itchy red patches to go away.

For me it is always a good thing when I discover a problem and figure out what to do about it. And I seem to be doing pretty well at the moment except for the thinning hair and the occasional bout of low blood sugar. Now if I could just get my daughter well.

  • Upvote 2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   15 Members, 0 Anonymous, 491 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 07/16/2018 - Did weak public oversight leave Arizonans ripe for Theranos’ faulty blood tests scam? Scandal-plagued blood-testing company Theranos deceived Arizona officials and patients by selling unproven, unreliable products that produced faulty medical results, according to a new book by Wall Street Journal reporter, whose in-depth, comprehensive investigation of the company uncovered deceit, abuse, and potential fraud.
    Moreover, Arizona government officials facilitated the deception by providing weak regulatory oversight that essentially left patients as guinea pigs, said the book’s author, investigative reporter John Carreyrou. 
    In the newly released "Bad Blood: Secrets and Lies in a Silicon Valley Startup," Carreyrou documents how Theranos and its upstart founder, Elizabeth Holmes, used overblown marketing claims and questionable sales tactics to push faulty products that resulted in consistently faulty blood tests results. Flawed results included tests for celiac disease and numerous other serious, and potentially life-threatening, conditions.
    According to Carreyrou, Theranos’ lies and deceit made Arizonans into guinea pigs in what amounted to a "big, unauthorized medical experiment.” Even though founder Elizabeth Holmes and Theranos duped numerous people, including seemingly savvy investors, Carreyrou points out that there were public facts available to elected officials back then, like a complete lack of clinical data on the company's testing and no approvals from the Food and Drug Administration for any of its tests.
    SEC recently charged the now disgraced Holmes with what it called a 'years-long fraud.’ The company’s value has plummeted, and it is now nearly worthless, and facing dozens, and possibly hundreds of lawsuits from angry investors. Meantime, Theranos will pay Arizona consumers $4.65 million under a consumer-fraud settlement Arizona Attorney General Mark Brnovich negotiated with the embattled blood-testing company.
    Both investors and Arizona officials, “could have picked up on those things or asked more questions or kicked the tires more," Carreyrou said. Unlike other states, such as New York, Arizona lacks robust laboratory oversight that would likely have prevented Theranos from operating in those places, he added.
    Stay tuned for more new on how the Theranos fraud story plays out.
    Read more at azcentral.com.

    Jefferson Adams
    Celiac.com 07/14/2018 - If you’re looking for a simple, nutritious and exciting alternative to standard spaghetti and tomato sauce, look no further than this delicious version that blends ripe plum tomatoes, garlic, olive oil, basil, and firm sliced ricotta to deliver a tasty, memorable dish.
    Ingredients:
    12 ounces gluten-free spaghetti 5 or 6 ripe plum tomatoes ¼ cup extra virgin olive oil 2 cloves garlic, crushed ¾ teaspoons crushed red pepper ¼ cup chopped fresh basil 2 tablespoons chopped fresh parsley Kosher salt and black pepper ⅓ cup pecorino Romano cheese, grated ½ cup firm ricotta, shaved with peeler Directions:
    Finely chop all but one of the tomatoes; transfer to large bowl with olive oil and ¼ teaspoon salt.
    Cook spaghetti until al dente or desired firmness, and drain, reserving ¼ cup cooking water. 
    Meanwhile, chop remaining tomato, and place in food processor along with garlic, red pepper, and ½ teaspoon salt; puree until smooth. 
    Gently stir mixture into the bowl of chopped tomatoes.
    Add cooked spaghetti, basil and parsley to a large bowl.
    Toss in tomato mixture, adding some reserved pasta water, if needed. 
    Spoon pasta into bowls and top with Romano cheese, as desired.

    Jean Duane
    Celiac.com 07/13/2018 - I went to a friend’s home for dinner.  A few days before, she called and asked me what I could eat.  I asked her what she was planning to make, and she said she was grilling meats with side dishes.  I said, “Great.  Please just grill a piece of chicken for me with salt and pepper, and I’ll be happy to bring a side.” She said, “No need to bring a side.  I’ve got this.” When I arrived, she greeted me and said, “I spent all day cooking tonight’s dinner so you can eat it. Hey would you just check this salad dressing to see if it is OK for you?” I looked at the ingredients and it contained gluten and dairy, both of which I cannot eat.  Then I glanced around the kitchen and saw evidence of wheat cross-contamination, including buns being toasted on the grill, and gluten-containing barbeque sauce spilling on the grill where my “clean” chicken was cooking. She had other guests to tend to, and I couldn’t offer instruction or read the ingredients of everything she used in the meal. 
    At social gatherings, I’ve been challenged too by those who ask if I am really “allergic,” or just eating gluten free as a “fad.” I’ve been told many times by hosts and hostesses that, “a little won’t hurt you,” or “everything in moderation,” or “if it is made with loving hands, it is good for you to eat.”  Of course, all of this is bunk for those with food allergies or celiac disease.  A little bit may kill us, and whether made with loving hands or not, it will certainly make us sick. 
    Those of us with food allergies and/or celiac disease walk a tightrope with friends and relatives. The old rules of etiquette just don’t work anymore.  We don’t want to insult anybody, we don’t want to be isolated, and we also don’t want to risk our health by eating foods that may contain ingredients we cannot tolerate.  So what do we do? 
    Etiquette books advise us to eat what is put in front of us when we are guests in someone’s home. They caution us at all costs not to insult our hostess. Rather, we are instructed to compliment the hostess on her good cooking, flavor combinations, and food choices.  But when foods are prepared in a cross-contaminated environment with ingredients we are allergic to, we cannot follow the old social constructs that do not serve us.  We need to work together to rewrite the rules, so that we can be included in social gatherings without fear of cross-contamination, and without offending anyone.
    Let’s figure out how to surmount these social situations together.  
    Each edition of this column will present a scenario, and together, we’ll determine appropriate, polite, and most importantly, safe ways to navigate this tricky gluten-free/food allergies lifestyle in a graceful way.  If someone disagrees with our new behavior patterns, we can refer them to this column and say, “Here are the new rules for those of us with food allergies or celiac disease.”  When we are guests in someone’s home, we can give them links to this column so they understand the plight we are faced with, bite after bite. Perhaps this will help those of us living with us to understand, be more compassionate, and accepting of our adaptations to keep ourselves safe. 
    This column will present a scenario such as the one above, and ask that you comment on how you would navigate it. Let’s talk about it. Let’s share ideas.  Using the example above, here’s the scenario for this issue:
    What would you do?
    Your kind-hearted friend invites you to dinner and insists on cooking for you.  You arrive and the first thing she says is, “I’ve spent all day making this for you. Oh, I bought this salad dressing for you, but you might want to read the ingredients first.”  You do, and it contains malt vinegar.  You look around the kitchen and notice evidence of cross-contamination in the rest of the meal.  What do you do? 
    Please comment below and feel free to share the tricky scenarios that you’ve encountered too.  Let’s discuss how to surmount these social situations.  What would you do?

    Jefferson Adams
    Celiac.com 07/12/2018 - Previous research has shown that the oral administration of Bifidobacterium infantis Natren Life Start super strain (NLS-SS) reduces of gastro-intestinal symptoms in untreated celiac disease patients. The reduction of symptoms was not connected with changes in intestinal permeability or serum levels of cytokines, chemokines, or growth factors. Therefore, researchers suspected that the reduction of symptoms might be related to the modulation of innate immunity.
    To test that hypothesis, a team of researchers set out to assess the potential mechanisms of a probiotic B.infantis Natren Life Start super strain on the mucosal expression of innate immune markers in adult patients with active untreated celiac disease compared with those treated with B. infantis 6 weeks and after 1 year of gluten-free diet.
    The research team included Maria I. Pinto-Sanchez, MD, Edgardo C. Smecuol, MD, Maria P. Temprano,RD, Emilia Sugai, BSBC, Andrea Gonzalez, RD, PhD, Maria L. Moreno,MD, Xianxi Huang, MD, PhD, Premysl Bercik, MD, Ana Cabanne, MD, Horacio Vazquez, MD, Sonia Niveloni, MD, Roberto Mazure, MD, Eduardo Mauriño, MD, Elena F. Verdú, MD, PhD, and Julio C. Bai, MD. They are affiliated with the Medicine Department, Farcombe Family Digestive Health Research Institute, McMaster University, Hamilton, ON, Canada; the Small Intestinal Section, Department of Medicine and the Department of Alimentation at Dr. C. Bonorino Udaondo, Gastroenterology Hospital and Research Institute at the Universidad del Salvador in Buenos Aires, Argentina.
    The team determined the numbers of macrophages and Paneth cells, along with the expression of a-defensin-5 expression via immunohistochemistry in duodenal biopsies.
    Their results showed that a gluten-free diet lowers duodenal macrophage counts in celiac disease patients more effectively than B. infantis, while B. infantis lowers Paneth cell counts and reduces expression of a-defensin-5.
    This study documents the differential innate immune effects of treatment with B. infantis compared with 1 year of gluten-free diet. The team calls for further study to better understand the synergistic effects of gluten-free diet and B. infantis supplementation in celiac disease.
    Source:
    J Clin Gastroenterol

    Jefferson Adams
    Celiac.com 07/11/2018 - For people with celiac disease, finding decent gluten-free bread is like searching gold. Many have given up on bread entirely and others begrudgingly relate themselves to the ignominious frozen aisle at their supermarket and content themselves with one of the many dry, shriveled, flavorless loaves that proudly tout the gluten-free label. 
    For these people, the idea of freshly baked bread is a distant, if comforting, memory. The idea of going to Paris and marching into a boulangerie and walking out with a warm, tasty, gluten-free baguette that was freshly baked on the premises that morning, is like a dream. Now, in some Parisian bakeries, that dream is becoming a reality. And the tear of joy from the thankful gluten-free masses are sure to follow.
    These days, a single sign on the awning speaks to hungry customers who peruse the tarts and chou buns, and the loaves that fill the cooling on racks behind a glass pane at Chambelland boulangerie and café in Paris’ 11th arrondissement. The sign lettered in French translates: “artisan baker; flour producer; naturally gluten free.” That’s right. Naturally gluten-free. At a bakery. In Paris. 
    Only the flat, focaccia-style loaves, and the absence of baguettes, tells customers that this bakery is something different. Chambelland opened its doors in 2014 and continues to do a brisk business in delicious, freshly baked gluten-free breads and other goods.
    The boulangerie is the work of Narhaniel Doboin and his business partner, Thomas Teffri-Chambelland. They use flour made of grains including rice, buckwheat and sorghum to make delicious gluten-free baked goods. Doboin says that customers queued in the rain on the first day, hardly believing their eyes, some began to cry. 
    For gluten-free Parisians, there was a time before Chambelland, and the time after. If you find yourself in Paris, be sure to search them out for what is sure to be a gluten-free delight.
    Or maybe book your ticket now.
    Read more at: Independent.co.uk

  • Forum Statistics

    • Total Topics
      110,450
    • Total Posts
      950,648
  • Member Statistics

    • Total Members
      80,631
    • Most Online
      3,093

    Newest Member
    Alyssabahel
    Joined
  • Topics

  • Posts

    • Developing hives during exercise is a relatively common occurrence. "Exercise-induced urticaria is directly caused by your body having an allergic response to exercise. Cholinergic urticaria is caused by sweating that results from a rise in your body temperature. Exercising in hot weather makes you more susceptible to cholinergic urticaria. You may also notice these hives while taking a hot bath or when you have a fever." I don't get hives when I exercise but I do itch when I'm hot. I also have dermatographism (a mild form) and my GI specialist said that it has nothing to do with my Celiac. I thought it would go away after I quit eating gluten but it hasn't. My dermatologist said that it's also common and caused by histamines. Hopefully for you the hives do calm down with being gluten free.     
    • With those 2 positives especially at the ranges they are, I can't see it being anything else! 
    • Hi All, After positive TTG IGA but negative biopsy, I had the remaining celiac blood panel run at the recommendation of several on this forum. Now, my total blood results are: TTG IGA - positive (3X normal range) IGA serum - normal EMA - negative DGP IGG- positive (4X normal range) DGP IGA -negative   I have read in a few different places online (one of them a research study) that the DGP IGG test is 100% selective - meaning that mine would not be elevated for any other reason than Celiac disease. My doctor still finds my results inconclusive and suggested a small bowel enteroscopy but admitted that it will not necessarily find the damage either (even if it exists).  What is the consensus on the specificity of the DGP IGG test? Could my antibodies be high for any other reason?   I appreciate everyone's time and advice Allison
    • I had a lot of hive incidences before I was diagnosed. I would get them from pressure. Even just running my fingernails lightly on my skin could cause them.  I also was allergic to 98 of 99 things that they did skin prick testing for before diagnosis. After I was found to be celiac and had been gluten free for a short time the hives resolved completely. My allergist said that because of the undiagnosed celiac my immune system was in hyperdrive and once I got the diet under control much of my suffering would resolve. He was right. In reality out of all those positive reactions I only have real allergies to a couple plants, my cats and my dog. Even those aren't severe enough now to even feel I need an antihistamine. I can't promise your experience will be the same as mine but I hope the hives resolve for you soon.
    • It is quite possible for damage to get missed with the biopsy. How many did the doctor take? He should have taken about 6. Also is the IGA test the only test he did out of the celiac panel? As far as I know a positive result in that test is specific to celiac. Did the doctor tell you to do a strict trial of the diet? If not he should have. Do read the Newbie 101 thread at the top of the Coping section and get yourself strictly gluten free. Some doctors will diagnose based on relief of symptoms on the diet and your antibodies going down. Ask any questions you need to about all you need to keep yourself safe as being gluten free involves more than just the foods you choose. I hope you are feeling better soon.
  • Blog Entries

  • Upcoming Events