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Tamlush

Beginning To Suspect Something Is Up

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Hello everyone-

I have been reading this forum for the past couple of weeks and wanted to post while I wait for my blood test/Enterolab test/DNA test. It's been very helpful.

I'm beginning to suspect I am intolerant or sensitive to gluten, or possibly have celiac. I have not stopped eating gluten. Yet.

Here are my symptoms:

- Ferritin level of 4. Four. For several years.

- Bloating, extreme gas, large stinky stools that float, uncomfortable feeling in abdomen for hours (not after every meal, but many meals).

- Vitiligo that has emerged in the past year

- Irregular periods

- Asthma

- Geographic tongue

- Dry skin (I live in Florida where it is humid)

- Fibroids

Does anyone have any thoughts? I would appreciate any feedback. I'm preparing to do a gluten-free trial very soon.

Thank you all for your help and have a good evening.

Tam

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I received my test results...and now I need more testing.

Basically the Endomysial Antibody IgA, the tTg IgA and the tTg IgG tests were normal.

But my total Immunoglobulin A Serum was low at 72 (my lab has a range of 91-414 as normal).

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Some of your symptoms do match up to a gluten intolerance; I'm sorry you haven't been feeling well.

Witha a low serum IgA, you are really limited in what celiac tests will work for you. You could be a celiac but because you are low in IgA, those tests won't tell you much if anything. The only tests you haven't done yet are the DGP IgG and the endoscopic biopsy.

Once you are done your testing, I think it's wise that you have decide to do a gluten free trial. As you probably know, Non-Celiac Gluten Intolerance (NCGI) is much much more common than celiac (another form of gluten intolerance) and every bit as nasty and uncomfortable. When you go gluten-free, please try to give it a few months. Some of my symptoms (joint pain) didn't get better until after 6months on the gluten-free diet.

Some of your symptoms sound like hypothyroidism too (I only mention it because I have this and some symptoms sound familiar). If after you've looked hypothyroidism (or hashimoto's) you want to do some testing there, request:

TPO Ab (should be about non-existant)

TSH (should be near a 1)

Free T4 and Free T3 (should be in the upper 50-75% of your lab's reference range)

Best of luck to you. I hope you find some answers.

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hi tamlush

im afraid i cant help you with the results - im pretty new here myself. but just to say welcome and hope you get the answers your looking for. not everyone on here is diagnosed celiac, theres a few of us who are self diagnosed.

my results all came back normal- basically all they found was reflux!!! im waiting for allergy tests but they take ages here (uk) so i went gluten and dairy free. you need to check what extra tests they are doing because you need to be eating gluten to test positive for it. if you go gluten free now you could scupper your chance of a positive diagnosis.

ive not found the diet too bad and the upside is - no more reflux and stomach is not as bloated oh and no anxiety :)

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Hehe — I've had IBS for so long I stopped mentioning it to doctors because I know there's nothing they can do. In fact I'm so used to it, when the GP asked if I had any GI symptoms after this test result came through, I said no, before remembering about the IBS! 
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