Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Healing - Running Out Of Patience.


GFreeMO

Recommended Posts

GFreeMO Proficient

I started back on my gluten free diet after being diagnosed for good in December. I have had one really bad slip up a few weeks ago. I am seeing undigested food and mucus. Is there any way to speed up the healing process? I am not a very patient person. I guess I thought that once I went on the diet, my symptoms would all clear up quickly like antibiotics to an infection kind of thing.

I am soy and dairy free..very limited corn.

Thanks - MO

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Everyone is different.

Probiotics and digestive enzymes can help -- sometimes removing other foods.

I sure wish we could all plant a patience tree -- I could have used it's fruit these past years....time finally taught me patience -- hoping you don't have to wait long as long as I did for healing to begin.

Hang in there :)

Link to comment
Share on other sites
kareng Grand Master

Everyone is different.

I sure wish we could all plant a patience tree -- I could have used it's fruit these past years....

We would probably be intolerant to it! :)

Link to comment
Share on other sites
GFreeMO Proficient

Thanks Lisa and haha about the tree. :)

Is it normal to have good days then have a bad one no matter if you are sure you are gluten free? Yesterday was a good day, I thought wow...i'm feeling better. Today I have slid backward. All I had yesterday was chicken carrots rice and applesauce and a banana. All gluten free but I feel like crapola again.

Link to comment
Share on other sites
GottaSki Mentor

Mo-

Yep .... the bad days that follow the good ones are the toughest for me too - esp when u can't figure out what got u.

Hang in there!

Karen-

:D

Link to comment
Share on other sites
Celiac Mindwarp Community Regular

Hey Mo

I have been gluten-free since September and am definitely struggling. I have more good days than bad now, but find the bad days hard too. I seem to be working out other food intolerances. I had a great month on whole foods, but doing reintroductions are tough. I think I just lost dairy for a while.

I am hanging on to the good days, and trying to get through the bad.

In my heart I know things are improving, and that there was no way I could go on as I was.

And I met all these guys :)

I think the thing that keeps us fighting is the thing that gets us frustrated.

Hang in there, celebrate the good days

Link to comment
Share on other sites
gatita Enthusiast

Oh yeah, bad days usually come right after telling the whole world I had a few good days!! I feel you.

I do Pepto, Immodium, probiotics (now that I can finally handle them) and cut back on carbs, which all seem to help.

Hang on, I hope you feel better soon.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Smylinacha Apprentice

I notice that raw veggies really bother me. I especially can't handle raw carrots.

Link to comment
Share on other sites
GFreeMO Proficient

Thanks everyone! I appreciate the help. I don't think that carrots are agreeing with me right now for some reason. I am also finding other foods that I can not tolerate right now. Healing from celiac is going to be a long process and at least I am on the right path now!

Thanks

Link to comment
Share on other sites
notkuroda Apprentice

Sorry to hear you're still having trouble MO. My wife is still having lots of problems as well. Today she saw a nurse practitioner that she really likes, and got a written perscription to work from home for the next four weeks. We're hoping this is the start of something good, attempts to work while healing have not been going well.

Link to comment
Share on other sites
GF Lover Rising Star

Mo. You need to settle in with your diagnosis and make it your new life. Double check all sources of cross contamination in your home. Double dipping jars, butters, etc. Check medications and any pet food. Throw out scratched cookware, wooden spoons and scratched plastic. Vacuum out your kitchen drawers and cupboards. If you have a pantry with shared food, clean it out and your stuff goes on top. New toaster and clean out microwave.

Then just eat naturally. If something disagrees with you? Write it down. See if a pattern develops. Take a good Probiotic and a digestive enzyme during eating. I take papyra enzymes. And relax. Take healthy snacks with out. Don't eat out for awhile.

Just some advice. This is a change in life, not just food

Good luck.

Colleen

Link to comment
Share on other sites
eers03 Explorer

A great food checker is a book called "Gluten-Free Grocery Shopping Guide". I learned about it while I was at Mayo. Its like a bible for most items that you will find in a store that we can have. If its not listed in the book, you probably should not purchase it.

I also keep an app on my iPhone called "Shopwell" and it allows me to quickly scan a barcode with my phone and it will tell me if there is gluten in it. Its good in a pinch but I still recommend cross referencing the items ingredient contents when one has more time.

Hang in there! I've had a few accidental "glutenings" and it royally ticked me off because I work so hard to keep it out of my diet that when I slip it makes it feel like all my energy has been wasted on that one occurence. Keep on!

Link to comment
Share on other sites
tarnalberry Community Regular

I started back on my gluten free diet after being diagnosed for good in December. I have had one really bad slip up a few weeks ago. I am seeing undigested food and mucus. Is there any way to speed up the healing process? I am not a very patient person. I guess I thought that once I went on the diet, my symptoms would all clear up quickly like antibiotics to an infection kind of thing.

I am soy and dairy free..very limited corn.

Thanks - MO

The intestinal reaction can be self-sustaining for up to two weeks. So, damage is still being done up to two weeks after you've gotten glutened. Then you need time to recover. I know it's hard to be patient, but that's really all you can do.

Link to comment
Share on other sites
peter/southland Newbie

Hi every1 I'm new here along with being told on new years eve that I have Celiac

I have gone Gluten free from that day on about 7weeks now the brain fog has

inproved, having a lot move good days but still a few bad ones.

I had other problems for about 2 years before I was told to go gluten free I'm

pretty shore it was a lot longer than that with other things going wrong with my

health, (Q) How long may it take for me to fell a lot better, months ? or years ?

Link to comment
Share on other sites
GottaSki Mentor

Welcome Peter!

I'd say hope for months and prepare for it to take longer. Many people feel much better within six months of diagnosis and removing gluten.

Make suure you read the "Newbie 101" thread and let us know if you have any questions.

Transition can be very tough, but the rewards are great. Hang iin there :)

Link to comment
Share on other sites
GFreeMO Proficient

Thanks everyone.

Tarnal, I had no idea about the damage still going on. It explains a lot b/c I usually don't start feeling better until about 2 weeks.

Thanks for the info on the guide books. I'll have to try those.

Notkuroda, I hope that your wife starts feeling better very soon! Hopefully being at home will help.

Colleen, Thanks for the tips and for the idea about writing things down. Popcorn is on my list now.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,056
    • Most Online (within 30 mins)
      7,748

    paulaglover
    Newest Member
    paulaglover
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
×
×
  • Create New...