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DutchGirl

Secret Deodorant

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I am newly diagnosed with celiac disease so I have been contacting all companies of my favorite product to make sure they are safe. This is the email I received back from Secret. What do you think? Would you use their product? ::

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com/ and http://celiac.org

Sharmand

Secret Team

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Gluten must be in the GI track for a Celiac reaction. Many choose gluten-free lotions and shampoos because it is easy to get them in the mouth. I don't worry about deodorant.

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I didn't think deodorant would be a big deal about gluten. So I was using Ban Sweet Surender which has barley in it. Big mistake. I was having vague symptoms for 2 and a half weeks some time after I had started using it. How could it be possible? I don't really know, but I got rid of the Ban and got better. Was it caused by the length of my hair? Not coming out completely during laundering? Was it just some virus?

Lesson learned. Don't bring gluten things into the household if you have an alternative safe product you can use.

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It's the aluminum in anti-perspirants that is a problem - for everyone, not just celiacs. I have heard there have been studies done that show women who apply anti-perspirant after shaving have a 30% higher incidence of breast cancer than women who don't.

I use milk of magnesia. A little messy to apply, and you have to let it dry before getting dressed, but old folks like me are used to that. It wasn't THAT long ago when deodorants came in liquid roll-on form.

The milk of magnesia absolutely KILLS all odor. It works better than anything on the market. I have even heard that people who have stinky feet can use it and it completely kills the odor for them too.

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Thanks for the tip Bartie! I know of the research showing the higher cancer risk, but I just don't know how to live longer ~if I had to smell bad. :D

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Thanks for the tip Bartie! I know of the research showing the higher cancer risk, but I just don't know how to live longer ~if I had to smell bad. :D

Quite easily. The stink will cause all the assassin ninjas to make a "phew!" noise as they sneak up on you, giving you the edge. It is surprising what smelling bad can do for you, and you can be sure to live a long and happy life free of assassin ninjas. People who wear deodorant never hear them coming. :ph34r:

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coffee spit on keyboard! :D I thought I heard some rustling earlier. :ph34r:

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Thanks everyone for your replies! And for making be laugh! I have been reading Elisabeth Hasselbeck's book and I'm feeling pretty overwhelmed because it seems that EVERY product I use contains gluten.

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Don't listen to Hasselbeck when it comes to Celiac....she's an empty headed celebrity who has been WRONG on many occasions with her supposed knowledge of this disease. Get a book by a real doctor or one recommended by a reputable celiac organization or a veteran celiac who has done their homework. Unless you have habits that will make it easy to ingest your products, or you have a topical wheat allergy, gluten cannot be absorbed through the skin. With time, you will learn all the in's and out's and be comfortable with this!

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Don't listen to Hasselbeck when it comes to Celiac....she's an empty headed celebrity who has been WRONG on many occasions with her supposed knowledge of this disease. Get a book by a real doctor or one recommended by a reputable celiac organization or a veteran celiac who has done their homework. Unless you have habits that will make it easy to ingest your products, or you have a topical wheat allergy, gluten cannot be absorbed through the skin. With time, you will learn all the in's and out's and be comfortable with this!

This is a very good point. I never checked to see if my deodorant is gluten free because I don't go around touching or licking my armpits. On the other hand, I do only use gluten free lotions and hair products. Not because I go around licking myself or am paranoid about absorbing it through my skin but because I am quite in the habit of touching my hair, face, etc and just don't want to take that sort of risk. Seems silly to me to try to break a totally benign habit when I can just not put gluten in my hair or on my body with lotion. Getting medical advice from random celebrities is probably not the best place to be getting it when there are so many reputable celiac specialists who are have books or websites with advice for free.

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I am open to book recommendations if anyone has some! That book was just recommended to me by a lot of people so I picked it up and have found it informative. I have DH on my scalp so I'm thinking that gluten free skin and hair products would be beneficial??!!

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I use baking soda for deodorant, after I had a really severe topical reaction to yet another deodorant a few years back. I have no idea what the ingredient was that set me off, but I don't want a repeat reaction. Now, much to my shock, the baking soda works MUCH BETTER than any deodorant I was using. I have this theory that the bottles of roll-on types or the solid waxy sticks pick up skin bacteria and store it, then it gets re applied to your skin, where it starts to grow and stink. I put the dry baking soda in another clean bottle and just sprinkle it on the damp skin and rub it so it is not clumped or thick. It does not look like it should work, but it does.

For shampoo, the Dr Bronner's is good. Dove is good, but the scent is too strong for my liking, it clashes with my other mild perfume. There are some other brands out there that have glutenfree versions, like Alaffia shea butter liquid soaps. I also have older hair that is color treated, so I tend to just rinse it daily, and save lathering it for when it needs it. Conditioner: I use diluted pure apple cider vinegar on my hair in a 7 parts water to 1 part vinegar solution, for a conditioner rinse or a spray on, after shampooing and rinsing. This corrects the pH closer to normal for hair, as soap is base and vinegar is acid. If my hair needs more, I then take a tiny amount of pure shea butter or coconut oil in my palm, and rub that into my hair thoroughly. Deep conditioning, put on the coconut oil first, more of it, then wash and rinse, respray with vinegar water.

I won't get into the whole "is this necessary or not argument" but I have very sensitive skin, and I was doing this before I cut my hair shorter, and I am a "hair twiddler" who plays with it absent mindedly, and this way I'm not touching a surface with a lot of conditioner with oats or wheat or soy and oil on it. I also don't want this stuff spreading all over my towels, pillowcases, etc, and I don't want the allergy- dog reacting if I give him something out of my hand. I am so thrilled that I finally found the class of ingredients I should not be putting on my scalp to make my skin blotch out and make my skin itch. I will do anything to reduce my overall exposure to gluten and oats. I do not care what the experts think of my routine. I was constantly having contact reaction skin problems when younger, from toiletries, and inspite of allergy testing, no one ever suggested to try to eliminate THIS from the soaps/lotions/makeup I used, it was all trial and error. Grrrrrrrrrrrrrrr. Nothing like trying to go somewhere and having a reaction to your eye makeup, ggggrrrr :angry::ph34r: grrrr, that makes you have tears running down your face, and you're in a rest room frantically trying to get it off. Went to mineral makeups, and that is no more. :)

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I use baking soda for deodorant, after I had a really severe topical reaction to yet another deodorant a few years back. I have no idea what the ingredient was that set me off, but I don't want a repeat reaction. Now, much to my shock, the baking soda works MUCH BETTER than any deodorant I was using. I have this theory that the bottles of roll-on types or the solid waxy sticks pick up skin bacteria and store it, then it gets re applied to your skin, where it starts to grow and stink. I put the dry baking soda in another clean bottle and just sprinkle it on the damp skin and rub it so it is not clumped or thick. It does not look like it should work, but it does.

For shampoo, the Dr Bronner's is good. Dove is good, but the scent is too strong for my liking, it clashes with my other mild perfume. There are some other brands out there that have glutenfree versions, like Alaffia shea butter liquid soaps. I also have older hair that is color treated, so I tend to just rinse it daily, and save lathering it for when it needs it. Conditioner: I use diluted pure apple cider vinegar on my hair in a 7 parts water to 1 part vinegar solution, for a conditioner rinse or a spray on, after shampooing and rinsing. This corrects the pH closer to normal for hair, as soap is base and vinegar is acid. If my hair needs more, I then take a tiny amount of pure shea butter or coconut oil in my palm, and rub that into my hair thoroughly. Deep conditioning, put on the coconut oil first, more of it, then wash and rinse, respray with vinegar water.

I won't get into the whole "is this necessary or not argument" but I have very sensitive skin, and I was doing this before I cut my hair shorter, and I am a "hair twiddler" who plays with it absent mindedly, and this way I'm not touching a surface with a lot of conditioner with oats or wheat or soy and oil on it. I also don't want this stuff spreading all over my towels, pillowcases, etc, and I don't want the allergy- dog reacting if I give him something out of my hand. I am so thrilled that I finally found the class of ingredients I should not be putting on my scalp to make my skin blotch out and make my skin itch. I will do anything to reduce my overall exposure to gluten and oats. I do not care what the experts think of my routine. I was constantly having contact reaction skin problems when younger, from toiletries, and inspite of allergy testing, no one ever suggested to try to eliminate THIS from the soaps/lotions/makeup I used, it was all trial and error. Grrrrrrrrrrrrrrr. Nothing like trying to go somewhere and having a reaction to your eye makeup, ggggrrrr :angry::ph34r: grrrr, that makes you have tears running down your face, and you're in a rest room frantically trying to get it off. Went to mineral makeups, and that is no more. :)

Thank you so much for all of the great information!! I bought some gluten free shampoo and conditioner today, it is Kirkland which is Costco's brand. I too am a hair twiddler, I have very long hair and DH on my scalp. I need to look into the mineral makeups as well, I have had an itchy rash between and in my eyebrows and now I know my makeup contains gluten. I would rather be safe than sorry with all of this, I have been SOOOOO sick for so long that it isn't worth it to me to chance it. Although it can make me a little bit crazy. I tend to be a huge germaphobe and now I am turning into a glutenaphobe, LOL.

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I use crystal deodorant-- it's just mineral salts. I like that there is no residue at all, no odor, is effective, and I smell like me :)

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Ugh! Deodorant...one more thing to check. I was using some Degree and have been feeling a little irritated in that area, never would have crossed my mind that my deodorant should be gluten-free.

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Another thing to consider - Are you using one of the disposable razors with the "moisturizing strip" on it, by any chance ? I absolutely loathe those things, if I use one and don't rewash and rinse the area really well, I come up with a huge, red welt on my underarms with some brands. I used one on my legs without rinsing once, after getting out of the shower, and it was even worse. :angry: :angry: :angry: :angry: All of these plastic products are being made overseas now, and we really have NO idea what is in them, when they glue "something" on there. Had to really search for plastic razors that don't have it.

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Another thing to consider - Are you using one of the disposable razors with the "moisturizing strip" on it, by any chance ? I absolutely loathe those things, if I use one and don't rewash and rinse the area really well, I come up with a huge, red welt on my underarms with some brands. I used one on my legs without rinsing once, after getting out of the shower, and it was even worse. :angry: :angry: :angry: :angry: All of these plastic products are being made overseas now, and we really have NO idea what is in them, when they glue "something" on there. Had to really search for plastic razors that don't have it.

Ugh! That's frustrating! I'll have to check my razors!

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You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

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You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

I've noticed some household solutions have scents on steroids. As in it takes 5 washings to get the smell out. If ever. So I don't necessarily think your washing machine is a cc machine. I think some scents are nuclear grade.

That said, depending on the machine (age, type) it can do it's job better or worse.

I wash our bathroom and kitchen towels on "sanitize" and it helps alleviate smells and bacteria. Gluten, I have no idea. It's a front loader, low water machine.

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This is a front loader and I wash whtes on sanitize too. That is the load I used the baby powder on. <_<

I was trying to see the difference of a "solid" the powder and "liquid" the Febreeze.

It's not like anyone chews on clothes or eats deodorant. :D If you do I think they will put you on a show called "My strange addiction." :ph34r:

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You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

That's a good point! Sheesh, if I'm not careful I might just make myself crazy with all of this cc talk. If someone in my house get's sick, I am a sanitizing maniac. I can see myself getting a bit obsessive about gluten. How does everyone keep from turning into a crazy person??

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Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

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I am open to book recommendations if anyone has some! That book was just recommended to me by a lot of people so I picked it up and have found it informative. I have DH on my scalp so I'm thinking that gluten free skin and hair products would be beneficial??!!

One of the best books to read is Celiac Disease: A Hidden Epidemic by Dr. Peter Green. He is one the leading researchers/physicians specializing in Celiac Disease and his advice is spot on. It's also a great tutorial on how this disease works and if you don't learn that, you'll never get the diet right. I highly recommend it.

One of the things talked about in this book is DH and how skin contact with gluten containing foods or products will not cause a DH outbreak. DH is the skin version of Celiac and works the same.....you have to ingest gluten for an outbreak to occur. However, most people with DH have very sensitive skin to begin with and other ingredients in products can irritate your skin or you may have an additional skin allergy to wheat or another ingredient in products. Not every outbreak or reaction is gluten based. You can choose to use gluten-free products if that is more comfortable for you but it may not be entirely necessary all of the time.

I could see where it might be easier to just stick to all gluten-free products if you do have DH.

Read the book....it's very interesting and you'll learn a lot of useful information.

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Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

I agree with the vaccine theory. I do think we need to immunize kids for the basic bad stuff like I was when I was a kid in the 60's BUT kids receive something in the neighborhood of 28 vaccines before they are 2 years old and that is plain insanity. The chicken pox one is a prime example. I think of these as immunity trainers.

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I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

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    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023