• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  • entries
  • comments
  • views

About this blog

Oh my word!

Entries in this blog


4 Months On ...

So results......Not celiac :D I was/am so relieved and knowing I havent potentially given it to my boys has brought peace to my life. So now I am now very gluten free, Im soo much better and 17lbs lighter! - the weight fell off 1lb a week over 16 weeks (last 1lb took 4 weeks) but really dont need to loose any more - now a healthy 135lbs and a size 10 although I don't really have many clothes that fit any more! ... My body feels like it has balanced itself now I have taken out my poisons (I can add weight/water retention to my previous list of symptoms) and lots of my symptoms have gone and others are improving - my underlying joint problem hasn't gone but it is a hell of a lot better :)planning on starting my supplements as soon as I finish nursing my baba but he isnt ready yet ... figure he will tell me when hes ready to stop
I have been occassionally glutened - my reactions are becoming more severe - but it helps to cement in my mind that this stuff makes me ill and completely takes away the craving for the glutenous gooey temptations surrounding me everyday. My diet is completely reassessed having my portions of oily fish, veg & fruit each day/week lots of salad and unprocessed foods - overall much happier - starting to look at baking but is hard to get the time with the boys... although I think they would love the gogodies at the other end and it would be nice to share with them.
Also developed other sensitivities and been on elimination diets ... raw tomato and sweet corn have been duly cut from my diet there is something else getting me but at the minute Im living with it as I have just returned to work after maternity leave and have my hands and head full....I will do it ... eventually...

Endoscopy Day

[b]Its over[/b] - not as bad as I thought - didnt end up having the sedative either so I could get out quicker and get home to my baba - Don't get me wrong it wasnt nice being able to feel the tube moving up and down my throat or being aware of this thing moving around inside my stomach but it made it a hell of a lot quicker. Dr. couldnt see anything other than that my tummy was distended (but I could have told him that!) and only one biopsy taken :/ had understood that he was taking more than one - oh well cant do anything about it now...got to wait a couple of weeks for the results but celiac or ncgi.....[b]This is the first day of the rest of my gluten free life! [/b]

Im so happy that my body can now start to heal itself, with my help - and that Im going to start to feel better - when I get my results Im going to write to my dr. (first time I had seen her) and thank her so much as her action will make a major difference to my heath (once this stuff is out of my body) Im going to give her a list of all of the other symptoms ive had too so that it may help her help others like she did me. And its so easy just stay away from gluten no major surgery or life long medication[b] Im so so thankful[/b].

So happy.
It will be with great joy this lunch time that I sink my teeth into my last ever glutenous doughnut - I only have 13 and a half hours left of eating this stuff that has made me sick for so many years I CANT WAIT!
Scopy tomorrow, not sure what to expect but looking forward to the first day of the rest of my life :)

.....just to add to my ever growing list of suspected gluten induced symptoms .... It doesnt happen very often but when it does it leaves me really disorientated and sick to my tummy .... generally its when i have been driving if you imagine (like in the movies) when somebody gets ran at and pushed backwards by the chest but really fast and everything around them rushes past ... then that - as I say maybe once or twice a year ... luckily I recover quickly :)
6th May: A beautiful warm day - had family round for a bbq (those willing to brave the dreaded chicken pox anyhow) and only 2 gluten eating days to go - hoorah - I have tried to enter other posts but my STUPID computer keeps deleting my entries! also I have 2 entries sat off with draft marked on them and dont know how to get it off anyhow.....I feel dreadful headachy, achy in general and tired, tired, tired. Im not sure if I have had a reaction to something Ive eaten today but my throat feels really tight - like somebody is crushing my windpipe - I have had this on and off (mostly off tbh) for a number of years - to the point (at its worst) where I wouldnt even let my partner touch my throat ... Im thinking that this could be a symptom???...everything else is!

My last failed entry: my sadness - I was (and still am) feeling a little low, unmotivated and a little defeated - even though I know that my gluten free days are litterally around the corner and my body will recover from this hell I have put it through ... The revolution that I may have had a surgical proceedure some time ago for no point what so ever has made me sad, sad and angry - nothing major - a laproscopy key hole - which left a (not so neat) scar under my tummy button, its purpose - to help find the source of pain on intercourse - when they found multiple small cysts on my ovaries but nothing to explain the pain I was shipped off to counselling ... because obviously it was (is) in my head - the counselling didnt work and like most of the reasons I have been to the Gp over the years I just stopped asking why and have lived with it - like the tiredness, I get a 'blood tests come back fine' from the Dr.'s receptionist and thats that - occassionally I get iron tablets - so more recently I just self prescribe multi vitamins! Also the knowledge that the dryness down there may also be attributed to this is maddening - I have lived with this for all of my adult life.

Im worried about going into hospital on Thursday - not for me but for my baby - he refuses to take bottles or tippee cups and is hit and miss taking puree'd foods - I know he wont starve over the course of a day but he wont be happy - he has to start taking formula soon though as im back to work in July ... God help my dad who has the daunting task of looking after him for the day (incidentally - the first day I have ever left him).... Thinking about it - maybe I am slightly anxious about going into hospital and maybe this is the reason for my throat feeling like its closing up ... hmmm

I really need to look into the best way to help my body heal after the last 3 weeks (even though I was only off gluten for a matter of weeks the first time) ... thats my goal to help tomorrow pass a little more quickly ....

Im pretty sure there was something else I was going on about in the last failed post ... but cant remember! .....


Health visitor seemed to have a knowledge of gluten intolerance/celiac and seems to think that babys 1 off mucous nappy is a reaction to my change in diet and not to worry about it... still not heard back from breast feeding association (although tbh this is the first time I have sat down today and not checkked emails)- fx that they think so too.
As a complete turn around to my normal toileting issues I now seem to be constipated however Im feeling less bad and more old 'normal' today although my nails are history (again) They were just starting to get nice ...big sigh ...
Its my birthday today - Im 35 - mid thirties, I welcome my approaching middle age especially as Im going to get a complete health boost when I stop eating yacky gluton as of 8th May and will feel like Im a teenager (well in my twenties) compared to how I am presently.
Only a quick one tonight getting an early night x
I was slightly annoyed with our beautful sunny day yesterday because of ....well, basically the sun ... it was too, well ... sunny! the light hurt my eyes...I drive around with my sun visor down (and have done for years) because the light is to bright - the computer back light is turned real low (DH keeps highering it up); and driving at night wow who needs drugs! the lights from street and headlights - its like looking at starbursts with rays of light shooting from the centre.

My DH will be pleased about the next one ....there is a reason for my low sex drive thats not just post baby/breast feeding/co-sleeping related - He now feels happy at the posibility of some action before I plan to stop feeding ..... in a year or so!

Physio appt - I showed some improvement ... but need to try harder! I dont physically have the time in the day when the baby is not attached to me! ... although she did show some appreciation for the reintroduction of gluten hindering my progress ... she continued to manipulate my back .... several rounds of paracetamol and ibuprofen later - it still hurts! .... or am I a wuss?!

Generally I'm feeling old 'normal', head in a fog, tired, lacking in concentration - unable to get to the end of a conversational point without asking - what was I talking about!?, no motivation,headachy etc etc etc ... ... yada yada .....

The days are passing though, and with every blog entry I'm a day closer to my gluten free, happy healthy, non farty days :)

Until tomorrow ... or sooner if I find more symptoms! lol! x
[b]21st April [/b]- So then, let me add weepy eyes to my seemingly neverending list of symptoms - previously endured with barely a second thought! - everything it seems, can be linked back to gluten. I look terrible the dark circles under my eyes seem to be darker than ever, although headache and heartburn not as bad. But head fog back cant keep simple things in my head and keep losing what im saying in conversation.
Im going to go visit the Dr's this week to get checked out for Diabetes (due to my increasing thirst) and see if they will cast an eye on the baba - (see below)
Today turned out not to be too bad have managed to keep home based, ODS seems to have had a miraculous recovery from the threatening claw of Chickenpox (although Im sure he will get it from the YDS) and has played nicely today we have even managed 2 poops on the big boy potty (and thank god - what ever he had is now on its way out ewwww). YDS however in 2 hours managed to fill (sorry for the poop talk btw) 4 nappies, the last with a lot of yellow mucousy gloop...Which led me onto my t'internet searches today ... Can gluten pass through breastmilk and cause reactions like gloopy poo - well it turns out yes it can but I have emailed abs to be sure - now I dont know what to do if it carries on - Im currently eating gluten (eewwwww) and will continue for the next 3 weeks for the endoscopy - so do i continue to eat it past the 3 weeks dispite how it makes me feel as the baby may develop the ability to deal with it eventually or do I need to cut it out ? and if I need to cut it out is it dangerous to continue for the next 3 weeks? .... my other dilema is that it may have been the milk I had on the glutonous cereal this morning so not really sure which set him off (although Im not sure the milk would have reached my breast supply for such a reaction and on reflection it has been 4 days since the reintroduction of gluten which would make more sense)...or am i making this whole thing far more complicated than it is :-/

im just killing some time with a sleepy baby on my knee looking for more symptoms and low and behold another one ... my average temperature is 97.59 (I know this because I used a computer programme to monitor my cycles when I was trying to get pregnant and have just logged back on to get it) ... Im always cold - I have 2 hotwater bottles in work and a foot cosy under my desk - Is there nothing that going gluten free wont help?! - Im so looking forward to my non surgerical total body overhaul in a few weeks!!!
[b]20th April [/b]- I have dragged myself through this beautiful spring day feeling horrendous, trying to comfort my two boys (it looks very much like they have chicken pox) whilst feeling like I just want to curl up under my duvet in the dark and sleep through the next 3 weeks - of course I would fail my gluten challenge if I did this ... So after a gluten free day I have just consumed my quota for the day and look forward to the misery of tomorrow with my poorly boys whilst my husband goes to work :(
So extreme thirst is another symptom hey ... I guess drinking 6 litres a day throughout my pregnancy would qualify me on that one - and even then waking through the night with terrible leg cramps being absolutely parched - its coming back - I havent let the bottle of water leave my side today - maybe Im trying to hydrate to avoid the please chop my head off headache whilst trying to beat back the heartburn with the overdose of perperminty sweetie things
I am on the whole a really positive person I see the good and the possibilities in most situations - but I feel like this one is really testing me - Im thankful that Im off on maternity leave and not having to try to cope with work as well as feeling like this - I feel blessed that I know what is causing my distress and ask for strength to get me through until the 9th...
Well ... where to start...

[b]15th March[/b] 2012 - After spending the previous 2 days in agony (Left hip and lower back) and being unable to walk I took myself off to the doctors to be refferred back to physio .... again -At Drs - Physio appointment secured (for 3 weeks time!!! - not happy considering I have a 2.5 yr old and very heavy 6 month baby) after mentioning as a side issue that I thought my milk sensitivity was getting worse the Dr. looked at me curiously ...'What milk sensitivity? and how is it getting worse?' ... And so it began
Whilst pregnant with my first child in 2010 I noticed that I couldnt tolerate milk very well or chinese food - I reduced my intake and that was that. Whilst pregnant with my baby elephant in 2012 I developed pelvic girdle pain and couldnt walk without crutches - luckily the physio therapy worked quickly this time), the milk sensitivity hit me like a brick violently vommitting, within 15/20 minutes of having any (with hindsight I had the same reaction to chinese food & pasta and pesto but thought it was the pesto!) I mentioned it to the GP who said it was probably a temporary milk sensitivity and that it should go away after the birth. I dutifully removed milk (and pasta) and felt substantially better losing the grey palor I had been sporting.
My son was born after 3 contractions (and 6 minute labour) on 20th October weighing a substantial 9lbs 2.5oz, the milk sensitivity seemed to have gone, however after about a week of having returned to my previous milk consumption the sensitivity was back - diarrohea or if I was lucky loose stools which seemed to be agravated by caffine. So 6 months later Im at the Dr's.... she said 'thats unusual' and asked some standard questions and continued 'I think you may have a problem with gluten' adamantly I shook my head 'nope it's definately milk' I insisted several times - we agreed for some bloods and a stool sample to be sent off.

[b]17th March [/b]- decided to have a gluten free day to see if this was a waste of time...

[b]18th March [/b]- noted considerable inprovement in tummmy didnt feel so stodgy and considerably less wind - Began to think that maybe there was something in it ... returned to eating gluten the next day for the blood tests ...

[b]20th March [/b]- Stool sample sent off (really didn't want to do this) - Blood test - cancelled as no staff

[b]21st March[/b] - Blood test 4 vials taken - arm feels really sore (and lasts for about 4 days)

[b]22nd March [/b]- Back at Dr's for anal exam (Did not relish the thought) Was nowhere as bad as I had expected and nothing untoward found tummy felt fine too. Discussed the day trial and the immediate benefits I felt and agreed to trial the diet as it cant hurt.

[b]29th March[/b] - Dr.s follow up appointment - [b]blood tests normal and celiac negative[/b]. So why was I feeling better if its not gluten? . So when the Dr asked me how I was ... I suddenly realised ... 'oh my word... I feel.... well actually I feel great thank you very much' ...
Noted that my hip/lower back feeling much better but still had the annoying pelvic girdle pain developed during 2nd pregnancy
Stools approaching normal consistency, and not foul smelling any more
Not bloated
Not having the sluggish sludge like feeling in my tummy
I had energy - I was normally always tired/exhausted (night feeds aside)
My whole body didnt ache - since the age of 17 I have had unexplained joint pain put down to viral arthritis and a questionable diagnosis of early onset osteoarthritis in my left hip which sporadically puts me on crutches for periods of 4 to 6 weeks ....
I was awake when I opened my eyes in the morning instead of walking around in a fog
Where was my headache? I hadnt had one for days! and no aura from threatening migraines
my hair wasnt dropping out as viciously
my nails were stronger
The dry scaly patches on my knuckles, elbows knees were almost like skin pretty much not cracked at all - my previously sand paper soles of my feet were reduced
my skin over all was much softer
The frequent windiness (very smelly) had gone
I started to feel the tips of my fingers and toes!
I could see without any of those stupid floaty things in my eyes
The pin prick burst capilaries around thhe tops of my legs and on my breasts had started to lessen
The rash behind my ear was healing!
The dark circles under my eyes were lightening
I could walk up both sets of stairs in my house without needing to sit down for a rest to catch my breath!

[b]Oh my word!! [/b]

Infact the only thing I could find to complain about was my chronic heartburn! (have had this for years it went away both times I was pregnant only to return again after the births)
I was Refered to a Gastroenterlogist...

[b][b]10th April [/b][/b]- Physio appointment - pretty poor show on my side - flexibilty high but very poor control given lots of exercises to do to strengthen muscles.

[b]17th April[/b] - Gastroenterologist appointment - nice man who wasted no time in putting a camera where it doesnt shine! he confirmed all normal down that end - discussed what I had found, he made me a day appointment for an endoscopy on 9th May as he thinks Im ceoliac...Only I have to eat gluten again until the appointment ...
1pm started to eat gluten - I felt like I was poisioning myself with each bite
2.30pm background headahe starts ...

[b]18th April [/b]- 8am - lose stinky stools, by1pm bloated and windy by 6pm absolutely exhausted - floaters in eyes and I feel like sludge. :( .... Decided to record how I feel in this blog 7.30pm breathless sat watching TV eyes feel heavy - really not wanting to eat another bite ... In reflection for the brief gluten free spell I havent felt so good since my early teens ... oh my word has this thing knawed away 20 odd years of my life? I havent been well for so long...

[b]Roll on 9th May whatever the results say 9th May will be the first day of the rest of my life! I will be a gluten free disciple and I will feel better![/b]

Was That This Too?

[b]19th April - [/b]Headache from hell, tummy is well and truely stodged feel like I have food sitting right up to my throat - How did I do it, how did I manage to battle through everyday feeling like this? Its a beautiful spring day, the sun is shining but Im exhausted cant motivate mysellf to go outside :( .....got me thinking was the dandruff, the itching and the mouth ulcers this too? I can feel ulcers starting in my mouth again and havent been able to stop scratching my head and wrists (normally its the tops of mmy legs)... 3 weeks of feeling this way just to get a diagnosis ... Is it worth it?